Teflon Poisoning: Canaries in the Kitchen:

This is a retraction of the article claiming there was an
injunction filed against the flu virus in New Jersy. - Vanessa

NaturalNews) Editor's Note: It has come to our attention that the
following article is factually incorrect. It was written by a contributing
writer, then approved by an in-house editor who did not catch the significant
errors in this article. As a result of these significant errors, and due to our
commitment to publishing only true and accurate information to the best of our
ability, we have made an editorial decision to reject further articles from this
author.

NaturalNews deeply regrets this unintentional error, and we are
brainstorming new ways to put in place tighter fact-checking oversight so that
the same mistake does not happen again in the future. We thank all those who
have brought this important matter to our attention, and we pledge to increase
our efforts to reject stories that contain factual inaccuracies.

For the
record, what was factually incorrect about the story (which we confirmed by
phone with a clerk of United States District Court of Trenton, New Jersey) is
that no such injunction has been filed. Thus, the entire premise of the story
was factually incorrect.

Here at NaturalNews, we strive to bring you
accurate, honest information on these topics, and we deeply regret the
unintentional publishing of the inaccurate information that previously appeared
in this article space.http://www.naturaln ews.com:80/ 026818_vaccinati
on_vaccines_ flu_vaccine. html

Someone sent this to me today.  It sounds like great news but I can't seem to
verify the source.  Let me know if you have any evidence to believe this to be
true.

Thanks!
Jenny



Aug 19, 2009 11:32 am (PDT)

http://www.unobserv er.com/layout5. php?id=6397&
blz=1

Injunction issued to stop compulsory vaccination in the
US



2009-08-13 | Good news for health freedom lovers and
doubters about the Swine Flu pseudopandemic

30 years after compulsory
vaccination became US Law:
US Court issues an injunction to stop it and to
hold the the government and drug companies responsible for reactions.

A Preliminary Injunction to stop mandatory vaccinations has been issued in the
United States District Court of New Jersey. This comes after a federal lawsuit
opposing forced vaccines was filed in that court by Tim Vawter, pro se attorney,
on July 31st with the federal government as defendant. When the judge signs the
Preliminary Injunction, it will stop the federal government from forcing anyone
in any state to take flu vaccine against their will.. It will also prevent a
state or local government from forcibly vaccinating anyone, and forbid any
person who is not vaccinated from being denied any services or constitutional
rights. Vawter's filings included a Complaint, and several pages of evidentiary
Exhibits.

Vawter's legal papers have been written not only for filing in
federal court, but additionally so they can be looked at by activists around the
world for ideas on filing lawsuits in their own countries to help stop forced
vaccinations. Vawter believes that as the truth of the dangers of flu vaccines
continues to become known, banning the forced use of them will eventually
succeed on a worldwide basis. He cautions people to avoid fear and keep
themselves focused on the task of blocking forced
vaccination.

Preliminary Injunction will immediately halt mandatory
vaccinations in the U.S.

The Court, having heard the Motion for
Preliminary Injunction and read the papers in its support, states in the
Preliminary Injunction that it appears the federal government has engaged in
some amount of negligence with regards to failure to properly investigate the
safety of the flu vaccines scheduled for use in late 2009-2010, and the evidence
submitted does warrant a more thorough investigation into the safety of the flu
vaccines.

The Court ordered that the government shall be forbidden from
forcing any person to be required to take any influenza vaccination against that
person's free will and free choice. The government will not allow any state or
local government, or any party, to force any person to be required to take any
influenza vaccination against that person's free will and free
choice.

U.S. government sued for gross negligence and violation of the Constitution

In his Cause of Action, Vawter charged that the federal
government has engaged in gross negligence by funding and promoting flu vaccines
that are proven to be dangerous and manufactured with little oversight. The
vaccines scheduled for use in late 2009 and 2010 contain heavy metals including
thimerosal mercury, which have been proven to cause autism in children with
lowered immune systems, and other dangerous and toxic ingredients. The federal
government has stated it will force these flu vaccines onto the American public
against their will, under a document signed by Health and Human Services
Secretary Kathleen Sebelius.

