For an allergy perspective, we tried Brainchild's Ultra-sensitive minerals, and Tom couldn't tolerate them. It was probably due to the xanthan gum - it's derived from corn and Tom's super-sensitive to corn. I talked with Michael Lang at Brainchild extensively about this, and it seems there are only 2 sources for xanthan gum inthe world - he chose the one he thought was cleaner. He feels it's necessary to make a product that will hold the minerals in a good suspension. With this product, though, a child gets a fairly high dose of xanthan gum, since they're taking about 3 tablespoons of the minerals per day.  Although it's beel cleared as SCD legal by Elaine Gottschall, xanthan gum is otherwise an SCD-illegal additive, since it is not easily digestive, coats and gums up the intestines, and feeds yeast (as do all gums).

I don't mean to criticize Brainchild's products - they're carefully and thoughtfully made, and they work well for a lot of kids. Not mine, though. I just wanted to explain why.

We have had great success with New Beginnings Chelate-Mate minerals (calcium-free).  It's one of the very few oral supplements Tom tolerates. I am releived to have found a mineral he'll tolerate.  Another option for minerals is the Water Oz line of single minerals. I've heard from parents that proper dosing can be a little confusing with these, though.

Suzanne

-------------- Original message from Jenny Kalis <j_kalis@...>: --------------

My super allergic kids started on the Kirkman's
calcium powder, B6 and zinc, along with the Nordic CLO
and did fine. My son now uses Nu Thera, taurine, and
Co Q10 by Metabolic Maintenance. He also uses Perque
Potent C Powder and the Enduraguard PAK (glutamine
supp.) We also use Mindlinx and Klaire's for
probiotics. We have had some aggitation with the
Brainchild Vits. but I still plan to keep trying them
in order to boost minerals. We also plan to get back
on the Intestimend this summer (we had to give this
one some time). We now also use the Houston's
enzymes. My kids are allergic to everything and these
have all been good, with the exception of the
Brainchild causing the aggitation, but I hear in some
this wears off.

Jenny
--- santonapal <pals@corning.com> wrote:

>
> Thanks Suzanne for the input on vitamins. We did try
> Supernuthera
> from Kirkm ans for multivitamins. Neel had diarrhea;
> Dr. Cutler told
> us to stop as it is apparently not tolerated by some
> kids (I want to
> trial it again since at the time Neel younger
> brother also had a
> stomach bug). Since this approach did not work, we
> have been
> trialling B6 in small doses while we continue with
> B12 injections.
> Unfortunately I am not seeing much improvements
> (except for some
> improvement in eye contact) from anything yet. I
> dont expect to see
> any results until I can reach the high dosage of
> B6/Mg that has
> worked for others. However, we always have some
> other negatives that
> seem to come in the way after 3 weeks of
> introduction.
>
> I am continuing with the mB12 injections since Neel
> had one mutation
> in the MTHFR gene and because he is playing with his
> tongue (a known
> side effect) indicating it is doing something in his
> system. I had
> read that Dr. Neubrander was going to disclose his
> study on nasal
> mB12. I did not know that the pathways of action are
> different.
> Perhaps we need to try that route too. Is this
> protocol on his web
> page yet??
> Santona
>
>
>
>
>

__________________________________________________
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I don't think the protocol is on Dr. Neubrander's website, but there is Stan Kurtz's MB12/Valtrex Yahoo group where I learned a lot of this information. I don't have the URL with me though.

Suzanne

-------------- Original message from "santonapal" <pals@...>: --------------

Thanks Suzanne for the input on vitamins. We did try Supernuthera
from Kirkmans for multivitamins. Neel had diarrhea; Dr. Cutler told
us to stop as it is apparently not tolerated by some kids (I want to
trial it again since at the time Neel younger brother also had a
stomach bug). Since this approach did not work, we have been
trialling B6 in small doses while we continue with B12 injections.
Unfortunately I am not seeing much improvements (except for some
improvement in eye contact) from anything yet. I dont expect to see
any results until I can reach the high dosage of B6/Mg that has
worked for others. However, we always have some other negatives that
seem to come in the way after 3 weeks of introduction.

I am continuing with the mB12 injections since Neel had one mutation
in the MTHFR gene and because he is playing with his tongue (a known
side effect) indicating it is doing something in his system. I had
read th at Dr. Neubrander was going to disclose his study on nasal
mB12. I did not know that the pathways of action are different.
Perhaps we need to try that route too. Is this protocol on his web
page yet??
Santona

Hey Jenny, we're getting ready to try Kirkman's calcium powder. Can you give me some advice on dosing and administration? How much do you give? Kirkman's said "between 500mg and 25oo mg .. that's a wide range!  And I know it has to be given apart from zinc, but how far apart? We give zinc 3 times a day in his drink on an empty stomach (waking, after school, and before dinner), and again as a transdermal cream at bedtime. Can the calcium be given at a meal, sprinkled on food, or is it like other minerals, where best absorption is on an empty stomach? And if this is true, how do you get a powder in the kid on an empty stomach? Does it dissolve in water?

Thanks for any advice you or listmates have ...

Suzanne

-------------- Original message from Jenny Kalis <j_kalis@...>: --------------

My super allergic kids started on the Kirkman's
calcium powder, B6 and zinc, along with the Nordic CLO
and did fine. My son now uses Nu Thera, taurine, and
Co Q10 by Metabolic Maintenance. He also uses Perque
Potent C Powder and the Enduraguard PAK (glutamine
supp.) We also use Mindlinx and Klaire's for
probiotics. We have had some aggitation with the
Brainchild Vits. but I still plan to keep trying them
in order to boost minerals. We also plan to get back
on the Intestimend this summer (we had to give this
one some time). We now also use the Houston's
enzymes. My kids are allergic to everything and these
have all been good, with the exception of the
Brainchild causing the aggitation, but I hear in some
this wears off.

Jenny
--- santonapal <pals@corning.com> wrote:

>
> Thanks Suzanne for the input on vitamins. We did try
> Supernuthera
> from Kirkm ans for multivitamins. Neel had diarrhea;
> Dr. Cutler told
> us to stop as it is apparently not tolerated by some
> kids (I want to
> trial it again since at the time Neel younger
> brother also had a
> stomach bug). Since this approach did not work, we
> have been
> trialling B6 in small doses while we continue with
> B12 injections.
> Unfortunately I am not seeing much improvements
> (except for some
> improvement in eye contact) from anything yet. I
> dont expect to see
> any results until I can reach the high dosage of
> B6/Mg that has
> worked for others. However, we always have some
> other negatives that
> seem to come in the way after 3 weeks of
> introduction.
>
> I am continuing with the mB12 injections since Neel
> had one mutation
> in the MTHFR gene and because he is playing with his
> tongue (a known
> side effect) indicating it is doing something in his
> system. I had
> read that Dr. Neubrander was going to disclose his
> study on nasal
> mB12. I did not know that the pathways of action are
> different.
> Perhaps we need to try that route too. Is this
> protocol on his web
> page yet??
> Santona
>
>
>
>
>

__________________________________________________
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Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Hi Tasha

Kirkman sells activated charcoal that they report is allergen free.
Source is Goodnnatural.  When I emailed the company to find out more
about the porosity etc., it bounced back.  I would like to try it too
but will likely push this back since there is a lot going on with my
son at this point that I am not able to understand - our DAN says that
it is a die-off effect but I can't be sure - hence I am waiting to see
if this pans out by itself.

Am curious to know  why you are considering using the activated
charcoal

santona

My super allergic kids started on the Kirkman's
calcium powder, B6 and zinc, along with the Nordic CLO
and did fine.  My son now uses Nu Thera, taurine, and
Co Q10 by Metabolic Maintenance.  He also uses Perque
Potent C Powder and the Enduraguard PAK (glutamine
supp.)  We also use Mindlinx and Klaire's for
probiotics.  We have had some aggitation with the
Brainchild Vits. but I still plan to keep trying them
in order to boost minerals.  We also plan to get back
on the Intestimend this summer (we had to give this
one some time).  We now also use the Houston's
enzymes.  My kids are allergic to everything and these
have all been good, with the exception of the
Brainchild causing the aggitation, but I hear in some
this wears off.

Jenny
--- santonapal <pals@...> wrote:

>
> Thanks Suzanne for the input on vitamins. We did try
> Supernuthera
> from Kirkmans for  multivitamins. Neel had diarrhea;
> Dr. Cutler told
> us to stop as it is apparently not tolerated by some
> kids (I want to
> trial it again since at the time Neel younger
> brother also had a
> stomach bug). Since this approach did not work, we
> have been
> trialling B6 in small doses while we continue with
> B12 injections.
> Unfortunately I am not seeing much improvements
> (except for some
> improvement in eye contact) from anything yet.  I
> dont expect to see
> any results until I can reach the high dosage of
> B6/Mg that has
> worked for others. However, we always have some
> other negatives that
> seem to come in the way after 3 weeks of
> introduction.
>
> I am continuing with the mB12 injections since Neel
> had one mutation
> in the MTHFR gene and because he is playing with his
> tongue (a known
> side effect) indicating it is doing something in his
> system. I had
> read that Dr. Neubrander was going to disclose his
> study on nasal
> mB12. I did not know that the pathways of action are
> different.
> Perhaps we need to try that route too. Is this
> protocol on his web
> page yet??
> Santona
>
>
>
>
>


__________________________________________________
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Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Thanks Suzanne for the input on vitamins. We did try Supernuthera
from Kirkmans for  multivitamins. Neel had diarrhea; Dr. Cutler told
us to stop as it is apparently not tolerated by some kids (I want to
trial it again since at the time Neel younger brother also had a
stomach bug). Since this approach did not work, we have been
trialling B6 in small doses while we continue with B12 injections.
Unfortunately I am not seeing much improvements (except for some
improvement in eye contact) from anything yet.  I dont expect to see
any results until I can reach the high dosage of B6/Mg that has
worked for others. However, we always have some other negatives that
seem to come in the way after 3 weeks of introduction.

I am continuing with the mB12 injections since Neel had one mutation
in the MTHFR gene and because he is playing with his tongue (a known
side effect) indicating it is doing something in his system. I had
read that Dr. Neubrander was going to disclose his study on nasal
mB12. I did not know that the pathways of action are different.
Perhaps we need to try that route too. Is this protocol on his web
page yet??
Santona

Santona,

This is a tough one, and I'm afraid I don't have a lot of personal experience with vitamins. Tom has never tolerated any multi-vitamins, and we are just now trying to get a nutritional analysis of his diet to tell us what individual vitamins need to be supplemented, and then we'll try the search for single vitamins he can tolerate.

Although Neel has not responded positively to the mB12, I would continue it, since he is having the mouthing response. This particular side effect is said to be due to the regeneration of nerves in the extremities (tongue, fingers), and so it's a good thing, and probably temporary. Have you tried nasal mB12?  Nasal and shots are said to utilize different pathways, and some kids will respond to one and not to another. Some kids apparently need both. There is a chance that the nasal spray can drip into the esophagus and into the gut, so that's a risk if your child's gut is very sensitive. Tom plateaued on the shots and has done better since we switched to the nasal, but since his yeast keeps getting worse, I am thinking of switching back. I'm not aware of long-term detriment of mB12 use if the child does not respond - I'd be inclined to stick with it.

A good multi-vitamin and mineral is advisable whether you see a response or not. My son, now 3.6, is starting to show signs of nutritional deficiences, probably due to his very limited diet and lack of supplementation.

As far as multi-vitamins, someone else will have to advise you, I have never had any success with them. I think the SCD legal multivitamins are a good place to start - they will contain the fewest yeast-feeding and most hypoallergenic ingredients.  I beleive Kirkman's, Freeda, and New Beginnings all have SCD legal vitamins. I have had great success with Allergy Research Group products.  Hopefully other listmates will have more specific recommendations on vitamins.

Suzanne

-------------- Original message from "santonapal" <pals@...>: --------------

Suzanne and others,

Can someone share their experiences regarding allergies or
intolerance to vitamins? My son was on a standard polyvisol based
multi-vitamin since birth. I stopped giving this a few months back
when I realized that it had natural flavorings and to prepare for
vitamin based therapies from DAN!. So far my son has NOT responded
significantly to any treatment we have tried (mB12 injections, anti-
fungal, probiotics, Zn, DMG, folinic acid, DMG). I was VERY slowly
increasing the B6 per my DAN! who wanted to try B6+Mg protocol. We
saw some excessive stimming, increased echolalia, mysterious rashes
that appear and dissappear etc. I am not sure if it is the very
small doses of B6, or a delayed reaction to folinic acid, or die-off
from an antifungal treatment that we were doing. These behaviors are
continuing for the last 5 days that my son is off ALL supplements
for some testing purposes.
Although, we have no t yet seen any huge gains from mB12, we have
continued since we did not see any significant negatives except for
significant mouthing side effect known for mB12.

I want to know from others what symptoms of intolerance/allergy to
vitamins. Any negative long term ramifications of continued use if
no positive impact is seen.

Hi Tasha,

I have never tried charcoal, as my son is about as sensitive as yours is.  I have always wondered.  I have chosen not to use charcoal just because my son's yeast die-off reactions are short and easy to manage (and I'm always curious to know how bad his yeast is, and the severity of the die-off is one indication), but if they were worse, I think I'd give it a shot. Here are my thoughts about it:

- Pure activated charcoal most often comes from a tree source, similar to how cellulose is derived. Magnesium stearate is also often derived from a tree source- typically cottonwood. If your child tolerates cellulose or mag stearate in supplements/medications, I would think that charcoal is a fairly safe bet.

- How severe are your son's reactions? Is the cost to trying charcoal low? Could he recover pretty quickly with little lasting effect?

I have been told that "pure" charcoal (no fillers or other ingredients) is available at any drugstore. I have not checked this out though.

If you try it, let us know how he reacts, will you? Our children are unfortunately our only laboratories, and often the response of one very sensitive child can help other parents decide whether to try the supplement with their child.

Good luck!

Suzanne

-------------- Original message from "akgazelles" <akgazelles@...>: --------------

Does anyone on this list use pure activated charcoal? My son is
hypersensitive to everything. He essentially only tolerates pure
vitamins, minerals, amino acids, etc. No fillers, additives or herbs.
I am hoping to find a version that has "just" activated charcoal. Any
ideas?

Thanks, Tasha

Does anyone on this list use pure activated charcoal?  My son is
hypersensitive to everything.  He essentially only tolerates pure
vitamins, minerals, amino acids, etc.  No fillers, additives or herbs.
I am hoping to find a version that has "just" activated charcoal.  Any
ideas?

Thanks, Tasha

Suzanne and others,

Can someone share their experiences regarding allergies or
intolerance to vitamins? My son was on a standard polyvisol based
multi-vitamin since birth.  I stopped giving this a few months back
when I realized that it had natural flavorings and to prepare for
vitamin based therapies from DAN!.  So far my son has NOT responded
significantly to any treatment we have tried (mB12 injections, anti-
fungal, probiotics, Zn, DMG, folinic acid, DMG).  I was VERY slowly
increasing the B6 per my DAN! who wanted to try B6+Mg protocol. We
saw some excessive stimming, increased echolalia, mysterious rashes
that appear and dissappear etc.  I am not sure if it is the very
small doses of B6, or a delayed reaction to folinic acid, or die-off
from an antifungal treatment that we were doing. These behaviors are
continuing for the last 5 days that my son is off ALL supplements
for some testing purposes.
Although, we have not yet seen any huge gains from mB12, we have
continued since we did not see any significant negatives except for
significant mouthing side effect known for mB12.

I want to know from others what symptoms of intolerance/allergy to
vitamins. Any negative long term ramifications of continued use if
no positive impact is seen.

I'm glad the allergy symptoms from rice are going away - hooray!

>They are still pooping what they eat. If they have beets then their stools are red. If they have spinach, then their stools are green.

