With FSHD the initial problem is retention of carbon dioxide. When this gets fairly severe then lowered oxygen saturation results. The correct way to set up...
Bemithylium (also: Bemitil, Bemithyl) is supposed to be effective in progressive muscular dystrophy. I was able to find some chemical companies selling pure...
Dave here and new to the group and my first posting. I was in the Myo trial in the cohort 4 level which was the highest dosage. It definately was cancelled due...
Did anyone hear about this? Could this development be good news for us in the long run? http://gmy.news.yahoo.com/v/10014435 [Non-text portions of this message...
I have a son who has spastic quad CP...I watched the video from her walk as an infant to her climbing the steps on the slide. CP is a very wide range in...
In the europe-grup I got this - I gess it transsleted from freanch so the english is like mine....."Hello, Two new publications on FSH, including one of DUX4...
Two publications, see below J.C pour AMIS FSH EUROPE The most important ... And the second 2: Neurol Sci. 2008 Sep;29 Suppl 2 238-40. ... De : kraut_chris21...
Hello everyone! It has been quite a while since I posted to the bulletin board, although I do check the postings regularly. I am doing some research on the...
Where is your pain? Does the chiropractor not remove it for awhile? Does the chiro not use electrical muscle stim to relax your muscles and to strengthen them?...
... Thankfully, my experience with my primary care physician is quite different than the norm here. I think my drooping shoulders began somewhere in high...
I had been asking doctors since my teen years, but none seemed to know what to do with me, and since my affects were mild, didn't prioritize it. I knew it was...
Dr. Kissel is at The Ohio State University. I also see him every 6 months so that he can keep track of my health. He is such a compassionate man. I do agree...
I don't know if my experience will be of any use seeing as I'm in Australia, but I'll share anyway. I practically had to beg my doctor over the course of two...
hi does anyone know what happens if your insurance company goes bankrupt and you are presently receiving disability payments from them>? thank you, eric...
Hi, I'll try to make this short. Ha! I feel like my story started when I was 43 when I fell to my knees stepping off a tour bus. From then on, my knees...
I have suspected for years that like my dad and my aunt, that I too had FSHD, but was not certain. I guess I was in denial, until my 16 year old twins began to...
Each State has an effective guaranty system in place that is triggered when an insurance company insolvency occurs. For more information, check the National...
Welcome, AnnMarie, You will find a wealth of info here, in the archives as well as current. There are folks worldwide who share their experiences! We all...
Carrie, Until recently my experiences have been very similar to yours. I believe it's because of the exposure & hard work of the Fsh Society in changing the...
The way I think of it is this: there is no pain in the muscle that has "died," but it puts strain on the surrounding muscles, who try to take over the job,...
Jeri, Your brother's doctor is playing with meds. A simple CPK test, had it been done before taking his prednisone, and CPK test now to see if levels of CPK...
We all know there IS pain involved in FSHD, but even at the FSH Conference in Coralville, Iowa this summer, the professionals, at least one of them anyway, got...
Rosemary, Thank you so much for the welcome. I appreciate your kindness and support. I will keep involved as it seems to be a great group of folks with a well...
Marti Thank you so much for your letter. I was beginning to feel alone in this experience and your letter really helped me to see that there are people dealing...
Hi everyone sorry I have not kept up, but I am finding myself going and coming from one doctor to another, I had another sleep study done, and it looks like...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