He further charged that the vaccine makers
stand to earn billions of dollars selling vaccines, and are already spending
tens of millions advertising a "Phase 6 Pandemic" that the evidence shows does
not really exist. The federal government has not required the World Health
Organization (WHO) to show evidence of such a pandemic. There has been no
collection of facts, sworn testimony, witnesses being questioned, hearings being
held, or lie detector tests being given when preposterous statements have been
made. The WHO declared a massive "Phase 6 Influenza Pandemic", even though only
a few hundred people worldwide had so far died of this swine flu virus, and when
far more people die each year of regular flu.

Vawter noted there is a preponderance of evidence to show that the federal
government so poorly trained
its employees that they eagerly agreed with the unsubstantiated claims of the
WHO in the face of evidence to the contrary..

Forced vaccination would
violate the Fourth Amendment of the Constitution by allowing the government to
enter homes and force people to be vaccinated, or to forcibly remove people to
another location for vaccination. It would also violate Fifth Amendment
Constitutional rights by depriving people of liberty without due process of
law.

Vawter charged that the federal government has engaged in gross
negligence by failing to properly investigate factual evidence submitted by
esteemed medical professions over many years which proves flu vaccines have
caused serious damage to people. The CDC has stated that thimerosal mercury is
being used in the new flu vaccines being prepared.

The government has
failed to investigate profiteering. Billions of dollars in vaccine sales can
cause organizations to falsify threats so as to cause unwarranted public
hysteria leading to forced vaccinations.

The government is guilty of
gross negligence because its employees failed to properly investigate the
release of a case of live swine flu virus. One of the main companies the
government deals with, Baxter Vaccines, was apparently involved in the
transporting of live bird flu virus that was released on a public train earlier
this year. A lab technician with the Swiss National Center for Influenza in
Geneva had traveled to Zurich to collect eight ampoules, five of which were
filled with the H1N1 swine flu virus. However, failure of the dry ice in their
container allowed pressure to build up, and the ampoules exploded as the train
was pulling into a station.

The highly reputable UK newspaper "the
Telegraph" reported on July 2nd that flu vaccines tested on homeless people
caused twenty-one of them to die.

Vawter charged there is a preponderance
of evidence to show that government will not provide people being vaccinated
with a list of the vaccine ingredients and possible negative side effects before
they are vaccinated. Most of the public will not know this flu vaccine contains
thimerosal mercury.

Vawter submitted an Order to force the government to
publish vaccine ingredients and side effects, and to give this information to
everyone who takes a flu vaccine, and do so at least 3 days prior to their
vaccination. A denial of this order would violate Plaintiff's rights to demand
the government obey the First Amendment of the U.S. Constitution by requiring it
to engage in freedom of speech. The First Amendment not only allows a citizen to
have freedom of speech himself, but it allows a citizen to demand his government
engage in freedom of speech when it is promoting the use of such as these
vaccinations to the public.

The government proclamation stating a person
cannot sue for any damages he receives from the flu vaccine, completely bypasses
the congress and the court system in violation of the Seventh Amendment of the
Constitution which grants the right to sue to recover for damages. Vawter
submitted an Order to deem unconstitutional any proclamation, rule or similar
law that forbids people from suing for damages resulting from the vaccines of
2009 and 2010.

About Australian Vaccination Network, Inc.
The AVN is
a non-profit, volunteer-run charitable association. Since 1994, the AVN has
provided information and support to the general community who are trying to make
informed choices about vaccination and health. Their lobbying in Federal
Parliament has ensured that compulsory vaccination for children has not come to
pass and they are the major reporters of vaccine adverse reactions to ADRAC (The
Adverse Drug Reactions Advisory Committee).

For more information visit http://www.avn.
org.au

Today's Wall Street Journal has a front page interest article on camel milk.
There's a woman in Raleigh, NC who's gearing up to produce it and ship it around
the country. There was a small study I saw a few years back about the beneficial
properties of camel milk for kids with autism, and as a separate species of
animal from cows and hooved mammals like goats and sheep, may be less allergenic
for people with a cow milk allergy.
Her name is Millie Hinkle, and she currently runs a natural medicine clinic in
Raleigh called Natural Health Resource Center, in case anyone wants to
investigate it. If you do, let us know what you learn!
Suzanne

http://www.youtube.com/watch?v=kVQWuyxCj68

This is frightening. How are people preparing, especially those with kids in
public school or programs where they can vaccinate them during the day at school
without prior warning? At least if they come to our homes we'll have some
warning, they can't do all of us simultaneously.

