Hi, My name is Suzanne and I have an almost-three year old son, Tom, who has autism and extreme food allergies. Tom reacts with eczema to almost all foods, he...
Hi...my son Mitchell has a diagnosis of PDD NOS and is now 2 1/2. He also has severe food allergies (IgE) to many foods. He has immediate reactions to most...
Hi recovery at 2.7 years! fabulous - congratulations!! How long have you been following DAN protocols and behavioural programs? My son Neel, PDD-NOS, 2.7...
Hi there. My kids have also seen Dr. Putnam and we are currently talking about going to Dr. Buie. My daughter is on Neocate, but she drinks it. She has ...
Hu all My son Damien will be three in late Jan - we have been treating his ASD with DAN since he was 18 mos. His speech is echolalic and social skills are...
My son is not recovered but like I said close (he would be considered indistinguible at this point). WE started Cf at 13 mos GF at 15 mos, supplements at 16...
Hi We saw an improvement in eczema (when on a 100% Neocate diet) only after we had been on singular for 2-3 weeks. But once we introduced foods, the singular...
Hi Santona, Have you seen any improvement in Neel's autism symptoms that you can attribute to Singulair? Dr. Megson feels it would benefit my son's autism as...
Hi Suzanne I can not say that we saw any specific improvement in neurological symptoms. The last few months Neel started to make word approximations. During...
Suzanne- We started Actos today at the advice of Dr Bradstreet (similar to LDN in helping to support the immune system). I think I have mentioned to you...
Meghan, That's great news! Have you found an inexpensive source for it? What form does it come in? That will be our top question for Dr. Megson next time we...
Actually a free source. We have spent so much money this year that our prescription copays are being paid for so Acots for us is actually free. No I have...
Hi there! I saw this group mentioned on CK2 and immediately knew that I wanted to join. My son (age 3.5) was dx'ed with PDD at 18 months. He has anaphalytic ...
I hope everyone's having a great weekend. I want to express my thanks to my co-moderator Jenni for starting this group; it's been in my mind for a long time...
IgE allergies can usually be detected by traditional allergy tests - either a skin prick test or a blood test, like the RAST. The tests have a high proportion...
Can somebody help me understand what it means when your scopes are competely clear? We have finally gotten results back on Tom's upper and lower GI scopes, and...
Suzanne, I am at a loss for you. Mitchell and Tom present very similar (severe IgE, eczema issuea, bloated belly) but Mitchell too had nothing on his scope or...
Hey ladies, My two scope clean as well. We can never believe it as they have really severe multiple allergies, intolerances, reflux, motility issues, ...
It only means that they are unable to find IgE allergies or Celiac disease. It doesn't mean that your child is intolerant of any food or other substance -...
We are getting scoped (Dr. Krigsman) in a few weeks. Not finding anything to treat is a big concern of mine... For those who have "clean" scopes, what...
Nicole, Last time my daughter was scoped the doc prescribed Carafate. She couldn't take it because they don't make it in the US w/o red dye in it. The doc...
Wow, thanks everybody for your responses! At least now I know I'm not alone on this. It makes me wonder why I was in such a hurry to get the scopes done...
Meghan, Our boys are so similar! I've been interested in trying Secretin for awhile - have any of your doctors mentioned it? Did Dr. Krigsman test Mitchell for...
Suzanne, Dr Krigsman has recommended Dr Boris for allergies. Dr Bradstreet just started Mitchell on Actos about `10 days ago. Mitchell is clearer and sharper...
No I have no idea how much the pill cam would cost. As for Secretin, No one has ever mentioned it. As for enzyme deficiency, Mitchell tried Ultrase a...
We had the intestinal permeability test done via Great Smokies. I am not sure if that is the one that Dr. Buie referred to though. It showed that my son has...
Hi all My son is on a 100% Neocate elemental formula diet. So he does not ingest any protein sources; the amino acids in the formula helps his body tomake his...
Meghan, That is interesting. Chloe's doc here at Duke said the same thing right before her last scope- something about needing to shoot the scope into the ...
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