To some extent, this is normal. Beets almost always will produce red stools and urine. My son does this too, especially since his vegetables are a large part of his diet. But extreme green or red poops, especially if you're seeing undigested vegetable matter in the stools suggests a digestive insufficiency - low stomach acid or insufficient enzymes. My son has this problem - interestingly, his stools have only become undigested after a month on the SCD diet and heavy antifungals. I think previously when he had a lot of yeast that it was the yeast that was consuming the food, and now that the yeast is gone, his digestive system isn't doing the job it needs to. So we are cautiously experimenting with digestive enzymes.

> From time to time their stools will be rancid though not as often as they use to.
Mainly when I do antifungals.

This is probably a sign of die-off, that the antifungals are working. Are you doing anything for yeast on a continual basis? I suspect that the yeast needs something more concerted and ongoing - antifungals in addition to dietary restrictions like SCD.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Samuel (twin B) can do some signs, says a few words and is mimicking.
Steven (twin A) is mouthing objects (Sam does not), his eye contact
has improved immensley (Sam's eye contact has remained real good),
and both are less stimmy. But still stim. They are still pooping what
they eat. If they have beets then their stools are red. If they have
spinach, then their stools are green. And so on. From time to time
their stools will be rancid though not as often as they use to.
Mainly when I do antifungals. By the way, since they have not had
rice since Monday their noses started looking normal last
night/today. No green crusties and they are not congested. I am so
angered by people who have NO knowledge of food allergies. What
allergy testing did you do for your son, if any? Thanks so much for
all of your help and patience. Michelle




--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> All the symptoms you mention can be from IgE allergies. The loose
stools, raw bottoms and vomiting could also be from IgG allergies.
Goat milk is not a good idea for people with cow milk allergies; the
proteins are nearly identical to cow milk, and 95-98% of people who
are allergic to cow milk are also allergic to goat milk.  Most
doctors who are knowledgeable don't recommend soy formula or soy milk
to cow milk allergic babies since 65% of babies with a milk allergy
also have a soy allergy.
>
> > How about Kefir? And Coconut milk?
> Coconut is not a bad substitute, it's high in good fats. However,
it's not particularly low-allergen to kids who tend towards lots of
allergies. What kind of kefir did you have in mind? Coconut kefir?
Y ou should avoid milk kefir or any milk products.
>
> >This makes no sense whatsoever? Our one twin that is worse than
the
> other according to the Organic Acids is doing much better than the
> other.
>
> He's "doing better" in what way? Allergies? ASD symptoms?  Could be
he's compensating well. Or his immune system is overactive and he's
not showing symptoms but he could eventually burn out his immune
system. Lots of things could be going on.  If you could be specific
I'll try and puzzle it out.
>
> Suzanne
>
>
>
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> What do you look for as far as allergies? We see green crusty
noses,
> runny noses and loose stools. On milk, it was raw heinies and soy
was
> vommiting. I have heard some children can tolerate goat's milk? Have
> you tried goat's milk? How about Kefir? And Coconut milk? What
> antifungal is good to treat arabinos?
>
> This makes no sense whatsoever? Our one twin that is worse than the
> other according to the Organic Acids is doing much better than the
> other. Though the other has malabsorption according to the Organic
> Acids.
>
> Is there anyone on this list that is familiar with the Organic
Acids
> that I could call? Jenny, I have your number somewhere I just have
to
> find it. Thanks so much. Michelle
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
> >
> > > No, the only testing we have done has been the Organic Acids ...
> >
> > Most Organic Acids tests will tell you which yeast strains are
> present in excess. It your lab doesn't spell it out, see if your
DAN
> can guide you on this. Some labs give more info than others. You
can
> also call the lab for guidance on interpreting the results and
> hopefully information on which meds and natural remedies are
> effective/resistant to that strain.
> >
> > Your OT sounds ... um, less than helpful at best, dangerous at
> worst.  He can't force you to feed your child something he's
allergic
> to, with or without a doctor's note. A parent's observed food
> reactions SHOULD be proof enough to avoid the food. That is
> sufficient for our allergist to diagnose my son's food allergies.
> Under about age 5, the gold standard for diagnosing food allergies
is
> the introduction of a food and observation of the response, and a
> parent's report should suffice.  A food diary (to show the
allergist
> you've been a careful observer) is helpful here.  Allergy tests are
> often inaccurate - the younger the child the more inaccurate
testing
> will be. If this OT requires proof, hopefully the Elisa test will
> suffice. But I would not give rice just because the OT says so. He
is
> not an allergist or even an MD (and most MDs) are clueless about
> allergies. Even allergists are often ill-informed about food
> allergies and childrens' food allergies. If necessary, get  a note
> from
> >  your DAN, but I'd first just try pushing back on the OT- no
> therapist should force a child to eat something that makes him
sick.
> Simply tell him that your doctor recommends completely avoiding the
> child's allergens (this includes rice flour, rice starch, rice
bran,
> rice oil, etc. in supplements too), period, and you will not over-
> ride the doctor's instructions.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> mi lk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > Were you using commercial nut milks, or home-made? This sounds
like
> potential allergies. Allergic children should avoid all nuts and
> seeds until at least age 5, and then introduce them cautiously and
> only if the gut is healthy and the other allergies are not
worsening.
> This is a problem with the SCD - many of oiur allergic kids need to
> do a nut-free, egg-free, dairy-free SCD - these foods are top-8
> allergens that are very risky for our kids. You can do a pretty
> nutritious and safe SCD without eggs, nuts, or milk.
> >
> > > Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > He tolerates lamb, buffalo, and elk, and has a low allergy to
grass-
> fed organic beef, which we give him one day a week.  We've also
> started giving him salmon one meal a week, and he seems to be doing
> okay (he tested positive to almost al the other fish, so this is a
> risk and why we only give it to him occasionally).  He also
tolerates
> ostrich and venison, but we avoid venison b/c of deer-wasting
disease
> and ostrich is just expensive. We hold those meats in reserve in
case
> he becomes allergic in the future to one of his staple meats. He
also
> tolerates beets, brussel sprouts, celery root and spinach. He has a
> low allergy to squash/pumpkin, zucchini, broccoli, and asparagus,
and
> he eats one of these daily. He tolerates pure cranberry juice.  He
> tolerates safflower oil, sunflower oil, palm oil and has a mild
> canola oil allergy, so we rotate these as well. He also tolerates
> pure sea salt and stevia, and glycerine and peppermint flavoring in
> his compounded meds. That's pretty much the li
> > st of what he can safely eat!
> > Suzanne
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Please see below as I answered under your questions and I have
even
> > more questions...thanks so much as you have helped immensley.
> >
> > --------------------------------------------
> >
> > ** Forgive me if I asked this already - has your DAN had you get
an
> > OAT or a CDSA to determine what yeast strains the boys have?
> >
> > > No, the only testing we have done has been the Organic Acids
and
> > some IgG bloodwork to determine a wheat, soy, corn and milk
allergy
> > which all came back high. We will be doing the SAGE Elisa food
> > allergy testing within the next week. We do know howev er that
rice,
> > quinoa and white potato are also problematic in that that they
wind
> > up having green crusty noses and loose stools.
> >
> > *Nystatin and diflucan are both effective against the same
strains
> of
> > yeast, but are both also ineffective against the same strains of
> > yeast. The fact that neither has worked suggests that they have a
> > strain that does not respond to these meds. There are other meds
> that
> > are effective against different strains - ketoconazole, sporanox,
> for
> > example. I hate to think of you spending time and money on the
> wrong
> > meds. We have seen two DANs - one tends to test and target
> > accurately, the other just prescribes Diflucan and Nystatin for
> > everything, and we were making no progress with that approach.
> >
> > > We will be doing the S. Boulardis to see if that works.
> >
> > ** Have you considered feeding therapy for the boys feeding
> problems?
> > We have been in a great behavioral feeding program for my son
since
> > age 14 months, and he can now eat anything at all! This is good,
> > since he only tolerates a few meats and vegetables and oils (no
> > grains, legumes, etc.), so his meals consist of things like
beets,
> > spinach and brussels sprouts. He eats them just fine! Our feeding
> > program is world-renowned and they do terrific work with the
> feeding
> > selectivity that autistic kids have.
> >
> > > May I ask what feeding clinic? Our twins were evaluated by the
> Mt.
> > Washington Pediatric Hospital here in Maryland and they gave us
> some
> > reccomendations to do here at home. Kennedy Krieger had a very
> > legnthy waiting list. Our OT is extremely unfamilar with food
> > allergies and pushed for the addition of rice back into the diet
> and
> > now we are back to crusty green noses and loose stools. He still
> does
> > not beleive that it was caused by adding rice back inot their
diet.
> > Mind you, they have only been off rice for a couple months. He
also
> > wanted to see something on paper from a medical doctor regarding
> > their rice allergies.
> >
> > ** Have you looked into the SCD diet for your boys? Multiple
> > allergies and yeast problems are usually symptoms of severe leaky
> > gut, and feeding grains, starches and sugars will worsen this. My
> son
> > was GFCF (plus avoiding his allergens) for 3 years, and we fed
him
> > lots of thickened sweet drinks (for the feeding problems) and
> starchy
> > grains (like rice, millet and quinoa), and he ended up with a
much
> > more severe yeast problem and much worse allergies. Now at three
> and
> > a half, he can only tolerate 8 vegetables and 4 meats, and we're
> > trying really hard to fix his leaky gut with diet and very strong
> > antifungals. The reason I'm mentioning it to you is that I wish
> we'd
> > known sooner about the problems with starches and sugars, so we
> could
> > have resolved the problem rather than made it worse.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> milk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > > At this point, the only veggies our guys to seem to do well on
> are
> > carrots, sweet potato, green beans, peas, red beets, butternut
> squash
> > and spinach. Meats are chicken?, pork, beef, turkey, veal and
lamb.
> > We have never introduced eggs. Considering they recieved 2 flu
vax
> 27
> > days apart at 6.5 months and just shy of 7.5 months, we are
afraid
> to
> > introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > ** Just a thought. I know how scary it is to think of limiting a
> > child's diet further when he already must omit so many foods due
to
> > allergies, but too often this ends up with the child eating too
> many
> > of the starchy foods that make their gut problems worse.
> > > Suzanne
> > >
> > > -------------- Original message from "momtotwinsnmore"
> > <gillespies62599@>: --------------
> > >
> > > Yes, our kids have lots of GI issues. We are still fighting BR>yeast
> > > which does not seem to be going away. They have been on
Nystatin
> > and
> > > nothing. They have been on Diflucan and nothing. Now we are
going
> > to
> > > try the S. Boulardis. Hopefully we will see something as far as
> > > cleaning up the gut. Sam, twin B, is making good progress as
far
> as
> > > mimicking, signing, and words. Though he is a bit inconsistent.
> > > Stevie, twin A, is making progress as far as great eye contact
> and
> > > mouthing once again. They have so many food allergies due to
gut
> > > issues which has become more than frustrating. Hope to see more
> > > action here as well. This seems like a great group. Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
> wrote:
> > > >
> > > > Michelle,
> > > > do your kids have gastrointestinal issues too?  Diarrhea or
> > > > constipation?
> > > > I am happy to see your post.  I don't think this board is
very
> > > active.
> > > > I hope some other parents answer your questions.  I would
like
> to
> > > hear
> > > > answers to the same testing questions.  thank you Rob's mom
> > > >
> > > > -----Original Message-----
> > > > From: foodallergyautism@yahoogroups.com
> > > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > > momtotwinsnmore
> > > > Sent: Thursd ay, May 18, 2006 9:08 PM
> > > > To: foodallergyautism@yahoogroups.com
> > > > Subject: [foodallergyautism] Introduction to our family
> > > >
> > > >
> > > > Hi, my name is Michelle. Our family is located in Baltimore
> > county,
> > > > Maryland. My hubby, Steve, is a police officer. We have
> his/hers
> > > and
> > > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
> and
> > > being
> > > > deployed to Iraq. Let's not go there as I am unhappy with her
> > > decision.
> > > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> > Ashley
> > > is
> > > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
> but
> > > great
> > > > arguer. And our twins, Stevie and Sammy, 2, d x of autism,
> > multiple
> > > food
> > > > allergies and SID.
> > > >
> > > > Stevie and Sammy are on a rotation diet due to known
allergies
> to
> > > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> > going
> > > to
> > > > be doing the SAGE Elisa delayed food allergy testing soon.
Has
> > > anyone
> > > > had an experienced with delayed food allergy testing and the
> > Elisa
> > > in
> > > > particular? What company did you use? What was the outcome?
> Good,
> > > bad
> > > > or indifferent?
> > > >
> > > > By the way, our guys did not fair well on the Nutramigen
either
> > and
> > > we
> > > > think it was due to the corn syrup solids. We did so me
> > preliminary
> > > > bloodwork regarding food allergies after discontinuing
> > Nutramigen.
> > > When
> > > > corn came up high, we contributed it to the Nutramingen as
> > nothing
> > > else
> > > > we used had corn. Our guys have food texture adversions and
eat
> > > ONLY
> > > > thick puried foods (Food Processor) all organic of course.
They
> > > also
> > > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is
there
> > > anything
> > > > else that is safe for drinking? Orange juice seems to contain
> too
> > > much
> > > > sugar and apple is out as we are also treating heavy yeast.
We
> > are
> > > > still working on gut issues. YUK!
> > > >
> > > > Our guys are on multi ple vitamins/supplements. Both are
making
> > slow
> > > but
> > > > steady progress. I was hoping to connect with other parents
> > living
> > > with
> > > > children with multiple food allergies so that I may learn
from
> > > them. I
> > > > am glad to be among parents that understand.
> > > >
> > > > Michelle
> > > > www.babyhomepages.net/thegillespiefamily/
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > SPONSORED LINKS
> > > > Article
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Article+health+wellness&w1=Article+
> > > >
> > >
> >
gt;
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health
> > wellness
> > > > Center
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Center+for+health+and+wellness&w1=A
> > > >
> > >
> >
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> > > +w
> > > >
> > >
> >
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> > > ea
> > > > lth+and+wellness+job&c=6 amp;s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>
for
> > > health
> > > > and wellness       Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness&w1=Article+heal
> > > >
> > >
> >
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> > > 4=
> > > >
> > >
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> > > el
> > > > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> > >      
> > > > Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+an d+wellness+program&w1=Arti
> > > >
> > >
> >
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> > > ll
> > > >
> > >
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> > > th
> > > > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> > > wellness
> > > > program       Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+wellness+product&w1=Article+
> > > >
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health +and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> > > product
> > > > Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness+job&w1=Article+
> > > >
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and
> wellness
> > > job      
> > > >
> > > >   _____  
> > > >
> > > > YAHOO! GROUPS LINKS
> > > >
> > > >
> > > >      
> > > > *      Visit your group "foodallergyautism
> > > > <http://groups.yahoo.com/group/foodallergyautism> " on the
web.
> > > >  
> > > >
> > > > *      To unsubscribe from this group, send an email to:
> > > >  foodallergyautism-unsubscribe@yahoogroups.com
> > > > <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
> > > subject=Unsubscrib
> > > > e>
> > > >  
> > > >
> > > > *      Your use of Yahoo! Groups is subject to the Yahoo!
Term s
> of
> > > > Service <http://docs.yahoo.com/info/terms/> .
> > > >
> > > >
> > > >   _____
> > > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > SPONSORED LINKS Article health wellness Center for health and
> > wellness Health and wellness
> > > Health and wellness program Health wellness product Health and
> > wellness job
> > >
> > >
> > >
> > > YAHOO! GROUPS LINKS
> > >
> > >  Visit your group "foodallergyautism" on the web.
> > >  
> > >  To unsubscribe from this group, send an email to:
> > >  foodallergyautism-unsubscribe@yahoogroups.com
> > >  
&g t; > >  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service.
> > >
> >
> >
> >
> >
> >
> >
> >
> > SPONSORED LINKS Article health wellness Center for health and
> wellness Health and wellness
> > Health and wellness program Health wellness product Health and
> wellness job
> >
> >
> >
> > YAHOO! GROUPS LINKS
> >
> >  Visit your group "foodallergyautism" on the web.
> >  
> >  To unsubscribe from this group, send an email to:
> >  foodallergyautism-unsubscribe@yahoogroups.com
> >  
> >  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
>
>
>
>
>
>
>
> SPONSORED LINKS Article health wellness Center for health and
wellness Health and wellness
> Health and wellness program Health wellness product Health and
wellness job
>
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "foodallergyautism" on the web.
>  
>  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
>  
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>

