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#860 From: "crystallawless" <crystallawless@...>
Date: Thu Nov 1, 2007 11:46 pm
Subject: New Member Intro
crystallawless
Offline Offline
Send Email Send Email
 
Hello everyone,

I've been trying to find the time all week to get my new member intro
out.  We've been having a bad week...yeast is back.  I know you all
can relate.

My name is Crystal and I have a 2yo DS who has had extreme food
intolerances since birth.  I nursed him for the first five months.
He had lots of gurgling the entire time.  Diagnoised w/ dairy allergy
with blood in stool at 6 week.  Removed all dairy, casein, whey,
etc., from diet.  He did better but still problems.  Removed wheat,
better, but still problems.  At almost 5 months, I got the flu, went
on a Z-Pak and was assured that it would not affect him.  Of course I
believed the Dr. who was very wrong.  Blood in his stool the next
morning.  Put him on Alimentum while I finished meds.  He did much
better on the Alimentum but did continue to have some problems,
especially when tried to introduce foods.  Rice cereal almost killed
him.  Orange foods too.  I think many other foods but couldn't figure
it all out.  Around 1yo, we put him on EleCare only for almost 8
months because it hurt him less than anything we knew of at the
time.  Aug. 1, 2007 started SCD.  Unfortunatley he is almost entirely
meat with homemade pearsauce.  Since all this, I've research BOD,
LOD, etc. and not sure SCD is right for us.  Probably need SCD with
LOD.  Have tried to introduce many veggies with no luck.  I know
pears are feeding the yeast.  Got 1st OAT back last week.  High
ammonia levels, high oxalates, high sulfur and lots of other things
high and low that I don't understand.  We are really confused as to
what to feed this child since with "think" he has problems with
amines, carotenoids, phenols/salicylates, sulfur, luteins and who
knows what else.  I worked with Kelly Barnhill of Thoughtful for
several months trying to get vit, supp, prob, EFA, etc. introduced
but almost everything bothers him.  Dr. Krigsman diagnoised small
bowel immotility and chronic colitis.  As of today, DS:

- Eats:  bison, hamburger, turkey and homemade pearsauce
- Probiotic:  SCD safe GI Pro Health probiotic at only 1/2 cap a
day.  Any more seems to really bother him.
- Calcium with vit D
- Compounded Pentasa

We have our first appt. with Dr. Rossignol on the 12th and hopefully
he will get us on track.

Thanks for reading my story and I'm looking forward to learning from
all of you!

Thanks to Suzanne for getting the group back together for us newbies.

Hi Wyndie!  I saw your name a few times.

Thank you,
Crystal Lawless
Myrtle Beach, SC

#859 From: "Wyndie" <mileski5@...>
Date: Wed Oct 31, 2007 6:01 pm
Subject: Re: Thank you!
wyndie_mileski
Offline Offline
Send Email Send Email
 
Oh, I'm glad you got the epi!!  That makes ME feel so much better.
LOL

Potato chips in general cause my children to be yeasty and my middle
one to get eczema.  I had to cut out potatoes completely.

I'm sorry if you mentioned and I just don't remember, but are you
doing any special diet yet?  I see you avoid additives already,
anything else?  To me it sounds like your little guy has yeast -- is
that something you are working on?

I don't use aveeno just b/c of the gluten factor.  I know others
have used it with good results, but I never even tried it.  Baking
soda is cheaper and gluten-free.  LOL

Keep in mind that with allergy testing, it's not 100%.  My middle
child had 15 pricks to things I knew she was allergic to, and every
one came back negative.  Her IgG (delayed) test was much more
informative than her IgE and RAST were.

With him getting hives where his clothes touch him, that makes me
think he's allergic to the cloth material itself or the detergent.
Maybe try switching to another "free" detergent and see if that
helps any...

My two oldest sound like they were very much like your son.  Extreme
sensitivity to sooo many things, hyper skin reactions to being
touched...  While they still have many food allergies, they are no
longer that hyper sensitive!  So there's hope.  :)

Wyndie

--- In foodallergyautism@yahoogroups.com, "tn21284" <tn21284@...>
wrote:
>
> Thanks to all of you for responding so quickly, and for all of
your
> ideas.  It is so nice to know that I can talk to you all and you
> understand since you've been there.  Today I called the nurse
> practitioner we see a lot (who has a son with autism) and she
wrote
> me the prescription for the Epipen.  I agree with you all, that is
> most important.  I also got an appt. next Thursday with another
> allergist she recommended, so we will have more testing.  The two
> products that he reacted to are Lays Sour Cream and Onion Potato
> Chips, and Frito-Lay French Onion Dip.  They are so similar, since
> they are made by the same company and share many ingredients.  I
> wonder if it is the MSG or onion powder, or some other additive.
I
> am trying to keep his diet "wholesome" and simple because all
those
> preservatives and additives cause nothing but trouble!  Before
this,
> I tried to keep him on a healthy diet, allowing limited snack
foods
> such as these, but now I know I have to cut that stuff out!  He is
> such a picky eater, though (no surprise, huh?)  The weird thing is
> that the time his face and lips swelled up one morning, it was at
> least 12 hours after he had anything to eat.  Are such delayed
> reactions common?  That was with the chips.  With the dip, he
broke
> out in hives within 10-15 minutes, and he had been clear for about
a
> week before.  As far as environmental concerns, we did put a new
> carpet in his room, but it was back in July, and he started having
> problems in Sept. (unless it was again a delayed reaction).  I
wash
> our clothes in fragrance-free detergent, no fabric softener.  I
have
> his mattress and pillow encased to protect against dust mites (I
> have that allergy and our bed is encased also).  I think such a
> strong reaction as he had was from something he ingested, though.
> Tonight he was so itchy.  Does the baking soda bath work better
than
> an Aveeno bath?  Aveeno baths haven't made much of a difference.
He
> has had some intermittent eczema in the past (my husband and I do,
> too), plus I remember when he was a baby (he's 5 yrs. old now)
that
> he had a bad rash where his diaper seam was when we tried a
certain
> diaper.  I'm trying to think if there is anything else
significant.
> He has had joint pain, and a few times, he said his throat hurt
> (that made me wonder about the swelling).  I have been keeping
track
> of what he eats and when he reacts.  Even though he tested
negative
> for chocolate, he still seems to react after that, so I think he
> still may be allergic to that.  He tends to get hives and rashes
> where the seams of his clothing are (waist, neck) or the back of
his
> thighs when he sits for a while.  He gets rashes and hives when he
> exercises or gets hot.  If I scratch his back, he will develop a
big
> welt that lasts at least 15-20 minutes.  Two nights ago, the palms
> of his hands were red and very itchy.  He has this exagerrated
> histamine reaction.  I have to take him off the Allegra this
weekend
> so he will be ready for testing Thursday.  I hope he will be
okay.
> They said he can stay on the Singulair.  By the way, the front
cover
> of Newsweek this week has a report on the rise of food allergies
in
> children. Sorry this was so long!
>
> Trista
> P.S. I live in Virginia.  I know one of you asked that, and I was
> trying to remember what everyone said! :-)
>

#858 From: "Christel King" <christelking1@...>
Date: Wed Oct 31, 2007 4:39 am
Subject: Re: Thank you!
missvermont94
Offline Offline
Send Email Send Email
 
you do realize that those items mentioned aren't gfcf right??  also signular also is not gf unless you are using the grandular packets
----- Original Message -----
From: tn21284
Sent: Wednesday, October 31, 2007 12:14 AM
Subject: [foodallergyautism] Thank you!

Thanks to all of you for responding so quickly, and for all of your
ideas. It is so nice to know that I can talk to you all and you
understand since you've been there. Today I called the nurse
practitioner we see a lot (who has a son with autism) and she wrote
me the prescription for the Epipen. I agree with you all, that is
most important. I also got an appt. next Thursday with another
allergist she recommended, so we will have more testing. The two
products that he reacted to are Lays Sour Cream and Onion Potato
Chips, and Frito-Lay French Onion Dip. They are so similar, since
they are made by the same company and share many ingredients. I
wonder if it is the MSG or onion powder, or some other additive. I
am trying to keep his diet "wholesome" and simple because all those
preservatives and additives cause nothing but trouble! Before this,
I tried to keep him on a healthy diet, allowing limited snack foods
such as these, but now I know I have to cut that stuff out! He is
such a picky eater, though (no surprise, huh?) The weird thing is
that the time his face and lips swelled up one morning, it was at
least 12 hours after he had anything to eat. Are such delayed
reactions common? That was with the chips. With the dip, he broke
out in hives within 10-15 minutes, and he had been clear for about a
week before. As far as environmental concerns, we did put a new
carpet in his room, but it was back in July, and he started having
problems in Sept. (unless it was again a delayed reaction). I wash
our clothes in fragrance-free detergent, no fabric softener. I have
his mattress and pillow encased to protect against dust mites (I
have that allergy and our bed is encased also). I think such a
strong reaction as he had was from something he ingested, though.
Tonight he was so itchy. Does the baking soda bath work better than
an Aveeno bath? Aveeno baths haven't made much of a difference. He
has had some intermittent eczema in the past (my husband and I do,
too), plus I remember when he was a baby (he's 5 yrs. old now) that
he had a bad rash where his diaper seam was when we tried a certain
diaper. I'm trying to think if there is anything else significant.
He has had joint pain, and a few times, he said his throat hurt
(that made me wonder about the swelling). I have been keeping track
of what he eats and when he reacts. Even though he tested negative
for chocolate, he still seems to react after that, so I think he
still may be allergic to that. He tends to get hives and rashes
where the seams of his clothing are (waist, neck) or the back of his
thighs when he sits for a while. He gets rashes and hives when he
exercises or gets hot. If I scratch his back, he will develop a big
welt that lasts at least 15-20 minutes. Two nights ago, the palms
of his hands were red and very itchy. He has this exagerrated
histamine reaction. I have to take him off the Allegra this weekend
so he will be ready for testing Thursday. I hope he will be okay.
They said he can stay on the Singulair. By the way, the front cover
of Newsweek this week has a report on the rise of food allergies in
children. Sorry this was so long!

Trista
P.S. I live in Virginia. I know one of you asked that, and I was
trying to remember what everyone said! :-)


No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.503 / Virus Database: 269.15.13/1099 - Release Date: 10/30/2007 10:06 AM

#857 From: "Amy Dillon" <rogeramydillon@...>
Date: Wed Oct 31, 2007 4:36 am
Subject: Re: Thank you!
zackaryella
Offline Offline
Send Email Send Email
 
I wouldn't do an Aveeno baths until you get allergy testing done.  It has oats in it that contain gluten.  Before we knew what was causing my sons eczema I was giving him Aveeno baths thinking that was helping him!  Come to find out he was allergic to oats!  So much for that!  I would try the baking soda or just plain warm water!  If you do any types of shampoos or soaps wait until the end of the bath and then completely rinse him with clear water.  That has helped my son's skin a ton!
 
I hope this helps!  Keep in mind when dealing with food allergies that if you suspect that for example that he is allergic to milk.  Try and only take the milk products out of his diet and see if the reactions continue.  If you take a bunch of changes at once it would be anyone's guess as to what he is reacting to.  Make sure you know the "code names" for milk that they use in products.  When I started researching everything that my son was allergic to I was amazed at what foods had hidden allergens!  I would never have thought that Chili might have peanut butter in it!  I have found that the FAAN website  www.foodallergy.org was great at helping with things like that!
 
Again I hope this helps!  I have always found that groups like these are really helpful!
 
Amy
 
 
 
----- Original Message -----
From: tn21284
Sent: Tuesday, October 30, 2007 9:14 PM
Subject: [foodallergyautism] Thank you!

Thanks to all of you for responding so quickly, and for all of your
ideas. It is so nice to know that I can talk to you all and you
understand since you've been there. Today I called the nurse
practitioner we see a lot (who has a son with autism) and she wrote
me the prescription for the Epipen. I agree with you all, that is
most important. I also got an appt. next Thursday with another
allergist she recommended, so we will have more testing. The two
products that he reacted to are Lays Sour Cream and Onion Potato
Chips, and Frito-Lay French Onion Dip. They are so similar, since
they are made by the same company and share many ingredients. I
wonder if it is the MSG or onion powder, or some other additive. I
am trying to keep his diet "wholesome" and simple because all those
preservatives and additives cause nothing but trouble! Before this,
I tried to keep him on a healthy diet, allowing limited snack foods
such as these, but now I know I have to cut that stuff out! He is
such a picky eater, though (no surprise, huh?) The weird thing is
that the time his face and lips swelled up one morning, it was at
least 12 hours after he had anything to eat. Are such delayed
reactions common? That was with the chips. With the dip, he broke
out in hives within 10-15 minutes, and he had been clear for about a
week before. As far as environmental concerns, we did put a new
carpet in his room, but it was back in July, and he started having
problems in Sept. (unless it was again a delayed reaction). I wash
our clothes in fragrance-free detergent, no fabric softener. I have
his mattress and pillow encased to protect against dust mites (I
have that allergy and our bed is encased also). I think such a
strong reaction as he had was from something he ingested, though.
Tonight he was so itchy. Does the baking soda bath work better than
an Aveeno bath? Aveeno baths haven't made much of a difference. He
has had some intermittent eczema in the past (my husband and I do,
too), plus I remember when he was a baby (he's 5 yrs. old now) that
he had a bad rash where his diaper seam was when we tried a certain
diaper. I'm trying to think if there is anything else significant.
He has had joint pain, and a few times, he said his throat hurt
(that made me wonder about the swelling). I have been keeping track
of what he eats and when he reacts. Even though he tested negative
for chocolate, he still seems to react after that, so I think he
still may be allergic to that. He tends to get hives and rashes
where the seams of his clothing are (waist, neck) or the back of his
thighs when he sits for a while. He gets rashes and hives when he
exercises or gets hot. If I scratch his back, he will develop a big
welt that lasts at least 15-20 minutes. Two nights ago, the palms
of his hands were red and very itchy. He has this exagerrated
histamine reaction. I have to take him off the Allegra this weekend
so he will be ready for testing Thursday. I hope he will be okay.
They said he can stay on the Singulair. By the way, the front cover
of Newsweek this week has a report on the rise of food allergies in
children. Sorry this was so long!