Suzanne

--- In foodallergyautism@yahoogroups.com, Jenny Kalis <j_kalis@...> wrote:
>
>
>
> I meant Swine Flu...
>
>
> ________________________________
> From: Jenny Kalis <j_kalis@...>
> To: Indianabiomedicalkids <indianabiomedicalkids@yahoogroups.com>;
foodallergyautism <foodallergyautism@yahoogroups.com>
> Sent: Wednesday, June 24, 2009 10:09:24 AM
> Subject: [foodallergyautism] will bird flu vaccine be mandatory?
>
>
>
>
>
>
> http://www.naturalnews.com/026496_NaturalNews_vaccination_the_WHO.html
>

http://www.naturalnews.com/026496_NaturalNews_vaccination_the_WHO.html

Want to Live Longer? Get Doctor Advice Free

----------------------------------------------------------------

Click Each Disease to see Doctor Advice about it

http://www.diseasencure.com

Updated

Suzanne, I just wanted to thank you for the idea on the sunflower pancakes!!  I
was hesitant at first, because he doesn't like sun butter, but I decided to give
it a shot last minute and threw together some ingredients that turned out
AWESOME!!  We all loved them!!  I added a little tiny bit of millet flour and
stevia to soften the flavor of the sunflowers, they were crispy and tasty and
tonight, we are going to shred up some zucchini and make dinner zucchini
sunflower pancakes, Grayson is so excited about them already!  The baby even
likes them!  Thank you thank you thank you!!

Jessica

This is a tough one. We had a similar situation this year in kindergarten but
worked it out...but only over time with some near-misses. School never did get
it quite right and if my son was as sensitive as your son there would have been
an ER trip. Here are some suggestions.

Get your son's condition and his needs in writing from a doctor. Preferably a
local well-respected allergist, not your DAN doctor. Our school nurses were
actually dumb as rocks AND suspicious, and after we got the IEP completed they
took 4 months haggling with them to hammer out a health plan we could live with.
In our case, since the IEP was finalized in Feb, the health plan wasn't done til
June, by which point it didn't make sense for him to start school that year-
they effectively denied him his FAPE that year (we were looking to move him from
private PreK to public PreK so he was in school already -we don't have universal
PreK here, just special Ed and the autism programs are horrible -we couldn't
start public school til he was at the point of mainstreaming. That 4 months cost
us about $20,000 in private aide salary). Anyhow, the nurses finally insisted on
an in-person consult with the allergist, and even he couldn't get them to
believe what we were saying -that my son is allergic to most foods and that he
could anaphylax on airborne wheat or corn. I ended up writing the "Health Plan"
which I found out later on did not comply with state format, and got it approved
the day after school ended by a nurse unfamiliar with the whole ordeal who was a
12-month employee (first nurse stopped working the day before). Then, the week
before Kindergarten began, a new nurse informed us we would have to write it all
over for Kindergarten. I had refused to sign the IEP until the health plan was
finalized to my satisfaction. Long story short -in our district principals get
to approve the details of what is permitted in their schools and ours (this was
a different school than PreK) did not want to allow us to inspect classroom
craft materials, however, which tend to have a LOT of gluten and corn in them
(think plaster of Paris). I ended up negotiating for a walk-through with the
classroom teacher, the autism (pull-out) room teacher, but was refused by the
art teacher -this was a resource room used by all classes and was of course the
scariest. My son had an aide, who we hired and trained before school started and
then offered to the principal and she was willing to hire her, and we relied
heavily on the aide to spot problem situations. However, I attended every class
event that had food, and there were 2 risky violations of the health plan and
she was absent for one and didn't intervene for the other (as a school employee
she probably didn't feel she could but this of course put my son in a dangerous
position). there were several gaps I hadn't expected: the parent volunteers in
the classroom were unaware of my son's condition. The school could not divulge
this information to them without my permission, but nobody bothered to tell me.
So when they created class activities, they did not work around his allergies.
The classroom was food-free, except for snacks and special seasonal activities,
several of which involved cooking, and the health plan specified that if my son
was in a room where wheat or corn became airborne, he could not re-enter the
classroom for 24 hours. Of course, the school's solution was to just send him to
the autism room for a day, which was an unacceptable violation of his
least-restrictive environment provision (they wouldn't have sent a non-disabled
allergic student to the autism classroom so his classmates could bake cookies),
so I had to insist they could not do that AND police the classroom during class
food activities to prevent exposures. The room parents were volunteers so the
teacher did not want to clamp down on their volunteer spirit, and often they
didn't inform her (to inform us) of their activity plans until a day or so
beforehand. I ended up missing so much time from work to be in the classroom
(for this as well as IEP meetings) that I lost my job.