Samuel (twin B) can do some signs, says a few words and is mimicking.
Steven (twin A) is mouthing objects (Sam does not), his eye contact
has improved immensley (Sam's eye contact has remained real good),
and both are less stimmy. But still stim. They are still pooping what
they eat. If they have beets then their stools are red. If they have
spinach, then their stools are green. And so on. From time to time
their stools will be rancid though not as often as they use to.
Mainly when I do antifungals. By the way, since they have not had
rice since Monday their noses started looking normal last
night/today. No green crusties and they are not congested. I am so
angered by people who have NO knowledge of food allergies. What
allergy testing did you do for your son, if any? Thanks so much for
all of your help and patience. Michelle




--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> All the symptoms you mention can be from IgE allergies. The loose
stools, raw bottoms and vomiting could also be from IgG allergies.
Goat milk is not a good idea for people with cow milk allergies; the
proteins are nearly identical to cow milk, and 95-98% of people who
are allergic to cow milk are also allergic to goat milk.  Most
doctors who are knowledgeable don't recommend soy formula or soy milk
to cow milk allergic babies since 65% of babies with a milk allergy
also have a soy allergy.
>
> > How about Kefir? And Coconut milk?
> Coconut is not a bad substitute, it's high in good fats. However,
it's not particularly low-allergen to kids who tend towards lots of
allergies. What kind of kefir did you have in mind? Coconut kefir?
You should avoid milk kefir or any milk products.
>
> >This makes no sense whatsoever? Our one twin that is worse than
the
> other according to the Organic Acids is doing much better than the
> other.
>
> He's "doing better" in what way? Allergies? ASD symptoms?  Could be
he's compensating well. Or his immune system is overactive and he's
not showing symptoms but he could eventually burn out his immune
system. Lots of things could be going on.  If you could be specific
I'll try and puzzle it out.
>
> Suzanne
>
>
>
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> What do you look for as far as allergies? We see green crusty
noses,
> runny noses and loose stools. On milk, it was raw heinies and soy
was
> vommiting. I have heard some children can tolerate goat's milk?
Have
> you tried goat's milk? How about Kefir? And Coconut milk? What
> antifungal is good to treat arabinos?
>
> This makes no sense whatsoever? Our one twin that is worse than the
> other according to the Organic Acids is doing much better than the
> other. Though the other has malabsorption according to the Organic
> Acids.
>
> Is there anyone on this list that is familiar with the Organic
Acids
> that I could call? Jenny, I have your number somewhere I just have
to
> find it. Thanks so much. Michelle
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
> >
> > > No, the only testing we have done has been the Organic Acids ...
> >
> > Most Organic Acids tests will tell you which yeast strains are
> present in excess. It your lab doesn't spell it out, see if your
DAN
> can guide you on this. Some labs give more info than others. You
can
> also call the lab for guidance on interpreting the results and
> hopefully information on which meds and natural remedies are
> effective/resistant to that strain.
> >
> > Your OT sounds ... um, less than helpful at best, dangerous at
> worst.  He can't force you to feed your child something he's
allergic
> to, with or without a doctor's note. A parent's observed food
> reactions SHOULD be proof enough to avoid the food. That is
> sufficient for our allergist to diagnose my son's food allergies.
> Under about age 5, the gold standard for diagnosing food allergies
is
> the introduction of a food and observation of the response, and a
> parent's report should suffice.  A food diary (to show the
allergist
> you've been a careful observer) is helpful here.  Allergy tests are
> often inaccurate - the younger the child the more inaccurate
testing
> will be. If this OT requires proof, hopefully the Elisa test will
> suffice. But I would not give rice just because the OT says so. He
is
> not an allergist or even an MD (and most MDs) are clueless about
> allergies. Even allergists are often ill-informed about food
> allergies and childrens' food allergies. If necessary, get  a note
> from
> >  your DAN, but I'd first just try pushing back on the OT- no
> therapist should force a child to eat something that makes him
sick.
> Simply tell him that your doctor recommends completely avoiding the
> child's allergens (this includes rice flour, rice starch, rice
bran,
> rice oil, etc. in supplements too), period, and you will not over-
> ride the doctor's instructions.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> milk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > Were you using commercial nut milks, or home-made? This sounds
like
> potential allergies. Allergic children should avoid all nuts and
> seeds until at least age 5, and then introduce them cautiously and
> only if the gut is healthy and the other allergies are not
worsening.
> This is a problem with the SCD - many of oiur allergic kids need to
> do a nut-free, egg-free, dairy-free SCD - these foods are top-8
> allergens that are very risky for our kids. You can do a pretty
> nutritious and safe SCD without eggs, nuts, or milk.
> >
> > > Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > He tolerates lamb, buffalo, and elk, and has a low allergy to
grass-
> fed organic beef, which we give him one day a week.  We've also
> started giving him salmon one meal a week, and he seems to be doing
> okay (he tested positive to almost al the other fish, so this is a
> risk and why we only give it to him occasionally).  He also
tolerates
> ostrich and venison, but we avoid venison b/c of deer-wasting
disease
> and ostrich is just expensive. We hold those meats in reserve in
case
> he becomes allergic in the future to one of his staple meats. He
also
> tolerates beets, brussel sprouts, celery root and spinach. He has a
> low allergy to squash/pumpkin, zucchini, broccoli, and asparagus,
and
> he eats one of these daily. He tolerates pure cranberry juice.  He
> tolerates safflower oil, sunflower oil, palm oil and has a mild
> canola oil allergy, so we rotate these as well. He also tolerates
> pure sea salt and stevia, and glycerine and peppermint flavoring in
> his compounded meds. That's pretty much the li
> > st of what he can safely eat!
> > Suzanne
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Please see below as I answered under your questions and I have
even
> > more questions...thanks so much as you have helped immensley.
> >
> > --------------------------------------------
> >
> > ** Forgive me if I asked this already - has your DAN had you get
an
> > OAT or a CDSA to determine what yeast strains the boys have?
> >
> > > No, the only testing we have done has been the Organic Acids
and
> > some IgG bloodwork to determine a wheat, soy, corn and milk
allergy
> > which all came back high. We will be doing the SAGE Elisa food
> > allergy testing within the next week. We do know however that
rice,
> > quinoa and white potato are also problematic in that that they
wind
> > up having green crusty noses and loose stools.
> >
> > *Nystatin and diflucan are both effective against the same
strains
> of
> > yeast, but are both also ineffective against the same strains of
> > yeast. The fact that neither has worked suggests that they have a
> > strain that does not respond to these meds. There are other meds
> that
> > are effective against different strains - ketoconazole, sporanox,
> for
> > example. I hate to think of you spending time and money on the
> wrong
> > meds. We have seen two DANs - one tends to test and target
> > accurately, the other just prescribes Diflucan and Nystatin for
> > everything, and we were making no progress with that approach.
> >
> > > We will be doing the S. Boulardis to see if that works.
> >
> > ** Have you considered feeding therapy for the boys feeding
> problems?
> > We have been in a great behavioral feeding program for my son
since
> > age 14 months, and he can now eat anything at all! This is good,
> > since he only tolerates a few meats and vegetables and oils (no
> > grains, legumes, etc.), so his meals consist of things like
beets,
> > spinach and brussels sprouts. He eats them just fine! Our feeding
> > program is world-renowned and they do terrific work with the
> feeding
> > selectivity that autistic kids have.
> >
> > > May I ask what feeding clinic? Our twins were evaluated by the
> Mt.
> > Washington Pediatric Hospital here in Maryland and they gave us
> some
> > reccomendations to do here at home. Kennedy Krieger had a very
> > legnthy waiting list. Our OT is extremely unfamilar with food
> > allergies and pushed for the addition of rice back into the diet
> and
> > now we are back to crusty green noses and loose stools. He still
> does
> > not beleive that it was caused by adding rice back inot their
diet.
> > Mind you, they have only been off rice for a couple months. He
also
> > wanted to see something on paper from a medical doctor regarding
> > their rice allergies.
> >
> > ** Have you looked into the SCD diet for your boys? Multiple
> > allergies and yeast problems are usually symptoms of severe leaky
> > gut, and feeding grains, starches and sugars will worsen this. My
> son
> > was GFCF (plus avoiding his allergens) for 3 years, and we fed
him
> > lots of thickened sweet drinks (for the feeding problems) and
> starchy
> > grains (like rice, millet and quinoa), and he ended up with a
much
> > more severe yeast problem and much worse allergies. Now at three
> and
> > a half, he can only tolerate 8 vegetables and 4 meats, and we're
> > trying really hard to fix his leaky gut with diet and very strong
> > antifungals. The reason I'm mentioning it to you is that I wish
> we'd
> > known sooner about the problems with starches and sugars, so we
> could
> > have resolved the problem rather than made it worse.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> milk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > > At this point, the only veggies our guys to seem to do well on
> are
> > carrots, sweet potato, green beans, peas, red beets, butternut
> squash
> > and spinach. Meats are chicken?, pork, beef, turkey, veal and
lamb.
> > We have never introduced eggs. Considering they recieved 2 flu
vax
> 27
> > days apart at 6.5 months and just shy of 7.5 months, we are
afraid
> to
> > introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > ** Just a thought. I know how scary it is to think of limiting a
> > child's diet further when he already must omit so many foods due
to
> > allergies, but too often this ends up with the child eating too
> many
> > of the starchy foods that make their gut problems worse.
> > > Suzanne
> > >
> > > -------------- Original message from "momtotwinsnmore"
> > <gillespies62599@>: --------------
> > >
> > > Yes, our kids have lots of GI issues. We are still fighting
yeast
> > > which does not seem to be going away. They have been on
Nystatin
> > and
> > > nothing. They have been on Diflucan and nothing. Now we are
going
> > to
> > > try the S. Boulardis. Hopefully we will see something as far as
> > > cleaning up the gut. Sam, twin B, is making good progress as
far
> as
> > > mimicking, signing, and words. Though he is a bit inconsistent.
> > > Stevie, twin A, is making progress as far as great eye contact
> and
> > > mouthing once again. They have so many food allergies due to
gut
> > > issues which has become more than frustrating. Hope to see more
> > > action here as well. This seems like a great group. Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
> wrote:
> > > >
> > > > Michelle,
> > > > do your kids have gastrointestinal issues too?  Diarrhea or
> > > > constipation?
> > > > I am happy to see your post.  I don't think this board is
very
> > > active.
> > > > I hope some other parents answer your questions.  I would
like
> to
> > > hear
> > > > answers to the same testing questions.  thank you Rob's mom
> > > >
> > > > -----Original Message-----
> > > > From: foodallergyautism@yahoogroups.com
> > > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > > momtotwinsnmore
> > > > Sent: Thursday, May 18, 2006 9:08 PM
> > > > To: foodallergyautism@yahoogroups.com
> > > > Subject: [foodallergyautism] Introduction to our family
> > > >
> > > >
> > > > Hi, my name is Michelle. Our family is located in Baltimore
> > county,
> > > > Maryland. My hubby, Steve, is a police officer. We have
> his/hers
> > > and
> > > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
> and
> > > being
> > > > deployed to Iraq. Let's not go there as I am unhappy with her
> > > decision.
> > > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> > Ashley
> > > is
> > > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
> but
> > > great
> > > > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
> > multiple
> > > food
> > > > allergies and SID.
> > > >
> > > > Stevie and Sammy are on a rotation diet due to known
allergies
> to
> > > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> > going
> > > to
> > > > be doing the SAGE Elisa delayed food allergy testing soon.
Has
> > > anyone
> > > > had an experienced with delayed food allergy testing and the
> > Elisa
> > > in
> > > > particular? What company did you use? What was the outcome?
> Good,
> > > bad
> > > > or indifferent?
> > > >
> > > > By the way, our guys did not fair well on the Nutramigen
either
> > and
> > > we
> > > > think it was due to the corn syrup solids. We did some
> > preliminary
> > > > bloodwork regarding food allergies after discontinuing
> > Nutramigen.
> > > When
> > > > corn came up high, we contributed it to the Nutramingen as
> > nothing
> > > else
> > > > we used had corn. Our guys have food texture adversions and
eat
> > > ONLY
> > > > thick puried foods (Food Processor) all organic of course.
They
> > > also
> > > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is
there
> > > anything
> > > > else that is safe for drinking? Orange juice seems to contain
> too
> > > much
> > > > sugar and apple is out as we are also treating heavy yeast.
We
> > are
> > > > still working on gut issues. YUK!
> > > >
> > > > Our guys are on multiple vitamins/supplements. Both are
making
> > slow
> > > but
> > > > steady progress. I was hoping to connect with other parents
> > living
> > > with
> > > > children with multiple food allergies so that I may learn
from
> > > them. I
> > > > am glad to be among parents that understand.
> > > >
> > > > Michelle
> > > > www.babyhomepages.net/thegillespiefamily/
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > SPONSORED LINKS
> > > > Article
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Article+health+wellness&w1=Article+
> > > >
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health
> > wellness
> > > > Center
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Center+for+health+and+wellness&w1=A
> > > >
> > >
> >
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> > > +w
> > > >
> > >
> >
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> > > ea
> > > > lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>
for
> > > health
> > > > and wellness       Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness&w1=Article+heal
> > > >
> > >
> >
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> > > 4=
> > > >
> > >
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> > > el
> > > > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> > >
> > > > Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness+program&w1=Arti
> > > >
> > >
> >
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> > > ll
> > > >
> > >
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> > > th
> > > > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> > > wellness
> > > > program       Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+wellness+product&w1=Article+
> > > >
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> > > product
> > > > Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness+job&w1=Article+
> > > >
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > > ss
> > > >
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > > nd
> > > > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and
> wellness
> > > job
> > > >
> > > >   _____
> > > >
> > > > YAHOO! GROUPS LINKS
> > > >
> > > >
> > > >
> > > > *      Visit your group "foodallergyautism
> > > > <http://groups.yahoo.com/group/foodallergyautism> " on the
web.
> > > >
> > > >
> > > > *      To unsubscribe from this group, send an email to:
> > > >  foodallergyautism-unsubscribe@yahoogroups.com
> > > > <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
> > > subject=Unsubscrib
> > > > e>
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Terms
> of
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> > >
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> > >
> > >
> > > SPONSORED LINKS Article health wellness Center for health and
> > wellness Health and wellness
> > > Health and wellness program Health wellness product Health and
> > wellness job
> > >
> > >
> > >
> > > YAHOO! GROUPS LINKS
> > >
> > >  Visit your group "foodallergyautism" on the web.
> > >
> > >  To unsubscribe from this group, send an email to:
> > >  foodallergyautism-unsubscribe@yahoogroups.com
> > >
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> > Service.
> > >
> >
> >
> >
> >
> >
> >
> >
> > SPONSORED LINKS Article health wellness Center for health and
> wellness Health and wellness
> > Health and wellness program Health wellness product Health and
> wellness job
> >
> >
> >
> > YAHOO! GROUPS LINKS
> >
> >  Visit your group "foodallergyautism" on the web.
> >
> >  To unsubscribe from this group, send an email to:
> >  foodallergyautism-unsubscribe@yahoogroups.com
> >
> >  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
>
>
>
>
>
>
>
> SPONSORED LINKS Article health wellness Center for health and
wellness Health and wellness
> Health and wellness program Health wellness product Health and
wellness job
>
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "foodallergyautism" on the web.
>
>  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>

All the symptoms you mention can be from IgE allergies. The loose stools, raw bottoms and vomiting could also be from IgG allergies. Goat milk is not a good idea for people with cow milk allergies; the proteins are nearly identical to cow milk, and 95-98% of people who are allergic to cow milk are also allergic to goat milk.  Most doctors who are knowledgeable don't recommend soy formula or soy milk to cow milk allergic babies since 65% of babies with a milk allergy also have a soy allergy.

