Search the web
Sign In
New User? Sign Up
fshsociety · FSHSocietyYahooGroup

Group Information

? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Visit the Groups blog for the latest Yahoo! Groups information

Home

 

Activity within 7 days:

Description

The FSH Society, Incorporated, 501(c)(3) non-profit volunteer health organization for facioscapulohumeral muscular dystrophy (FSHD) issues. The Society assists individuals, physicians, professionals interested in FSHD. The Society provides information, education, advocacy to individuals and professionals, research fellowships and research grants. Website (http://www.fshsociety.org), brochures, newsletters FSH Watch, scientific conferences, patient networks/support groups.

The FSH Society Forum Yahoo Bulletin Board is for Facioscapulohumeral dystrophy (FSHD) information and education with the intent that: (1) the people who visit this site find support rather than any form of attack, insult or threat. (2) all content of the FSH Society web site reflects the mission with which we have been charged and for which we are held accountable by our Board and membership, and (3) the public has a positive perception of what the FSH Society represents.

We do not feel it is necessary to publish a policy that explains what constitutes an "offensive message" or the procedure to delete them from the bulletin board.

In general, our FSHD network has observed etiquette and respect for one another within this broad context and rarely has the Society felt it necessary to remove a posting or restrict access.

The FSH Society, Inc. is charged with the mission of serving as a national and international clearinghouse for facioscapulohumeral muscular dystrophy.

Contact:

The Facioscapulohumeral (FSH) Society, Incorporated, BBRI R353, 64 Grove Street, Watertown, MA 02472, USA.
Phone: (617) 658-7878
Fax: (617) 658-7879
Email: info@fshsociety.org
Website: http://www.fshsociety.org

Most Recent Messages

  (View All)
(Group by Topic)
Advanced
   Start Topic
Re: Fsh and fysical training
I always feel like a person has to be true to who they are. Personality, drive, goals, etc. I think he will figure out when he has overdone it and find a
Posted - Fri Nov 20, 2009 9:30 pm
Rebekah Jones
home_basketb...
Offline Offline
Send Email Send Email
Re: Fsh and fysical training
Even if your son takes it easier, his life plan can still include stoking his passion, as a coach, announcer, sportswriter, and on and on. No need ever to
Posted - Fri Nov 20, 2009 6:04 pm
Pipes
fletcherbarton
Offline Offline
Send Email Send Email
Facial drooping
Thanks for your reply about help for the facial drooping. I have been checking around about yoga exercise for the face also I spoke to a dermatoligists office
Posted - Fri Nov 20, 2009 4:09 pm
Susan Friede
susan.friede
Offline Offline
Send Email Send Email
Re: link to first-person "how to" story on organizing Walk'N'Roll fu
Hey Rich, That's a great article. It has the two most important ingredients - entertainment and education. I'm so glad the event went well and I wish you
Posted - Fri Nov 20, 2009 2:54 pm
Ray Jordan
rayjordanau
Offline Offline
Send Email Send Email
Re: Fsh and fysical training
Hi Michael, I'm glad you found Ryan's web page - he is a fine example of what a person with the right mind-set can achieve. For someone like your son whose
Posted - Fri Nov 20, 2009 2:54 pm
Ray Jordan
rayjordanau
Offline Offline
Send Email Send Email
Add fshsociety to your personalized My Yahoo! page Add to My Yahoo! XML What's This?

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 461 406 283 203 383 239 271 410 200 323 89
2008 313 310 607 571 366 162 200 136 149 136 415 384
2007 574 414 498 271 272 368 381 315 232 300 244 464
2006 1177 406 520 449 183 258 222 293 307 618 535 534
2005 1082 636 544 276 297 401 203 165 132 204 208 325
2004 120 390
What is Yahoo! Answers?

Yahoo! Answers, a new Yahoo! community, is a question and answer exchange where the world gathers to share what they know...and make each other's day. People can ask questions on any topic, and help others out by answering their questions.

What is Yahoo! Answers?

Yahoo! Answers, a new Yahoo! community, is a question and answer exchange where the world gathers to share what they know...and make each other's day. People can ask questions on any topic, and help others out by answering their questions.

Questions in Health & Beauty > Diseases & Conditions

  • Questions are currently unavailable.

Want to help answer other questions? Go to Yahoo! Answers

Group Email Addresses


Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help