One day my housework-challenged husband decided to wash his Sweat-shirt. Seconds after he stepped into the laundry room, he shouted to me, "What setting do I...
Dear Dan Perez, Do you have any news about the trials? Thanks Chris _____ Van: fshsociety@yahoogroups.com [mailto:fshsociety@yahoogroups.com] Namens ...
The data is still being analyzed by Wyeth. Results could be made known by Wyeth from this week to three months from now. Most likely by the 4th quarter of...
Here's a few more to add to your "blonde joke collection"..... ... Paul <Paullstann@...> wrote: One day my housework-challenged husband decided to wash his...
OMG that's MY husband. I tell him he has a Doctorate in Laundry and is entitled to use PHD after his name. It stands for "Piled Higher & Deeper" :-). ... ...
I haven't had a chance to read everythign FSH related (school st arts in 2 weeks -- 1 for me and I'm frantically preparing for that). So I'm curious as to...
R U sure it did not say "University of Alabama"? Tom W. ... From: Paul To: fshsociety@yahoogroups.com Sent: Tuesday, July 31, 2007 11:42 PM Subject:...
I am waiting for an appointment to see a Dr Hilton Jones at the John Radcliff Hospital in Oxford he is a neuromuscular specialist. Is there anyone in the UK...
Dr. Hilton-Jones reputation precedes him as being one of the finest muscular dystrophy doctors in the UK. He is well versed on FSHD. Others that are highly...
Hi there, I joined the forum because my friend just found out that she's pregnant. She has FSH MD, and I think it's hard for some people in her life to be as...
"my friend just found out that she's pregnant. She has FSH MD" First of all everyone here has been through a successful pregnancy, one way or the other, most...
Gosh Laura, what a great friend you are!!!! Congratulations on that alone! There have already been postings on this subject just not too long ago. You may be...
Hi Laura, I add my thanks to you for being so concerned about your friend! I just wanted to let you know my experience. I hadn't been officially diagnosed...
I dislike being negative but think there are a couple of things that I could see where some people would not be excited about a FSH pregnancy. One would be her...
Errrm, well having gleaned from your recent posts that you are thankfully not too badly affected ( you can still ride a bike if I recall correctly for starters...
Hi Margaret, I have seen David Hilton-Jones annually over the last 17 years, the last time was 23rd July 2007. He is well clued up on Fsh and works along side...
Hi All - On my last visit to my neurologist, she told me that unlike patients with say, multiple sclerosis, FSH dystrophy patients experience a different kind...
"And given the unpredictable nature of the shuffle when it comes to levels of severity, its perhaps best not to adopt such a cavalier attitude when considering...
Well I'm not 100% that I have FSH because my HMO is sort of one to drag its heels through a slow process but given my family history, I'd say there is a 3/4...
Thank you Daniel and Karl for the information. I was given a few specialist names to choose from and decided on Dr Hilton Jones as recommended by the family...
Kathy, there are two schools of thought on how our disease progresses. 1. The so called "Plateau" therory is that we go along on a realtive level line and...
I am still hoping this is just a fluke. Yesterday, my left leg seemed okay for the most part. Today, no so much. In addition to now having a bum left leg to...
HI KATHY: Bev here: most people do not reply when I give my two cents but tomorrow 8-6 is my birthday I will be 62, something terrible happened the day I was...
Yep, sadly contrary to the older text book descriptions FSH can affect almost every skeletal muscle going, just to varying degrees in individual cases. My...
We have an appointment scheduled at the MDA clinic here in San Antonio on Sept 4. Has anyone ever heard of and/or know anything about Carlayne Jackson? She...
I know the feelings you are experiencing; not exactly pain, but maybe like minor uncomfortable electrical shocks. I went through things like this for years,...
Hello. I participate off and on with the forum. I am 43 and have had two pregnancies while having FSH. One child has FSH, one does not. Pregnancy does affect...
Yep same with me... I can hold a plate in my left hand, but put it in my right hand and in about 1 minute it will fall in the floor. but I can't carry a bag...
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