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Messages 21806 - 21835 of 21835   Oldest  |  < Older  |  Newer >  |  Newest
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21806
Thanks a million for all the replies...that helps tremendously. I have a meeting scheduled with the nurse and have corresponded with the counselor and...
leandraco
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Nov 15, 2009
4:55 pm
21807
Oh My 'O My Brad, If that would be the case than a lot of us would not have father's with fshd. My father was quite severely affected in his early teens. Yet...
amy_b90
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Nov 16, 2009
12:35 am
21808
Sorry Brad. You can't use FSHD as an excuse for marriage :) I've been w/ my husband, who has FSHD, for 10 years (married for 5). I think you are just...
Jamie Ormsbee
cooperdr7
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Nov 16, 2009
12:40 am
21809
My daughter was excused from school PE and they accepted her private sessions with PT that we had regularly at home for a credit, but I am sure there are many...
Alla Shevelyova
fshmother
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Nov 16, 2009
3:19 am
21810
Brad, the answer is yes, though it can be daunting putting yourself out there in the dating world. But you have to, if you want to meet someone. There may be...
born2limp
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Nov 16, 2009
4:56 pm
21811
A recent ECG showed I have a left artrial enlargement and a partial right bundle branch block. No further action is required just regular reviews. Just...
Margaret
magskelly24m
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Nov 16, 2009
4:59 pm
21812
Will do, Amy....
born2limp
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Nov 16, 2009
5:01 pm
21813
Hi, I found the plastic ankle support braces heinous and painful when I was a freshman in High School. But as a Sophomore I was able to drive a car because of...
paultwevans
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Nov 16, 2009
7:38 pm
21814
my son, 14, was also found to have both of these, however, he had a full investigation and they are not concerned with it at the moment, it requires regular...
barrelizabeth3@...
lizbethbarr
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Nov 16, 2009
9:31 pm
21815
Interesting stem cell preservation: http://www.dentaleconomics.com/display_article/369591/54/none/none/Colum/Interview-with-StemSave's-Dr.-Gregory-Chotkowski I...
Rebekah
home_basketb...
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Nov 17, 2009
1:01 am
21816
If the answer to my question is yes, then it is impossible to marry! ... I have absolutely no sense of humor. None. Especially after getting rejected. When...
bradford_kleemann
bradford_kle...
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Nov 17, 2009
12:23 pm
21817
I always thought my condition meant no one would want my genes. My uncle with FSHD never married and my mom never showed any symptoms....
bradford_kleemann
bradford_kle...
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Nov 17, 2009
12:24 pm
21818
I think they meant no- it,s not impossible to marry with fsh. Lol Sent via BlackBerry by AT&T ... From: "bradford_kleemann" <wb9whi@...> Date: Tue,...
mkdirin04@...
mkdirin04
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Nov 17, 2009
2:30 pm
21819
A great fundraiser to consider! Best, Dan Perez ++ http://www.ciachef.edu/restaurants/studentevents/20s/ The Roaring 20's: A Night of Wonderful Nonsense Date:...
fshsocietyforum
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Nov 17, 2009
2:30 pm
21820
I was wondering if anyone knows if anything can be done about the drooping down of the face around the mouth area? I was wondering about some of the...
susan.friede
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Nov 17, 2009
4:06 pm
21821
This may be of interest to some of us. Recently I had the privilege of attending a Salk Institute seminar about breathing & sleep disorders in neuromuscular...
amy_b90
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Nov 17, 2009
7:19 pm
21822
Gosh, wasn't there a heated thread a while agao about having kids and passing on FSH.  It could be I am old fashion but to deliberate having kids to me means...
mymajc
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Nov 17, 2009
8:30 pm
21823
Susan, I hear you. My eyes have drrped and sagged for years. For a long time I wore my oversize dark "aviator" glasses, because I liked their eye protection....
halfonts
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Nov 17, 2009
8:31 pm
21824
Hi Susan - For me, facial and neck/throat yoga exercises are very helpful for muscle tone and improved circulation to the areas. I started yoga exercise...
willow_mei
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Nov 17, 2009
8:33 pm
21825
Thank you for your reply, maybe it is due to fshd!!! ... From: barrelizabeth3@... To: fshsociety@yahoogroups.com Sent: Monday, November 16, 2009 9:16 PM ...
Margaret
magskelly24m
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Nov 18, 2009
1:50 pm
21826
I think that FSHD may be a thing that don´t help you to find a couple, but I have FSHD and I´ve been married for 9 years, my father with FHSD was married for...
jorge ricardo f
ricardofelsen
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Nov 18, 2009
4:39 pm
21827
While I was married most of a decade with of-and-on social relations; I'm by choice a confirmed bachelor. None of that had anything to do with FSH or any other...
halfonts
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Nov 18, 2009
6:53 pm
21828
My son(17) was diagnosed with FSH for 9 months ago and we had a long period of discussions, searching the web, and asking experts, to try and find a life...
michael.malmstrom
michael.malm...
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Nov 19, 2009
6:42 pm
21829
I wrote a first-person account of organizaing last month's successful Walk'N'Roll fundraiser on Cape Cod. It ran today in the Cape Cod Times. As promised,I'm...
born2limp
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Nov 19, 2009
9:26 pm
21830
Hi Michael, My husband and I have a son with FSH (as well as daughter) and when my son was in his late teens he had a scapular fixation surgery. The surgeon at...
maryellen mckee
sageplant
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Nov 20, 2009
4:35 am
21831
Hi Michael, I'm glad you found Ryan's web page - he is a fine example of what a person with the right mind-set can achieve. For someone like your son whose...
Ray Jordan
rayjordanau
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Nov 20, 2009
2:54 pm
21832
Hey Rich, That's a great article. It has the two most important ingredients - entertainment and education. I'm so glad the event went well and I wish you...
Ray Jordan
rayjordanau
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Nov 20, 2009
2:54 pm
21833
Thanks for your reply about help for the facial drooping. I have been checking around about yoga exercise for the face also I spoke to a dermatoligists office...
Susan Friede
susan.friede
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Nov 20, 2009
4:09 pm
21834
Even if your son takes it easier, his life plan can still include stoking his passion, as a coach, announcer, sportswriter, and on and on. No need ever to...
Pipes
fletcherbarton
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Nov 20, 2009
6:04 pm
21835
I always feel like a person has to be true to who they are. Personality, drive, goals, etc. I think he will figure out when he has overdone it and find a...
Rebekah Jones
home_basketb...
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Nov 20, 2009
9:30 pm
Messages 21806 - 21835 of 21835   Oldest  |  < Older  |  Newer >  |  Newest
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