New research on Pubmed This sounds like they are gettng a lot closer to exactly what is impeding muscle cell differentiation and alignment into the myotubes to...
like anything a person takes, individually, whether u experience energy or stmaina, totally depends on your mental and physical state. for sustained energy and...
Ed How did you assess sucess? Was it just that you did not soon after gain much more bulk and strength? I guess you did not get biopsies to see if there were...
Ed Did you have the blood test for FSHD? Have you ever had heart arrythmias like PVCs skipped beats or tachycardia ( racing heart)? ... after ... that ... to ...
Wayne -- I've tracked my weight, %fat, forearm, upper arm, and calf circumferences for years. I measure strength every three months -- back (cable pull), chest...
Ed, maybe you remember sending me your treatment protocols against FSHD. You told me the following: "Anticatabolics – One trial involving anti-cortisol...
I've been following your posts for a few months now, and I'm very impressed with how much information and support you share with each other. My husband was...
Wendy, I can say from personal experience, it's denial.. I didn't want to be looked at as "different" from others... Hope this helps!! Shadya Jones ... ...
Hi Wendy, the ADA rules apply to all employers - they need to accommodate for disabilities, he shouldn't be afraid to ask. Also in the way of proper attire for...
But decreased CPK also means that much less muscle mass left in the body for deterioration. Alla ... [Non-text portions of this message have been removed]...
Hello Wendy and welcome! My husband has the FSH and also wears a tie to church. He read the post and suggests that your husband try a collar size 1/2 to a...
A suggestion on shirts. Jos. A. Banks makes a nice 100% cotton dress shirt that is not tapered has ample length and broadness. The Travelers series shirts...
I agree ... well maybe not so much denial, but most of us don't want to be looked at as different ... except on those occasions when we want to! I also agree...
http://www.sciencedaily.com/releases/2008/09/080904102852.htm New Stem Cell Screening Tool Takes Adult Stem Cell Research To New Level ScienceDaily (Sep. 4,...
Frogspor, That was a 3 month trial that unfortunately resulted in no impovement in muscle size or strength. However, I continue to take acetyl l- carnitine,...
Alla, I don't believe less muscle mass was the cause. That trial was 8 years ago when my muscle size/strength had been stable for a year or more. At the end of...
On the subject of shirts Purchase a larger shirt. Have a tailor alter the shirst to fit your husbands needs. Use a clip on tie or asked a tailor to suggest or...
I am the mother of a 25 year old son with infantile onset FSH. Kyle has been living in California and is now here in New York. I am hoping to find other...
... I live in Ottawa,Canada and my 22 yr old daughter has FSHD. We also haven't met youger people personally so far. Let me know if you would like to exchange...
Welcome, Grace (?). Good o have you with us. Please come back often. what part of New York are you from? Paul, the geezer in Florida with two grown children...
Welcome, Darla. Good to have you with us even though you must be struggling through this very rough time with your recent diagnoses. If you will poke around...
We live in NJ, hope still meet your request, my daughter is 13 years old with infantile FSH too. ... From: gracejoy11951 <no_reply@yahoogroups.com> To:...
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