> How about Kefir? And Coconut milk?

Coconut is not a bad substitute, it's high in good fats. However, it's not particularly low-allergen to kids who tend towards lots of allergies. What kind of kefir did you have in mind? Coconut kefir? You should avoid milk kefir or any milk products.

>This makes no sense whatsoever? Our one twin that is worse than the
other according to the Organic Acids is doing much better than the
other.

He's "doing better" in what way? Allergies? ASD symptoms?  Could be he's compensating well. Or his immune system is overactive and he's not showing symptoms but he could eventually burn out his immune system. Lots of things could be going on.  If you could be specific I'll try and puzzle it out.

Suzanne

 

 

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

What do you look for as far as allergies? We see green crusty noses,
runny noses and loose stools. On milk, it was raw heinies and soy was
vommiting. I have heard some children can tolerate goat's milk? Have
you tried goat's milk? How about Kefir? And Coconut milk? What
antifungal is good to treat arabinos?

This makes no sense whatsoever? Our one twin that is worse than the
other according to the Organic Acids is doing much better than the
other. Though the other has malabsorption according to the Organic
Acids.

Is there anyone on this list that is familiar with the Organic Acids
that I could call? Jenny, I have your number somewhere I just have to
find it. Thanks so much. Michelle





--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> > No, the only testing we have done has been the Organic Acids ...
>
> Most Organic Acids tests will tell you which yeast strains are
present in excess. It your lab doesn't spell it out, see if your DAN
can guide you on this. Some labs give more info than others. You can
also call the lab for guidance on interpreting the results and
hopefully information on which meds and natural remedies are
effective/resistant to that strain.
>
> Your OT sounds ... um, less than helpful at best, dangerous at
worst.  He can't force you to feed your child something he's allergic
to, with or without a doctor's note. A parent's observed food
reactions SHOULD be proof enough to avoid the food. That is
sufficient for our allergist to diagnose my son's food allergies.
Under about age 5, the gold standard for diagnosing food allergies is
the introduction of a food and observation of the response, and a
parent's report should suffice.  A food diary (to sho w the allergist
you've been a careful observer) is helpful here.  Allergy tests are
often inaccurate - the younger the child the more inaccurate testing
will be. If this OT requires proof, hopefully the Elisa test will
suffice. But I would not give rice just because the OT says so. He is
not an allergist or even an MD (and most MDs) are clueless about
allergies. Even allergists are often ill-informed about food
allergies and childrens' food allergies. If necessary, get  a note
from
>  your DAN, but I'd first just try pushing back on the OT- no
therapist should force a child to eat something that makes him sick.
Simply tell him that your doctor recommends completely avoiding the
child's allergens (this includes rice flour, rice starch, rice bran,
rice oil, etc. in supplements too), period, and you will not over-
ride the doctor's instructions.
>
> > The only problem with the SCD is the nuts. We h ad tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> Were you using commercial nut milks, or home-made? This sounds like
potential allergies. Allergic children should avoid all nuts and
seeds until at least age 5, and then introduce them cautiously and
only if the gut is healthy and the other allergies are not worsening.
This is a problem with the SCD - many of oiur allergic kids need to
do a nut-free, egg-free, dairy-free SCD - these foods are top-8
allergens that are very risky for our kids. You can do a pretty
nutritious and safe SCD without eggs, nuts, or milk.
>
> > Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> He tolerates lamb, buffalo, and elk, and has a low allergy to grass-
fed organic beef, which we give him one day a week.  We've also
started giving him salmon one me al a week, and he seems to be doing
okay (he tested positive to almost al the other fish, so this is a
risk and why we only give it to him occasionally).  He also tolerates
ostrich and venison, but we avoid venison b/c of deer-wasting disease
and ostrich is just expensive. We hold those meats in reserve in case
he becomes allergic in the future to one of his staple meats. He also
tolerates beets, brussel sprouts, celery root and spinach. He has a
low allergy to squash/pumpkin, zucchini, broccoli, and asparagus, and
he eats one of these daily. He tolerates pure cranberry juice.  He
tolerates safflower oil, sunflower oil, palm oil and has a mild
canola oil allergy, so we rotate these as well. He also tolerates
pure sea salt and stevia, and glycerine and peppermint flavoring in
his compounded meds. That's pretty much the li
> st of what he can safely eat!
> Suzanne
> -------------- Original message from "momto twinsnmore"
<gillespies62599@...>: --------------
>
> Please see below as I answered under your questions and I have even
> more questions...thanks so much as you have helped immensley.
>
> --------------------------------------------
>
> ** Forgive me if I asked this already - has your DAN had you get an
> OAT or a CDSA to determine what yeast strains the boys have?
>
> > No, the only testing we have done has been the Organic Acids and
> some IgG bloodwork to determine a wheat, soy, corn and milk allergy
> which all came back high. We will be doing the SAGE Elisa food
> allergy testing within the next week. We do know however that rice,
> quinoa and white potato are also problematic in that that they wind
> up having green crusty noses and loose stools.
>
> *Nystatin and diflucan are both effective against the same strains
of
> yeast, but are both also ineffective against the same strains of
> yeast. The fact that neither has worked suggests that they have a
> strain that does not respond to these meds. There are other meds
that
> are effective against different strains - ketoconazole, sporanox,
for
> example. I hate to think of you spending time and money on the
wrong
> meds. We have seen two DANs - one tends to test and target
> accurately, the other just prescribes Diflucan and Nystatin for
> everything, and we were making no progress with that approach.
>
> > We will be doing the S. Boulardis to see if that works.
>
> ** Have you considered feeding therapy for the boys feeding
problems?
> We have been in a great behavioral feeding program for my son since
> age 14 months, and he can now eat anything at all! This is good,
> since he only tolerates a few meats and vegetables and oils (no
> grains, legumes, etc.), so his meals consist of things like beets,
> spinach and brussels sprouts. He eats them just fine! Our feeding
> program is world-renowned and they do terrific work with the
feeding
> selectivity that autistic kids have.
>
> > May I ask what feeding clinic? Our twins were evaluated by the
Mt.
> Washington Pediatric Hospital here in Maryland and they gave us
some
> reccomendations to do here at home. Kennedy Krieger had a very
> legnthy waiting list. Our OT is extremely unfamilar with food
> allergies and pushed for the addition of rice back into the diet
and
> now we are back to crusty green noses and loose stools. He still
does
> not beleive that it was caused by adding rice back inot their diet.
> Mind you, they have only been off rice for a couple months. He also
> wanted to see something on paper from a medical doctor regarding
> their rice all ergies.
>
> ** Have you looked into the SCD diet for your boys? Multiple
> allergies and yeast problems are usually symptoms of severe leaky
> gut, and feeding grains, starches and sugars will worsen this. My
son
> was GFCF (plus avoiding his allergens) for 3 years, and we fed him
> lots of thickened sweet drinks (for the feeding problems) and
starchy
> grains (like rice, millet and quinoa), and he ended up with a much
> more severe yeast problem and much worse allergies. Now at three
and
> a half, he can only tolerate 8 vegetables and 4 meats, and we're
> trying really hard to fix his leaky gut with diet and very strong
> antifungals. The reason I'm mentioning it to you is that I wish
we'd
> known sooner about the problems with starches and sugars, so we
could
> have resolved the problem rather than made it worse.
>
> > The only problem with the SCD is the nuts. We had tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> > At this point, the only veggies our guys to seem to do well on
are
> carrots, sweet potato, green beans, peas, red beets, butternut
squash
> and spinach. Meats are chicken?, pork, beef, turkey, veal and lamb.
> We have never introduced eggs. Considering they recieved 2 flu vax
27
> days apart at 6.5 months and just shy of 7.5 months, we are afraid
to
> introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> ** Just a thought. I know how scary it is to think of limiting a
> child's diet further when he already must omit so many foods due to
> allergies, but too often this ends up with the child eating too
many
> of the starchy foods that make their gut problems worse.
> > Suzann e
> >
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Yes, our kids have lots of GI issues. We are still fighting yeast
> > which does not seem to be going away. They have been on Nystatin
> and
> > nothing. They have been on Diflucan and nothing. Now we are going
> to
> > try the S. Boulardis. Hopefully we will see something as far as
> > cleaning up the gut. Sam, twin B, is making good progress as far
as
> > mimicking, signing, and words. Though he is a bit inconsistent.
> > Stevie, twin A, is making progress as far as great eye contact
and
> > mouthing once again. They have so many food allergies due to gut
> > issues which has become more than frustrating. Hope to see more
> > action here as well. This seems like a great group. Michelle
> > www.babyhome pages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
wrote:
> > >
> > > Michelle,
> > > do your kids have gastrointestinal issues too?  Diarrhea or
> > > constipation?
> > > I am happy to see your post.  I don't think this board is very
> > active.
> > > I hope some other parents answer your questions.  I would like
to
> > hear
> > > answers to the same testing questions.  thank you Rob's mom
> > >
> > > -----Original Message-----
> > > From: foodallergyautism@yahoogroups.com
> > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > momtotwinsnmore
> > > Sent: Thursday, May 18, 200 6 9:08 PM
> > > To: foodallergyautism@yahoogroups.com
> > > Subject: [foodallergyautism] Introduction to our family
> > >
> > >
> > > Hi, my name is Michelle. Our family is located in Baltimore
> county,
> > > Maryland. My hubby, Steve, is a police officer. We have
his/hers
> > and
> > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
and
> > being
> > > deployed to Iraq. Let's not go there as I am unhappy with her
> > decision.
> > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> Ashley
> > is
> > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
but
> > great
> > > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
> multiple
> > food
> > > allergies and SID.
> > >
> > > Stevie and Sammy are on a rotation diet due to known allergies
to
> > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> going
> > to
> > > be doing the SAGE Elisa delayed food allergy testing soon. Has
> > anyone
> > > had an experienced with delayed food allergy testing and the
> Elisa
> > in
> > > particular? What company did you use? What was the outcome?
Good,
> > bad
> > > or indifferent?
> > >
> > > By the way, our guys did not fair well on the Nutramigen either
> and
> > we
> > > think it was due to the corn syrup solids. We did some
> preliminary
> > > bloodwork regarding food allergies after discontinuing
> Nutramigen.
> > When
> > > corn came up high, we contributed it to the Nutramingen as
> nothing
> > else
> > > we used had corn. Our guys have food texture adversions and eat
> > ONLY
> > > thick puried foods (Food Processor) all organic of course. They
> > also
> > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> > anything
> > > else that is safe for drinking? Orange juice seems to contain
too
> > much
> > > sugar and apple is out as we are also treating heavy yeast. We
> are
> > > still working on gut issues. YUK!
> > >
> > > Our guys are on multiple vitamins/supplements. Both are making
> slow
> > but
> > > steady progress. I was hoping to connect with other parents
> living
> > with
> > > children with multiple food allergies so that I may learn from
> > them. I
> > > am glad to be among parents that understand.
> > ; >
> > > Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > SPONSORED LINKS
> > > Article
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Article+health+wellness&w1=Article+
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > ss
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > nd
> > > +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health
> wellness
> > > Center
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Center+ for+health+and+wellness&w1=A
> > >
> >
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> > +w
> > >
> >
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> > ea
> > > lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w> for
> > health
> > > and wellness       Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness&w1=Article+heal
> > >
> >
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> > 4=
> > >
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> > el
> > > lness+job&c=6&s=1 81&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> >      
> > > Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness+program&w1=Arti
> > >
> >
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> > ll
> > >
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> > th
> > > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> > wellness
> > > program       Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+wellness+product&w1=Article+
> > >
> >
>
health+wellness&w2=Center+for +health+and+wellness&w3=Health+and+wellne
> > ss
> > >
> >
>
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What do you look for as far as allergies? We see green crusty noses,
runny noses and loose stools. On milk, it was raw heinies and soy was
vommiting. I have heard some children can tolerate goat's milk? Have
you tried goat's milk? How about Kefir? And Coconut milk? What
antifungal is good to treat arabinos?

This makes no sense whatsoever? Our one twin that is worse than the
other according to the Organic Acids is doing much better than the
other. Though the other has malabsorption according to the Organic
Acids.

Is there anyone on this list that is familiar with the Organic Acids
that I could call? Jenny, I have your number somewhere I just have to
find it. Thanks so much. Michelle





