Thanks a million for all the replies...that helps tremendously. I have a meeting scheduled with the nurse and have corresponded with the counselor and...
Oh My 'O My Brad, If that would be the case than a lot of us would not have father's with fshd. My father was quite severely affected in his early teens. Yet...
Sorry Brad. You can't use FSHD as an excuse for marriage :) I've been w/ my husband, who has FSHD, for 10 years (married for 5). I think you are just...
My daughter was excused from school PE and they accepted her private sessions with PT that we had regularly at home for a credit, but I am sure there are many...
Brad, the answer is yes, though it can be daunting putting yourself out there in the dating world. But you have to, if you want to meet someone. There may be...
A recent ECG showed I have a left artrial enlargement and a partial right bundle branch block. No further action is required just regular reviews. Just...
Hi, I found the plastic ankle support braces heinous and painful when I was a freshman in High School. But as a Sophomore I was able to drive a car because of...
my son, 14, was also found to have both of these, however, he had a full investigation and they are not concerned with it at the moment, it requires regular...
If the answer to my question is yes, then it is impossible to marry! ... I have absolutely no sense of humor. None. Especially after getting rejected. When...
A great fundraiser to consider! Best, Dan Perez ++ http://www.ciachef.edu/restaurants/studentevents/20s/ The Roaring 20's: A Night of Wonderful Nonsense Date:...
I was wondering if anyone knows if anything can be done about the drooping down of the face around the mouth area? I was wondering about some of the...
This may be of interest to some of us. Recently I had the privilege of attending a Salk Institute seminar about breathing & sleep disorders in neuromuscular...
Gosh, wasn't there a heated thread a while agao about having kids and passing on FSH. It could be I am old fashion but to deliberate having kids to me means...
Susan, I hear you. My eyes have drrped and sagged for years. For a long time I wore my oversize dark "aviator" glasses, because I liked their eye protection....
Hi Susan - For me, facial and neck/throat yoga exercises are very helpful for muscle tone and improved circulation to the areas. I started yoga exercise...
Thank you for your reply, maybe it is due to fshd!!! ... From: barrelizabeth3@... To: fshsociety@yahoogroups.com Sent: Monday, November 16, 2009 9:16 PM ...
I think that FSHD may be a thing that don´t help you to find a couple, but I have FSHD and I´ve been married for 9 years, my father with FHSD was married for...
While I was married most of a decade with of-and-on social relations; I'm by choice a confirmed bachelor. None of that had anything to do with FSH or any other...
My son(17) was diagnosed with FSH for 9 months ago and we had a long period of discussions, searching the web, and asking experts, to try and find a life...
I wrote a first-person account of organizaing last month's successful Walk'N'Roll fundraiser on Cape Cod. It ran today in the Cape Cod Times. As promised,I'm...
Hi Michael, My husband and I have a son with FSH (as well as daughter) and when my son was in his late teens he had a scapular fixation surgery. The surgeon at...
Hi Michael, I'm glad you found Ryan's web page - he is a fine example of what a person with the right mind-set can achieve. For someone like your son whose...
Hey Rich, That's a great article. It has the two most important ingredients - entertainment and education. I'm so glad the event went well and I wish you...
Thanks for your reply about help for the facial drooping. I have been checking around about yoga exercise for the face also I spoke to a dermatoligists office...
Even if your son takes it easier, his life plan can still include stoking his passion, as a coach, announcer, sportswriter, and on and on. No need ever to...
I always feel like a person has to be true to who they are. Personality, drive, goals, etc. I think he will figure out when he has overdone it and find a...
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