--- In fshsociety@yahoogroups.com, cheri rivera <crcjangel@y...> wrote:
>
> i went to DC in January with a diagnosis of Limb Girdle. The Drs at
NIH disagreed and did a blood test to find out ( 2 1/2 months later)
that it is FSHD. That is when I heard about the Wyeth studies. I have
also registered, but I don't know, even if accepted, if I can afford
the money and the time away from work to give th 40 weeks. It is only
my life ya know. I don't want to get my hopes up, but I pray that
this is it. Can you please keep me posted in you PROGRESS.


Welcome, Cheri. Sorry that you had to be diagnosed with our disease to
make it here, but it is good to have you with us. Please come back
often.

Do you live in Florida? If so, there are no testing sites here and
none in the southeast, I believe. :o(

Paul, the geezer in Florida, near the BIG MOUSE