Trista
P.S. I live in Virginia. I know one of you asked that, and I was
trying to remember what everyone said! :-)


#856 From: "tn21284" <tn21284@...>
Date: Wed Oct 31, 2007 4:14 am
Subject: Thank you!
tn21284
Offline Offline
Send Email Send Email
 
Thanks to all of you for responding so quickly, and for all of your
ideas.  It is so nice to know that I can talk to you all and you
understand since you've been there.  Today I called the nurse
practitioner we see a lot (who has a son with autism) and she wrote
me the prescription for the Epipen.  I agree with you all, that is
most important.  I also got an appt. next Thursday with another
allergist she recommended, so we will have more testing.  The two
products that he reacted to are Lays Sour Cream and Onion Potato
Chips, and Frito-Lay French Onion Dip.  They are so similar, since
they are made by the same company and share many ingredients.  I
wonder if it is the MSG or onion powder, or some other additive.  I
am trying to keep his diet "wholesome" and simple because all those
preservatives and additives cause nothing but trouble!  Before this,
I tried to keep him on a healthy diet, allowing limited snack foods
such as these, but now I know I have to cut that stuff out!  He is
such a picky eater, though (no surprise, huh?)  The weird thing is
that the time his face and lips swelled up one morning, it was at
least 12 hours after he had anything to eat.  Are such delayed
reactions common?  That was with the chips.  With the dip, he broke
out in hives within 10-15 minutes, and he had been clear for about a
week before.  As far as environmental concerns, we did put a new
carpet in his room, but it was back in July, and he started having
problems in Sept. (unless it was again a delayed reaction).  I wash
our clothes in fragrance-free detergent, no fabric softener.  I have
his mattress and pillow encased to protect against dust mites (I
have that allergy and our bed is encased also).  I think such a
strong reaction as he had was from something he ingested, though.
Tonight he was so itchy.  Does the baking soda bath work better than
an Aveeno bath?  Aveeno baths haven't made much of a difference.  He
has had some intermittent eczema in the past (my husband and I do,
too), plus I remember when he was a baby (he's 5 yrs. old now) that
he had a bad rash where his diaper seam was when we tried a certain
diaper.  I'm trying to think if there is anything else significant.
He has had joint pain, and a few times, he said his throat hurt
(that made me wonder about the swelling).  I have been keeping track
of what he eats and when he reacts.  Even though he tested negative
for chocolate, he still seems to react after that, so I think he
still may be allergic to that.  He tends to get hives and rashes
where the seams of his clothing are (waist, neck) or the back of his
thighs when he sits for a while.  He gets rashes and hives when he
exercises or gets hot.  If I scratch his back, he will develop a big
welt that lasts at least 15-20 minutes.  Two nights ago, the palms
of his hands were red and very itchy.  He has this exagerrated
histamine reaction.  I have to take him off the Allegra this weekend
so he will be ready for testing Thursday.  I hope he will be okay.
They said he can stay on the Singulair.  By the way, the front cover
of Newsweek this week has a report on the rise of food allergies in
children. Sorry this was so long!

Trista
P.S. I live in Virginia.  I know one of you asked that, and I was
trying to remember what everyone said! :-)

#855 From: "Wyndie" <mileski5@...>
Date: Tue Oct 30, 2007 1:26 pm
Subject: Re: Welcome New Members
wyndie_mileski
Offline Offline
Send Email Send Email
 
Hi Trista and welcome :)

I have three children, two previously with autism, all three mercury
poisoned and all three with severe food allergies.  Two of them have
anaphylactic reactions to touching their food allergens.  Let me
encourage you, get to your doc TODAY and get an epipen!!  You need
one right now.  I'm not trying to be alarmist, but you NEED an
epipen.  Facial swelling is indicative of what's going on inside -
which is more swelling.  If your son's windpipe, esophogas, etc
swell up, he will need that pen.  Your docs have already shown they
will brush this off, so go park your butt in their office and tell
them you will not leave without an rx for an epi.  LOL  That sounds
so funny, but I'm not kidding.  It's your child, not theirs and you
need an epi.

We don't leave our house without 4 epipens in hand.  My middle child
has reactions so severe that she always needs two (and generally the
EMT's have to administer another) so we have a bag of them we carry
everywhere.  :)

So many others have given you good advice, but I would also
encourage you to try to stay as "whole foods" as possible.  My
children didn't start improving until I took all processed foods out
of their diet.  It's a real pain at the beginning but when you see
the improvements, it's worth it.

I found testing to be less than accurate.  In fact, two years ago my
middle child was tested for foods I KNOW she is allergic to, and it
all came back false negative.  I have found the best way to see what
causes problems is to observe and journal.  I journaled for 1 1/2
years with all three kids to figure out who was allergic to what.
Not so fun but soooo worth it when I could figure out apples caused
itching in child #2, gluten caused screaming in child #1,  sugar
caused rashes in child #3 and so on.

For the itching, baking soda baths really helped my second child
with this.  I give epsom salt baths regularly but the salt really
hurt her eczema so I used baking soda.  Her skin healed up nicely
with this and now she gets baking soda AND espom in her baths.  She
does not tolerate baking soda directly on her skin but in the bath
it's very soothing.

I hope that helps some.  My time is limited right now but like
everyone else, I am happy to help you figure out what is causing
your little one such problems.  But my number one concern for you
right now is that you have no epi.  Please get one today!

Wyndie

--- In foodallergyautism@yahoogroups.com, "tn21284" <tn21284@...>
wrote:
>
> Thank you for the welcome!  My 5 yr. old son has mild autism and
has
> recently been having food allergies.  We have tested for 15 foods
so
> far, and I'm sure we will test for more.  He has been having hives
> the last 6 weeks or so.  About 3 weeks ago, we took him to the ER
> because he woke up with a really swollen face and lips.  One side
of
> his face drooped down and his face and lips were puffed way out.
> They gave him a cortisone shot which made it go down.  He has had
> minor swelling around his eyes since then.  He also has had joint
> pain.  About 5 days ago, his feet hurt so bad he couldn't walk.
He
> was on Zyrtec and Zantac but it didn't really help much, so we
> switched to Allegra two days ago and have added Singulair, because
> now he is coughing a lot and may have asthma.  (I have the
coughing
> form of asthma and get allergy shots each week, plus my husband
has
> allergies, so it runs in the family).  I'm still waiting for the
> meds to kick in.  We have found that he is allergic to Lays Sour
> Cream and Onion Potato Chips and Frito-Lay French Onion Dip,
because
> he had strong reactions after eating them.  I don't know if it is
> MSG or something else in them that is causing it.  I am trying to
> avoid heavily-processed food that has a lot of additives in it.
It
> is frustrating, because he asked me today why he is still itching,
> and I don't have the answer.  The pediatrician said he rarely
sends
> kids to an allergist because it's hard to find what the culprit
is,
> but there has to be something causing it.  I have an appt. for my
> son with my allergist, but that isn't until February because he is
> so booked.  We do have an appt. with a DAN doctor in December, and
I
> am looking forward to that.  We did get him to a nurse
practitioner
> at an allergy practice two weeks ago who did limited testing, but
I
> wasn't too thrilled with that practice.  They wanted to put him on
> 21 days of antibiotics, with no signs of infection.  (His labs
later
> came out fine).  I'm sure you all have been through similar
> frustration.  I just feel that we are going from one doctor to
> another.  Any tips you all have would be greatly appreciated!
>
> Trista
>

#854 From: "j_kalis" <j_kalis@...>
Date: Tue Oct 30, 2007 4:27 am
Subject: Re: Welcome New Members
j_kalis
Offline Offline
Send Email Send Email
 
Hi Trista!

I know Suzanne and Amy have already given you some ideas, but I just
thought I would chime in here.  What you are experiencing is,
unfortunately, a very familiar story to many of us on this list.  I
have a few thoughts.  First, you are on the right track getting him
into an allergist and a DAN! doctor.  What part of the country do
you live in?  Please know that, as Suzanne similarly stated,
allergists are pretty limited in what they can offer as far as
treatment.  What you want out of your allergy appointment is
testing.  You want the skin prick testing followed up by RAST
testing.  You also want immunoglobulin levels.  This will be helpful
to your DAN! doctor, who can also order those tests.  Have you read
Ken Bock's new book: Healing the New Childhood Epidemics?  Do you
have your child on any supplements?  What is his diet like?

Thanks,
Jenny
--- In foodallergyautism@yahoogroups.com, "tn21284" <tn21284@...>
wrote:
>
> Thank you for the welcome!  My 5 yr. old son has mild autism and
has
> recently been having food allergies.  We have tested for 15 foods
so
> far, and I'm sure we will test for more.  He has been having hives
> the last 6 weeks or so.  About 3 weeks ago, we took him to the ER
> because he woke up with a really swollen face and lips.  One side
of
> his face drooped down and his face and lips were puffed way out.
> They gave him a cortisone shot which made it go down.  He has had
> minor swelling around his eyes since then.  He also has had joint
> pain.  About 5 days ago, his feet hurt so bad he couldn't walk.
He
> was on Zyrtec and Zantac but it didn't really help much, so we
> switched to Allegra two days ago and have added Singulair, because
> now he is coughing a lot and may have asthma.  (I have the
coughing
> form of asthma and get allergy shots each week, plus my husband
has
> allergies, so it runs in the family).  I'm still waiting for the
> meds to kick in.  We have found that he is allergic to Lays Sour
> Cream and Onion Potato Chips and Frito-Lay French Onion Dip,
because
> he had strong reactions after eating them.  I don't know if it is
> MSG or something else in them that is causing it.  I am trying to
> avoid heavily-processed food that has a lot of additives in it.
It
> is frustrating, because he asked me today why he is still itching,
> and I don't have the answer.  The pediatrician said he rarely
sends
> kids to an allergist because it's hard to find what the culprit
is,
> but there has to be something causing it.  I have an appt. for my
> son with my allergist, but that isn't until February because he is
> so booked.  We do have an appt. with a DAN doctor in December, and
I
> am looking forward to that.  We did get him to a nurse
practitioner
> at an allergy practice two weeks ago who did limited testing, but
I
> wasn't too thrilled with that practice.  They wanted to put him on
> 21 days of antibiotics, with no signs of infection.  (His labs
later
> came out fine).  I'm sure you all have been through similar
> frustration.  I just feel that we are going from one doctor to
> another.  Any tips you all have would be greatly appreciated!
>
> Trista
>

#853 From: "Suzanne Midford" <szmidford@...>
Date: Mon Oct 29, 2007 9:32 pm
Subject: Re: Re: Welcome New Members
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I'm worried that you don't have an Epi-Pen, so consider taking steps to get one as soon as possible, even if it means bothering one of the doctors. With a reaction like what your son had, they could have even prescribed one for you in the ER. So you might call your doctor and make the request, and if that doesn't work, see if the allergist will do it before your appointment, or even the DAN doctor. This is a safety precaution you should have on hand - our allergist believes every household should have one regardless of allergy history - it's a lifesaving device.
 
But really, your experience with pediatricians is typical, unfortunately, it's what I've experienced and I've heard the same from hundreds of parents. You just have to persist through to find a good allergist (and this isn't so easy either). Food allergies can be hard to diagnose and treat, and many docs just don't want to bother with it.
 
Now, as for the allergy testing - it could be that your son had false negatives on the test, it could be that he has IgG mediated immune responses ("intolerances") instead of classic IgE-mediated responses (classic "allergies") which is what the allergists generally limit their testing to, or, your son could be reacting to something that wasn't tested for.  Since your son is still symptomatic (itching), there's still work to do to identify the trigger. Let's narrow it down a bit.  How old is your son? Does he have asthma, or any skin rashes?  When did they start?  When did his itching begin?  Does he have any history of reflux, vomiting, GI problems, unexplained headaches or respiratory symptoms, earaches?
 
I want to focus especially on the itching. It's very likely to be eczema, and the majority of infant/child eczema is triggered by food allergies.  Can you tell me the history of the itching and any rashes or skin problems he's had in his life?  Does it ever flare, or get better or worse?
 
We can track this down. Just because the docs are ignorant doesn't mean your son's symptoms aren't real and can't be helped. Any well-educated doctor would do exactly the same thing I can do to help you identify the cause.
 
Suzanne
 
-------------- Original message from "tn21284" <tn21284@...>: --------------

Suzanne,

Thank you so much for your reply. I agree with you about the
pediatrician, I didn't think he took it as seriously as he should
have. When I asked him about the Epipen, he said he didn't need one.
Huh? The other pediatricians we saw were just as casual about it. We
have appts. with two other doctors coming up (the DAN doctor and an
immunologist/allergist), and I will ask them about it as well. As far
as the testing, he tested negative for 15 foods, including the
standard 8 (milk, wheat, soy, nuts, etc.) I'm wondering if it is MSG
or onion, since they are in the chips and dip he was allergic to.
Although, I cook with small amounts of onion and haven't noticed a
problem before. I'm reading the labels of everything now. The
pediatrician said that he had hives himself for a year and that some
kids just get them for no apparent reason, but I still think it is
worth looking for the reason, since this is a new problem for my son.

Trista


#852 From: "Amy Dillon" <rogeramydillon@...>
Date: Mon Oct 29, 2007 2:47 pm
Subject: Re: Re: Welcome New Members
zackaryella
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Also consider laundry soaps, fabric softener and things like that if it is something he woke up with. 
 
 
 
----- Original Message -----
From: tn21284
Sent: Monday, October 29, 2007 7:42 AM
Subject: [foodallergyautism] Re: Welcome New Members

Suzanne,

Thank you so much for your reply. I agree with you about the
pediatrician, I didn't think he took it as seriously as he should
have. When I asked him about the Epipen, he said he didn't need one.
Huh? The other pediatricians we saw were just as casual about it. We
have appts. with two other doctors coming up (the DAN doctor and an
immunologist/allergist), and I will ask them about it as well. As far
as the testing, he tested negative for 15 foods, including the
standard 8 (milk, wheat, soy, nuts, etc.) I'm wondering if it is MSG
or onion, since they are in the chips and dip he was allergic to.
Although, I cook with small amounts of onion and haven't noticed a
problem before. I'm reading the labels of everything now. The
pediatrician said that he had hives himself for a year and that some
kids just get them for no apparent reason, but I still think it is
worth looking for the reason, since this is a new problem for my son.

