Suzanne and others, Can someone share their experiences regarding allergies or intolerance to vitamins? My son was on a standard polyvisol based multi-vitamin...
Does anyone on this list use pure activated charcoal? My son is hypersensitive to everything. He essentially only tolerates pure vitamins, minerals, amino...
Hi Tasha, I have never tried charcoal, as my son is about as sensitive as yours is. I have always wondered. I have chosen not to use charcoal just because my...
Santona, This is a tough one, and I'm afraid I don't have a lot of personal experience with vitamins. Tom has never tolerated any multi-vitamins, and we are...
Thanks Suzanne for the input on vitamins. We did try Supernuthera from Kirkmans for multivitamins. Neel had diarrhea; Dr. Cutler told us to stop as it is...
My super allergic kids started on the Kirkman's calcium powder, B6 and zinc, along with the Nordic CLO and did fine. My son now uses Nu Thera, taurine, and Co...
Hi Tasha Kirkman sells activated charcoal that they report is allergen free. Source is Goodnnatural. When I emailed the company to find out more about the...
Hey Jenny, we're getting ready to try Kirkman's calcium powder. Can you give me some advice on dosing and administration? How much do you give? Kirkman's said...
I don't think the protocol is on Dr. Neubrander's website, but there is Stan Kurtz's MB12/Valtrex Yahoo group where I learned a lot of this information. I...
For an allergy perspective, we tried Brainchild's Ultra-sensitive minerals, and Tom couldn't tolerate them. It was probably due to the xanthan gum - it's...
Dear Food Allergy families I wonder is there anywhere I can look at instructons for doing the food allergy eliminaton diet process? My allergist said he had a...
Hi Does anyone have reccomendations for safe fingerpaints for highly allergic children. My son's hands (already compromised by recurring eczema) gets much...
Hi My son is G-tube fed an elemental formula; he also has eosinophilia (EE). He always had phlegm in his stools despite the formula etc. His EE is in remission...
Santona, I would tend to suspect the fish oils first of all. My son did not consume any fish orally, and I stopped eating fish while nursing him when he was 2...
Santona, It is possible to have a very delayed reaction to anything, however, the fish oil has such anti-inflamatory properties I wouldn't just stop it. How...
Thanks for the input. Yes, I am really struggling to establish if any of the supplements are having any adverse effect. We continue to have sporadic bursts of...
Jenny Yes, I have increased the dosage to fiull strength. As you indicated, my son simply does not have a stable baseline of poop odor, consistency, phlegm,...
Here's a thought- I think putting it on the skin would be effective. How about putting it on the skin for 2-3 weeks, then add an additional oral dose of the ...
Yes, it has been a very frustrating process to figure out which biomedical treatments would work for our son. We really didn't see any progress for the first...
Hi Rob's mom, Sorry to take so long to reply. You are asking excellent questions! I will try to answer the best I can. First though, since my time is really...
My daughter went formula only at 7 months of age after a failure to thrive dx despite the fact that I was nursing her and eating only veggies, meats, olive...
Thanks Suzanne and Santona! I have been "off-line for a few weeks because we have been traveling to see two new DAN doctors out of state. Really fun when your...
Hi Tasha, Gosh, you're in Alaska - I hope the trip to see a DAN doc was worth it! Who did you see, and were they helpful? There used to be airlines that had...
Jenny, Since you mentioned you're thinking of trying SCD with your daughter, I thought I'd mention that she can do it without eggs and nuts. My son is on a...
We haven't been to see Krigsman, but my son has been scoped by a doctor who does a lot of ASD kids (Hart in VA), and I know a lot of people who have been to...
An avacado milk would work for a formula. Mike Payne recommended blending avacados with water and adding some sort of amino acid supplement from Metabolic ...
Suzanne are beets permitted on scd? when I saw turnips and rutabagas, I thought that they're kind of similar. we've been feeding lots of beets. thanks Rob's...
Beets are SCD legal. They're easy to digest, so they're a food that you could probably introduce shortly after the intro diet. Some people feel beets contain...
I think Santona's nutritionist was working on a formula base that included honey. If your kids tolerate that, would it make the formula more palatable? For us,...
Hi everyone, I am excited to be on this list because we do SCD but are pretty limited due to so many food intolerances. I love the pecan bread board but I...