--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> > No, the only testing we have done has been the Organic Acids ...
>
> Most Organic Acids tests will tell you which yeast strains are
present in excess. It your lab doesn't spell it out, see if your DAN
can guide you on this. Some labs give more info than others. You can
also call the lab for guidance on interpreting the results and
hopefully information on which meds and natural remedies are
effective/resistant to that strain.
>
> Your OT sounds ... um, less than helpful at best, dangerous at
worst.  He can't force you to feed your child something he's allergic
to, with or without a doctor's note. A parent's observed food
reactions SHOULD be proof enough to avoid the food. That is
sufficient for our allergist to diagnose my son's food allergies.
Under about age 5, the gold standard for diagnosing food allergies is
the introduction of a food and observation of the response, and a
parent's report should suffice.  A food diary (to show the allergist
you've been a careful observer) is helpful here.  Allergy tests are
often inaccurate - the younger the child the more inaccurate testing
will be. If this OT requires proof, hopefully the Elisa test will
suffice. But I would not give rice just because the OT says so. He is
not an allergist or even an MD (and most MDs) are clueless about
allergies. Even allergists are often ill-informed about food
allergies and childrens' food allergies. If necessary, get  a note
from
>  your DAN, but I'd first just try pushing back on the OT- no
therapist should force a child to eat something that makes him sick.
Simply tell him that your doctor recommends completely avoiding the
child's allergens (this includes rice flour, rice starch, rice bran,
rice oil, etc. in supplements too), period, and you will not over-
ride the doctor's instructions.
>
> > The only problem with the SCD is the nuts. We had tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> Were you using commercial nut milks, or home-made? This sounds like
potential allergies. Allergic children should avoid all nuts and
seeds until at least age 5, and then introduce them cautiously and
only if the gut is healthy and the other allergies are not worsening.
This is a problem with the SCD - many of oiur allergic kids need to
do a nut-free, egg-free, dairy-free SCD - these foods are top-8
allergens that are very risky for our kids. You can do a pretty
nutritious and safe SCD without eggs, nuts, or milk.
>
> > Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> He tolerates lamb, buffalo, and elk, and has a low allergy to grass-
fed organic beef, which we give him one day a week.  We've also
started giving him salmon one meal a week, and he seems to be doing
okay (he tested positive to almost al the other fish, so this is a
risk and why we only give it to him occasionally).  He also tolerates
ostrich and venison, but we avoid venison b/c of deer-wasting disease
and ostrich is just expensive. We hold those meats in reserve in case
he becomes allergic in the future to one of his staple meats. He also
tolerates beets, brussel sprouts, celery root and spinach. He has a
low allergy to squash/pumpkin, zucchini, broccoli, and asparagus, and
he eats one of these daily. He tolerates pure cranberry juice.  He
tolerates safflower oil, sunflower oil, palm oil and has a mild
canola oil allergy, so we rotate these as well. He also tolerates
pure sea salt and stevia, and glycerine and peppermint flavoring in
his compounded meds. That's pretty much the li
> st of what he can safely eat!
> Suzanne
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> Please see below as I answered under your questions and I have even
> more questions...thanks so much as you have helped immensley.
>
> --------------------------------------------
>
> ** Forgive me if I asked this already - has your DAN had you get an
> OAT or a CDSA to determine what yeast strains the boys have?
>
> > No, the only testing we have done has been the Organic Acids and
> some IgG bloodwork to determine a wheat, soy, corn and milk allergy
> which all came back high. We will be doing the SAGE Elisa food
> allergy testing within the next week. We do know however that rice,
> quinoa and white potato are also problematic in that that they wind
> up having green crusty noses and loose stools.
>
> *Nystatin and diflucan are both effective against the same strains
of
> yeast, but are both also ineffective against the same strains of
> yeast. The fact that neither has worked suggests that they have a
> strain that does not respond to these meds. There are other meds
that
> are effective against different strains - ketoconazole, sporanox,
for
> example. I hate to think of you spending time and money on the
wrong
> meds. We have seen two DANs - one tends to test and target
> accurately, the other just prescribes Diflucan and Nystatin for
> everything, and we were making no progress with that approach.
>
> > We will be doing the S. Boulardis to see if that works.
>
> ** Have you considered feeding therapy for the boys feeding
problems?
> We have been in a great behavioral feeding program for my son since
> age 14 months, and he can now eat anything at all! This is good,
> since he only tolerates a few meats and vegetables and oils (no
> grains, legumes, etc.), so his meals consist of things like beets,
> spinach and brussels sprouts. He eats them just fine! Our feeding
> program is world-renowned and they do terrific work with the
feeding
> selectivity that autistic kids have.
>
> > May I ask what feeding clinic? Our twins were evaluated by the
Mt.
> Washington Pediatric Hospital here in Maryland and they gave us
some
> reccomendations to do here at home. Kennedy Krieger had a very
> legnthy waiting list. Our OT is extremely unfamilar with food
> allergies and pushed for the addition of rice back into the diet
and
> now we are back to crusty green noses and loose stools. He still
does
> not beleive that it was caused by adding rice back inot their diet.
> Mind you, they have only been off rice for a couple months. He also
> wanted to see something on paper from a medical doctor regarding
> their rice allergies.
>
> ** Have you looked into the SCD diet for your boys? Multiple
> allergies and yeast problems are usually symptoms of severe leaky
> gut, and feeding grains, starches and sugars will worsen this. My
son
> was GFCF (plus avoiding his allergens) for 3 years, and we fed him
> lots of thickened sweet drinks (for the feeding problems) and
starchy
> grains (like rice, millet and quinoa), and he ended up with a much
> more severe yeast problem and much worse allergies. Now at three
and
> a half, he can only tolerate 8 vegetables and 4 meats, and we're
> trying really hard to fix his leaky gut with diet and very strong
> antifungals. The reason I'm mentioning it to you is that I wish
we'd
> known sooner about the problems with starches and sugars, so we
could
> have resolved the problem rather than made it worse.
>
> > The only problem with the SCD is the nuts. We had tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> > At this point, the only veggies our guys to seem to do well on
are
> carrots, sweet potato, green beans, peas, red beets, butternut
squash
> and spinach. Meats are chicken?, pork, beef, turkey, veal and lamb.
> We have never introduced eggs. Considering they recieved 2 flu vax
27
> days apart at 6.5 months and just shy of 7.5 months, we are afraid
to
> introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> ** Just a thought. I know how scary it is to think of limiting a
> child's diet further when he already must omit so many foods due to
> allergies, but too often this ends up with the child eating too
many
> of the starchy foods that make their gut problems worse.
> > Suzanne
> >
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Yes, our kids have lots of GI issues. We are still fighting yeast
> > which does not seem to be going away. They have been on Nystatin
> and
> > nothing. They have been on Diflucan and nothing. Now we are going
> to
> > try the S. Boulardis. Hopefully we will see something as far as
> > cleaning up the gut. Sam, twin B, is making good progress as far
as
> > mimicking, signing, and words. Though he is a bit inconsistent.
> > Stevie, twin A, is making progress as far as great eye contact
and
> > mouthing once again. They have so many food allergies due to gut
> > issues which has become more than frustrating. Hope to see more
> > action here as well. This seems like a great group. Michelle
> > www.babyhomepages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
wrote:
> > >
> > > Michelle,
> > > do your kids have gastrointestinal issues too?  Diarrhea or
> > > constipation?
> > > I am happy to see your post.  I don't think this board is very
> > active.
> > > I hope some other parents answer your questions.  I would like
to
> > hear
> > > answers to the same testing questions.  thank you Rob's mom
> > >
> > > -----Original Message-----
> > > From: foodallergyautism@yahoogroups.com
> > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > momtotwinsnmore
> > > Sent: Thursday, May 18, 2006 9:08 PM
> > > To: foodallergyautism@yahoogroups.com
> > > Subject: [foodallergyautism] Introduction to our family
> > >
> > >
> > > Hi, my name is Michelle. Our family is located in Baltimore
> county,
> > > Maryland. My hubby, Steve, is a police officer. We have
his/hers
> > and
> > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
and
> > being
> > > deployed to Iraq. Let's not go there as I am unhappy with her
> > decision.
> > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> Ashley
> > is
> > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
but
> > great
> > > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
> multiple
> > food
> > > allergies and SID.
> > >
> > > Stevie and Sammy are on a rotation diet due to known allergies
to
> > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> going
> > to
> > > be doing the SAGE Elisa delayed food allergy testing soon. Has
> > anyone
> > > had an experienced with delayed food allergy testing and the
> Elisa
> > in
> > > particular? What company did you use? What was the outcome?
Good,
> > bad
> > > or indifferent?
> > >
> > > By the way, our guys did not fair well on the Nutramigen either
> and
> > we
> > > think it was due to the corn syrup solids. We did some
> preliminary
> > > bloodwork regarding food allergies after discontinuing
> Nutramigen.
> > When
> > > corn came up high, we contributed it to the Nutramingen as
> nothing
> > else
> > > we used had corn. Our guys have food texture adversions and eat
> > ONLY
> > > thick puried foods (Food Processor) all organic of course. They
> > also
> > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> > anything
> > > else that is safe for drinking? Orange juice seems to contain
too
> > much
> > > sugar and apple is out as we are also treating heavy yeast. We
> are
> > > still working on gut issues. YUK!
> > >
> > > Our guys are on multiple vitamins/supplements. Both are making
> slow
> > but
> > > steady progress. I was hoping to connect with other parents
> living
> > with
> > > children with multiple food allergies so that I may learn from
> > them. I
> > > am glad to be among parents that understand.
> > >
> > > Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > SPONSORED LINKS
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> > t=ms&k=Article+health+wellness&w1=Article+
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> > ss
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>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > nd
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> wellness
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rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> > +w
> > >
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ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> > ea
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> > health
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th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> > 4=
> > >
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> > el
> > > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> >
> > > Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness+program&w1=Arti
> > >
> >
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> > ll
> > >
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> > th
> > > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> > wellness
> > > program       Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+wellness+product&w1=Article+
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > ss
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > nd
> > > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> > product
> > > Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness+job&w1=Article+
> > >
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> > ss
> > >
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > nd
> > > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and
wellness
> > job
> > >
> > >   _____
> > >
> > > YAHOO! GROUPS LINKS
> > >
> > >
> > >
> > > *      Visit your group "foodallergyautism
> > > <http://groups.yahoo.com/group/foodallergyautism> " on the web.
> > >
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> > > e>
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> wellness Health and wellness
> > Health and wellness program Health wellness product Health and
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> >
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> >  Visit your group "foodallergyautism" on the web.
> >
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> >  foodallergyautism-unsubscribe@yahoogroups.com
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> SPONSORED LINKS Article health wellness Center for health and
wellness Health and wellness
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>
>
>
> YAHOO! GROUPS LINKS
>
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>
>  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>

Jenny,
Take care of yourself and be careful about the heart situation. Right
now, I am using Kirkman brand S. Boulardii and after the first 2
doses, they became a little hyper, silly and almost bored. I have not
seen too much else. Here's crossing my fingers that it will clear up
some of the yeast issue as they are on a yeast free diet. Let us know
how you are doing? Good luck with the house. Michelle





--- In foodallergyautism@yahoogroups.com, Jenny Kalis <j_kalis@...>
wrote:
>
> Michelle,  I haven't used it but I would like to try
> it soon.  Let me know how it goes.  What brand?  What
> dosage?
> Sorry, I haven't had a chance to respond to your other
> questions and posts.  We have our house on the market
> and Chloe's birthday is tomorrow.  We had eleven
> showings over the weekend and I'm all of a sudden
> having some heart palpitations/ heart valve issues?  I
> just did a 24 hour EKG and will have an ultrasound on
> Thurs.  I'm sure it's just stress, but I just want you
> all to know that I'll join in here soon after things
> calm down a bit.
>
> Thanks,
> Jenny
>
> --- momtotwinsnmore <gillespies62599@...> wrote:
>
> > Has anyone here used S. Boulardii? Why does it have
> > to be put in warm
> > water? Can I flavor with pear juice? Thanks so much.
> > Michelle
> > www.babyhomepages.net/thegillespiefamily/
> >
> >
> >
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>

> No, the only testing we have done has been the Organic Acids ...

Most Organic Acids tests will tell you which yeast strains are present in excess. It your lab doesn't spell it out, see if your DAN can guide you on this. Some labs give more info than others. You can also call the lab for guidance on interpreting the results and hopefully information on which meds and natural remedies are effective/resistant to that strain.

Your OT sounds ... um, less than helpful at best, dangerous at worst.  He can't force you to feed your child something he's allergic to, with or without a doctor's note. A parent's observed food reactions SHOULD be proof enough to avoid the food. That is sufficient for our allergist to diagnose my son's food allergies. Under about age 5, the gold standard for diagnosing food allergies is the introduction of a food and observation of the response, and a parent's report should suffice.  A food diary (to show the allergist you've been a careful observer) is helpful here.  Allergy tests are often inaccurate - the younger the child the more inaccurate testing will be. If this OT requires proof, hopefully the Elisa test will suffice. But I would not give rice just because the OT says so. He is not an allergist or even an MD (and most MDs) are clueless about allergies. Even allergists are often ill-informed about food allergies and childrens' food allergies. If nece ssary, get  a note from your DAN, but I'd first just try pushing back on the OT- no therapist should force a child to eat something that makes him sick. Simply tell him that your doctor recommends completely avoiding the child's allergens (this includes rice flour, rice starch, rice bran, rice oil, etc. in supplements too), period, and you will not over-ride the doctor's instructions.

> The only problem with the SCD is the nuts. We had tried Almond milk
and Hazelnut milk at one point and they had reactions to both. Gas
and loose stools again.

Were you using commercial nut milks, or home-made? This sounds like potential allergies. Allergic children should avoid all nuts and seeds until at least age 5, and then introduce them cautiously and only if the gut is healthy and the other allergies are not worsening. This is a problem with the SCD - many of oiur allergic kids need to do a nut-free, egg-free, dairy-free SCD - these foods are top-8 allergens that are very risky for our kids. You can do a pretty nutritious and safe SCD without eggs, nuts, or milk.

> Out of curiosity, what 8 veggies and 4 meats does
your son do well on?

He tolerates lamb, buffalo, and elk, and has a low allergy to grass-fed organic beef, which we give him one day a week.  We've also started giving him salmon one meal a week, and he seems to be doing okay (he tested positive to almost al the other fish, so this is a risk and why we only give it to him occasionally).  He also tolerates ostrich and venison, but we avoid venison b/c of deer-wasting disease and ostrich is just expensive. We hold those meats in reserve in case he becomes allergic in the future to one of his staple meats. He also tolerates beets, brussel sprouts, celery root and spinach. He has a low allergy to squash/pumpkin, zucchini, broccoli, and asparagus, and he eats one of these daily. He tolerates pure cranberry juice.  He tolerates safflower oil, sunflower oil, palm oil and has a mild canola oil allergy, so we rotate these as well. He also tolerates pure sea salt and stevia, and glycerine and peppermint flavoring in his compounded meds. Th at's pretty much the list of what he can safely eat!

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Please see below as I answered under your questions and I have even
more questions...thanks so much as you have helped immensley.

--------------------------------------------

** Forgive me if I asked this already - has your DAN had you get an
OAT or a CDSA to determine what yeast strains the boys have?

> No, the only testing we have done has been the Organic Acids and
some IgG bloodwork to determine a wheat, soy, corn and milk allergy
which all came back high. We will be doing the SAGE Elisa food
allergy testing within the next week. We do know however that rice,
quinoa and white potato are also problematic in that that they wind
up having green crusty noses and loose stools.

*Nystatin and diflucan are both effective against the same strains of
yeast, but are both also ineffective against the same strains o f
yeast. The fact that neither has worked suggests that they have a
strain that does not respond to these meds. There are other meds that
are effective against different strains - ketoconazole, sporanox, for
example. I hate to think of you spending time and money on the wrong
meds. We have seen two DANs - one tends to test and target
accurately, the other just prescribes Diflucan and Nystatin for
everything, and we were making no progress with that approach.

> We will be doing the S. Boulardis to see if that works.

** Have you considered feeding therapy for the boys feeding problems?
We have been in a great behavioral feeding program for my son since
age 14 months, and he can now eat anything at all! This is good,
since he only tolerates a few meats and vegetables and oils (no
grains, legumes, etc.), so his meals consist of things like beets,
spinach and brussels sprouts. He eats them just fine! Our feeding
progra m is world-renowned and they do terrific work with the feeding
selectivity that autistic kids have.

> May I ask what feeding clinic? Our twins were evaluated by the Mt.
Washington Pediatric Hospital here in Maryland and they gave us some
reccomendations to do here at home. Kennedy Krieger had a very
legnthy waiting list. Our OT is extremely unfamilar with food
allergies and pushed for the addition of rice back into the diet and
now we are back to crusty green noses and loose stools. He still does
not beleive that it was caused by adding rice back inot their diet.
Mind you, they have only been off rice for a couple months. He also
wanted to see something on paper from a medical doctor regarding
their rice allergies.

** Have you looked into the SCD diet for your boys? Multiple
allergies and yeast problems are usually symptoms of severe leaky
gut, and feeding grains, starches and sugars will worsen this. My son
was G FCF (plus avoiding his allergens) for 3 years, and we fed him
lots of thickened sweet drinks (for the feeding problems) and starchy
grains (like rice, millet and quinoa), and he ended up with a much
more severe yeast problem and much worse allergies. Now at three and
a half, he can only tolerate 8 vegetables and 4 meats, and we're
trying really hard to fix his leaky gut with diet and very strong
antifungals. The reason I'm mentioning it to you is that I wish we'd
known sooner about the problems with starches and sugars, so we could
have resolved the problem rather than made it worse.

> The only problem with the SCD is the nuts. We had tried Almond milk
and Hazelnut milk at one point and they had reactions to both. Gas
and loose stools again.

> At this point, the only veggies our guys to seem to do well on are
carrots, sweet potato, green beans, peas, red beets, butternut squash
and spinach. Meats are chicken?, por k, beef, turkey, veal and lamb.
We have never introduced eggs. Considering they recieved 2 flu vax 27
days apart at 6.5 months and just shy of 7.5 months, we are afraid to
introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
your son do well on?

