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Office Visit To The MDA   Message List  
Reply | Forward Message #20542 of 21942 |
Re: Office Visit To The MDA

Hi! I am so glad you posted your reply because you bring up some issues I have
had for years with the VA. I was on active duty in the United States Navy in the
early 1970's when I was diagnosed (by the Navy) with FSH (stating that I was
"medically unfit for military service"). I was then strongly "encouraged" to
seperate from the Navy, and signed my Honorable Discharge papers under
considerable duress from the Medical Board that consisted of neurologists who
were senior officers. It was noted at that time and upheld since that time that
the FSH was EPTE (Existing Prior To Enlistment), and therefore, I am
disqualified for benefits -regardless that I passed the entrance physical exams
without any problems and successfully complete OCS in Newport,Rhode Island ( USN
Nurse Corps, LTJG). I still feel very badly that the Navy wanted me "gone" so
quickly once the diagnosis was made.

My most recent MDA Clinic visit was on June 12. Neither my physician nor the
physical therapist perfomed any type of FSH-related physcial exam that had
ALWAYS been anroutine and expected part of my previous Clinic visits (in a
different city) in order to track the progession of the FSH. I realized that my
appointment was over because my doctor and physical therapist left the exam room
while I waited for them to return - which they didn't. I believe it was
wonderful Triecia who suggested that I find out what I can expect from the MDA
Clinic visits. And so, I called the MDA coordinator, asking her this. She
suggested I call my doctor and ask him, however, he will be out of town for the
next several weeks.

So,now I am wondering if I can obtain physical therapy through the VA, and how
can I start the process of finding out. Do I have a right to benefits? Any
information would be greatly appreciated. Thanks!

Willow

--- In fshsociety@yahoogroups.com, "phillips1223" <pbhardy@...> wrote:
>
> I know this thread is old and long, but I will not overlook an opportunity to
bash the MDA. All I will say is this: I am so thankful I am a military veteran
who was diagnosed with muscular dystrophy while on active duty and given a
medical retirement. The VA gave me my wheelchair, the VA is my source when I
have a need. I am so thankful I am not dependent on the MDA for ANYTHING, and I
feel sorry for anyone who is.
>
> Read the article by Leslie Bennetts that was published in the September 1993
issue of Vanity Fair: "Jerry vs. The Kids." It will open your eyes. Dan and
Carol would never allow me to repeat the things Jerry Lewis was quoted as saying
about MDA's own patients in this article.
>





Tue Jun 30, 2009 7:37 pm

willow_mei
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Forward
Message #20542 of 21942 |
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I know this thread is old and long, but I will not overlook an opportunity to bash the MDA. All I will say is this: I am so thankful I am a military veteran...
phillips1223
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Jun 30, 2009
1:49 pm

Hi! I am so glad you posted your reply because you bring up some issues I have had for years with the VA. I was on active duty in the United States Navy in...
willow_mei
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Jun 30, 2009
9:14 pm

You have brought up some very interesting issues here. Being a Veteran that does not have FSHD (MY spouse does) but receiving my medical care from the VA...
tom
twp1939
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Jul 1, 2009
3:33 pm

Hi Tom! Thanks for your reply. I contacted the VA asking about my Pension/Compensation benefits and Ratings for Medical benefits. I have never written a...
willow_mei
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Jul 2, 2009
10:53 pm

Hi, Willow. You are taking me back to 1990. I was stationed at MCB Quantico, VA, so the trip to the Naval Hospital at Bethesda was about a one-hour drive....
phillips1223
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Jul 2, 2009
3:22 am

Hi! Thank you for your reply. I haven't thought of Quantico in Virginia or Beaufort/Parris Island in South Carolina for a while now. In the late 1960's-mid...
willow_mei
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Jul 2, 2009
10:54 pm

My son retired in Army recently after 20 years service. I asked him this 4th July morning, telling him you were denied benefits as "pre-existing condition."...
luv2cruz49
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Jul 4, 2009
11:05 pm

Hi! Thank you so much for all of your help! I'll go to each and will start calling Monday. Willow...
willow_mei
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Jul 5, 2009
3:41 am

Yikes! I found & read the J.L article. It reinforced my opinion. I was steaming when I read the recent issue of Quest magazine. There was absolutely no mention...
amy_b90
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Jul 1, 2009
5:48 pm

I know that I used to get a lot more time when I was a kid, I have stopped going to clinic because it is a waste of time, they can't do anything for me....
Selena
leenalu74
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Jun 15, 2009
2:06 am

What state do you live in.  There is an SS origram called Childrens Special Health Care Services.  It picks up what primary insurance does not. There are...
mymajc
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Jun 15, 2009
3:47 pm

Did you bother to call the MDA clinic coordinator and ask about the charges?  I was billed by the hospital where the clinic is held once or twice, but as soon...
Rogawe
rogawe18
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Jun 15, 2009
11:10 pm

I noticed that also.  I think we SHOULD feel slighted, especially if we are one of the largest groups, as we've been told!  Just doesn't make sense to ignore...
Rogawe
rogawe18
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Jul 1, 2009
11:26 pm
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