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FSH Society testifies before Congress for more funding for FSHD   Message List  
Reply | Forward Message #11979 of 21949 |
Re: [fshsociety] Re: FSH Society testifies before Congress for more funding for FSHD

Thanks Don, nice photos.

Ray :-)


----- Original Message -----
From: Don B
To: fshsociety@yahoogroups.com
Sent: Monday, April 02, 2007 1:22 AM
Subject: Re: [fshsociety] Re: FSH Society testifies before Congress for more
funding for FSHD


I've posted to Flickr some photos of Dan's Testimony.

http://www.flickr.com/photos/theflyer/sets/72157600031042172/

Don

On 3/28/07, world.foodie <world.foodie@...> wrote:
>
> Thank You
> Thank You
> Thank YOU Daniel
> for all you do!!!!!
>
> WorldFoodie
>
> --- In fshsociety@yahoogroups.com <fshsociety%40yahoogroups.com>,
> "fshsocietyforum"
> <fshsocietyforum@...> wrote:
> >
> > March 28, 2007
> >
> > In ongoing efforts to obtain more funding for FSHD we
> submitted
> > written and oral testimony before Congress yesterday. The testimony
> > was well received and it was excellent to have Don Burke and his
> folks
> > attending.
> >
> > For those of you who live in Wisconsin please contact Rep.
> Obey and
> > make it a point to tell him about FSHD.
> >
> > Please see testimonies at:
> >
> >
> www.fshsociety.org/fsh/WrittenTestimony_USHouse_LHHSE_2007_27March2007
> .htm
> >
> >
> www.fshsociety.org/fsh/OralTestimony_USHouse_LHHSE_2007_27March2007.ht
> m
> >
> > Please continue to contact your Representatives to have them
> sign the
> > Ed Markey dear colleague letter and point them to the FSHD testimony
> > as well. Ever additional contact matters!
> >
> > Best,
> >
> > Daniel Paul Perez
> > FSH Society, Inc.
> >
>
>
>

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]




Mon Apr 2, 2007 10:59 am

rayjordanau
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Message #11979 of 21949 |
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March 28, 2007 In ongoing efforts to obtain more funding for FSHD we submitted written and oral testimony before Congress yesterday. The testimony was well...
fshsocietyforum
Offline Send Email
Mar 29, 2007
1:30 pm

Thanks Don, nice photos. Ray :-) ... From: Don B To: fshsociety@yahoogroups.com Sent: Monday, April 02, 2007 1:22 AM Subject: Re: [fshsociety] Re: FSH Society...
Ray Jordan
rayjordanau
Offline Send Email
Apr 2, 2007
2:00 pm

Thanks for the photos and its been over 10 years since I saw Dan-He still has all his hair. And more than likely we would not have this site, this testimony...
tom
twp1939
Offline Send Email
Apr 2, 2007
6:26 pm
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