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anything that helps??   Message List  
Reply | Forward Message #2242 of 21957 |
Re: anything that helps??



Uga_mer,

Greetings! Welcome to the group.

I am also 25 years old (male). I understand your frustration and
feelings of "helplessness". I must of repeated your quote, "I'm a 25
year old trapped in an 80-year old's body" a million times in my
head.

I think the best thing for us to do is to live as healthy as
possible and be patient. Wayne and many others can direct you
supplements and healthy diets that may slow your progression and
give you more energy.

Items commonly mentioned here include:
L-Carnitine
Flax seed
L-alpha lipoic acid
CoQ10
mix vitamin tablets

There are other vitamins/amino acids people have found to be
helpful. I recommend you search through the posts on these items for
dosage amounts and any other important information.

I personally take supplements I mentioned. I can't really say they
help, but at the very least it gives me a feeling like I am doing
something useful (a little sense of control I suppose).

Lastly, if you live in the United States, there are some clinical
trails on a new drug myostatin. Search previous posts on this
subject to find out if you can get involved.

Until later,

Zeb












Wed Mar 2, 2005 12:51 am

spujr
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Forward
Message #2242 of 21957 |
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Hi! I'm new to Yahoo and the message board. I'm a 25 year-old female and might have what some of you have considered in past postings as "severe" FSH. I was...
uga_mer
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Mar 1, 2005
11:32 pm

Uga_mer, Greetings! Welcome to the group. I am also 25 years old (male). I understand your frustration and feelings of "helplessness". I must of repeated your...
rehrig@...
spujr
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Mar 2, 2005
2:37 am

I too am using all the supplements mentioned by Zeb (although it's Acetyl-L-Carnitine for me, not plain L-Carnitine), but I am also using Vitamine K for bone...
Catherine Lheureux
fshdwarrior
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Mar 2, 2005
1:25 pm

... too ... Bon jour, Katherine: I have been taking Glucosamine Chondroitin for thumb pain for about two months now and it has helped only a little so far. So...
Paul
paul_from_fl...
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Mar 2, 2005
2:27 pm

Hi Paul, Methylsulfonylmethane (MSM) is an organic source of sulfur, one of the major building blocks of glycosaminoglycans. Glycosaminoglycans are key ...
robert kupps
quailflight
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Mar 2, 2005
4:47 pm

Apparently I forgot to mention my name! It's Meredith (and I went to UGA which is where the UGA_Mer is from). Anyhoo, thank you everyone for your advice!! I...
uga_mer
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Mar 2, 2005
5:38 pm

if you dig your fingerstips into the side of your thigh from your knee up to your bum and find a line along the side of your thigh where it is tender or...
wiggytweeks
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Mar 2, 2005
7:51 pm

I don't think it's sciatic pain because it's not down my back or thigh like I've heard a sciatic pain is supposed to be. If you took a straight line and it...
uga_mer
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Mar 2, 2005
9:00 pm

Maybe try with a wedge heel loafer not too high that will change your stance a bit. If i bend over too long I can get a similar pain in the buttocks. It may be...
wiggytweeks
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Mar 2, 2005
9:51 pm

Oh I get it with the softest of shoes and wearing my AFO's or with high heels...doesn't matter. I can't do small or wedge heels, I'm sure I'd trip. They have...
uga_mer
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Mar 2, 2005
10:32 pm

I have worn boots forever because they tend to support the ankle and keep the foot from dropping too much. When I was working they hid the AFO. Later my leg...
wiggytweeks
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Mar 3, 2005
1:20 am

... in ... I typed "carbon fiber afo" into google and came up with lots of hits including this one that is at least similar to the one we have discussed...
Paul
paul_from_fl...
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Mar 3, 2005
4:33 am

... to ... OK now it makes sense. I assume that UGA is Univeristy of Georgia where the hound-dogs thrive. :o) ... This is not right. My wife has worn AFOs...
Paul
paul_from_fl...
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Mar 2, 2005
9:50 pm

Paul, I am originally from Miami, so I can cheer for the Gators and Seminoles on occasion, as long as they're not playing the Bulldogs. Unfortunately my...
uga_mer
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Mar 2, 2005
10:32 pm

Meredith, ... I ... I ... my ... and ... people ... and ... that ... our ... <<< This is the first time I have posted on the Yahoo! version of the group here, ...
bryankop
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Mar 6, 2005
3:01 pm

... -Bryan in Switzerland Welcome Bryan. Good to have you with us. One minor correction to your presentation: FSHD is not a "rare" form of MD. It is the...
Paul
paul_from_fl...
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Mar 6, 2005
10:04 pm

Paul, Thanks for the note. You make a good distinction: FSHD is rare, not a rare form of MD. I agree with your advice for the most casual of contacts. As...
bryankop
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Mar 8, 2005
1:25 pm

... and plan to ... CA. I am from ... Ahaa! I think we have met before on this or more likely the previous BBS. If so, welcome back. Paul in and of Florida...
Paul
paul_from_fl...
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Mar 9, 2005
4:32 am

... Bryan, I loved your post and the advice you give. The Christmas letter is an excellent idea, but something I would never have thought of. I hope you'll ...
Kathy
kathybennett57
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Mar 6, 2005
6:00 pm

... Hey you guys, be careful or I may have to report you to the Gray Panthers. :o) Geezer Paul...
Paul
paul_from_fl...
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Mar 2, 2005
1:26 pm

... <ugamer01@h...> wrote: One thing I'd suggest is to get some orthotics for your foot drop. They are called AFOs. The reason I'm mentioning this is a visit...
annsky62
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Mar 2, 2005
1:24 pm

... both ... last ... active ... old's ... I've ... or ... clinic ... weights ... Welcome Uga. It is good to have you with us. Please come back often. I take...
Paul
paul_from_fl...
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Mar 2, 2005
1:25 pm

but I am also ... I did not realize this, Catherine. How much Vitamin K do you take? Thanks, Kathy in Florida The way I see it, if you want the rainbow, you...
Kathy
kathybennett57
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Mar 2, 2005
4:49 pm

Osteoporosis is a problem, because the muscles bring blood to the bones, and with it, all the good nutrients, calcium, etc., and if the muscles are gone, well,...
Catherine Lheureux
fshdwarrior
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Mar 2, 2005
5:33 pm

Wow, I never really considered that an issue, but you're right. ... the ... take? ... the...
uga_mer
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Mar 2, 2005
6:24 pm

Kathy Watch what kind of Vitamin K you take. Some types increase blood clotting. ... problem...
wiggytweeks
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Mar 2, 2005
7:49 pm
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