Hi all Browsing in Wikipedia, I found this. We are getting in the fourth quarter of 2007. Robert Quote: "Through 2007 Wyeth has been analyzing the results and...
Thats old news ... From: Ma Lade To: fshsociety@yahoogroups.com Sent: Monday, October 01, 2007 4:02 AM Subject: [fshsociety] (Some) news about MYO-29 Hi all ...
Forgive me for asking this but if you are now severe enough to warrant a neck brace and electric wheel chair and are first being evaluated - what was it that...
Oh, now that is a long story. I have been misdiagnosed with fibromyalgia, polymyositis, to name a couple and then just some thought I was just obese. When...
My husband and daughter and granddaughter have lived in AZ for the past 3 years. I received these false and reluctant diagnoses in WI. I don't know what this...
Hi all A very good article about gene therapy. Quote: "But the use of such new vectors "offers a great opportunity to maximize the advantages and minimize the...
Silver, are you sure your MN doctor's meaning was what you took it to be? He might simply have meant you were spared from dread before. It'd be a small tragedy...
As a mother of 19 year old FSHer I ask everybody to think before you post statements like that. We have a lot of young people here and try to keep them...
The lack of diagnosis and mis-diagnosis, to me is inexcusable and just short of mal-practice. Yet, as Silver suggests, I'm in some ways glad that my gimpy-arm...
I've been away from the Internet and the FSH Forum. Last month I took Amtrak (3 1/2-days across the north country to DC and back) to the Sept 15th March in...
I can see why all the checks and double checks are necessary though. I have a pointer finger that droops, and the MDA doctors studied it long and hard before...
Good luck on your journey Jim!! I had my own adventure in august when I went to Memphis for Elvis week. And I am NOT impressed with the transportation for...
http://news.yahoo.com/s/nm/20071002/sc_nm/longevity_sweets_dc ... Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers -...
Go for it! Enjoy your travels! We're planning a Med. trip next year (May). A chance of a life time! Robert K ... Twenty years from now, you will be more...
OMG Jim. What a fantastic adventure you have laid out for yourself. Happy Trails, indeed! Paul, the timid, who hopes you will stop at an internet cafe from ...
Ross, I don't expect my GP to diagnose "FSHD." However, I expect him to think "Muscular Disorder" (a much larger population), and refer me to a "muscle"...
Ross, you won't get a contrary opinion from me on this issue. I think you're right on the money. Ray :-) ... From: Ross To: fshsociety@yahoogroups.com Sent:...
Wow Mimi! What a punch. I had to laugh though at what you wrote, and still it is true. We must be completely honest about the ramifications of this disease to...
Yeah, Eva, it is not inexpensive to be disable in America including traveling therein. Also, one must be wary of claims made by service providers. It is a ...
Hi Ross, I would not be so inclined as to challenge your numbers. I do know that my daughter was mis-diagnosed when she was about 18 months old, and properly...
HI BEV HERE JIM: I AGREE better to get on with life, and fix the things that need to be fixed. Right now I need to lose weight fast, so Gastric Bye pass looms...
MIMI: BEV HERE:I have read allot of postings and think everyone has the right to speak their thoughts, if we don't know, how can others plan ahead, as much as...
How right you are Ross. Doctors don't see many of us but it's more likely that if they do they won't recognize the symptoms as FSH. Even the literature is old....
Amyb, I think your idea of being in a class as a teaching example is great. From the day after my Prostate Cancer diagnosis, I've been totally public with my...
Hi, I'm guessing that nerve testing is fairly standard (just a guess). My doc checked nerve conduction, then sent me for a c-spine MRI to see if there was any ...
Of course I'm sorry about your troubles, Mimi - to me, losing a job is about the most traumatic thing there is - and based on my own experience I want to...
... I'm sorry, but my comments have NOTHING to do with "FSHD," they are about "MD." "FSHD" is only one sub-type of several-dozen(?) sub-types of "Muscular ...