Trista


#851 From: "tn21284" <tn21284@...>
Date: Mon Oct 29, 2007 2:42 pm
Subject: Re: Welcome New Members
tn21284
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Suzanne,

Thank you so much for your reply.  I agree with you about the
pediatrician, I didn't think he took it as seriously as he should
have.  When I asked him about the Epipen, he said he didn't need one.
Huh?  The other pediatricians we saw were just as casual about it.  We
have appts. with two other doctors coming up (the DAN doctor and an
immunologist/allergist), and I will ask them about it as well.  As far
as the testing, he tested negative for 15 foods, including the
standard 8 (milk, wheat, soy, nuts, etc.)  I'm wondering if it is MSG
or onion, since they are in the chips and dip he was allergic to.
Although, I cook with small amounts of onion and haven't noticed a
problem before.  I'm reading the labels of everything now.  The
pediatrician said that he had hives himself for a year and that some
kids just get them for no apparent reason, but I still think it is
worth looking for the reason, since this is a new problem for my son.

Trista

#850 From: "Suzanne Midford" <szmidford@...>
Date: Mon Oct 29, 2007 2:09 pm
Subject: Re: Re: Welcome New Members
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Hi Trista,
Welcome to our group!  Your pediatrician is partly right that it can be hard to track down allergens through formal testing, but it can certainly help narrow the causes. In addition, there is a much more accurate method called elimination and challenge, but doctors tend to think this is too difficult for parents, and so they neglect to give them the option.  In my experience, most pediatricians are ignorant about allergies, they are not part of standard medical school curriculum (which is a shame since they are so common these days). 
 
Your son's symptoms certainly sound like serious allergic reactions, and I am concerned that the pediatrician is not taking this more seriously. Facial swelling can very rapidly lead to much more serious symptoms, such as anaphylaxis, airway blockage, organ failure, and can be fatal. These reactions should be taken very seriously. Has your doctor prescribed an Epi-Pen for your son in case of anaphylaxis? You need to have one of these within 30 seconds of him at all times - 24 hours a day. His allergies are that serious. You also need to identify the triggers so you can keep him safe from them.  I can't understand why the nurse-practitioner wanted to put him on antibiotics, this doesn't make any sense to me and you were wise to avoid them.
 
It can take some effort to identify allergens, but your doctor shouldn't use this as an excuse for not trying, especially in a child whose reactions are severe.  Formal allergy tests (especially in very young children and infants) often yield false negatives, but rarely give false positives.  What this means is that if the test shows your child is allergic to something, he almost certainly is, and you should eliminate that food and all foods that contain derivatives of that food from your child's diet. Many kids are also sensitive to skin contact with allergens, so for instance if my son is allergic to coconut, I would not feed him any foods that have coconut oil or coconut ingredients in it, nor would I put skin lotions on him that have coconut oil.
 
I took my son to dozens of pediatricians and allergists, and eventually ended up figuring out all of his allergens myself, at home, and I've succesfully treated him by myself for 5 years now. We finally did find a competent allergist (most of the allergists in our area don't even work with food allergies), but he says that I'm already doing all the right stuff, and to just keep it up.  He helps us with prescriptions, letters for school, occasional testing, and basically whatever I ask him for. However, most of what I do at home is what works.
Tell me what foods your son has already tested postive for, and we will see what we can do about those, then we can develop some ideas to identify other allergens, including what's in the pototo chips. I'm sure we can help!
 
Suzanne
 
-------------- Original message from "tn21284" <tn21284@...>: --------------

Thank you for the welcome! My 5 yr. old son has mild autism and has
recently been having food allergies. We have tested for 15 foods so
far, and I'm sure we will test for more. He has been having hives
the last 6 weeks or so. About 3 weeks ago, we took him to the ER
because he woke up with a really swollen face and lips. One side of
his face drooped down and his face and lips were puffed way out.
They gave him a cortisone shot which made it go down. He has had
minor swelling around his eyes since then. He also has had joint
pain. About 5 days ago, his feet hurt so bad he couldn't walk. He
was on Zyrtec and Zantac but it didn't really help much, so we
switched to Allegra two days ago and have added Singulair, because
now he is coughing a lot and may have asthma. (I have the coughing
form of asthma and get allergy shots each week, plus my husband has
allergies, so it runs in the family). I'm still waiting for the
meds to kick in. We have found that he is allergic to Lays Sour
Cream and Onion Potato Chips and Frito-Lay French Onion Dip, because
he had strong reactions after eating them. I don't know if it is
MSG or something else in them that is causing it. I am trying to
avoid heavily-processed food that has a lot of additives in it. It
is frustrating, because he asked me today why he is still itching,
and I don't have the answer. The pediatrician said he rarely sends
kids to an allergist because it's hard to find what the culprit is,
but there has to be something causing it. I have an appt. for my
son with my allergist, but that isn't until February because he is
so booked. We do have an appt. with a DAN doctor in December, and I
am looking forward to that. We did get him to a nurse practitioner
at an allergy practice two weeks ago who did limited testing, but I
wasn't too thrilled with that practice. They wanted to put him on
21 days of antibiot ics, with no signs of infection. (His labs later
came out fine). I'm sure you all have been through similar
frustration. I just feel that we are going from one doctor to
another. Any tips you all have would be greatly appreciated!

Trista


#849 From: "tn21284" <tn21284@...>
Date: Mon Oct 29, 2007 3:08 am
Subject: Re: Welcome New Members
tn21284
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Thank you for the welcome!  My 5 yr. old son has mild autism and has
recently been having food allergies.  We have tested for 15 foods so
far, and I'm sure we will test for more.  He has been having hives
the last 6 weeks or so.  About 3 weeks ago, we took him to the ER
because he woke up with a really swollen face and lips.  One side of
his face drooped down and his face and lips were puffed way out.
They gave him a cortisone shot which made it go down.  He has had
minor swelling around his eyes since then.  He also has had joint
pain.  About 5 days ago, his feet hurt so bad he couldn't walk.  He
was on Zyrtec and Zantac but it didn't really help much, so we
switched to Allegra two days ago and have added Singulair, because
now he is coughing a lot and may have asthma.  (I have the coughing
form of asthma and get allergy shots each week, plus my husband has
allergies, so it runs in the family).  I'm still waiting for the
meds to kick in.  We have found that he is allergic to Lays Sour
Cream and Onion Potato Chips and Frito-Lay French Onion Dip, because
he had strong reactions after eating them.  I don't know if it is
MSG or something else in them that is causing it.  I am trying to
avoid heavily-processed food that has a lot of additives in it.  It
is frustrating, because he asked me today why he is still itching,
and I don't have the answer.  The pediatrician said he rarely sends
kids to an allergist because it's hard to find what the culprit is,
but there has to be something causing it.  I have an appt. for my
son with my allergist, but that isn't until February because he is
so booked.  We do have an appt. with a DAN doctor in December, and I
am looking forward to that.  We did get him to a nurse practitioner
at an allergy practice two weeks ago who did limited testing, but I
wasn't too thrilled with that practice.  They wanted to put him on
21 days of antibiotics, with no signs of infection.  (His labs later
came out fine).  I'm sure you all have been through similar
frustration.  I just feel that we are going from one doctor to
another.  Any tips you all have would be greatly appreciated!

Trista

#848 From: "j_kalis" <j_kalis@...>
Date: Sun Oct 28, 2007 10:45 pm
Subject: Welcome New Members
j_kalis
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I just want to take a moment to welcome the new members we have to
this group!  I hope you all can feel comfortable asking questions
and getting to know other moms on this list.  I know when we are
dealing with autism and/or food allergies we can often feel alone
and the world we once knew before those diagnosis's seems to be
forever gone.  It has been so nice finding other parents who are in
the same boat and finding comfort and support with the members of
this group.  The group has been quiet lately but it's just because
we are all so busy!  I hope we can get some updates coming in and
some discussion started again!  I know for some of us we have seen
some major improvements, while others have stayed the same or have
continued to really struggle.  I hope that we can all share what has
helped and where we are at now so that we can continue to support
one another.  There are a lot of bigger groups out there with a lot
more information, but I like to think that our group is somewhat
unique in that not all parents of kids with autism are dealing with
the severe, multiple food allergies some of us have experienced and
it is nice to share with other parents so we can look to make
progress for our kids in the future. Welcome everyone, new and old!
I look forward to hearing from some of you new members and old
members as well.   Have a great Sunday evening!

Jenny

#847 From: "Wyndie" <mileski5@...>
Date: Tue Sep 18, 2007 2:48 am
Subject: Re: NAET update
wyndie_mileski
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Jenny, that's a great update!!  I'm glad it's working so well for
you!  Let us know how it goes for your kids.  I have wondered if it
will stick if you still have underlying metals/yeast/dysbiosis...
Thanks for the update. :)
Wyndie

--- In foodallergyautism@yahoogroups.com, "j_kalis" <j_kalis@...>
wrote:
>
> I feel like I need to give an NAET update.  I am getting ready to
do
> my last treatment.  I started about a year ago.  I was so allergic
> to everything that I have been going once every week or two and
this
> is how long it has taken me!!!  Anyway, for me, HUGE improvement.
> There is no comparison to the way I was before.  I have lived for
> years with severe environmental allergies that always made me
tired
> and miserable.  I did allergy injections for seven years.  I lived
> on Clariten, Zyrtec, Flonase, Nasacort, etc.  Now, nothing.  No
> allergies.  Amazing.  I've actually put on 20 pounds (really bad)
> because I can now eat so many foods I couldn't eat before and I
> can't help but to experiment.
>
> My son is now in the process of doing the treatments and when he
is
> finished my daughter will also do it.  Because of the expense I
felt
> I needed to try it first because I knew I would KNOW if it worked
or
> not.
>
> Now, as far as recommending it to you all...  I think if you have
> the $ it is totally worth trying.  I can not say 100% that it
cured
> all of my allergies.  I did react to something about a month ago
> while shopping out of town with my mom.  My NAET practitioner
tried
> to identify what I had reacted to but we couldn't find anything in
> the testing she did.  I just had runny, itchy, nose that day.  I
> would say overall it has done something amazing to my immune
system,
> which I think all kids on the spectrum need.  I just feel so much
> healthier.  My son is doing so much better also.  Now, he is doing
a
> lot of supplements and is on the Yasko protocol so that could have
> just as much to do with it.
> I know several other people that swear by NAET.  One lady told me
> just yesterday that she sent a friend to our practitioner a week
ago
> and her egg allergic child is totally eating eggs without a
problem
> now one week later.  I do, however, encounter people on other
yahoo
> groups who claim it didn't work for them or the treatments didn't
> stick permanently.  I pray this is not the case for us.  Our
doctor
> thinks that if we get the metals out and keep our yeast in check
> that the treatments will stick.  So, there is the update.  If you
do
> want to try NAET I recommend you find a practitioner with a lot of
> experience.  The one I go to has been to like every single NAET
> training session there every was practically.  If you get on the
> website you can search for someone in your area and it says how
much
> experience they have.  I think my practitioner is exceptionally
good.
>
> Take care all,
> Jenny
>

#846 From: "j_kalis" <j_kalis@...>
Date: Mon Sep 17, 2007 3:45 am
Subject: NAET update
j_kalis
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I feel like I need to give an NAET update.  I am getting ready to do
my last treatment.  I started about a year ago.  I was so allergic
to everything that I have been going once every week or two and this
is how long it has taken me!!!  Anyway, for me, HUGE improvement.
There is no comparison to the way I was before.  I have lived for
years with severe environmental allergies that always made me tired
and miserable.  I did allergy injections for seven years.  I lived
on Clariten, Zyrtec, Flonase, Nasacort, etc.  Now, nothing.  No
allergies.  Amazing.  I've actually put on 20 pounds (really bad)
because I can now eat so many foods I couldn't eat before and I
can't help but to experiment.

My son is now in the process of doing the treatments and when he is
finished my daughter will also do it.  Because of the expense I felt
I needed to try it first because I knew I would KNOW if it worked or
not.

Now, as far as recommending it to you all...  I think if you have
the $ it is totally worth trying.  I can not say 100% that it cured
all of my allergies.  I did react to something about a month ago
while shopping out of town with my mom.  My NAET practitioner tried
to identify what I had reacted to but we couldn't find anything in
the testing she did.  I just had runny, itchy, nose that day.  I
would say overall it has done something amazing to my immune system,
which I think all kids on the spectrum need.  I just feel so much
healthier.  My son is doing so much better also.  Now, he is doing a
lot of supplements and is on the Yasko protocol so that could have
just as much to do with it.
I know several other people that swear by NAET.  One lady told me
just yesterday that she sent a friend to our practitioner a week ago
and her egg allergic child is totally eating eggs without a problem
now one week later.  I do, however, encounter people on other yahoo
groups who claim it didn't work for them or the treatments didn't
stick permanently.  I pray this is not the case for us.  Our doctor
thinks that if we get the metals out and keep our yeast in check
that the treatments will stick.  So, there is the update.  If you do
want to try NAET I recommend you find a practitioner with a lot of
experience.  The one I go to has been to like every single NAET
training session there every was practically.  If you get on the
website you can search for someone in your area and it says how much
experience they have.  I think my practitioner is exceptionally good.