** Just a thought. I know how scary it is to think of limiting a
child's diet further when he already must omit so many foods due to
allergies, but too often this ends up with the child eating too many
of the starchy foods that make their gut problems worse.
> Suzanne
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> Yes, our kids have lots of GI issues. We are still fighting yeast
> which does not seem to be going away. They have been on Nystatin
and
> nothing. They have been on Diflucan and nothing. Now we are going
to
> try the S. Boulardis. Hopefully we will see somet hing as far as
> cleaning up the gut. Sam, twin B, is making good progress as far as
> mimicking, signing, and words. Though he is a bit inconsistent.
> Stevie, twin A, is making progress as far as great eye contact and
> mouthing once again. They have so many food allergies due to gut
> issues which has become more than frustrating. Hope to see more
> action here as well. This seems like a great group. Michelle
> www.babyhomepages.net/thegillespiefamily/
>
>
>
>
>
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@> wrote:
> >
> > Michelle,
> > do your kids have gastrointestinal issues too?  Diarrhea or
> > constipation?
> > I am happy to see your post.  I don't think this board is very
> active.
> > I hope some other parents answer your questions.  I would l ike to
> hear
> > answers to the same testing questions.  thank you Rob's mom
> >
> > -----Original Message-----
> > From: foodallergyautism@yahoogroups.com
> > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> momtotwinsnmore
> > Sent: Thursday, May 18, 2006 9:08 PM
> > To: foodallergyautism@yahoogroups.com
> > Subject: [foodallergyautism] Introduction to our family
> >
> >
> > Hi, my name is Michelle. Our family is located in Baltimore
county,
> > Maryland. My hubby, Steve, is a police officer. We have his/hers
> and
> > ours. My oldest, Amanda, is in the army. Stationed in Hawaii and
> being
> > deployed to Iraq. Let's not go there as I am unhappy with her
> decision.
> > Ashley, 15, has a dx of PDD and is on the road to recovery.
Ashley
> is
> > GFCF. Jesse James, 11 , dx of ADHD and ODD. He is a huge help but
> great
> > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
multiple
> food
> > allergies and SID.
> >
> > Stevie and Sammy are on a rotation diet due to known allergies to
> > wheat, milk, soy, corn, rice, quinoa and white potato. We are
going
> to
> > be doing the SAGE Elisa delayed food allergy testing soon. Has
> anyone
> > had an experienced with delayed food allergy testing and the
Elisa
> in
> > particular? What company did you use? What was the outcome? Good,
> bad
> > or indifferent?
> >
> > By the way, our guys did not fair well on the Nutramigen either
and
> we
> > think it was due to the corn syrup solids. We did some
preliminary
> > bloodwork regarding food allergies after discontinuing
Nutramigen.
> When
> > corn came up high, we contributed it to the Nutramingen as
nothing
> else
> > we used had corn. Our guys have food texture adversions and eat
> ONLY
> > thick puried foods (Food Processor) all organic of course. They
> also
> > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> anything
> > else that is safe for drinking? Orange juice seems to contain too
> much
> > sugar and apple is out as we are also treating heavy yeast. We
are
> > still working on gut issues. YUK!
> >
> > Our guys are on multiple vitamins/supplements. Both are making
slow
> but
> > steady progress. I was hoping to connect with other parents
living
> with
> > children with multiple food allergies so that I may learn from
> them. I
> > am glad to be among parents that understand.
> >
> > Mic helle
> > www.babyhomepages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
> > SPONSORED LINKS
> > Article
> > <http://groups.yahoo.com/gads?
> t=ms&k=Article+health+wellness&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health
wellness
> > Center
> > <http://groups.yahoo.com/gads?
> t=ms&k=Center+for+health+and+wellness&w1=A
> >
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> +w
> >
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> ea
> > lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w> for
> health
> > and wellness       Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+and+wellness&w1=Article+heal
> >
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> 4=
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> el
> > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
>      
> > Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+and+wellness+program&w1=Arti
> >
> ;
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> ll
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> th
> > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> wellness
> > program       Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+wellness+product&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> product
> > Health
> > <http://groups.yahoo.com/gads?
&g t; t=ms&k=Health+and+wellness+job&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
> job      
> >
> >   _____ 
> >
> > YAHOO! GROUPS LINKS
> >
> >
> >      
> > *      Visit your group "foodallergyautism
> > <http://groups.yahoo.com/group/foodallergyautism> " on the web.
> >  
> >
> > *      To unsubscribe from this group, send an email to:
> >  food allergyautism-unsubscribe@yahoogroups.com
> > <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
> subject=Unsubscrib
> > e>
> >  
> >
> > *      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service <http://docs.yahoo.com/info/terms/> .
> >
> >
> >   _____
> >
>
>
>
>
>
>
> SPONSORED LINKS Article health wellness Center for health and
wellness Health and wellness
> Health and wellness program Health wellness product Health and
wellness job
>
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "foodallergyautism" on the web.
>  
>  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@y ahoogroups.com
>  
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>

Michelle,  I haven't used it but I would like to try
it soon.  Let me know how it goes.  What brand?  What
dosage?
Sorry, I haven't had a chance to respond to your other
questions and posts.  We have our house on the market
and Chloe's birthday is tomorrow.  We had eleven
showings over the weekend and I'm all of a sudden
having some heart palpitations/ heart valve issues?  I
just did a 24 hour EKG and will have an ultrasound on
Thurs.  I'm sure it's just stress, but I just want you
all to know that I'll join in here soon after things
calm down a bit.

Thanks,
Jenny

--- momtotwinsnmore <gillespies62599@...> wrote:

> Has anyone here used S. Boulardii? Why does it have
> to be put in warm
> water? Can I flavor with pear juice? Thanks so much.
> Michelle
> www.babyhomepages.net/thegillespiefamily/
>
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Has anyone here used S. Boulardii? Why does it have to be put in warm
water? Can I flavor with pear juice? Thanks so much. Michelle
www.babyhomepages.net/thegillespiefamily/

Please see below as I answered under your questions and I have even
more questions...thanks so much as you have helped immensley.

--------------------------------------------

** Forgive me if I asked this already - has your DAN had you get an
OAT or a CDSA to determine what yeast strains the boys have?

> No, the only testing we have done has been the Organic Acids and
some IgG bloodwork to determine a wheat, soy, corn and milk allergy
which all came back high. We will be doing the SAGE Elisa food
allergy testing within the next week. We do know however that rice,
quinoa and white potato are also problematic in that that they wind
up having green crusty noses and loose stools.

*Nystatin and diflucan are both effective against the same strains of
yeast, but are both also ineffective against the same strains of
yeast. The fact that neither has worked suggests that they have a
strain that does not respond to these meds. There are other meds that
are effective against different strains - ketoconazole, sporanox, for
example. I hate to think of you spending time and money on the wrong
meds. We have seen two DANs - one tends to test and target
accurately, the other just prescribes Diflucan and Nystatin for
everything, and we were making no progress with that approach.

> We will be doing the S. Boulardis to see if that works.

** Have you considered feeding therapy for the boys feeding problems?
We have been in a great behavioral feeding program for my son since
age 14 months, and he can now eat anything at all! This is good,
since he only tolerates a few meats and vegetables and oils (no
grains, legumes, etc.), so his meals consist of things like beets,
spinach and brussels sprouts. He eats them just fine! Our feeding
program is world-renowned and they do terrific work with the feeding
selectivity that autistic kids have.

> May I ask what feeding clinic? Our twins were evaluated by the Mt.
Washington Pediatric Hospital here in Maryland and they gave us some
reccomendations to do here at home. Kennedy Krieger had a very
legnthy waiting list. Our OT is extremely unfamilar with food
allergies and pushed for the addition of rice back into the diet and
now we are back to crusty green noses and loose stools. He still does
not beleive that it was caused by adding rice back inot their diet.
Mind you, they have only been off rice for a couple months. He also
wanted to see something on paper from a medical doctor regarding
their rice allergies.

** Have you looked into the SCD diet for your boys? Multiple
allergies and yeast problems are usually symptoms of severe leaky
gut, and feeding grains, starches and sugars will worsen this. My son
was GFCF (plus avoiding his allergens) for 3 years, and we fed him
lots of thickened sweet drinks (for the feeding problems) and starchy
grains (like rice, millet and quinoa), and he ended up with a much
more severe yeast problem and much worse allergies. Now at three and
a half, he can only tolerate 8 vegetables and 4 meats, and we're
trying really hard to fix his leaky gut with diet and very strong
antifungals. The reason I'm mentioning it to you is that I wish we'd
known sooner about the problems with starches and sugars, so we could
have resolved the problem rather than made it worse.

> The only problem with the SCD is the nuts. We had tried Almond milk
and Hazelnut milk at one point and they had reactions to both. Gas
and loose stools again.

> At this point, the only veggies our guys to seem to do well on are
carrots, sweet potato, green beans, peas, red beets, butternut squash
and spinach. Meats are chicken?, pork, beef, turkey, veal and lamb.
We have never introduced eggs. Considering they recieved 2 flu vax 27
days apart at 6.5 months and just shy of 7.5 months, we are afraid to
introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
your son do well on?

** Just a thought. I know how scary it is to think of limiting a
child's diet further when he already must omit so many foods due to
allergies, but too often this ends up with the child eating too many
of the starchy foods that make their gut problems worse.
> Suzanne
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> Yes, our kids have lots of GI issues. We are still fighting yeast
> which does not seem to be going away. They have been on Nystatin
and
> nothing. They have been on Diflucan and nothing. Now we are going
to
> try the S. Boulardis. Hopefully we will see something as far as
> cleaning up the gut. Sam, twin B, is making good progress as far as
> mimicking, signing, and words. Though he is a bit inconsistent.
> Stevie, twin A, is making progress as far as great eye contact and
> mouthing once again. They have so many food allergies due to gut
> issues which has become more than frustrating. Hope to see more
> action here as well. This seems like a great group. Michelle
> www.babyhomepages.net/thegillespiefamily/
>
>
>
>
>
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@> wrote:
> >
> > Michelle,
> > do your kids have gastrointestinal issues too?  Diarrhea or
> > constipation?
> > I am happy to see your post.  I don't think this board is very
> active.
> > I hope some other parents answer your questions.  I would like to
> hear
> > answers to the same testing questions.  thank you Rob's mom
> >
> > -----Original Message-----
> > From: foodallergyautism@yahoogroups.com
> > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> momtotwinsnmore
> > Sent: Thursday, May 18, 2006 9:08 PM
> > To: foodallergyautism@yahoogroups.com
> > Subject: [foodallergyautism] Introduction to our family
> >
> >
> > Hi, my name is Michelle. Our family is located in Baltimore
county,
> > Maryland. My hubby, Steve, is a police officer. We have his/hers
> and
> > ours. My oldest, Amanda, is in the army. Stationed in Hawaii and
> being
> > deployed to Iraq. Let's not go there as I am unhappy with her
> decision.
> > Ashley, 15, has a dx of PDD and is on the road to recovery.
Ashley
> is
> > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
> great
> > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
multiple
> food
> > allergies and SID.
> >
> > Stevie and Sammy are on a rotation diet due to known allergies to
> > wheat, milk, soy, corn, rice, quinoa and white potato. We are
going
> to
> > be doing the SAGE Elisa delayed food allergy testing soon. Has
> anyone
> > had an experienced with delayed food allergy testing and the
Elisa
> in
> > particular? What company did you use? What was the outcome? Good,
> bad
> > or indifferent?
> >
> > By the way, our guys did not fair well on the Nutramigen either
and
> we
> > think it was due to the corn syrup solids. We did some
preliminary
> > bloodwork regarding food allergies after discontinuing
Nutramigen.
> When
> > corn came up high, we contributed it to the Nutramingen as
nothing
> else
> > we used had corn. Our guys have food texture adversions and eat
> ONLY
> > thick puried foods (Food Processor) all organic of course. They
> also
> > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> anything
> > else that is safe for drinking? Orange juice seems to contain too
> much
> > sugar and apple is out as we are also treating heavy yeast. We
are
> > still working on gut issues. YUK!
> >
> > Our guys are on multiple vitamins/supplements. Both are making
slow
> but
> > steady progress. I was hoping to connect with other parents
living
> with
> > children with multiple food allergies so that I may learn from
> them. I
> > am glad to be among parents that understand.
> >
> > Michelle
> > www.babyhomepages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
> > SPONSORED LINKS
> > Article
> > <http://groups.yahoo.com/gads?
> t=ms&k=Article+health+wellness&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health
wellness
> > Center
> > <http://groups.yahoo.com/gads?
> t=ms&k=Center+for+health+and+wellness&w1=A
> >
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
> +w
> >
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
> ea
> > lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w> for
> health
> > and wellness       Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+and+wellness&w1=Article+heal
> >
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
> 4=
> >
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
> el
> > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
>
> > Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+and+wellness+program&w1=Arti
> >
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> ll
> >
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
> th
> > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> wellness
> > program       Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+wellness+product&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> product
> > Health
> > <http://groups.yahoo.com/gads?
> t=ms&k=Health+and+wellness+job&w1=Article+
> >
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
> ss
> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> nd
> > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
> job
> >
> >   _____
> >
> > YAHOO! GROUPS LINKS
> >
> >
> >
> > *      Visit your group "foodallergyautism
> > <http://groups.yahoo.com/group/foodallergyautism> " on the web.
> >
> >
> > *      To unsubscribe from this group, send an email to:
> >  foodallergyautism-unsubscribe@yahoogroups.com
> > <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
> subject=Unsubscrib
> > e>
> >
> >
> > *      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service <http://docs.yahoo.com/info/terms/> .
> >
> >
> >   _____
> >
>
>
>
>
>
>
> SPONSORED LINKS Article health wellness Center for health and
wellness Health and wellness
> Health and wellness program Health wellness product Health and
wellness job
>
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "foodallergyautism" on the web.
>
>  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>

We use a combination of elimination dieting and traditional allergy tests (skin prick tests are most accurate for us). That's what works for us. We've found that skin tests are accurate for my son - we use them mostly to confirm the sensitivities that we've already observed through elimination dieting, and to pinpoint sensitivities that we're unsure about.  My son has eczema (an IgE reaction) as his main symptom, but it's a delayed reaction, so he has to be on a set of foods for 2-3 days in order to determine his reactions.

It sounds like your son is having IgG reactions.  Have you tried elimination dieting and rotating foods to reduce his reactions?   To determine what a particular child is allergic to, you have to find an evaluation method that works for THAT child. I'm not a big fan of allergy testing (blood testing or skin testing), as it often gives false negatives and false positives. However, elimination dieting is difficult, and if the child has multiple allergies, it can be hard to get to a baseline combination of foods that he doesn't react to. Once you've done that, though, you simply introduce new foods one at a time to see if there is a reaction. If you can't find a set of non-reactive foods for a baseline, then  I'd suggest startingwith allergy testing. Again, my child is mostly IgE reactive, not IgG to most foods, and mainstream IgG testing can be expensive because insurance doesn't usually cover it.  Because my son has IgE allergies, we are able to use a tra ditional allergist, with the costs covered by insurance.  We haven't used the alternative lab allergy tests that are common in the DAN community, but maybe another listmate can suggest an affordable one.

I've spent several years facilitating an online support group for moms of allergic babies and toddlers, and I've worked with hundreds of moms and read a lot of research about allergies ... the traditional kind. I can tell you what I know about I know that some of the science that pertains to allergies doesn't seem to apply to autistic kids. I don't know any kids without autism who appear to have multiple food allergies caused by leaky gut.  The etiology and pattern of allergies (and here I'm talking about IgE allergies) that are caused by leaky gut is completely different from those of typical kids with allergies, but most of the traditional recommendations still pertain. For example, you should strictly avoid exposing the child to the allergic food in any form for a long period of time - 6 months or more - in order for the body to "forget" the reaction, to stop producing antibodies to the food, and give the child an opportunity to eventually outgrow the allergy. Conti nued exposure can lead to more severe reactions.

Your DAN is wrong about chicken - I know lots of kids with chicken allergies. It's possible to be allergic to almost anything. My son is allergic to all poultry, including chicken, duck, goose, and pheasant. It's likely in his case that the underlying sensitivity is to corn, since farm-raised poultry is usually corn-fed. My son is extremely sensitive to corn - he seems to tolerate grass-fed beef but not corn-fed beef. He doesn't tolerate pork, which is also typically corn-fed.

It's interesting to hear what you have to say about Krigsman. We have thought about seeing him, but he seems to rely heavily on prescription medications that my son can't tolerate. What you're describing bears that out. What did he find on your son's scope? What were his recommendations about your son's allergies?

