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retinopathy   Message List  
Reply | Forward Message #11988 of 21957 |
Re: hearing issues

I have hearing loss.

However, all five of my siblings and first cousins are non-FSHers and
they all have hearing loss - so that would be familial, I believe,
and so could be mine.

Paul, who has the least bad hearing of all



--- In fshsociety@yahoogroups.com, "dwarpehoski" <dwarpehoski@...>
wrote:
>
> --- In fshsociety@yahoogroups.com, DNTDYCK@ wrote:
> >
> > What type of hearing loss is associated with fsh? any parents
with
> children
> > with hearing issues?
> >
> > Our daughter has fsh. she is 2 years old. She has bilateral
sensory
> neuro hearling loss. she has been fitted with hearing aids and is
> doing great. A sensory neuro hearing loss is what is part of fsh
and
> also retinal eye problems.
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>





Tue Apr 3, 2007 12:19 pm

paul_from_fl...
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Forward
Message #11988 of 21957 |
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Hi. I'm 52 years old and I've been diagnosed with FSH for 14 years. I've also had retinal bleeding with no known cause regrettaby now in both eyes. One study...
Robert Gillette
robert_gille...
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Jan 5, 2005
1:54 pm

... in ... I have the classical eye and ear FSH defects. In the case of the eye my blood vessels at the back of the eye are large and tortuous. The new FSH...
wiggytweeks
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Jan 6, 2005
4:31 am

hi Wayne I saw my opthalmologist as it was just starting to bleed and the only treatment I have now until my fluorescenin test is aspirin daily. My first ...
robert gillette
robert_gille...
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Jan 6, 2005
2:26 pm

In my 50 years of experience with FSH and doctors as well as reading the latest medical texts I can only say that it takes forever for the top neurologists to...
wiggytweeks
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Jan 6, 2005
9:12 pm

On reflection it almost seems like they are treating you for a clot. The blood vessels in my eyes are quite large and there is a lot of tortuosity. They bend...
wiggytweeks
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Jan 6, 2005
11:55 pm

... it remains an uphill battle to educate the medical ... Wayne, I suffer from mild hearing loss which may be more age and family related (both siblings and...
paullstann
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Jan 15, 2005
3:29 am

It does occur in some FSHers. It is typically in the 4000 to 8000 HZ range which is the higher end of our normal range. Interestingly enough I think I...
wiggytweeks
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Jan 16, 2005
3:52 am

What type of hearing loss is associated with fsh? any parents with children with hearing issues? [Non-text portions of this message have been removed]...
DNTDYCK@...
mommywithplenty
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Mar 29, 2007
10:44 pm

I have some hearing loss. It is actually a problem of not being able to distinguish or separate sounds when in a noisy situation. It all becomes a hummmmm....
maryannzag
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Mar 30, 2007
1:28 am

--I was told by my Neurologist with MDA that high Pitched hearing lost is associated with FSH- I have been tested I and have a High pitched hearing loss ...
xxr3378
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Mar 30, 2007
1:29 am

Yes, we have a child with hearing issues. Its all in one ear and out the other.... Oh-you mean hearing issues attributable to FSH! eh....uh...never mind. ...
twwinfishers
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Mar 30, 2007
1:29 am

... children ... neuro hearling loss. she has been fitted with hearing aids and is doing great. A sensory neuro hearing loss is what is part of fsh and also...
dwarpehoski
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Mar 30, 2007
1:56 am

I have hearing loss. However, all five of my siblings and first cousins are non-FSHers and they all have hearing loss - so that would be familial, I believe, ...
Paul
paul_from_fl...
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Apr 3, 2007
1:53 pm
robert gillette
robert_gille...
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Jan 6, 2005
2:26 pm

... [Non-text portions of this message have been removed]...
robert gillette
robert_gille...
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Jan 6, 2005
2:27 pm

hi wayne, could you please tell me the name of the FSHD book, and where you got it too. thanx, vickie [Non-text portions of this message have been removed]...
tuzwoo@...
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Jan 8, 2005
4:04 am

... got it too. ... Here is a link to the book info. It is the best source of inflrmayion to date for FSH. Previously FSH only received a chapters coverage in ...
wiggytweeks
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Jan 8, 2005
2:33 pm

wayne ,thank you so much for the info i am sending it to my husband to get it! thank you again! vickie [Non-text portions of this message have been removed]...
tuzwoo@...
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Jan 8, 2005
4:51 pm
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