Ray, we went down to Festival Bay, a shopping mall about 4 or 5 miles north of your hotel in Orlando to exchange a shirt given to me by my son-in-law for...
Hi Rosemary, I apologise for not responding to you earlier. This is a great letter. I like the idea of encouraging people to do a little something in their...
Ray, I am glad to learn that you and Graeme made it home safely. We are still remembering with warmth that great afternoon we enjoyed with you at our FFF....
Woops, my error. I did a CTRL/C and a CRTL/V and thought the link would work. I should have said press the "page" button on the top, then go to page 40/41....
world.foodie wrote: See "Quest" magazine 2008 #4 pg 40/41 Well done. That's quite an accomplishment and honor for Huston, TX -- I'd missed the article. I'm...
yorambya wrote: "how can I get into the list of ... research of fshd?" There is a Registry of FSHD people (and relatives) maintained at the University of...
Yeah Steven, the hotel in Arlington also had only the king rooms as handicap rooms. When I discovered they I was going to pay more than Graeme (my business...
Ah yes, we Aussies are also aquainted with bangers and mash (sausages and mashed potato). It's good stuff. We are also quite fond of our cricket. I hope you...
Local council = municipal council or local government, the head of which is the mayor. It encompasses a group of about 6 suburbs in this area. I'm not exactly...
Last September after my son had seen the neuro at the MDA clinic, the neurologist wanted my husband and I both to have the DNA test done to help answer some...
For Europe, we need volunteers for trials and studies - contact (at) fshd-group.EU (www.FSHD-Group.eu) - www.Orphanet.org ... [Non-text portions of this...
I'm Shelly and I'm 19,I just had the surgery on June 16th with Romeo. I have until the end of July in this HORRIFYING gunslinger brace,I'm really excited to...
CRP (C-Reactive Protein) is a tricky one because it indicates inflammation but doesn't tell you where in the body it's happening. In many people it might...
shellymarilyn wrote about "adjusting the brace to my comfort" This might be a case where a good Physical Therapist, might be the one who can find the right...
Welcome Shelly. Good to have you with us. Please come back often. I suggest you contact Dr. Romeo's office and discuss your problems with them. He is the...
Well put, Amy. The Lovely Annabelle, my wife and an excellent cardiac care nurse, agrees with you. She would not worry too much about elevated CRP levels but...
my mom and i have contacted his office and was told to go back to where we bought the brace.we got instructions how to adjust it.But the whole thing is just...
HI BEV HERE: I had a very bad fall, and it got worse, I went to the or-tho doc and got a shot in my knee CAP, rotators kuf Monday, was in hospital twice. and...
Working with Prostate Cancer patients, I've heard too many times about patients who travel hundreds of miles to "one of the best" surgeons-- and then wound up...
Paul wrote: I should have said that this is a RARE side effect." After hearing rumors of "Statins & Muscle Damage" and getting NO specific information from any...
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