-------------- Original message from "E Sweet" <eswee@...>: --------------

Suzanne

how did you finally figure out the meats and five vegetables that your son can tolerate,is ot allergic to?  Our history is much like yours but we are still having GI problems.  We're on the SCD a few months, Pentasa,prevaid and singulair.  We've been scoped by Krigsman.  Krigsman has not been much help. Krigsman often puts kids on a prescription digestive enzyme, Ultrase MT-12.  I don't know if it is scd legal.  Krigsman said the scd diet might help and we should try it out.  I cannot get my child's gi cleared up enough to tell when a food hurts him- he consistently still has symptoms although he has improved.    Wonder which meats and vegetables your child can tolerate?  Our Dan said that people are hardly ever allergic to chicken.  I am starting to wonder if my child might be- we are very allergic to eggs.  How did you figure out which ones yo ur child could tolerate?   what are they we eat lately the following lamb, pork, limited beef and chicken, avacado, kidney and navy beans, pork rinds fried, ripe bananas, limited pears, limited yellow delicious apples because are lowest oxalate, English peas.

 

please more of your thoughs.  thank you for your help

rob's mom

-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of szmidford@...
Sent: Sunday, May 21, 2006 3:34 PM
To: foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism] Re: Introduction to our family

Forgive me if I asked this already - has your DAN had you get an OAT or a CDSA to determine what yeast strains the boys have? Nystatin and diflucan are both effective against the same strains of yeast, but are both also ineffective against the same strains of yeast. The fact that neither has worked suggests that they have a strain that does not respond to these meds. There are other meds that are effective against different strains - ketoconazole, sporanox, for example. I hate to think of you spending time and money on the wrong meds. We have seen two DANs - one tends to test and target accurately, the other just prescribes Diflucan and Nystatin for everything, and we were making no progress with that approach.

 

Have you considered feeding therapy for the boys feeding problems? We have been in a great behavioral feeding program for my son since age 14 months, and he can now eat anything at all! This is good, since he only tolerates a few meats and vegetables and oils (no grains, legumes, etc.), so his meals consist of things like beets, spinach and brussels sprouts. He eats them just fine! Our feeding program is world-renowned and they do terrific work with the feeding selectivity that autistic kids have.

 

Have you looked into the SCD diet for your boys? Multiple allergies and yeast problems are usually symptoms of severe leaky gut, and feeding grains, starches and sugars will worsen this. My son was GFCF (plus avoiding his allergens) for 3 years, and we fed him lots of thickened sweet drinks (for the feeding problems) and starchy grains (like rice, millet and quinoa), and he ended up with a much more severe yeast problem and much worse allergies. Now at three and a half, he can only tolerate 8 vegetables and 4 meats, and we're trying really hard to fix his leaky gut with diet and very strong antifungals. The reason I'm mentioning it to you is that I wish we'd known sooner about the problems with starches and sugars, so we could have resolved the problem rather than made it worse.

 

Just a thought. I know how scary it is to think of limiting a child's diet further when he already must omit so many foods due to allergies, but too often this ends up with the child eating too many of the starchy foods that make their gut problems worse.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In fo! odall er gyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. S! ta tione d in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some! prelim inary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyh o! mepages .net/thegillespiefamily/
>
>
>
>
>
>
>
> SPONSORED LINKS
> Article
> <http://groups.yahoo.com/gads?
t=ms&k=Article+health+wellness&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health wellness
> Center
> <http://groups.yahoo.com/gads?
t=ms&k=Center+for+health+and+wellness&w1=A
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
+w
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
ea
> lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAP RGZ3! w> f or
health
> and wellness       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness&w1=Article+heal
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
4=
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
el
> lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
     
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+program&w1=Arti
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
ll
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
th
> +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
wellness BR>>! progra m       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+wellness+product&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
product
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+job&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
job      
>
>  nbsp; ___! __  ;
>
> YAHOO! GROUPS LINKS
>
>
>      
> *      Visit your group "foodallergyautism
> <http://groups.yahoo.com/group/foodallergyautism> " on the web.
>  
>
> *      To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
> <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
subject=Unsubscrib
> e>
>  
>
> *      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service <http://docs.yahoo.com/info/terms/> .
>
>
>   _____
>

SPONSORED LINKS

Article health wellness	Center for health and wellness	Health and wellness
Health and wellness program	Health wellness product	Health and wellness job

-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of szmidford@...
Sent: Sunday, May 21, 2006 3:34 PM
To: foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism] Re: Introduction to our family

Forgive me if I asked this already - has your DAN had you get an OAT or a CDSA to determine what yeast strains the boys have? Nystatin and diflucan are both effective against the same strains of yeast, but are both also ineffective against the same strains of yeast. The fact that neither has worked suggests that they have a strain that does not respond to these meds. There are other meds that are effective against different strains - ketoconazole, sporanox, for example. I hate to think of you spending time and money on the wrong meds. We have seen two DANs - one tends to test and target accurately, the other just prescribes Diflucan and Nystatin for everything, and we were making no progress with that approach.

 

Have you considered feeding therapy for the boys feeding problems? We have been in a great behavioral feeding program for my son since age 14 months, and he can now eat anything at all! This is good, since he only tolerates a few meats and vegetables and oils (no grains, legumes, etc.), so his meals consist of things like beets, spinach and brussels sprouts. He eats them just fine! Our feeding program is world-renowned and they do terrific work with the feeding selectivity that autistic kids have.

 

Have you looked into the SCD diet for your boys? Multiple allergies and yeast problems are usually symptoms of severe leaky gut, and feeding grains, starches and sugars will worsen this. My son was GFCF (plus avoiding his allergens) for 3 years, and we fed him lots of thickened sweet drinks (for the feeding problems) and starchy grains (like rice, millet and quinoa), and he ended up with a much more severe yeast problem and much worse allergies. Now at three and a half, he can only tolerate 8 vegetables and 4 meats, and we're trying really hard to fix his leaky gut with diet and very strong antifungals. The reason I'm mentioning it to you is that I wish we'd known sooner about the problems with starches and sugars, so we could have resolved the problem rather than made it worse.

 

Just a thought. I know how scary it is to think of limiting a child's diet further when he already must omit so many foods due to allergies, but too often this ends up with the child eating too many of the starchy foods that make their gut problems worse.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In fo! odaller gyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. S! tatione d in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some! prelim inary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyho! mepages .net/thegillespiefamily/
>
>
>
>
>
>
>
> SPONSORED LINKS
> Article
> <http://groups.yahoo.com/gads?
t=ms&k=Article+health+wellness&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health wellness
> Center
> <http://groups.yahoo.com/gads?
t=ms&k=Center+for+health+and+wellness&w1=A
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
+w
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
ea
> lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3! w> f or
health
> and wellness       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness&w1=Article+heal
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
4=
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
el
> lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
     
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+program&w1=Arti
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
ll
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
th
> +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
wellness
>! progra m       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+wellness+product&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
product
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+job&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
job      
>
>   ___! __  ;
>
> YAHOO! GROUPS LINKS
>
>
>      
> *      Visit your group "foodallergyautism
> <http://groups.yahoo.com/group/foodallergyautism> " on the web.
>  
>
> *      To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
> <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
subject=Unsubscrib
> e>
>  
>
> *      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service <http://docs.yahoo.com/info/terms/> .
>
>
>   _____
>

Forgive me if I asked this already - has your DAN had you get an OAT or a CDSA to determine what yeast strains the boys have? Nystatin and diflucan are both effective against the same strains of yeast, but are both also ineffective against the same strains of yeast. The fact that neither has worked suggests that they have a strain that does not respond to these meds. There are other meds that are effective against different strains - ketoconazole, sporanox, for example. I hate to think of you spending time and money on the wrong meds. We have seen two DANs - one tends to test and target accurately, the other just prescribes Diflucan and Nystatin for everything, and we were making no progress with that approach.

Have you considered feeding therapy for the boys feeding problems? We have been in a great behavioral feeding program for my son since age 14 months, and he can now eat anything at all! This is good, since he only tolerates a few meats and vegetables and oils (no grains, legumes, etc.), so his meals consist of things like beets, spinach and brussels sprouts. He eats them just fine! Our feeding program is world-renowned and they do terrific work with the feeding selectivity that autistic kids have.

Have you looked into the SCD diet for your boys? Multiple allergies and yeast problems are usually symptoms of severe leaky gut, and feeding grains, starches and sugars will worsen this. My son was GFCF (plus avoiding his allergens) for 3 years, and we fed him lots of thickened sweet drinks (for the feeding problems) and starchy grains (like rice, millet and quinoa), and he ended up with a much more severe yeast problem and much worse allergies. Now at three and a half, he can only tolerate 8 vegetables and 4 meats, and we're trying really hard to fix his leaky gut with diet and very strong antifungals. The reason I'm mentioning it to you is that I wish we'd known sooner about the problems with starches and sugars, so we could have resolved the problem rather than made it worse.

Just a thought. I know how scary it is to think of limiting a child's diet further when he already must omit so many foods due to allergies, but too often this ends up with the child eating too many of the starchy foods that make their gut problems worse.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In foodaller gyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. Statione d in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some prelim inary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyhomepages .net/thegillespiefamily/
>
>
>
>
>
>
>
> SPONSORED LINKS
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nd
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Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. Stationed in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some preliminary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyhomepages.net/thegillespiefamily/
>
>
>
>
>
>
>
> SPONSORED LINKS
> Article
> <http://groups.yahoo.com/gads?
t=ms&k=Article+health+wellness&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health wellness
> Center
> <http://groups.yahoo.com/gads?
t=ms&k=Center+for+health+and+wellness&w1=A
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
+w
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
ea
> lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w> for
health
> and wellness  Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness&w1=Article+heal
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
4=
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
el
> lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness

> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+program&w1=Arti
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
ll
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
th
> +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
wellness
> program  Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+wellness+product&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
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nd
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product
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+job&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
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nd
> +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
job
>
>   _____
>
> YAHOO! GROUPS LINKS
>
>
>
> *  Visit your group "foodallergyautism
> <http://groups.yahoo.com/group/foodallergyautism> " on the web.
>
>
> *  To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
> <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
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> e>
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>
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> Service <http://docs.yahoo.com/info/terms/> .
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>
>   _____
>

-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of momtotwinsnmore
Sent: Thursday, May 18, 2006 9:08 PM
To: foodallergyautism@yahoogroups.com
Subject: [foodallergyautism] Introduction to our family

Hi, my name is Michelle. Our family is located in Baltimore county,
Maryland. My hubby, Steve, is a police officer. We have his/hers and
ours. My oldest, Amanda, is in the army. Stationed in Hawaii and being
deployed to Iraq. Let's not go there as I am unhappy with her decision.
Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley is
GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but great
arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple food
allergies and SID.

Stevie and Sammy are on a rotation diet due to known allergies to
wheat, milk, soy, corn, rice, quinoa and white potato. We are going to
be doing the SAGE Elisa delayed food allergy testing soon. Has anyone
had an experienced with delayed food allergy testing and the Elisa in
particular? What company did you use? What was the outcome? Good, bad
or indifferent?

By the way, our guys did not fair well on the Nutramigen either and we
think it was due to the corn syrup solids. We did some preliminary
bloodwork regarding food allergies after discontinuing Nutramigen. When
corn came up high, we contributed it to the Nutramingen as nothing else
we used had corn. Our guys have food texture adversions and eat ONLY
thick puried foods (Food Processor) all organic of course. They also
only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there anything
else that is safe for drinking? Orange juice seems to contain too much
sugar and apple is out as we are also treating heavy yeast. We are
still working on gut issues. YUK!

Our guys are on multiple vitamins/supplements. Both are making slow but
steady progress. I was hoping to connect with other parents living with
children with multiple food allergies so that I may learn from them. I
am glad to be among parents that understand.

Michelle
www.babyhomepages.net/thegillespiefamily/

Hi, my name is Michelle. Our family is located in Baltimore county,
Maryland. My hubby, Steve, is a police officer. We have his/hers and
ours. My oldest, Amanda, is in the army. Stationed in Hawaii and being
deployed to Iraq. Let's not go there as I am unhappy with her decision.
Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley is
GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but great
arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple food
allergies and SID.

Stevie and Sammy are on a rotation diet due to known allergies to
wheat, milk, soy, corn, rice, quinoa and white potato. We are going to
be doing the SAGE Elisa delayed food allergy testing soon. Has anyone
had an experienced with delayed food allergy testing and the Elisa in
particular? What company did you use? What was the outcome? Good, bad
or indifferent?

By the way, our guys did not fair well on the Nutramigen either and we
think it was due to the corn syrup solids. We did some preliminary
bloodwork regarding food allergies after discontinuing Nutramigen. When
corn came up high, we contributed it to the Nutramingen as nothing else
we used had corn. Our guys have food texture adversions and eat ONLY
thick puried foods (Food Processor) all organic of course. They also
only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there anything
else that is safe for drinking? Orange juice seems to contain too much
sugar and apple is out as we are also treating heavy yeast. We are
still working on gut issues. YUK!

Our guys are on multiple vitamins/supplements. Both are making slow but
steady progress. I was hoping to connect with other parents living with
children with multiple food allergies so that I may learn from them. I
am glad to be among parents that understand.

Michelle
www.babyhomepages.net/thegillespiefamily/

Jenny,

Well, you asked what a sample meal looks like on the SCD for Tom, and here it is. It's going to look pretty weird to most people, but if you knew what food has been like in our house the past 3 years, it's not weird anymore. We rotate foods every two days, so it changes.  Each rotation has only 3 or 4 foods right now, we had to eliminate several foods for the SCD (all his BED grains, like quinoa and millet), and several starchy root veggies (parsnip and turnip). I was terrified at the thought of restricting his diet even more than the 15 foods he isn't allergic to, but when I got back the awful results from his recent Comprehensive Digestive Stool Analysis, I decided to bite the bullet, because he's not getting any better. He's gotten much worse over the last year as I keep having to pull foods out of his diet as he becomes allergic to them, and after 7 months on the BED with a LOT of probiotic foods, we weren't making any apparent progress. His diet is VERY restricted, and unless I did something drastic, it was going to get more so.

Tom eats his meals from a 3-section plate that we learned to use in his feeding therapy. He gets 3 foods each meal. In the big section and the second small section there are vegetables, and in the third compartmant (where the favorite food goes) is a ground meat patty.

So, for example, on days 1 and 2, these are the foods he eats:

-buffalo patties

-butternut squash (pureed, diced & boiled, baked spears, chips)

-asparagus (well-cooked spears, diced & boiled)

-squash soup (buffalo and asparagus broth with squash puree)

-asparagus soup (buffalo and asparagus broth with asparagus puree)

- canola oil

*Breakfast:

Squash dices

asparagus dices with canola oil and sea salt

buffalo patty

*Snack:

squash soup

asparagus spears

squash chips

*Lunch:

asparagus dices

squash spears

buffalo patty

*Snack:

squash soup

buffalo patty

squash chips

*Dinner:

Same as breakfast

As you can see, I am really stretching to make as much variety as possible with essentially 3 foods and 1 oil. We rotate everything, so I have to stretch all his "safe" foods out over 7 days or 4 rotations. It is tough. Even these foods are probably causing some level of inflammation and irritation.  Many of the foods he does eat he is mildly allergic to, or they are supposed to be reserved to a more advanced stage of the SCD than he's at. But we don't really have a choice, I don't want to feed him only spinach for 2 days, KWIM?

But he's doing so well, even his poops show signs of improiving. We saw a huge yeast die-off at the start, and Dr. Mumper has him on a rotating yeast treatment, since he has 3 different varieties of yeast. It may be permanent, for the foreseeable future.  But this is the best thing yet we've done for him, I just wish we'd started sooner.

