Ooops, I didn't read myself correctly either. ( the perils of lack of sleep, this maths was attempted on a mere hour or two of shut eye the night before and a...
I tell them the same thing Jeri ... at least the bit about being born with it. The ages and life stories were a little different, and I'd say much less...
OMG, Steve. So sorry to learn of you sleep problems. I know from personal experience that even a couple of nights of short sleep can wreak havoc with my...
Jeri have you followed my posts? It seems to me no. Once again, I said that the FSHD disease COULD be triggered by enviromental factors. It is right and a fact...
LOL!!! Too funny Steve! I'm not catholic, and I have 6 children. Really.....................just too funny!!!! ... Angela ... the chances that I stated were...
Actually, if I recall my probability math correctly, the chances of all seven children of this fictitious family (assuming individual 50% probability)...
See my other post Ray..I woke up realising my mistake so corrected myself :-) Steve ... From: Ray Jordan To: fshsociety@yahoogroups.com Sent: Friday, June 01,...
Yes, I go through bouts of really bad insomnia, which coupled with other stressful issues can sometimes be a tiring time..like now. The antihistamine (...
Thank you, Paul, you're very sweet! You and all my friends here were worth hanging on for! Jeri ... anyone ... some ... wanting ... over ... what ... a...
Thanks Ray! ... born with it. The ages and life stories were a little different, and I'd say much less traumatic, for me. ... friend. ... anyone ... some ... ...
Steve, don't be a martyr. If some help is available, even though temporary, take it. Take the pills that will allow your body and mind to recover. Then you...
Personally, I find alternative medicine can be very helpful. As I am part of a Kung Fu school, many of the teachers and practicioners are certified in...
Hi, Frogspor I am the person who understand what you are talking about because I have very YOUNG FSHer at home and hate any kind of verdict and excuse to do...
Natalia, yes I think the initial mutiation could be a result of environmental factors, which is later passed down genetically. Thats my hypothese. Acupuncture...
I am glad to see this discussion about the effects or the causes of FSHD. Those of you who think that it is a mutation only affecting you are incorrect. I...
You make me glad that due to my hubby's infertility, we only managed to squeeze out ONE son, and he shows NO signs (in his late 20's) of being affected, and...
Hi, Mimi, you mentioned a lot of people we are indebted to. I wonder who is indebted to us? Isn't this true that situation around FSHD has not changed for...
Thanks for asking, Mimi. TLA is making slow progress almost every day. She is up and around and doing all her ADLs by herself. She is going out for PT twice...
As far as I understand, oxidative stress in muscle disease is not an unusual theory. According to the MDA website, oxidative stress has been identified in...
Well, first of all Wayne is not an authority on FSH ( nor is he a specialist in genetics ) so what Wayne had to say was just his personal opinion. Those who...
"I am grateful to those NMD specialists "out there" (NMD = NeuroMuscular Diseases) who spend their professional lives searching, researching the "clues," in...
"Well, first of all Wayne is not an authority on FSH ( nor is he a specialist in genetics ) so what Wayne had to say was just his personal opinion." ... It is...
... I have to say I'm deeply hurt by your saying "and certainly not acupuncture" after my martial arts teacher and acupuncturist spent a year treating me for ...
Frogspur, I agree with you that enviromental factors might be a prime culprit. Then again, most of evolution is caused by slight mutations over time. Many of...
I have been wondering where my hard copies of Quest were since I had not received any in a while. So I called my local MDA office to get put back on their...
A few years ago I brought my wife in her wheelchair to the MD clinic in Providence RI. After they had finished with the ususal paperworrk the cleck told her...
Some time ago someone (AmyB?) asked about a device to assist in getting food to one's mouth. I noted this device, The Arm Thing, advertised in Quest...
Aye, but that does not change the fact that each birth is the toss of a coin as to whether that child will inherit fshd. Amyb ... myself :-) ... of all seven...
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