Take care all,
Jenny

#845 From: "Wyndie" <mileski5@...>
Date: Mon Aug 20, 2007 6:32 pm
Subject: New beginnings online conference
wyndie_mileski
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New beginnings will begin holding online conferences monthly.  Topic
will be different each month.  You can register here:
http://www.nbnus.com/NBN_online_conference/preregistration/

Current conferences are:

  August 20,  6:00 – 7:45 pm (central time)   "Getting Back to the
Basics: Building a Foundation for Healing"

  September 17, 6:00 – 7:45 pm (central time)  "Understanding Digestive
Enzymes"

#844 From: "bradensmom14" <bradensmom14@...>
Date: Wed Aug 15, 2007 5:45 am
Subject: be aware
bradensmom14
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I have been alerted to be on the lookout for a new form of
>>Crystalized Meth that is targeted at children and to be aware of
>>this new form if called to an emergency involving a child that may
>>have symptoms of drug
>>induction or overdose. They are calling this new form of meth
>>"Strawberry Quick" and it looks like the "Pop Rocks" candy that
>>sizzle in your mouth. In its current form, it is dark pink in color
>>and has a strawberry scent to it.
>>Please advise your children and their friends and other students
>>not to accept candy from strangers as this is obviously an attempt
>>to seduce children into drug use. They also need to be cautious in
>>accepting
>>candy from even friends that may have received it from someone
>>else, thinking it is just candy.
>>
>>I don't want this email to scare anyone, but I thought it would be
>>best to share this with you, so you can once again talk to your
>>childre about the effects of drugs and how easy it could be to take
>>drugs without
>>knowing it, until it is too late.
>>
>>I worry, just as each of you do about kids and drugs and all
>>the problems our kids today are faced with. So please talk with
>>your children about this newest threat to get children addicted to
>>drugs!
>>
>>Strawberry meth didn't take long to arrive in the Ozarks by
>>Michelle Sherwood, KY3 News WILLARD, Mo. A new twist to an old
>>drug may make it more appealing to children. It's called strawberry
>>quick -- strawberry flavoring added to methamphetamine to make it
>>taste more like candy -- and it's already
>>made its appearance in the Ozarks. The first sighting of strawberry
>>quick was in Willard, not too far
>>from the town's debris dumpsite. Its strawberry flavored and it
>>could be the first of a new trend. It's causing a major buzz with
>>law officers and community groups. It looks like rock candy, the
>>kind someone might buy as a treat, but there's nothing sweet about
>>these crystals. "It has a more user-friendly appearance, if you
>>will,* said Capt. Randy Gibson of the Greene County Sheriff*s
>>Department.
>>Strawberry quick is basically meth with pink coloring and
>>strawberry flavoring to remove the bitter test of just plain meth.
>>It showed up on the west coast in mid-February and, in almost no
>>time, wound up here.
>>*It was almost overnight,* said Gibson.
>>Greene County officers recently pulled over a car for a
>>traffic violation and found about two grams of it in a seat. So
>>far,detectives think it*s the only case in this area but that
>>doesn't stop community leaders from worrying about the drug's
>>impact on kids.
>>"When it's put in that kind of format, people often think it's
>>less hazardous,* said Melissa Haddow, executive director of
>>Community Partnership of the Ozarks. "This may appeal to kids that
>>meth or crystal would not appeal to.*
>>Haddow compares it to how kids think of alcohol. Many see hard
>>liquor, like gin, as dangerous but, at the same time, see drinks
>>like wine coolers as safe. "I don't know if it's deliberately
>>targeted to kids but certainly it's going to be more palatable for
>>kids,* said Gibson.
>>"I don't think it is huge right now in the Ozarks at all,*
>>said Haddow, *but we don't want to glamorize it, that's for sure."
>>The Community Partnership is sending out surveys to area schools
>>to get an idea of how bad meth is among students and to see how
>>much they know, if anything, about strawberry quick.
>>
>>Eugene A. Lewis, Jr.
>>Chief of Police
>>Alvin ISD Police Department
>>802 S. Johnson Street
>>Alvin, Texas 77511
>>Phone: 281-331-2320
>>E-mail: elewis@alvinisd. net

#843 From: "Christel King" <christelking1@...>
Date: Thu May 24, 2007 11:33 pm
Subject: OT - Now Rotation diet Suzanne
missvermont94
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Suzanne
I tried sending this privately but it is bounding off your account so I
don't know how else to reach you...
----- Original Message -----
From: "Christel King" <christelking1@...>
To: "Suzanne" <szmidford@...>
Sent: Thursday, May 24, 2007 2:34 PM
Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne


>I agree that LDN isn't for everyone, infact our DAN doesn't use it for that
>reason which is why I went over his head to be in the study, as he is an
>immunologist.  McCandless today just contacted him on their difference with
>it to see if they can help the few kids as yours and some others I know to
>put there heads together on WHY that happens.  hopfully between the two
>they can figure it out.  I know one mom in our support group that had huge
>issues and still hasn't gotten her child back as well just did Yasko
>testing and found out she can't do lipids and that is why it hurt her kid.
>much of it was explained reaction wise with her kids genetic mutations
>panel, would be intersting to see if you child has the same pattern as
>well.  also found out her kids had HUGE yeast issues as well which
>exasperated the issues.  did your child have issues with that?  she sees a
>friend of McCandless for a DAN so they are also working on why that type of
>responce.  but yes.   our DAN Dr, Jeremy Baptist in KS, KS is flooring with
>his knowledge base of diet and OTHER methods being allergy shots and stuff
>to get control of our kids issues.  he is an immunologist so his DAN bases
>is approachable for the most sensitive of our kids being THAT's his
>expertise.  he FULLY believes in both IGG and IGE issues which is hard to
>find with an allergist these days and has wonderful service in office for
>getting you in quickly and responding quickly, working with schools ect to
>make our kids safe even enviornmentally.  has written us scripts for
>bedding ect, and works with insurence since he has the immunologist
>background and is great with codeing to have things covered.  he spends a
>great deal of time with each kid and really covers all bases.  he also has
>his daughter a nutritionist who works in the office to help with the diet
>and alternitive ideas which is great and you can utilize her and have
>insurence cover it as well with his referal.  I have a friend with tons of
>allergies HFA adult who is seeing him next month flying from maine to see
>him and his office even worked on paper work with sounthwest to get her a
>plane ticket discounted 300 dollars to go see him and then he can work with
>her the rest of the year via phone and email for DAN stuff.  he will send
>you testing, work with your primary ect so the most stuff is covered
>possible under insurence and then if you DO have to pay he discounts cash
>payments in office as well as allows for a payment scheudal as you can pay
>monthly, so you can do what you need to do as you need to do it with out
>having to panick over cost or not treat.  McCandless speaks very highly of
>him, even with them disagreeing on the LDN issue.  I have seen him work
>wonders with many kids, even the tough nuts, and have personally sent him
>close to a hundred family's who had not had luck with other DANs and he has
>been able to pinpoint things to make progress where others haven't. infact
>I have 5 families going to see him just next month, that I have met Just
>this month. i am highly confident in him, and no I am not on staff there or
>get any kick backs or anything, just a really happy mom to have her kid
>back.  he was MR and was suppose to be institutionized and how he reads at
>a 4th grade level, and does 2nd grade math while just 5 and in
>kindergarden, has friends and is continueally looseing his allergies and
>makeing great progress mainstreamed next year full day and is fitting in
>socially and may loose his dx this next month......Baptist gave us that,
>and worked me through it all and educated me in the process which I don't
>see alot of DAN's do with there patients which is sad.  it leaves them
>unequipt to help themselves or others on this journey.  I am so thankful
>that we found him by chance......and with lots of prayer.  I pray that the
>think tank picks him up this next year as he has been doing all this almost
>25 years now before DAN existed and has a great knoweldge base to share
>with our DAN community.
>
> hope this helps
>
> christel
>
>
> ----- Original Message -----
> From: "Suzanne" <szmidford@...>
> To: "Christel King" <christelking1@...>
> Sent: Thursday, May 24, 2007 12:50 PM
> Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne
>
>
> Christel, who's your DAN? I've struggled - unsuccesfully - to find a
> DAN doc (or even a DAN nutritionist) who is good at the diet piece
> of the puzzle, b/c it's so very hard and so very important with kids
> who are this limited, and I haven't ever found one. Are you
> satisfied with his approach to gut and diet?
>
> As for LDN. I know many kids have been helped by it, but I do feel
> strongly that it must be approached with caution for our kids in
> general and food-allergy kids in particular. I know quite a few kids
> who regressed badly on it, including my own. All of these kids had
> food allergies.  Two lost all language (one regained it, the other
> has not).  My son and two others I know had severely worsening
> allergies - to the point of becoming anaphylaxtic or anaphylactoid
> where they were not previously. My son regressed cognigtively as
> well as allergically and lost 16 months of development while he was
> on LDN. Once we figured it out and stopped LDN, he improved
> imediately - and I mean overnight. The next day after we stopped
> LDN, he potty trained immediately and the eczema that had become
> severe while on LDN completely disappeared.
>
> So, I do think LDN can be helpful, but it is a med to approach with
> caution in our kids.
>
> Suzanne
>
> --- In foodallergyautism@yahoogroups.com, "Christel King"
> <christelking1@...> wrote:
>>
>> our DAN has us (as also recommended by the ELISA company) 1 day on
> 3 days off for rotation.  you can do this even with few foods.  at
> one point we ONLY had 4 foods, we now have added in a ton of things
> and have healed the gut.  LDN did wonders for this if you haven't
> read up on this as well.  we got to add in 22 foods with LDN use
> after 2 months with out reaction IGG or IGE as before.  we added
> those things back in and retested and he was cleared of those
> foods.  I would not recommend eating anything day after day as all
> that does is sky rocket the antibodies.  that is why the 1 day on 3
> day break is recommended to calm the immune systsm and allow for
> rest.  it's better if you know your kid takes a while to clear
> things to do a 5 day rotation but NEVER repeat day after day or you
> creat NEW allergies
>>   ----- Original Message -----
>>   From: szmidford@...
>>   To: foodallergyautism@yahoogroups.com
>>   Sent: Wednesday, May 23, 2007 4:05 PM
>>   Subject: Re: [foodallergyautism] Was: Kinesiology/NAET - Now
> Rotation diet Suzanne
>>
>>
>>
>>   Well, rotating with so few foods is really tough but that's
> essentially the same thing we did though with more foods. Our
> rotation was really strict: 2 days on and 5 off  every single food.
> Most doctors will tell you to rotate 3 days on and 3 days off, to
> give the body a break from each food, based on normal stool transit
> time of 3 days. However, Tom's stool transit time can be 4 days, and
> I wanted to be very conservative.  You might not be able to be that
> conservative though with so few foods.
>>
>>
>>
>>   One thought I have is that you could put more foods into each
> rotation and do a 3 days on and 3 days off, and have just 2 food
> sets. She'd still get a break from each food, but she wouldn't be so
> drastically limited to just a few foods on each rotation.
>>
>>
>>
>>   Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every
> food for every meal)
>>
>>   Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food
> for every meal)
>>
>>
>>   I put the squash with the broccoli to help with calories, and
> the lamb with the green beans sicne the lamb is fatty, so it's high
> calorie. Both rotations have a puree so she can take her meds.
>>
>>
>>
>>   You are in the same boat as we are with regard to veggies and
> fruits. Tom always tolerated meats better than vegs & fruits, he has
> always had at least 5 meats to work with, so getting enough protein
> wasn't a problem. I share your concern with limiting to meats, it
> stresses the liver. We also decided to give Tom some foods that were
> lower-allergen because the allergy symptoms were tolerable (we were
> able to manage his eczema with topical creams) and it seemed the
> best balance with trying to get him reasonable nutrition. We could
> not have done that however if he was anaphylactic or had strong
> behavioral or GI symptoms like diarrhea.
>>
>>
>>
>>   You might want to try pureeing green beans and butternut squash -
> it's pretty easy to do though it takes a little time.  Pureeing
> your own vegs might also give you access to some foods you may not
> have tried, like turnips and rutabagas and celery root, which have
> all become calorie staples for us (it's possible to puree almost
> ANYTHING!)  Rutabagas and celeriac are SCD legal but fibrous (even
> when pureed) so if her digestion is sensitive she could have
> problems with these but Tom never did.  Turnips used to be SCD legal
> and I view them as legitimate if the child tolerates them. The
> problem is that they're fibrous, not that they're starchy. With all
> root vegs, if you're trying to avoid monosaccharides and
> polysaccharides because of a yeast problem (which is what SCD solves
> for), it's best to avoid the roots that are large, soft and old
> where the sugars have turned to starch. Young, small, firm roots are
> best. Now, all this said, turnips and rutabagas are "goitrogen s"
> which can afffect the thyroid if eaten in large amounts, so go easy
> on them.  Some other foods that worked for us were beets and
> asparagus.  Tom always seemed to handle cabbages and brussels
> sprouts okay too, and if Faith tolerates broccoli, she may do okay
> with them also. Just keep these on the same rotation as the broccoli
> so she gets a break from that entire food family when she's on the
> other rotation.
>>
>>
>>
>>   Does Faith tolerate any juices, like Knudsen's "Just Juice"
> cranberry juice? I'd like to see her be able to
>>
>>   add some fruits. Tom did well with these juices - they are not
> from concentrate and have no additives (listed or unlisted).  We
> sweetened with stevia.  Knuden's also has pomegranate, cherry,
> grape, blueberry in that line. Great source of antioxidants. He
> tolerates mango & papaya, which help with carbs & calories. We found
> two other juices he tolerates - Dynamic Health's papaya and mango
> puree, which we add water to (about 50:50).
>>
>>
>>
>>   The advantage of rotating is that you will lower the risk of
> losing more foods. The disadvantage of course is more reliance on
> getting calories from just a small set of foods at one time.  We
> always had at least one meat, 2 veggies and 1 oil on each rotation,
> and we gave each of these at every meal to try and stay balanced. We
> long ago gave up any idea of having different foods at different
> meals and all his meals look pretty much identical: breakfast,
> morning snack, lunch, afternoon snack, and dinner are all the same:
> a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil
> (for calories) drizzled on the veggies. Plus iodized salt, of course
> (Real Salt or the WalMart dextrose-free house brand if you can find
> it). We give fruit when he wakes up and after school on an empty
> stomach (BED food-combining rules).   Forget any notion
> of "breakfast" looking like what you and might have once thought
> that "breakfast" should look like. Those notions flew out th e
> window long ago and now we're just happy to have foods he can eat!
>>
>>
>>
>>   I don't have any personal experience with NAET, but if you have
> any influence on the order of what foods your practitioner clears,
> I'd suggest focusing on nutritionally dense foods that would benefit
> Faith - and here I'd suggest foods that are low-allergen, high-
> calorie, high-nutrient, non-protein foods (since she already has 4
> meats, she's doing okay with protein sources). Avocado and coconut
> might be good choices for calories, and some anti-oxidant-rich
> fruits.
>>
>>
>>
>>   Good luck - let us know how she does as you add foods.
>>
>>   Suzanne
>>
>>
>>
>>     -------------- Original message from "Wyndie" <mileski5@...>: -
> -------------
>>
>>
>>     I'm so glad to hear Tom is able to have more foods now! Oh
> man, I
>>     remember back in the BBC days you going through the fear of
> knowing
>>     he was losing everything. I'm so happy he's making
> improvements.
>>
>>     So as far as rotating, would it work if I feed her along these
> lines:
>>     Day 1: venison, broccoli, green beans (every meal)
>>     Day 2: same
>>     Day 3: lamb, squash (every meal)
>>     Day 4: same
>>     Day 5: beef, broccoli, green beans (every meal)
>>     Day 6: same
>>     Day 7: chicken, squash (every meal)
>>
>>     Is that what you did basically (different foods but same idea)
> or
>>     was it a daily change? I have to always give green beans or
> squash
>>     with every meal b/c those are the two foods I can get in baby
> food
>>     form (organic) and mix her meds with. Poor little thing is
> quite
>>     orange b/c of all the squash she eats.
>>
>>     Thanks for helping me with this. I rotated foods with the
> older
>>     kids but didn't know how to do it with such a limited diet for
> her.
>>
>>     Wyndie
>>
>>     --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
>>     >
>>     > Hi Wyndie,
>>     > I'm so sorry to hear Faith is reacting to her last foods. I
> hope
>>     NAET gives her some relief - long enough to heal her gut a bit
> and
>>     maybe bring in some new foods. I think it's terrific your
>>     practitioner will barter!! The cost (and time commitment) of
> NAET
>>     has always seemed prohibitive on top of the cost of HBOT, ABA,
> and
>>     all our compounded meds and supplements, but I have always
> wanted to
>>     try it.
>>     > I wonder if you have ever tried rotating Faith's foods? It
> really
>>     worked well for Tom, although it's quite hard with such a
> limited
>>     food list. We didn't rotate with Tom til he was 3, and at that
>>     point he didn't have very many foods left. Once we went SCD
> (which
>>     took away his remaining grains - quinoa and buckwheat and
> milet), he
>>     was down to just a few meats and ve ggies and oils - no fruits
> (and
>>     we were too cautious to try nuts or seeds, or even foods in
> the
>>     families he was already reacting to, like eggplant or green
> peppers,
>>     because he developed new allergies so easily). We were very
> afraid
>>     he'd lose all foods eventually. So we had 16 months of a very
>>     restricted diet where he rotated food sets every 2 days (2
> days on
>>     and 4 days off each food set), and each food set had only 2
> veggies
>>     and 1 meat and 1 oil. We had to give him very large quantities
> of
>>     those foods in order to get enough calories in him - he
> basically
>>     ate 7 meals a day, all huge quantities of food. After about 8
> mon
>>     > ths we introduced pure juices (Knudsen's Just Juice) of
> fruits he
>>     had never developed allergies to - blueberry, cranberry,
>>     pomegranate, and after 12 months we introduced some fruits
> he'd
>>     never had before: papaya and mango, along with their juices.
> Still,
>>     he'd never outgrown an allergy, and we were really ner vous
> about
>>     introducing new foods because we viewed the list of foods he'd
> never
>>     become allergic to as our "reserve" of foods that would have
> to last
>>     a lifetime - assuming that once he became allergic to a food,
> it was
>>     gone for good.
>>     > The rotation idea worked though. He stopped developing new
>>     allergies. He didn't lose any more foods once we began to
> rotate.
>>     And finally, 2 months ago, at age 4.5, we challenged a few old
>>     allergens - carrots and cauliflower - he passed!!! And, we
> began
>>     even trialing some foods that we used to be very cautious
> about -
>>     some seeds and nuts. So, we are cautiously optimistic that he
> may
>>     be able to outgrow his allergies eventually - at least some of
> them.
>>     He has failed a few challenges too (avocado, strawberry, kiwi,
> egg),
>>     and his gut problems are still quite severe, but I'm starting
> to
>>     have hope that we will be able to continue expanding his food
> list
>>     gradually. Today I had a moment of Mother's Day enthusiasm and
>>     popped a cherry tomato in his mouth and am watching for
> reactions as
>>     I write.
>>     > He's still quite toxic and has many health problems
> (hypothyroid,
>>     seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.),
> so we
>>     have a long road ahead. But we feel like there's a light at
> the end
>>     of the tunnel for food allergies at least.
>>     > Just thought I'd pass this along - in the food-allergy world
> I
>>     have come to believe that the idea of rotating foods doesn't
> get
>>     enough credit, and it's been a real lifesaver for us. I sure
> hope
>>     NAET is for you, and I look forward to hearing how Faith does
> with
>>     it. I bet you'll learn a lot about it, and I look forward to
> hearing
>>     what you learn.
>>     > Best of luck to you and your little girl,
>>     > Suzanne
>>     >
>>     >
>>
>>
>>
>>
>>
>>
>>
>> -------------------------------------------------------------------
> -----------
>>
>>
>>   No virus found in this incoming message.
>>   Checked by AVG Free Edition.
>>   Version: 7.5.467 / Virus Database: 269.7.6/815 - Release Date:
> 5/22/2007 3:49 PM
>>
>
>
>
>
> --
> No virus found in this incoming message.
> Checked by AVG Free Edition.
> Version: 7.5.467 / Virus Database: 269.7.7/816 - Release Date: 5/23/2007
> 3:59 PM
>
>
>