We've also added glutamine, which has helped, and zinc and glutathione and nasal B12. I think all those contributed.  We recently started Lauricidin, and he is swallowing the little waxy pellets out of his hand, just like little pills!  He's a weird kid, he thinks medicine is "special".  He got a Bacillin shot last week for his second case of strep in  2 weeks, and after screaming bloody murder (it was a huge needle), he calmed right down and marched around thanking the nurses for the shot: "Tom feels better" "Tom got a shot" "It was a nice shot." I think he meant that he was a brave boy and did a good job getting the shot. Every day since then he's woken up in the morning to tell me he feels better. He asks for his medicine to help him feel better, and he takes it eagerly. Maybe, just maybe, I'll be able to start convincing him he can't eat the food that other kids eat. He's started to notice and ask. Today we were at Target and he said "I want to eat dinner at Target!" as we passed the food court. I don't think he ever noticed before that people eat there.

Meals at school would be hard if Tom wasn't in private school where he has a 1:1 teacher. They manage his meals using the feeding protocol. We're lucky to have a protocol that was customized for him at our feeding clinic. We could put that into an IEP, theoretically, but I've heard of our school system refusing to accomodate the same type of protocol for another ASD girl ("What do you mean, she needs to watch TV to eat?! No other kid gets that!" ... Tom no longer needs TV as a reinforcer, but he does need prompts, toy reinforcers, and a distraction-free environment). He's gradually though slowly improving his eating, and I hope increasing his zinc will make food more appealing to him. We hope to get him eating semi-independently before he mainstreams ... if that's in the cards, which looks increasingly likely on the SCD.

Crunchy foods and finger foods are difficult. I make squash chips and am going to try beet chips and celery root chips and zucchini chips.  Terra makes a beet and sweet potato chip, and I can pick out the beet chips for him. He goes crazy for anything crunchy. I know other people make chips from carrots.

He still doesn't tolerate any fruits. We tried pear sauce and apple sauce and cooked banana on the intro SCD diet, and by the end of 4 days his eczema was horribly flared.

Chloe is a puzzle. What does Megson say about her? The SCD does have an infant formula, but I have no idea how nutritionally complete it is. I wonder if you could try Chloe on it for a few days just to see how she'd do? If you mixed it in with her Neocate gradually, she might tolerate the taste.  I think you need a top-notch DAN! nutritionist for her, but I don't know who to suggest. I wonder what someone like Bradstreet would make of her?

Tom is taking all his zinc transdermally, but when his gut heals I hope to start giving it to him orally. Most kids who can tolerate that absorb it more that way, but I know a lot of kids on TD.

If you do go to the DAN! conference, you'll have to stop by Richmond to say howdy! I imagine your route would take you  right through Richmond. Still, I hope we can go too. We don't have anybody to take care of Tom, so we'll take turns driving up if we go.  It would be terrific to meet you!
Suzanne 

-------------- Original message from Jenny Kalis <j_kalis@...>: --------------

Suzanne,  That is great news about Tom!  I am so happy
for you.  Sounds like awsome progress.  Could you give
a sampling of what his diet is like?  Breakfast, lunch
dinner? Parker is in a slump.  I feel like we need to
start over and get rid of all the supplements and just
do the B-6 and zinc and Intestimend like we did in the
beginning and he got a lot better doing that.  We
start our Diflucan tomorrow and his diet isn't good.
Today he had a fruit smoothie and sushi rice and both
of those are horrible for him, but I feel like he is
sooooo way too restricted.  I really want to give the
Diflucan the best chance at working to its highest
potential.  I am really depressed that he is going to
have to buckle down an d be so restricted.  I am almost
wondering if I shouldn't yank him out of school and
homeschool the rest of the year.  As his awareness has
increased he now realizes what the other kids are
eating- all things he wishes he could eat.  This was
never a problem in preschool as he didn't have the
awareness.  I want him to have crunchy snacks like the
other kids so I often end up sending him popcorn or
fritos for the afternoon snack.  For lunch I send
either a salad or carrots, some olives, and some kind
of meat.  All was well in the beginning of the year,
but now I am getting complete lunches uneaten coming
home!  Not having a non-animal source of protein in
the diet makes things difficult.  He's allergic to all
the seeds now too.  It's just crazy.

I'm so torn on this formula thing.  Chloe does so much
better on it.  I would put him on it too, but I think
it is a yeast feeder and obviously isn't optimal as
the cost is ridiculous and it isn't real food.  I
can't imagine it is good long term.  I think it is
really messing up Chloe's blood sugar as well.  I
guess diabetes is a risk factor with it, but now I
can't figure out how to get her off of it.  She's a
mess even when she eats foods I think are safe like
veggies and meats.

In reguards to the zinc we rub a zinc cream on his
back every day in addition to what he gets in his
multivitamin, but I am wondering if we need to take a
separate zinc supplement.  Is this what most people
do?  What did Dr. Mumper suggest? 

We are also still deciding on the DAN!  conference.  I
think it would be really bad to miss it, but we aren't
sure how to fit it in.  We are travelling to Indiana
the end of March/beg. of April and will just be
getting back to NC and then turning around and going
up there.  Not s ure we can swing it with TJ's work,
but am going to try.  It would be great if we could
meet up there!

Have a good week!

Jenny

--- szmidford@... wrote:

> We are going to try to go, taking turns so someone
> can stay home with Tom. My husband may have a
> commitment that weekend, so I'm not sure. I'll be
> sick if we have to miss it. Dr. Boris is going to be
> talking about hyper-allergic kids - the ones like
> ours who can only tolerate a few foods. I sure hope
> i can see that one.
>
> I saw Liz Mumper speak Friday night. Mostly on gut
> issues. One thing she stressed was the role of zinc
> in many cellular functions. According to one study,
> zinc "tightens the gut" of Crohn's patients and
> improves their leaky gut. She will also be one to
> see at the conference.
>
> I haven't posted much recently, we've been sick a
> lot, but Tom is d oing awesomely on the Specific
> Carbohydrate Diet and targeted yeast treatment. We
> still aren't chelating, but focusing on the basics
> has brought tremendous improvement. He's mastering
> things in his ABA program that they've been
> struggling with for a year. He's truly becoming
> conversational and he even understands "silly"!
>
> Suzanne
>
>
> I am going to post
>
> -------------- Original message from "j_kalis"
> <j_kalis@...>: --------------
>
> I am just wondering if any of you will be going to
> the DAN!
> conference? 
>
>
>
>
>
>
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Suzanne,  That is great news about Tom!  I am so happy
for you.  Sounds like awsome progress.  Could you give
a sampling of what his diet is like?  Breakfast, lunch
dinner? Parker is in a slump.  I feel like we need to
start over and get rid of all the supplements and just
do the B-6 and zinc and Intestimend like we did in the
beginning and he got a lot better doing that.  We
start our Diflucan tomorrow and his diet isn't good.
Today he had a fruit smoothie and sushi rice and both
of those are horrible for him, but I feel like he is
sooooo way too restricted.  I really want to give the
Diflucan the best chance at working to its highest
potential.  I am really depressed that he is going to
have to buckle down and be so restricted.  I am almost
wondering if I shouldn't yank him out of school and
homeschool the rest of the year.  As his awareness has
increased he now realizes what the other kids are
eating- all things he wishes he could eat.  This was
never a problem in preschool as he didn't have the
awareness.  I want him to have crunchy snacks like the
other kids so I often end up sending him popcorn or
fritos for the afternoon snack.  For lunch I send
either a salad or carrots, some olives, and some kind
of meat.  All was well in the beginning of the year,
but now I am getting complete lunches uneaten coming
home!  Not having a non-animal source of protein in
the diet makes things difficult.  He's allergic to all
the seeds now too.  It's just crazy.

I'm so torn on this formula thing.  Chloe does so much
better on it.  I would put him on it too, but I think
it is a yeast feeder and obviously isn't optimal as
the cost is ridiculous and it isn't real food.  I
can't imagine it is good long term.  I think it is
really messing up Chloe's blood sugar as well.  I
guess diabetes is a risk factor with it, but now I
can't figure out how to get her off of it.  She's a
mess even when she eats foods I think are safe like
veggies and meats.

In reguards to the zinc we rub a zinc cream on his
back every day in addition to what he gets in his
multivitamin, but I am wondering if we need to take a
separate zinc supplement.  Is this what most people
do?  What did Dr. Mumper suggest?

We are also still deciding on the DAN!  conference.  I
think it would be really bad to miss it, but we aren't
sure how to fit it in.  We are travelling to Indiana
the end of March/beg. of April and will just be
getting back to NC and then turning around and going
up there.  Not sure we can swing it with TJ's work,
but am going to try.  It would be great if we could
meet up there!

Have a good week!

Jenny

--- szmidford@... wrote:

> We are going to try to go, taking turns so someone
> can stay home with Tom. My husband may have a
> commitment that weekend, so I'm not sure. I'll be
> sick if we have to miss it. Dr. Boris is going to be
> talking about hyper-allergic kids - the ones like
> ours who can only tolerate a few foods. I sure hope
> i can see that one.
>
> I saw Liz Mumper speak Friday night. Mostly on gut
> issues. One thing she stressed was the role of zinc
> in many cellular functions. According to one study,
> zinc "tightens the gut" of Crohn's patients and
> improves their leaky gut. She will also be one to
> see at the conference.
>
> I haven't posted much recently, we've been sick a
> lot, but Tom is doing awesomely on the Specific
> Carbohydrate Diet and targeted yeast treatment. We
> still aren't chelating, but focusing on the basics
> has brought tremendous improvement. He's mastering
> things in his ABA program that they've been
> struggling with for a year. He's truly becoming
> conversational and he even understands "silly"!
>
> Suzanne
>
>
> I am going to post
>
> -------------- Original message from "j_kalis"
> <j_kalis@...>: --------------
>
> I am just wondering if any of you will be going to
> the DAN!
> conference?
>
>
>
>
>
>
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We are going to try to go, taking turns so someone can stay home with Tom. My husband may have a commitment that weekend, so I'm not sure. I'll be sick if we have to miss it. Dr. Boris is going to be talking about hyper-allergic kids - the ones like ours who can only tolerate a few foods. I sure hope i can see that one.

I saw Liz Mumper speak Friday night. Mostly on gut issues. One thing she stressed was the role of zinc in many cellular functions. According to one study, zinc "tightens the gut" of Crohn's patients and improves their leaky gut. She will also be one to see at the conference.

I haven't posted much recently, we've been sick a lot, but Tom is doing awesomely on the Specific Carbohydrate Diet and targeted yeast treatment. We still aren't chelating, but focusing on the basics has brought tremendous improvement. He's mastering things in his ABA program that they've been struggling with for a year. He's truly becoming conversational and he even understands "silly"!

Suzanne

I am going to post

-------------- Original message from "j_kalis" <j_kalis@...>: --------------

I am just wondering if any of you will be going to the DAN!
conference? 

I am just wondering if any of you will be going to the DAN!
conference?

I don't think I have ever properly introduced myself.  My name is
Jenny and I live in Cary, NC.  I have a son who is 6 and a daughter
who is 3, both are affected.  They have histories of FTT, multiple
food allergy and intolerance, reflux, motility issues, etc.  My son
had all the typical signs of autism, but the thought of autism was
basically ignored by physicians and familiy (us) for quite some time
since his food allergies and gastrointestinal problems seemed a lot
more concerning.  Also, when I used to ask his ped. (when he was
two) if he had autism she would say he was "too verbal and had too
much eye contact."  We had him tested at age 18 months and no delays
were found, but then tested again at age three and significant
delays in motor skills and articulation were found.

At age 2 1/2 a GI specialist did some testing and found my son's IgG
to egg, wheat and oat to be through the roof and he had a positive
anti gliadin (sp?) test.  When we took him off the IgG foods (he was
already off of milk, peanut and tomato) we saw a miraculous
improvement in sleep, cessation of the repetitive speech and temper
tantrums and an overall improvement in health.  Unfortunatley, soon
after taking the wheat out we put the milk back in as he wasn't
testing pos. to it anymore!

There are many twists and turns to our past six years.  I can't even
tell you how many different docs we dragged our kids to in hopes of
finding them some help for their gastro distress, allergies, etc.
A year and a half ago a local dev. ped. suggested our son might have
Aspergers.  We also had our allergist suggest ASD as we described
his behaviors associated with foods.  Our ped. thought he was bi-
polar.  So, needless to say it all started sinking it and pulling
together.  The early removal of casein, then gluten, probably really
saved him.  Unfortunatley, we had long periods of time that we would
put him back on the foods to try them out as his diet was so slim
already.  A little over a year ago we got back into biomed more
heavily and last April started seeing Dr. Megson.  I also called up
a local friend of a friend who had recovered her child using
biomedical approaches.  Some of you may know her from other groups
(Sharon A.).  My son made a fabulous recovery from April to
October.  It was nothing short of miraculous (the improvement in his
behavior, health, etc., etc.).  However in early Nov. we tried a
round of TD-DMSA and he didn't react well to it.  His speech got
slurry and then he got pneumonia and his processing and attention
deficit has gotten worse again over the past few months.  We just
had a follow up visit with Dr. Megson and she thinks his yeast is
out of control and his minerals are low.  So, we are getting back
onto the Diflucan and extra minerals, starting B-12 nasal spray and
some other new supplements, including HLC Mindlinx as a probiotic.

We put my daughter on Neocate when she was 7 months old and FTT and
in severe GI distress and she made a miraculous turn around in just
two weeks.  She has been a non-eater mostly ever since and drinks
her Neocate faithfully (almost four years old).  However, starting
just after Christmas this year she is getting a bit of an appetite
back.  I think it is due to this zinc cream Dr. Megson prescribed
and also the probiotics and fish oils. As long as she drinks her
formula she remains a pretty typical kids despite some sensory
issues.  Last spring her GI specialist at Duke asked me to feed her
dairy and gluten and soy for two weeks prior to an endoscopy as he
wanted to see what her gut looked like eating these foods.  I agreed
because I was desperate to find out why she couldn't tolerate these
foods.  After five days of being on these foods she starting
becoming autistic in front of my eyes.  She lost all self-help
skills, lost the desire to do things she usually enjoyed, developed
horrible repetitive speech and obsessions, horrible tantrums, we
couldn't communicate with her...  I think I have some of this on
video and hope to get it all together soon.  It was the scariest
thing I had ever experienced in my life, especially since we
had "lost" one child like this before.  I still remember my
trembling, crying phone call to her GI specialist saying that we
can't continue feeding her those foods.  Of course, I had no idea if
the damage done was permanent.  It ended up taking almost two months
to get her back.  Scary, scary, scary.  Leaves me wondering and
searching for answers about autism and allergies, autism and
breaking down foods, autism and yeast etc.

My kids have had five GI specialists and every test done under the
sun- enzyme levels checked, you name it, it has been done.  Nothing
significant has ever been found.  We can never believe it.  My son
has shown some eosinophils, but not enough to be dx'd as having EE,
EG or EC.  My daughter had some "old inflammation in her stomach"
when the guy at Duke scoped her after the dairy/gluten/soy
challenge.  Obviously when you have two children who can't tolerate
any foods, have to live on reflux meds, have to live on MOM in order
to produce a stool, obviously something isn't right.  We are trying
to decide if seeking another eval by someone like Krigsman would be
worthwhile.  Right now we are happy witht what Megson is doing for
us.

So, anyway, I really wanted to get a group started that could serve
as a support group to parents of kids who have "all these gut
issues."  When I started chatting with Suzanne M. online a few
months ago I realized that I wasn't alone and we knew that there had
to be others out there who, like us, were dealing with the multiple
food allergies in addition to autism.  There certainly seem to be a
ton of kids on the spectrum who have multiple food allergy.  I hope
that by sharing notes we can someday find some relief.  I pray our
kids get better soon.  I know many of you have similar stories.  I
am so glad you all are a part of this group and I hope everyone
finds this group to be of comfort to them.  I hope soon we can find
the time to share and discuss more here.

I'm sorry this was so long.

Peace,

Jenny in NC