A few things worked for us: the principal agreed to send home a letter with
parents asking them not to send peanut products to school for snack or lunch. We
had our doctor draft a letter, and the principal re-wrote it to her own
criteria, not exactly what the doctor wrote but it ended up being safe enough.
The principal had the authority to do this in our school district and was a
control freak. We also met with the principal the spring before school started
and presented our allergy concerns, and to her credit, she offered to place our
son with a teacher who was very organized and planful about classroom activities
and didn't to spur-of-the-moment crafts or things. The fact that the school,
while not peanut-free, did not have a free-for-all food atmosphere helped, the
only food in the classrooms outside of snacks was planned in advance (though
there was nothing to prevent parents from sending, say, valentine cards with
candy attached-which appears to be all that is made these days).

What would have strengthened our case would have been to have our son designated
as "Other Health Impaired". This is a category under IDEA which specifies health
conditions that affect a child's ability to learn. You will need to go through
Eligibility for this, just as you do for an Autism educational label. In our
state this can be extremely time-consuming (many months) and there is no
automatic timetable that governs how fast they must do it. Our Eligibility
process basically shut down over the summer when 9-month employees weren't
working. You will need to have letters from your doctor specifying the condition
as well as what protections the student requires. The more doctors letters you
have that at least attest to the condition, the stronger your case. A local,
well-respected doctor is going to help you the most. We have fostered a good
relationship with the top pediatric allergist in our city just for this reason,
and it paid off. Your doctor may be able to give you advice based on his/her
experience with your local school districts...believe me, allergists have to
deal with school districts all the time. Any documentation you can provide the
allergist will help make your case with the allergist...ER admission/discharge
papers, journals with dates, exposures, reactions, incident reports home from
daycare with previous allergic reactions, or just notes that you've written up
formally describing an exposure and a reaction, with dates, times, and suspected
foods. This all becomes "evidence" to both convince the allergist and get him on
your side, and documentation to present to the school district to validate your
claim.

I would also strongly urge you to obtain  an advocate who knows OHI law (most
autism advocates won't know the laws under IDEA or in your state regarding Other
Health Impaired statutes and regulations and case law, and this may be hard to
find, you might want to go to your local chapter of ARC or another
health-impaired advocacy or support group like a diabetes or celiac group to
find someone like this). Another person you may want to line up as backup is an
attorney specializing in special education law. We were advised to have one on
retainer that could be called in on short notice (we ended up not doing that
because we couldn't find one versed in health matters).

Be prepared to know exactly what is safe and not safe for your son. For my son,
I know that any craft materials need to be okayed by me in advance, and that
this may take months. Craft manufacturers aren't required to put their
ingredients on the label like with foods, and so you have to call them to find
out the ingredients, and they in turn usually need to call their suppliers to
find out what foods the ingredients are derived from. This sometimes is a dead
end, and even whenit works can take months. You'll be on strongest footing if
you can provide a list to the teacher and resource teacher of SAFE, APPROVED
craft materials that they can use in your son's classroom rather than asking
them to give you a list in advance of what they want to use and you running
around to find out if they're safe. If you can get this written into his health
plan/IEP, then it has the force of law behind it. Be prepared to remind them the
IEP is a legally binding document and any emergency room trips due to violations
of the IEP will be addressed by your lawyer. Most school districts are very
liability (cost) conscious and so this carries weight, but mostly with the
principal and central office admnistrative staff who have budget responsibility.
I suggest not mentioning this until AFTER the IEP is written to your
satisfaction and you have signed it. They will not agree to something legally
binding if they fully realize the risk to them of being sued for things they
don't feel they can enforce in a classroom.

