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Messages 17270 - 17299 of 17299   Oldest  |  < Older  |  Newer >  |  Newest
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17270
Like the new look of the Society's website. http://www.fshsociety.org Couldn't see a link to the message board though....
Leslie
lfd2855
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Jul 15, 2008
2:58 pm
17271
Thank you Paul. I will check that out. Medicaid doesnt cover much and with him not working, we cant afford to pay for some services. qk...
Charlie Hogrell
quiverkeeper7
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Jul 15, 2008
6:04 pm
17272
oh how i wished we could have gone...to the FFF and Iowa as well.....
Charlie Hogrell
quiverkeeper7
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Jul 15, 2008
6:04 pm
17273
i noticed a picnic in Mamaroneck, NY, in Sept. Sound do-able for anyone?...
Charlie Hogrell
quiverkeeper7
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Jul 15, 2008
7:11 pm
17274
Everyone - here is a website that will give you a listing of all independent living centers in the USA. Just click on your state. ...
alauritzen@...
teddybear_68510
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Jul 15, 2008
7:11 pm
17275
For a few weeks I have been struggling with getting a good deep breath. Finally went to Doc and he did a series of tests and it looks like I have a paralyzed...
Jim
jandjskidmore
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Jul 15, 2008
10:25 pm
17276
I have had that on and off for years. I go to a chiropractor weekly. She adjusts my back after putting the electrical muscle stimulation pads on the back and...
wiggytweeks
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Jul 16, 2008
1:45 am
17277
Yes a very nice website - well done, lots of interesting current information. --jim...
Jim
halfonts
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Jul 16, 2008
2:28 pm
17278
Charlie, it's too bad you couldn't come (to either event). Getting together with some others who live with FSH may be just what both of you need. Ray :-) ... ...
Ray Jordan
rayjordanau
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Jul 16, 2008
2:28 pm
17279
I have difficult mailing/joining the FSH europe-group for registrate to participate researchs. The mail is coming back Any help? thank you nili...
yorambya
Offline
Jul 16, 2008
2:28 pm
17280
I have trouble getting a good deep breath in to cough, or even a good inhale, but it comes and goes, it's not all the time, sometimes it lasts for a week,...
qkahuna@...
qkahunaq
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Jul 16, 2008
2:29 pm
17281
Hi Try Manual Cabral at: groupefsh@... Robert ... Offrez un compte Flickr Pro à vos amis et à votre famille. http://www.flickr.com/gift/...
Ma Lade
bobdmop
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Jul 16, 2008
3:59 pm
17282
Ric you should really get a sleep study done where they measure your blood carbon dioxide levels all night long with a capnograph. Your swallowing and...
wiggytweeks
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Jul 16, 2008
8:14 pm
17283
HI Jim I too have been struggling getting a good deep breath lately. For me it started in may when the weather started to be warmer. At first I thought it ...
Eva Liz Moen
f4ncyf4ce
Online Now Send Email
Jul 16, 2008
10:07 pm
17284
Hi Can you tell me what adress you use to post your mail ? You can post also at fshd.group@... or groupefsh@free. fr J.C Meunier webmaster of the site...
Jean-Claude Meunier
jcmeunier2328
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Jul 17, 2008
2:57 pm
17285
1: J Med Genet. 2008 Jul 15. [Epub ahead of print]Alteration of expression of muscle-specific isoforms of the Fragile X Related Protein 1 (FXR1P) in...
wiggytweeks
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Jul 17, 2008
7:37 pm
17286
Eva, How do you get the corset on & off? My hands are so weak that I can't pull up pantyhose let alone a girdle or hook a corset. I'd love to wear something to...
amy_b90
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Jul 17, 2008
9:54 pm
17287
Hi all I have fsh and have had a scooter for the past 11 years! And now it's time for my dear green machine to go the way of scooter heaven, I'm needing a...
rootofjesee
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1:20 am
17288
FXR-1 is located on chromosome 12 at 12q13. It would be interesting to see if there are anomalies with this gene itself. Fragile X mental retardation [?]...
wiggytweeks
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1:22 am
17289
It would be great to know if these stress granules can be found in FSHD cells. I wrote onne of the researchers to day to ask if they had ever looked for them. ...
wiggytweeks
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1:22 am
17290
This paper says that FXR-1 is expressed in myogenesis where the FSHD researchers have found it to be deficient. Novel isoforms of the fragile X related protein...
wiggytweeks
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1:22 am
17291
Here, we recapitulate these in vitro data in vivo, demonstrating that methylation of FMRP affects its ability to bind to FXR1P and regulate the translation of...
wiggytweeks
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1:23 am
17292
If you have Medicare, you may be urged to go ahead and get an electric chair, which will be NO out of pocket expense to you. It seems they prefer we have the...
Rogawe
rogawe18
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1:17 pm
17293
Good to see you again, RofJ. For long distances or long times, I have used a Jazzy 1120 for eight years. It has suited MY purposes well but it does have some...
Paul
paul_from_fl...
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1:18 pm
17294
Well, it really depends on what you personally want and expect from the machine, so reviews of other peoples ( with differing expectations ) wheels might not...
villosa
tea_tagg
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1:20 pm
17295
Hi! I am also interested in this. Also - has anyone used/tried an iBot? Any comments? Thanks! ... From: rootofjesee <rootofjesee@...> To:...
cal_louwho
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1:20 pm
17296
Ric, Have you had a complete Pulmonary Function Test? See at http://www.nationaljewish.org/patient-info/progs/pps/tests/pulmonary- test.aspx I would say also...
luv2cruz49
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3:37 pm
17297
I just saw a commercial for the ibot for the first time. That bionic bot must cost mucho dineros. Amyb ... Any comments? ... heaven, ... my...
amy_b90
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4:55 pm
17298
It cost another $10K+ than this hunk of junk I got with a Jazzy chasis They list it on their web site http://www.ibotnow.com/specs/index.html only $26,100 At...
luv2cruz49
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7:59 pm
17299
I wouldn't be able to get it on by myself, I'm lucky to have my own personal assistants that works for me paid by the government here in Norway. I can take it...
Eva Liz Moen
f4ncyf4ce
Online Now Send Email
8:58 pm
Messages 17270 - 17299 of 17299   Oldest  |  < Older  |  Newer >  |  Newest
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