#842 From: "E Sweet" <eswee@...>
Date: Wed May 23, 2007 11:14 pm
Subject: RE: Was: Kinesiology/NAET - Now Rotation diet Suzanne
halesweetser
Offline Offline
Send Email Send Email
 
Hi Suzanne
got any idea what the LOD value is on celerac root?  is it low ox diet friendly?
Rob's mom
-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of szmidford@...
Sent: Wednesday, May 23, 2007 3:05 PM
To: foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism] Was: Kinesiology/NAET - Now Rotation diet Suzanne

Well, rotating with so few foods is really tough but that's essentially the same thing we did though with more foods. Our rotation was really strict: 2 days on and 5 off  every single food.  Most doctors will tell you to rotate 3 days on and 3 days off, to give the body a break from each food, based on normal stool transit time of 3 days. However, Tom's stool transit time can be 4 days, and I wanted to be very conservative.  You might not be able to be that conservative though with so few foods.

 

One thought I have is that you could put more foods into each rotation and do a 3 days on and 3 days off, and have just 2 food sets. She'd still get a break from each food, but she wouldn't be so drastically limited to just a few foods on each rotation.

 

Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every food for every meal)

Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food for every meal)

I put the squash with the broccoli to help with calories, and the lamb with the green beans sicne the lamb is fatty, so it's high calorie. Both rotations have a puree so she can take her meds.

 

You are in the same boat as we are with regard to veggies and fruits. Tom always tolerated meats better than vegs & fruits, he has always had at least 5 meats to work with, so getting enough protein wasn't a problem. I share your concern with limiting to meats, it stresses the liver. We also decided to give Tom some foods that were lower-allergen because the allergy symptoms were tolerable (we were able to manage his eczema with topical creams) and it seemed the best balance with trying to get him reasonable nutrition. We could not have done that however if he was anaphylactic or had strong behavioral or GI symptoms like diarrhea.

 

You might want to try pureeing green beans and butternut squash - it's pretty easy to do though it takes a little time.  Pureeing your own vegs might also give you access to some foods you may not have tried, like turnips and rutabagas and celery root, which have all become calorie staples for us (it's possible to puree almost ANYTHING!)  Rutabagas and celeriac are SCD legal but fibrous (even when pureed) so if her digestion is sensitive she could have problems with these but Tom never did.  Turnips used to be SCD legal and I view them as legitimate if the child tolerates them. The problem is that they're fibrous, not that they're starchy. With all root vegs, if you're trying to avoid monosaccharides and polysaccharides because of a yeast problem (which is what SCD solves for), it's best to avoid the roots that are large, soft and old where the sugars have turned to starch. Young, small, firm roots are best. Now, all this said, turnips and rutabagas are "goitrogen s" which can afffect the thyroid if eaten in large amounts, so go easy on them.  Some other foods that worked for us were beets and asparagus.  Tom always seemed to handle cabbages and brussels sprouts okay too, and if Faith tolerates broccoli, she may do okay with them also. Just keep these on the same rotation as the broccoli so she gets a break from that entire food family when she's on the other rotation.

 

Does Faith tolerate any juices, like Knudsen's "Just Juice" cranberry juice? I'd like to see her be able to

add some fruits. Tom did well with these juices - they are not from concentrate and have no additives (listed or unlisted).  We sweetened with stevia.  Knuden's also has pomegranate, cherry, grape, blueberry in that line. Great source of antioxidants. He tolerates mango & papaya, which help with carbs & calories. We found two other juices he tolerates - Dynamic Health's papaya and mango puree, which we add water to (about 50:50). 

 

The advantage of rotating is that you will lower the risk of losing more foods. The disadvantage of course is more reliance on getting calories from just a small set of foods at one time.  We always had at least one meat, 2 veggies and 1 oil on each rotation, and we gave each of these at every meal to try and stay balanced. We long ago gave up any idea of having different foods at different meals and all his meals look pretty much identical: breakfast, morning snack, lunch, afternoon snack, and dinner are all the same: a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil (for calories) drizzled on the veggies. Plus iodized salt, of course (Real Salt or the WalMart dextrose-free house brand if you can find it). We give fruit when he wakes up and after school on an empty stomach (BED food-combining rules).   Forget any notion of "breakfast" looking like what you and might have once thought that "breakfast" should look like. Those notions flew out th e window long ago and now we're just happy to have foods he can eat!

 

I don't have any personal experience with NAET, but if you have any influence on the order of what foods your practitioner clears, I'd suggest focusing on nutritionally dense foods that would benefit Faith - and here I'd suggest foods that are low-allergen, high-calorie, high-nutrient, non-protein foods (since she already has 4 meats, she's doing okay with protein sources). Avocado and coconut might be good choices for calories, and some anti-oxidant-rich fruits.

 

Good luck - let us know how she does as you add foods.

Suzanne

 

-------------- Original message from "Wyndie" <mileski5@bellsouth.net>: --------------

I'm so glad to hear Tom is able to have more foods now! Oh man, I
remember back in the BBC days you going through the fear of knowing
he was losing everything. I'm so happy he's making improvements.

So as far as rotating, would it work if I feed her along these lines:
Day 1: venison, broccoli, green beans (every meal)
Day 2: same
Day 3: lamb, squash (every meal)
Day 4: same
Day 5: beef, broccoli, green beans (every meal)
Day 6: same
Day 7: chicken, squash (every meal)

Is that what you did basically (different foods but same idea) or
was it a daily change? I have to always give green beans or squash
with every meal b/c those are the two foods I can get in baby food
form (organic) and mix her meds with. Poor little thing is quite
orange b/c of all the squash she eats.

Thanks for helping me with this. I rotated foods with the older
kids but didn't know how to do it with such a limited diet for her.

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Hi Wyndie,
> I'm so sorry to hear Faith is reacting to her last foods. I hope
NAET gives her some relief - long enough to heal her gut a bit and
maybe bring in some new foods. I think it's terrific your
practitioner will barter!! The cost (and time commitment) of NAET
has always seemed prohibitive on top of the cost of HBOT, ABA, and
all our compounded meds and supplements, but I have always wanted to
try it.
> I wonder if you have ever tried rotating Faith's foods? It really
worked well for Tom, although it's quite hard with such a limited
food list. We didn't rotate with Tom til he was 3, and at that
point he didn't have very many foods left. Once we went SCD (which
took away his remaining grains - quinoa and buckwheat and milet), he
was down to just a few meats and ve ggies and oils - no fruits (and
we were too cautious to try nuts or seeds, or even foods in the
families he was already reacting to, like eggplant or green peppers,
because he developed new allergies so easily). We were very afraid
he'd lose all foods eventually. So we had 16 months of a very
restricted diet where he rotated food sets every 2 days (2 days on
and 4 days off each food set), and each food set had only 2 veggies
and 1 meat and 1 oil. We had to give him very large quantities of
those foods in order to get enough calories in him - he basically
ate 7 meals a day, all huge quantities of food. After about 8 mon
> ths we introduced pure juices (Knudsen's Just Juice) of fruits he
had never developed allergies to - blueberry, cranberry,
pomegranate, and after 12 months we introduced some fruits he'd
never had before: papaya and mango, along with their juices. Still,
he'd never outgrown an allergy, and we were really ner vous about
introducing new foods because we viewed the list of foods he'd never
become allergic to as our "reserve" of foods that would have to last
a lifetime - assuming that once he became allergic to a food, it was
gone for good.
> The rotation idea worked though. He stopped developing new
allergies. He didn't lose any more foods once we began to rotate.
And finally, 2 months ago, at age 4.5, we challenged a few old
allergens - carrots and cauliflower - he passed!!! And, we began
even trialing some foods that we used to be very cautious about -
some seeds and nuts. So, we are cautiously optimistic that he may
be able to outgrow his allergies eventually - at least some of them.
He has failed a few challenges too (avocado, strawberry, kiwi, egg),
and his gut problems are still quite severe, but I'm starting to
have hope that we will be able to continue expanding his food list
gradually. Today I had a moment of Mother's Day enthusiasm and
popped a cherry tomato in his mouth and am watching for reactions as
I write.
> He's still quite toxic and has many health problems (hypothyroid,
seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we
have a long road ahead. But we feel like there's a light at the end
of the tunnel for food allergies at least.
> Just thought I'd pass this along - in the food-allergy world I
have come to believe that the idea of rotating foods doesn't get
enough credit, and it's been a real lifesaver for us. I sure hope
NAET is for you, and I look forward to hearing how Faith does with
it. I bet you'll learn a lot about it, and I look forward to hearing
what you learn.
> Best of luck to you and your little girl,
> Suzanne
>
>


#841 From: "Christel King" <christelking1@...>
Date: Wed May 23, 2007 8:30 pm
Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne
missvermont94
Offline Offline
Send Email Send Email
 
our DAN has us (as also recommended by the ELISA company) 1 day on 3 days off for rotation.  you can do this even with few foods.  at one point we ONLY had 4 foods, we now have added in a ton of things and have healed the gut.  LDN did wonders for this if you haven't read up on this as well.  we got to add in 22 foods with LDN use after 2 months with out reaction IGG or IGE as before.  we added those things back in and retested and he was cleared of those foods.  I would not recommend eating anything day after day as all that does is sky rocket the antibodies.  that is why the 1 day on 3 day break is recommended to calm the immune systsm and allow for rest.  it's better if you know your kid takes a while to clear things to do a 5 day rotation but NEVER repeat day after day or you creat NEW allergies
----- Original Message -----
Sent: Wednesday, May 23, 2007 4:05 PM
Subject: Re: [foodallergyautism] Was: Kinesiology/NAET - Now Rotation diet Suzanne

Well, rotating with so few foods is really tough but that's essentially the same thing we did though with more foods. Our rotation was really strict: 2 days on and 5 off  every single food.  Most doctors will tell you to rotate 3 days on and 3 days off, to give the body a break from each food, based on normal stool transit time of 3 days. However, Tom's stool transit time can be 4 days, and I wanted to be very conservative.  You might not be able to be that conservative though with so few foods.

