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Description
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The FSH Society, Incorporated, 501(c)(3) non-profit volunteer health organization for facioscapulohumeral muscular dystrophy (FSHD) issues. The Society assists individuals, physicians, professionals interested in FSHD. The Society provides information, education, advocacy to individuals and professionals, research fellowships and research grants. Website (http://www.fshsociety.org), brochures, newsletters FSH Watch, scientific conferences, patient networks/support groups.
The FSH Society Forum Yahoo Bulletin Board is for Facioscapulohumeral dystrophy (FSHD) information and education with the intent that: (1) the people who visit this site find support rather than any form of attack, insult or threat. (2) all content of the FSH Society web site reflects the mission with which we have been charged and for which we are held accountable by our Board and membership, and (3) the public has a positive perception of what the FSH Society represents.
We do not feel it is necessary to publish a policy that explains what constitutes an "offensive message" or the procedure to delete them from the bulletin board.
In general, our FSHD network has observed etiquette and respect for one another within this broad context and rarely has the Society felt it necessary to remove a posting or restrict access.
The FSH Society, Inc. is charged with the mission of serving as a national and international clearinghouse for facioscapulohumeral muscular dystrophy.
Contact:
The Facioscapulohumeral (FSH) Society, Incorporated, BBRI R353, 64 Grove Street, Watertown, MA 02472, USA.
Phone: (617) 658-7878
Fax: (617) 658-7879
Email: info@fshsociety.org
Website: http://www.fshsociety.org
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Re: Office Visit To The MD
EL x. A Sent from my iPhone On Jun 14, 2009, at 5:59 PM, "xxr3378" <xxr3378@...> wrote: been managing and surviving this disease for 37 years. I'm
Posted - Sat Jul 4, 2009 4:06 pm
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Tanya
tashofler
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In Michigan again.
We left Florida a week ago Sunday and motored to western New York where we stayed with our very dear cousins for four days. Then we crossed Canada to Michigan
Posted - Fri Jul 3, 2009 3:29 am
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Paul
paul_from_fl...
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Re: Office Visit To The MDA
Hi! Thank you for your reply. I haven't thought of Quantico in Virginia or Beaufort/Parris Island in South Carolina for a while now. In the late 1960's-mid
Posted - Thu Jul 2, 2009 10:54 pm
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willow_mei
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Re: Office Visit To The MDA
Hi Tom! Thanks for your reply. I contacted the VA asking about my Pension/Compensation benefits and Ratings for Medical benefits. I have never written a
Posted - Thu Jul 2, 2009 10:53 pm
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willow_mei
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Re: Office Visit To The MD
....I live in Houston, Texas and I am very happy with my MDA Neurologist.... I can appreciate that, but there is a reason for it. MDA targets its services
Posted - Thu Jul 2, 2009 3:23 am
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phillips1223
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Group Email Addresses
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