Hi!
Yesterday morning, I went to the MDA Clinic and was seen by my Neurologist and a
Physical Therapist, Occupational Therapist and the MDA Coordinator. I've been
going to Clinic since 1972 located in various cities depending on where I was
living at the time.

At yesterday's visit, everyone was very pleasant and congenial. Each one
listened closely, and appeared concerned with what I was saying. And, yet,
throughout it all, my FSH was only glanced at. Curiously, no one involved
themselves other than the OT who performed a hand strength test and my physician
who listened to my heart and carotids - and also checked me for foot-drop upon
my request. I have the feeling that my FSH has already been forgotten by them -
and just dismissed as part of their work day on June 12 2009 - until the next
appointment comes again.

Just before I left to go home, the MDA coordinator said to me, "YOU have to do
it." as though it hasn't been ME all along who has been managing and surviving
this disease for 37 years. I'm still caught in the tailspin of her comment that
I feel was misplaced and judgemental, and I wonder about her perception of what
life with FSH is all about. Perhaps, if those involved on the other side of FSH
had the insightfullness of those with FSH, there would be a more concerted
effort and a stronger sense of responsibility towards the remedy of FSH. Amen
to that!

Anyway, I am exhausted from yesterday. I think I'll pop in a good movie and
sleep through it. Thanks, pals, for listening.

Willow