 

One thought I have is that you could put more foods into each rotation and do a 3 days on and 3 days off, and have just 2 food sets. She'd still get a break from each food, but she wouldn't be so drastically limited to just a few foods on each rotation.

 

Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every food for every meal)

Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food for every meal)

I put the squash with the broccoli to help with calories, and the lamb with the green beans sicne the lamb is fatty, so it's high calorie. Both rotations have a puree so she can take her meds.

 

You are in the same boat as we are with regard to veggies and fruits. Tom always tolerated meats better than vegs & fruits, he has always had at least 5 meats to work with, so getting enough protein wasn't a problem. I share your concern with limiting to meats, it stresses the liver. We also decided to give Tom some foods that were lower-allergen because the allergy symptoms were tolerable (we were able to manage his eczema with topical creams) and it seemed the best balance with trying to get him reasonable nutrition. We could not have done that however if he was anaphylactic or had strong behavioral or GI symptoms like diarrhea.

 

You might want to try pureeing green beans and butternut squash - it's pretty easy to do though it takes a little time.  Pureeing your own vegs might also give you access to some foods you may not have tried, like turnips and rutabagas and celery root, which have all become calorie staples for us (it's possible to puree almost ANYTHING!)  Rutabagas and celeriac are SCD legal but fibrous (even when pureed) so if her digestion is sensitive she could have problems with these but Tom never did.  Turnips used to be SCD legal and I view them as legitimate if the child tolerates them. The problem is that they're fibrous, not that they're starchy. With all root vegs, if you're trying to avoid monosaccharides and polysaccharides because of a yeast problem (which is what SCD solves for), it's best to avoid the roots that are large, soft and old where the sugars have turned to starch. Young, small, firm roots are best. Now, all this said, turnips and rutabagas are "goitrogen s" which can afffect the thyroid if eaten in large amounts, so go easy on them.  Some other foods that worked for us were beets and asparagus.  Tom always seemed to handle cabbages and brussels sprouts okay too, and if Faith tolerates broccoli, she may do okay with them also. Just keep these on the same rotation as the broccoli so she gets a break from that entire food family when she's on the other rotation.

 

Does Faith tolerate any juices, like Knudsen's "Just Juice" cranberry juice? I'd like to see her be able to

add some fruits. Tom did well with these juices - they are not from concentrate and have no additives (listed or unlisted).  We sweetened with stevia.  Knuden's also has pomegranate, cherry, grape, blueberry in that line. Great source of antioxidants. He tolerates mango & papaya, which help with carbs & calories. We found two other juices he tolerates - Dynamic Health's papaya and mango puree, which we add water to (about 50:50). 

 

The advantage of rotating is that you will lower the risk of losing more foods. The disadvantage of course is more reliance on getting calories from just a small set of foods at one time.  We always had at least one meat, 2 veggies and 1 oil on each rotation, and we gave each of these at every meal to try and stay balanced. We long ago gave up any idea of having different foods at different meals and all his meals look pretty much identical: breakfast, morning snack, lunch, afternoon snack, and dinner are all the same: a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil (for calories) drizzled on the veggies. Plus iodized salt, of course (Real Salt or the WalMart dextrose-free house brand if you can find it). We give fruit when he wakes up and after school on an empty stomach (BED food-combining rules).   Forget any notion of "breakfast" looking like what you and might have once thought that "breakfast" should look like. Those notions flew out th e window long ago and now we're just happy to have foods he can eat!

 

I don't have any personal experience with NAET, but if you have any influence on the order of what foods your practitioner clears, I'd suggest focusing on nutritionally dense foods that would benefit Faith - and here I'd suggest foods that are low-allergen, high-calorie, high-nutrient, non-protein foods (since she already has 4 meats, she's doing okay with protein sources). Avocado and coconut might be good choices for calories, and some anti-oxidant-rich fruits.

 

Good luck - let us know how she does as you add foods.

Suzanne

 

-------------- Original message from "Wyndie" <mileski5@bellsouth.net>: --------------

I'm so glad to hear Tom is able to have more foods now! Oh man, I
remember back in the BBC days you going through the fear of knowing
he was losing everything. I'm so happy he's making improvements.

So as far as rotating, would it work if I feed her along these lines:
Day 1: venison, broccoli, green beans (every meal)
Day 2: same
Day 3: lamb, squash (every meal)
Day 4: same
Day 5: beef, broccoli, green beans (every meal)
Day 6: same
Day 7: chicken, squash (every meal)

Is that what you did basically (different foods but same idea) or
was it a daily change? I have to always give green beans or squash
with every meal b/c those are the two foods I can get in baby food
form (organic) and mix her meds with. Poor little thing is quite
orange b/c of all the squash she eats.

Thanks for helping me with this. I rotated foods with the older
kids but didn't know how to do it with such a limited diet for her.

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Hi Wyndie,
> I'm so sorry to hear Faith is reacting to her last foods. I hope
NAET gives her some relief - long enough to heal her gut a bit and
maybe bring in some new foods. I think it's terrific your
practitioner will barter!! The cost (and time commitment) of NAET
has always seemed prohibitive on top of the cost of HBOT, ABA, and
all our compounded meds and supplements, but I have always wanted to
try it.
> I wonder if you have ever tried rotating Faith's foods? It really
worked well for Tom, although it's quite hard with such a limited
food list. We didn't rotate with Tom til he was 3, and at that
point he didn't have very many foods left. Once we went SCD (which
took away his remaining grains - quinoa and buckwheat and milet), he
was down to just a few meats and ve ggies and oils - no fruits (and
we were too cautious to try nuts or seeds, or even foods in the
families he was already reacting to, like eggplant or green peppers,
because he developed new allergies so easily). We were very afraid
he'd lose all foods eventually. So we had 16 months of a very
restricted diet where he rotated food sets every 2 days (2 days on
and 4 days off each food set), and each food set had only 2 veggies
and 1 meat and 1 oil. We had to give him very large quantities of
those foods in order to get enough calories in him - he basically
ate 7 meals a day, all huge quantities of food. After about 8 mon
> ths we introduced pure juices (Knudsen's Just Juice) of fruits he
had never developed allergies to - blueberry, cranberry,
pomegranate, and after 12 months we introduced some fruits he'd
never had before: papaya and mango, along with their juices. Still,
he'd never outgrown an allergy, and we were really ner vous about
introducing new foods because we viewed the list of foods he'd never
become allergic to as our "reserve" of foods that would have to last
a lifetime - assuming that once he became allergic to a food, it was
gone for good.
> The rotation idea worked though. He stopped developing new
allergies. He didn't lose any more foods once we began to rotate.
And finally, 2 months ago, at age 4.5, we challenged a few old
allergens - carrots and cauliflower - he passed!!! And, we began
even trialing some foods that we used to be very cautious about -
some seeds and nuts. So, we are cautiously optimistic that he may
be able to outgrow his allergies eventually - at least some of them.
He has failed a few challenges too (avocado, strawberry, kiwi, egg),
and his gut problems are still quite severe, but I'm starting to
have hope that we will be able to continue expanding his food list
gradually. Today I had a moment of Mother's Day enthusiasm and
popped a cherry tomato in his mouth and am watching for reactions as
I write.
> He's still quite toxic and has many health problems (hypothyroid,
seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we
have a long road ahead. But we feel like there's a light at the end
of the tunnel for food allergies at least.
> Just thought I'd pass this along - in the food-allergy world I
have come to believe that the idea of rotating foods doesn't get
enough credit, and it's been a real lifesaver for us. I sure hope
NAET is for you, and I look forward to hearing how Faith does with
it. I bet you'll learn a lot about it, and I look forward to hearing
what you learn.
> Best of luck to you and your little girl,
> Suzanne
>
>


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Checked by AVG Free Edition.
Version: 7.5.467 / Virus Database: 269.7.6/815 - Release Date: 5/22/2007 3:49 PM

#840 From: szmidford@...
Date: Wed May 23, 2007 8:05 pm
Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne
iverus
Offline Offline
Send Email Send Email
 

Well, rotating with so few foods is really tough but that's essentially the same thing we did though with more foods. Our rotation was really strict: 2 days on and 5 off  every single food.  Most doctors will tell you to rotate 3 days on and 3 days off, to give the body a break from each food, based on normal stool transit time of 3 days. However, Tom's stool transit time can be 4 days, and I wanted to be very conservative.  You might not be able to be that conservative though with so few foods.

 

One thought I have is that you could put more foods into each rotation and do a 3 days on and 3 days off, and have just 2 food sets. She'd still get a break from each food, but she wouldn't be so drastically limited to just a few foods on each rotation.

 

Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every food for every meal)

Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food for every meal)

I put the squash with the broccoli to help with calories, and the lamb with the green beans sicne the lamb is fatty, so it's high calorie. Both rotations have a puree so she can take her meds.

 

You are in the same boat as we are with regard to veggies and fruits. Tom always tolerated meats better than vegs & fruits, he has always had at least 5 meats to work with, so getting enough protein wasn't a problem. I share your concern with limiting to meats, it stresses the liver. We also decided to give Tom some foods that were lower-allergen because the allergy symptoms were tolerable (we were able to manage his eczema with topical creams) and it seemed the best balance with trying to get him reasonable nutrition. We could not have done that however if he was anaphylactic or had strong behavioral or GI symptoms like diarrhea.

 

You might want to try pureeing green beans and butternut squash - it's pretty easy to do though it takes a little time.  Pureeing your own vegs might also give you access to some foods you may not have tried, like turnips and rutabagas and celery root, which have all become calorie staples for us (it's possible to puree almost ANYTHING!)  Rutabagas and celeriac are SCD legal but fibrous (even when pureed) so if her digestion is sensitive she could have problems with these but Tom never did.  Turnips used to be SCD legal and I view them as legitimate if the child tolerates them. The problem is that they're fibrous, not that they're starchy. With all root vegs, if you're trying to avoid monosaccharides and polysaccharides because of a yeast problem (which is what SCD solves for), it's best to avoid the roots that are large, soft and old where the sugars have turned to starch. Young, small, firm roots are best. Now, all this said, turnips and rutabagas are "goitrogen s" which can afffect the thyroid if eaten in large amounts, so go easy on them.  Some other foods that worked for us were beets and asparagus.  Tom always seemed to handle cabbages and brussels sprouts okay too, and if Faith tolerates broccoli, she may do okay with them also. Just keep these on the same rotation as the broccoli so she gets a break from that entire food family when she's on the other rotation.

 

Does Faith tolerate any juices, like Knudsen's "Just Juice" cranberry juice? I'd like to see her be able to

add some fruits. Tom did well with these juices - they are not from concentrate and have no additives (listed or unlisted).  We sweetened with stevia.  Knuden's also has pomegranate, cherry, grape, blueberry in that line. Great source of antioxidants. He tolerates mango & papaya, which help with carbs & calories. We found two other juices he tolerates - Dynamic Health's papaya and mango puree, which we add water to (about 50:50). 

 

The advantage of rotating is that you will lower the risk of losing more foods. The disadvantage of course is more reliance on getting calories from just a small set of foods at one time.  We always had at least one meat, 2 veggies and 1 oil on each rotation, and we gave each of these at every meal to try and stay balanced. We long ago gave up any idea of having different foods at different meals and all his meals look pretty much identical: breakfast, morning snack, lunch, afternoon snack, and dinner are all the same: a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil (for calories) drizzled on the veggies. Plus iodized salt, of course (Real Salt or the WalMart dextrose-free house brand if you can find it). We give fruit when he wakes up and after school on an empty stomach (BED food-combining rules).   Forget any notion of "breakfast" looking like what you and might have once thought that "breakfast" should look like. Those notions flew out th e window long ago and now we're just happy to have foods he can eat!

 

I don't have any personal experience with NAET, but if you have any influence on the order of what foods your practitioner clears, I'd suggest focusing on nutritionally dense foods that would benefit Faith - and here I'd suggest foods that are low-allergen, high-calorie, high-nutrient, non-protein foods (since she already has 4 meats, she's doing okay with protein sources). Avocado and coconut might be good choices for calories, and some anti-oxidant-rich fruits.

 

Good luck - let us know how she does as you add foods.

Suzanne

 

-------------- Original message from "Wyndie" <mileski5@...>: --------------

I'm so glad to hear Tom is able to have more foods now! Oh man, I
remember back in the BBC days you going through the fear of knowing
he was losing everything. I'm so happy he's making improvements.

So as far as rotating, would it work if I feed her along these lines:
Day 1: venison, broccoli, green beans (every meal)
Day 2: same
Day 3: lamb, squash (every meal)
Day 4: same
Day 5: beef, broccoli, green beans (every meal)
Day 6: same
Day 7: chicken, squash (every meal)

Is that what you did basically (different foods but same idea) or
was it a daily change? I have to always give green beans or squash
with every meal b/c those are the two foods I can get in baby food
form (organic) and mix her meds with. Poor little thing is quite
orange b/c of all the squash she eats.

Thanks for helping me with this. I rotated foods with the older
kids but didn't know how to do it with such a limited diet for her.

