....I live in Houston, Texas and I am very happy with my MDA Neurologist.... I can appreciate that, but there is a reason for it. MDA targets its services...
Hi Willow, It is disappointing to read of your experience at the MDA clinic. I am just wondering if the clinic you attended was a dedicated FSHD clinic or if...
Hi Triecia, Your clinic sounds wonderful, and I can well understand the very high satisfaction on the part of your patients. Here, there are 220 MDA hospital...
Do you feel you get less care because you are an adult rather than a child/young adult? Alex who was dx a year ago has had stellar attention from the MD...
I never thought of that, but that may just be the case. And I know that my MDA neurologist specializes in a couple of the other MD's, so maybe FSHD isn't...
Hi JoAnn, I don't know the answer to that. However, I am thrilled that your son is receiving such good care - as it most certainly should be for him. I have...
I know this thread is old and long, but I will not overlook an opportunity to bash the MDA. All I will say is this: I am so thankful I am a military veteran...
Hi! I am so glad you posted your reply because you bring up some issues I have had for years with the VA. I was on active duty in the United States Navy in...
You have brought up some very interesting issues here. Being a Veteran that does not have FSHD (MY spouse does) but receiving my medical care from the VA...
Hi Tom! Thanks for your reply. I contacted the VA asking about my Pension/Compensation benefits and Ratings for Medical benefits. I have never written a...
Hi, Willow. You are taking me back to 1990. I was stationed at MCB Quantico, VA, so the trip to the Naval Hospital at Bethesda was about a one-hour drive....
Hi! Thank you for your reply. I haven't thought of Quantico in Virginia or Beaufort/Parris Island in South Carolina for a while now. In the late 1960's-mid...
My son retired in Army recently after 20 years service. I asked him this 4th July morning, telling him you were denied benefits as "pre-existing condition."...
Yikes! I found & read the J.L article. It reinforced my opinion. I was steaming when I read the recent issue of Quest magazine. There was absolutely no mention...
I know that I used to get a lot more time when I was a kid, I have stopped going to clinic because it is a waste of time, they can't do anything for me....
What state do you live in. There is an SS origram called Childrens Special Health Care Services. It picks up what primary insurance does not. There are...
Did you bother to call the MDA clinic coordinator and ask about the charges? I was billed by the hospital where the clinic is held once or twice, but as soon...
I noticed that also. I think we SHOULD feel slighted, especially if we are one of the largest groups, as we've been told! Just doesn't make sense to ignore...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Online Now 
Send Email