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Hi Wyndie,
> I'm so sorry to hear Faith is reacting to her last foods. I hope
NAET gives her some relief - long enough to heal her gut a bit and
maybe bring in some new foods. I think it's terrific your
practitioner will barter!! The cost (and time commitment) of NAET
has always seemed prohibitive on top of the cost of HBOT, ABA, and
all our compounded meds and supplements, but I have always wanted to
try it.
> I wonder if you have ever tried rotating Faith's foods? It really
worked well for Tom, although it's quite hard with such a limited
food list. We didn't rotate with Tom til he was 3, and at that
point he didn't have very many foods left. Once we went SCD (which
took away his remaining grains - quinoa and buckwheat and milet), he
was down to just a few meats and ve ggies and oils - no fruits (and
we were too cautious to try nuts or seeds, or even foods in the
families he was already reacting to, like eggplant or green peppers,
because he developed new allergies so easily). We were very afraid
he'd lose all foods eventually. So we had 16 months of a very
restricted diet where he rotated food sets every 2 days (2 days on
and 4 days off each food set), and each food set had only 2 veggies
and 1 meat and 1 oil. We had to give him very large quantities of
those foods in order to get enough calories in him - he basically
ate 7 meals a day, all huge quantities of food. After about 8 mon
> ths we introduced pure juices (Knudsen's Just Juice) of fruits he
had never developed allergies to - blueberry, cranberry,
pomegranate, and after 12 months we introduced some fruits he'd
never had before: papaya and mango, along with their juices. Still,
he'd never outgrown an allergy, and we were really ner vous about
introducing new foods because we viewed the list of foods he'd never
become allergic to as our "reserve" of foods that would have to last
a lifetime - assuming that once he became allergic to a food, it was
gone for good.
> The rotation idea worked though. He stopped developing new
allergies. He didn't lose any more foods once we began to rotate.
And finally, 2 months ago, at age 4.5, we challenged a few old
allergens - carrots and cauliflower - he passed!!! And, we began
even trialing some foods that we used to be very cautious about -
some seeds and nuts. So, we are cautiously optimistic that he may
be able to outgrow his allergies eventually - at least some of them.
He has failed a few challenges too (avocado, strawberry, kiwi, egg),
and his gut problems are still quite severe, but I'm starting to
have hope that we will be able to continue expanding his food list
gradually. Today I had a moment of Mother's Day enthusiasm and
popped a cherry tomato in his mouth and am watching for reactions as
I write.
> He's still quite toxic and has many health problems (hypothyroid,
seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we
have a long road ahead. But we feel like there's a light at the end
of the tunnel for food allergies at least.
> Just thought I'd pass this along - in the food-allergy world I
have come to believe that the idea of rotating foods doesn't get
enough credit, and it's been a real lifesaver for us. I sure hope
NAET is for you, and I look forward to hearing how Faith does with
it. I bet you'll learn a lot about it, and I look forward to hearing
what you learn.
> Best of luck to you and your little girl,
> Suzanne
>
>


#839 From: Jenny Kalis <j_kalis@...>
Date: Wed May 23, 2007 2:09 pm
Subject: Re: Re: Kinesiology/NAET
j_kalis
Offline Offline
Send Email Send Email
 
Wyndie,  Our practitioner would say the same thing.
It's best to go in a certain order and you may have to
redo some at some point.  You can get some Gerber baby
food jars (because they are lead free) and put the
foods you want to treat in them and do it yourself at
home.  Our practitioner taught me what to do.  You buy
a little pressure point massager for a couple of
dollars and massage the points or gates in the proper
order.  Just watch carefully what your practitioner
does and you can try to duplicate it at home for the
purpose of helping the treatments "stick."  This will
save you money and you can try the treatments at home
on your other kids.  I massage the pressure points at
night and do the brain release technique and it
relaxes my son to go to bed.  He likes it very much
and asks for it.  Do your kids have any probiotics
they can tolerate?

Jenny
--- Wyndie <mileski5@...> wrote:

> Do you know if the "clearing" has to be done in a
> certain order?
> B/c Faith only has 6 safe foods, we can't clear her
> of Vit C b/c
> that would take away all her foods and leave her
> with only meat to
> eat, which I will not do to her.  That would kill
> her liver I'm
> sure.  Her practitioner has never had anyone with so
> many allergies
> so she said we will do it out of order but she
> didn't know if it
> would be permanent or not.  She's a lovely lady, but
> she cannot
> answer all my questions and that makes me
> uncomfortable.  I'm a WHY
> kinda girl and she said she can't answer my WHY
> questions.  She
> knows what she knows and that's it.  But I have
> heard she is very
> good and I figured if we even clear her temporarily,
> it would be
> useful, so I am continuing.
> So far she cleared her of chicken.  She's supposedly
> cleared of Eggs
> too but I can't test her on that b/c her siblings
> are anaphylactic
> to eggs and egg protein becomes airborne when cooked
> so I can't cook
> any to test her on.  But since chicken and egg were
> at the same
> time, I imagine she's clear of it.  She totally
> loved her chicken
> though!  She scarfed it down like crazy!!  She must
> have loved
> having a different food for once.  LOL  We go
> tomorrow to see if she
> is cleared on calcium and will clear her of rice
> hopefully so she
> can have some grain to fill her up while we treat
> other foods.
> I'm glad it's working for your son.  I still
> struggle to do
> something on my kids that I don't understand but
> knowing that it
> helps others makes me stay the course.
> Thanks for your info!
> Wyndie
>
> --- In foodallergyautism@yahoogroups.com, Jenny
> Kalis <j_kalis@...>
> wrote:
> >
> > Wyndie, My son is doing it.  He's had about 5 or 6
> > treatments.  I think it's helping.  We also
> started a
> > lot of new stuff this year, including a lot of
> Yasko
> > stuff so it's hard to know for sure what it is (or
> > isn't) but you may remember he had a really bad
> summer
> > last summer with random reactions at the swimming
> pool
> > and anaphylaxis from just running around outside
> for a
> > few minutes.  We did some allergy testing in the
> fall
> > and he tested 5+/5 for all tree pollen and grasses
> and
> > we were told he'd probably have to live in a
> bubble in
> > the spring basically.  The allergist said he
> wouldn't
> > be able to go out for recess or play outdoor
> sports
> > and every time he came in the door we'd have to
> give
> > him a shower and that we'd have to keep our
> windows
> > closed...  Well, I hate to say it because once I
> do
> > you know what will happen, but he hasn't had one
> > single allergy issue.  I can't believe that the
> small
> > amount of NAET he's had would account for the
> > remarkable improvment.  I think some other things
> > might be helping but who knows.  Half the kids on
> his
> > soccer team have had NAET and their parents all
> swear
> > this lady cured their allergies with it.  Crazy,
> huh?!
> >  In the fall we did the SCD diet and he was
> failing to
> > thrive and still is, so then we did Neocate from
> > December to the end of March (maybe the lack of
> > exposure to food allergens calmed his system
> down?),
> > and then at the beginning of April we started raw
> > organic goat milk from a local farm.  We've also
> done
> > a bunch of other stuff like step one Yasko, and we
> > have also loaded up on liquid ionic molybdenum,
> > selenium, have been doing EDTA bath and chewing
> gum
> > and Thorne brand Vitamin K2.  I feel NAET has been
> > beneficial enough to keep doing it.  I feel much
> > stronger and healthier in general since starting
> it.
> > I still have allergies but they aren't consuming
> my
> > life as they were before and I hope this is also
> the
> > case for my son.  For example, right now my nose
> is
> > raw on the inside so I know the pollen is
> bothering me
> > but I don't have that overall tired, horrible,
> achy
> > feeling I've been fighting for so many years that
> I
> > know is allergy and yeast related.  I'm also not
> > waking up with stuffy head and sore throat like I
> used
> > to.  Maybe being treated for yeast helped.  Who
> knows.
> >  Good luck and please, please update us on your
> > progress.  Parker just finished treatments for
> calcium
> > and B vitamins, which were both really hard due to
> > what he had to avoid for 25-29 hours afterward.
> Next
> > is sugar for him and grass for me.  I was going
> every
> > week but now I am just scheduling us every 3 weeks
> > because of $$.  We may do more this summer.
> That's
> > awsome you are getting it done for free.  You'd
> better
> > start chopping those veggies!  :)  I wish someone
> > would make me cultured veggies.  She's getting a
> good
> > deal!  I've seen they sell for $18 plus shipping
> for a
> > jar!
> >
> > Jenny
>
>
>




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#838 From: "Wyndie" <mileski5@...>
Date: Wed May 23, 2007 3:15 am
Subject: Was: Kinesiology/NAET - Now Rotation diet Suzanne
wyndie_mileski
Offline Offline
Send Email Send Email
 
I'm so glad to hear Tom is able to have more foods now!  Oh man, I
remember back in the BBC days you going through the fear of knowing
he was losing everything.  I'm so happy he's making improvements.

So as far as rotating, would it work if I feed her along these lines:
Day 1: venison, broccoli, green beans (every meal)
Day 2: same
Day 3: lamb, squash (every meal)
Day 4: same
Day 5: beef, broccoli, green beans (every meal)
Day 6: same
Day 7: chicken, squash (every meal)

Is that what you did basically (different foods but same idea) or
was it a daily change?  I have to always give green beans or squash
with every meal b/c those are the two foods I can get in baby food
form (organic) and mix her meds with.  Poor little thing is quite
orange b/c of all the squash she eats.

Thanks for helping me with this.  I rotated foods with the older
kids but didn't know how to do it with such a limited diet for her.

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Hi Wyndie,
> I'm so sorry to hear Faith is reacting to her last foods.  I hope
NAET gives her some relief - long enough to heal her gut a bit and
maybe bring in some new foods.  I think it's terrific your
practitioner will barter!! The cost (and time commitment) of NAET
has always seemed prohibitive on top of the cost of HBOT, ABA, and
all our compounded meds and supplements, but I have always wanted to
try it.
> I wonder if you have ever tried rotating Faith's foods?  It really
worked well for Tom, although it's quite hard with such a limited
food list.  We didn't rotate with Tom til he was 3, and at that
point he didn't have very many foods left. Once we went SCD (which
took away his remaining grains - quinoa and buckwheat and milet), he
was down to just a few meats and veggies and oils - no fruits (and
we were too cautious to try nuts or seeds, or even foods in the
families he was already reacting to, like eggplant or green peppers,
because he developed new allergies so easily). We were very afraid
he'd lose all foods eventually.  So we had 16 months of a very
restricted diet where he rotated food sets every 2 days (2 days on
and 4 days off each food set), and each food set had only 2 veggies
and 1 meat and 1 oil. We had to give him very large quantities of
those foods in order to get enough calories in him - he basically
ate 7 meals a day, all huge quantities of food.  After about 8 mon
> ths we introduced pure juices (Knudsen's Just Juice) of fruits he
had never developed allergies to - blueberry, cranberry,
pomegranate, and after 12 months we introduced some fruits he'd
never had before: papaya and mango, along with their juices.  Still,
he'd never outgrown an allergy, and we were really nervous about
introducing new foods because we viewed the list of foods he'd never
become allergic to as our "reserve" of foods that would have to last
a lifetime - assuming that once he became allergic to a food, it was
gone for good.
> The rotation idea worked though.  He stopped developing new
allergies. He didn't lose any more foods once we began to rotate.
And finally, 2 months ago, at age 4.5, we challenged a few old
allergens - carrots and cauliflower - he passed!!!  And, we began
even trialing some foods that we used to be very cautious about -
some seeds and nuts.  So, we are cautiously optimistic that he may
be able to outgrow his allergies eventually - at least some of them.
He has failed a few challenges too (avocado, strawberry, kiwi, egg),
and his gut problems are still quite severe, but I'm starting to
have hope that we will be able to continue expanding his food list
gradually.  Today I had a moment of Mother's Day enthusiasm and
popped a cherry tomato in his mouth and am watching for reactions as
I write.
> He's still quite toxic and has many health problems (hypothyroid,
seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we
have a long road ahead. But we feel like there's a light at the end
of the tunnel for food allergies at least.
> Just thought I'd pass this along - in the food-allergy world I
have come to believe that the idea of rotating foods doesn't get
enough credit, and it's been a real lifesaver for us. I sure hope
NAET is for you, and I look forward to hearing how Faith does with
it. I bet you'll learn a lot about it, and I look forward to hearing
what you learn.
> Best of luck to you and your little girl,
> Suzanne
>
>

#837 From: "Wyndie" <mileski5@...>
Date: Wed May 23, 2007 3:05 am
Subject: Re: Kinesiology/NAET
wyndie_mileski
Offline Offline
Send Email Send Email
 
Do you know if the "clearing" has to be done in a certain order?
B/c Faith only has 6 safe foods, we can't clear her of Vit C b/c
that would take away all her foods and leave her with only meat to
eat, which I will not do to her.  That would kill her liver I'm
sure.  Her practitioner has never had anyone with so many allergies
so she said we will do it out of order but she didn't know if it
would be permanent or not.  She's a lovely lady, but she cannot
answer all my questions and that makes me uncomfortable.  I'm a WHY
kinda girl and she said she can't answer my WHY questions.  She
knows what she knows and that's it.  But I have heard she is very
good and I figured if we even clear her temporarily, it would be
useful, so I am continuing.
So far she cleared her of chicken.  She's supposedly cleared of Eggs
too but I can't test her on that b/c her siblings are anaphylactic
to eggs and egg protein becomes airborne when cooked so I can't cook
any to test her on.  But since chicken and egg were at the same
time, I imagine she's clear of it.  She totally loved her chicken
though!  She scarfed it down like crazy!!  She must have loved
having a different food for once.  LOL  We go tomorrow to see if she
is cleared on calcium and will clear her of rice hopefully so she
can have some grain to fill her up while we treat other foods.
I'm glad it's working for your son.  I still struggle to do
something on my kids that I don't understand but knowing that it
helps others makes me stay the course.
Thanks for your info!
Wyndie

--- In foodallergyautism@yahoogroups.com, Jenny Kalis <j_kalis@...>
wrote:
>
> Wyndie, My son is doing it.  He's had about 5 or 6
> treatments.  I think it's helping.  We also started a
> lot of new stuff this year, including a lot of Yasko
> stuff so it's hard to know for sure what it is (or
> isn't) but you may remember he had a really bad summer
> last summer with random reactions at the swimming pool
> and anaphylaxis from just running around outside for a
> few minutes.  We did some allergy testing in the fall
> and he tested 5+/5 for all tree pollen and grasses and
> we were told he'd probably have to live in a bubble in
> the spring basically.  The allergist said he wouldn't
> be able to go out for recess or play outdoor sports
> and every time he came in the door we'd have to give
> him a shower and that we'd have to keep our windows
> closed...  Well, I hate to say it because once I do
> you know what will happen, but he hasn't had one
> single allergy issue.  I can't believe that the small
> amount of NAET he's had would account for the
> remarkable improvment.  I think some other things
> might be helping but who knows.  Half the kids on his
> soccer team have had NAET and their parents all swear
> this lady cured their allergies with it.  Crazy, huh?!
>  In the fall we did the SCD diet and he was failing to
> thrive and still is, so then we did Neocate from
> December to the end of March (maybe the lack of
> exposure to food allergens calmed his system down?),
> and then at the beginning of April we started raw
> organic goat milk from a local farm.  We've also done
> a bunch of other stuff like step one Yasko, and we
> have also loaded up on liquid ionic molybdenum,
> selenium, have been doing EDTA bath and chewing gum
> and Thorne brand Vitamin K2.  I feel NAET has been
> beneficial enough to keep doing it.  I feel much
> stronger and healthier in general since starting it.
> I still have allergies but they aren't consuming my
> life as they were before and I hope this is also the
> case for my son.  For example, right now my nose is
> raw on the inside so I know the pollen is bothering me
> but I don't have that overall tired, horrible, achy
> feeling I've been fighting for so many years that I
> know is allergy and yeast related.  I'm also not
> waking up with stuffy head and sore throat like I used
> to.  Maybe being treated for yeast helped.  Who knows.
>  Good luck and please, please update us on your
> progress.  Parker just finished treatments for calcium
> and B vitamins, which were both really hard due to
> what he had to avoid for 25-29 hours afterward.  Next
> is sugar for him and grass for me.  I was going every
> week but now I am just scheduling us every 3 weeks
> because of $$.  We may do more this summer.  That's
> awsome you are getting it done for free.  You'd better
> start chopping those veggies!  :)  I wish someone
> would make me cultured veggies.  She's getting a good
> deal!  I've seen they sell for $18 plus shipping for a
> jar!
>
> Jenny

#836 From: szmidford@...
Date: Sun May 13, 2007 11:27 pm
Subject: Re: Kinesiology/NAET
iverus
Offline Offline
Send Email Send Email
 

Hi Wyndie,

I'm so sorry to hear Faith is reacting to her last foods.  I hope NAET gives her some relief - long enough to heal her gut a bit and maybe bring in some new foods.  I think it's terrific your practitioner will barter!! The cost (and time commitment) of NAET has always seemed prohibitive on top of the cost of HBOT, ABA, and all our compounded meds and supplements, but I have always wanted to try it.

I wonder if you have ever tried rotating Faith's foods?  It really worked well for Tom, although it's quite hard with such a limited food list.  We didn't rotate with Tom til he was 3, and at that point he didn't have very many foods left. Once we went SCD (which took away his remaining grains - quinoa and buckwheat and milet), he was down to just a few meats and veggies and oils - no fruits (and we were too cautious to try nuts or seeds, or even foods in the families he was already reacting to, like eggplant or green peppers, because he developed new allergies so easily). We were very afraid he'd lose all foods eventually.  So we had 16 months of a very restricted diet where he rotated food sets every 2 days (2 days on and 4 days off each food set), and each food set had only 2 veggies and 1 meat and 1 oil. We had to give him very large quantities of those foods in order to get enough calories in him - he basically ate 7 meals a day, all huge quantities of food. nbsp; After about 8 months we introduced pure juices (Knudsen's Just Juice) of fruits he had never developed allergies to - blueberry, cranberry, pomegranate, and after 12 months we introduced some fruits he'd never had before: papaya and mango, along with their juices.  Still, he'd never outgrown an allergy, and we were really nervous about introducing new foods because we viewed the list of foods he'd never become allergic to as our "reserve" of foods that would have to last a lifetime - assuming that once he became allergic to a food, it was gone for good.

The rotation idea worked though.  He stopped developing new allergies. He didn't lose any more foods once we began to rotate.  And finally, 2 months ago, at age 4.5, we challenged a few old allergens - carrots and cauliflower - he passed!!!  And, we began even trialing some foods that we used to be very cautious about - some seeds and nuts.  So, we are cautiously optimistic that he may be able to outgrow his allergies eventually - at least some of them. He has failed a few challenges too (avocado, strawberry, kiwi, egg), and his gut problems are still quite severe, but I'm starting to have hope that we will be able to continue expanding his food list gradually.  Today I had a moment of Mother's Day enthusiasm and popped a cherry tomato in his mouth and am watching for reactions as I write.
He's still quite toxic and has many health problems (hypothyroid, seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we have a long road ahea d. But we feel like there's a light at the end of the tunnel for food allergies at least. 

Just thought I'd pass this along - in the food-allergy world I have come to believe that the idea of rotating foods doesn't get enough credit, and it's been a real lifesaver for us. I sure hope NAET is for you, and I look forward to hearing how Faith does with it. I bet you'll learn a lot about it, and I look forward to hearing what you learn. 

Best of luck to you and your little girl,

Suzanne

 

-------------- Original message from "Wyndie" <mileski5@...>: --------------

We are going to start NAET with Faith on Monday. She has started
reacting to her last 6 foods and have tried everything and yet she
continues reacting. I know know that often it's only temporary, but
I hope NAET will hold her on course while we figure out how to calm
her immune system down. I know she's mercury toxic, so I hope this
doesn't cause her to pick up new allergies as the energy moves
around!

The best part is, I don't have to pay for it!! The practitioner
loves cultured veggies and doesn't have time to make them. I sell
them all the time, so I told her I'd give them to her if she'd work
on my kids. :) Gotta love trading!!

I'll let you guys know how it goes. I know we haven't been on much
lately and I imagine it's b/c our kids take an inordinate amount of
work, but if this helps, I'll let you know so you can pursue it as
well.

Jenny, I saw you did this on yourself, but did you do it with your
child ren yet? Has anyone done it sucessfully with your children?

Wyndie


-------------- Original message from "Wyndie" <mileski5@...>: --------------

We are going to start NAET with Faith on Monday. She has started
reacting to her last 6 foods and have tried everything and yet she
continues reacting. I know know that often it's only temporary, but
I hope NAET will hold her on course while we figure out how to calm
her immune system down. I know she's mercury toxic, so I hope this
doesn't cause her to pick up new allergies as the energy moves
around!

The best part is, I don't have to pay for it!! The practitioner
loves cultured veggies and doesn't have time to make them. I sell
them all the time, so I told her I'd give them to her if she'd work
on my kids. :) Gotta love trading!!

I'll let you guys know how it goes. I know we haven't been on much
lately and I imagine it's b/c our kids take an inordinate amount of
work, but if this helps, I'll let you know so you can pursue it as
well.

Jenny, I saw you did this on yourself, but did you do it with your
child ren yet? Has anyone done it sucessfully with your children?

Wyndie


#835 From: Jenny Kalis <j_kalis@...>
Date: Sun May 13, 2007 2:53 am
Subject: Re: Kinesiology/NAET
j_kalis
Offline Offline
Send Email Send Email
 
Wyndie, My son is doing it.  He's had about 5 or 6
treatments.  I think it's helping.  We also started a
lot of new stuff this year, including a lot of Yasko
stuff so it's hard to know for sure what it is (or
isn't) but you may remember he had a really bad summer
last summer with random reactions at the swimming pool
and anaphylaxis from just running around outside for a
few minutes.  We did some allergy testing in the fall
and he tested 5+/5 for all tree pollen and grasses and
we were told he'd probably have to live in a bubble in
the spring basically.  The allergist said he wouldn't
be able to go out for recess or play outdoor sports
and every time he came in the door we'd have to give
him a shower and that we'd have to keep our windows
closed...  Well, I hate to say it because once I do
you know what will happen, but he hasn't had one
single allergy issue.  I can't believe that the small
amount of NAET he's had would account for the
remarkable improvment.  I think some other things
might be helping but who knows.  Half the kids on his
soccer team have had NAET and their parents all swear
this lady cured their allergies with it.  Crazy, huh?!
  In the fall we did the SCD diet and he was failing to
thrive and still is, so then we did Neocate from
December to the end of March (maybe the lack of
exposure to food allergens calmed his system down?),
and then at the beginning of April we started raw
organic goat milk from a local farm.  We've also done
a bunch of other stuff like step one Yasko, and we
have also loaded up on liquid ionic molybdenum,
selenium, have been doing EDTA bath and chewing gum
and Thorne brand Vitamin K2.  I feel NAET has been
beneficial enough to keep doing it.  I feel much
stronger and healthier in general since starting it.
I still have allergies but they aren't consuming my
life as they were before and I hope this is also the
case for my son.  For example, right now my nose is
raw on the inside so I know the pollen is bothering me
but I don't have that overall tired, horrible, achy
feeling I've been fighting for so many years that I
know is allergy and yeast related.  I'm also not
waking up with stuffy head and sore throat like I used
to.  Maybe being treated for yeast helped.  Who knows.
  Good luck and please, please update us on your
progress.  Parker just finished treatments for calcium
and B vitamins, which were both really hard due to
what he had to avoid for 25-29 hours afterward.  Next
is sugar for him and grass for me.  I was going every
week but now I am just scheduling us every 3 weeks
because of $$.  We may do more this summer.  That's
awsome you are getting it done for free.  You'd better
start chopping those veggies!  :)  I wish someone
would make me cultured veggies.  She's getting a good
deal!  I've seen they sell for $18 plus shipping for a
jar!

Jenny
--- Wyndie <mileski5@...> wrote:

> We are going to start NAET with Faith on Monday.
> She has started
> reacting to her last 6 foods and have tried
> everything and yet she
> continues reacting.  I know know that often it's
> only temporary, but
> I hope NAET will hold her on course while we figure
> out how to calm
> her immune system down.  I know she's mercury toxic,
> so I hope this
> doesn't cause her to pick up new allergies as the
> energy moves
> around!
>
> The best part is, I don't have to pay for it!!  The
> practitioner
> loves cultured veggies and doesn't have time to make
> them.  I sell
> them all the time, so I told her I'd give them to
> her if she'd work
> on my kids. :)  Gotta love trading!!
>
> I'll let you guys know how it goes.  I know we
> haven't been on much
> lately and I imagine it's b/c our kids take an
> inordinate amount of
> work, but if this helps, I'll let you know so you
> can pursue it as
> well.
>
> Jenny, I saw you did this on yourself, but did you
> do it with your
> children yet?  Has anyone done it sucessfully with
> your children?
>
> Wyndie
>
>




________________________________________________________________________________\
____
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Sims Stories at Yahoo! Games.
http://sims.yahoo.com/

#834 From: "Wyndie" <mileski5@...>
Date: Sun May 13, 2007 2:06 am
Subject: Kinesiology/NAET
wyndie_mileski
Offline Offline
Send Email Send Email
 
We are going to start NAET with Faith on Monday.  She has started
reacting to her last 6 foods and have tried everything and yet she
continues reacting.  I know know that often it's only temporary, but
I hope NAET will hold her on course while we figure out how to calm
her immune system down.  I know she's mercury toxic, so I hope this
doesn't cause her to pick up new allergies as the energy moves
around!

The best part is, I don't have to pay for it!!  The practitioner
loves cultured veggies and doesn't have time to make them.  I sell
them all the time, so I told her I'd give them to her if she'd work
on my kids. :)  Gotta love trading!!

I'll let you guys know how it goes.  I know we haven't been on much
lately and I imagine it's b/c our kids take an inordinate amount of
work, but if this helps, I'll let you know so you can pursue it as
well.

Jenny, I saw you did this on yourself, but did you do it with your
children yet?  Has anyone done it sucessfully with your children?

Wyndie

#833 From: "Wyndie" <twncmileski@...>
Date: Mon Mar 26, 2007 12:35 pm
Subject: Re: Cromolyn
wyndie_mileski
Offline Offline
Send Email Send Email
 
I haven't Jenny, so I'll go peruse their old messages - thanks!

Funny thing is, I realized I was accidentally giving her enzymes
(she doesn't tolerate any and these were in another supplement) and
as her system cleared the enzymes, she stopped reacting to her
food.  Very strange...

Thanks for the reply :)

Wyndie

--- In foodallergyautism@yahoogroups.com, Jenny Kalis <j_kalis@...>
wrote:
>
> Wyndie,  Are you a member of the eosinophilgastro
> yahoo group?  It seems to me a lot of those parents
> have tried Gastrocrom.  You may want to ask there for
> the purpose of getting more answers as it is a much
> bigger group.  I do think Suzanne is pretty familiar
> with Gastrocrom and hopefully she can answer your
> question.  I'd like to hear more about it as well!  I
> think we may have tried Nasalcrom in the past.  It
> seems familiar to me.  Our pediatrician liked it.  I
> didn't give it much of a chance, though, at the time.
>
>
> Jenny
> --- Wyndie <twncmileski@...> wrote:
>
> > Have any of you tried this with your child to
> > prevent further food
> > allergies?  My DAN! wants me to consider it and I'm
> > just wondering if
> > anyone has any experience with it.
> > Thanks!
> > Wyndie
> >
> >
>
>
>
>
>
_____________________________________________________________________
_______________
> Food fight? Enjoy some healthy debate
> in the Yahoo! Answers Food & Drink Q&A.
> http://answers.yahoo.com/dir/?link=list&sid=396545367
>

#832 From: Jenny Kalis <j_kalis@...>
Date: Sun Mar 25, 2007 12:40 pm
Subject: Re: Cromolyn
j_kalis
Offline Offline
Send Email Send Email
 
Wyndie,  Are you a member of the eosinophilgastro
yahoo group?  It seems to me a lot of those parents
have tried Gastrocrom.  You may want to ask there for
the purpose of getting more answers as it is a much
bigger group.  I do think Suzanne is pretty familiar
with Gastrocrom and hopefully she can answer your
question.  I'd like to hear more about it as well!  I
think we may have tried Nasalcrom in the past.  It
seems familiar to me.  Our pediatrician liked it.  I
didn't give it much of a chance, though, at the time.


Jenny
--- Wyndie <twncmileski@...> wrote:

> Have any of you tried this with your child to
> prevent further food
> allergies?  My DAN! wants me to consider it and I'm
> just wondering if
> anyone has any experience with it.
> Thanks!
> Wyndie
>
>




________________________________________________________________________________\
____
Food fight? Enjoy some healthy debate
in the Yahoo! Answers Food & Drink Q&A.
http://answers.yahoo.com/dir/?link=list&sid=396545367

#831 From: "Wyndie" <twncmileski@...>
Date: Sun Mar 25, 2007 5:38 am
Subject: Cromolyn
wyndie_mileski
Offline Offline
Send Email Send Email
 
Have any of you tried this with your child to prevent further food
allergies?  My DAN! wants me to consider it and I'm just wondering if
anyone has any experience with it.
Thanks!
Wyndie

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