This is all a lot of legal work and will take months to arrange. But where the
rubber meets the road with your son's actual health is in the classroom. I would
suggest that you volunteer to be the Room Mother (or whatever they call it) and
therefore the one to organize class activities. This also gives you the
teacher's ear and gets you (hopefully) on her good side.  You will need her
affection as well as her attention, engagement, and cooperation. This will
change every year. It's also important to develop a relationship with the
principal to request teachers for your son, every year, who are open minded,
cooperative, have good relations with parents, and rather strict about what goes
on in their classrooms.

You will still need to be there. I recall the Thanksgiving activity last year
where the class baked stuffing, chicken nuggets, and tiny pumpkin pies. This was
the highlight of the year for my son's teacher, who was raised on a farm and had
her own recipes to give the parent volunteers to bring ingredients to class to
prepare. Hazards abounded...stuffing mix bags being opened, flour and cornstarch
being mixed...etc. I was able to get ingredient lists in advance, but no.
Details about how and where the ingredients were to be handled. Every time I
asked the teacher she sent me to the room mom. The room mom was a ditz and just
didn't get it...and she didn't answer my phone calls and emails. She said she
had delegated the various foods to different parents, and the parents weren't
giving her details in advance. So I went to the class for an entire day, missing
several important meetings at work. When the parents began pulling out stuffing
boxes and bags of flour, I had to ask them to put them away and talked to the
resource teacher who was in the room helping out that day. I explained that if
those materials were opened in the room, my son would be forced to leave school
for 2 days. She got the parents to move the mixing tables out of the class into
the hallway and did the mixing there, and brought the finished mixed product
back into the room. Meanwhile I and my son stayed alone in the room mixing his
pre-cooked quinoa-flour pie crust and his rice stuffing (pre-cooked so it didn't
have to go in the oven with the wheat and cornbread stuffing). He ate it cold.

The law is on your side, but the school district, principal, teachers, and
potentially the other students and their parents are likely to see all this as a
great burden to them, so it will be up to you to make it EASY for them to
comply. Anticipate what they need, supply lists, safe ingredients, etc., like
your variety of backup snacks. Be prepared both medically and legally. Make sure
the IEP specifies your son have his EpiPen within 30 seconds of him at all
times...classroom, playground, assembly rooms, etc. We supply ours in a fanny
pack. Make good friends with the school nurse or clinic attendant if your school
has one. Bake cookies and send flowers, cards, etc to all the relevant school
staff (including secretaries, etc.) at every occasion-holidays, start of year,
end of year, etc. You never know who this matters to...don't overlook anyone!

Lastly (in your spare time), become VERY familiar with IDEA and your state's
regulations regarding this area of law. There will be many instances where YOU
will be the one who knows the law and has to remind the IEP team, the advocate,
your lawyer, school administration, etc. Of what protections your child has.
Remind them (after the IEP is signed) that a trip to the ER may be followed by a
call from your lawyer. Be prepared to have them deny any responsibility or
violations of the IEP, but write down everything that is said to you, by whom,
the time and the date. If your child is verbal, get his version orally and write
it down with date and time.

I wish it was easier, and probably (hopefully!) the first year will be the
hardest and it will get easier after that. Good luck and please report back to
us on how it goes and what you learn in the process. Other children can benefit.

Suzanne


     In foodallergyautismyahoogroupscom Jessica Carr <carrfamily4wh@...> wrote:
>
> By air borne...he at this point would not react to cheese sitting next to him,
but a child eating cheetos or something with powdered cheese near by.�
Especially if that child wipes their hands on their shirt or something it would
send the cheese into the air.� Also he reacts when diary is cooking so we are
unsure how he is going to do in any of the rooms near the cafe.� There isn't a
sink in the classroom.� I don't know if he is near the bathrooms so I don't know
if it is practical to have all the kids wash up after snack.� That's one thing I
need to check on Friday when we meet.� Regardless though, his contact dairy
allergy is so severe that contact to trace levels effects his breathing up to 3
days, so�certain foods just can't be allowed into the classroom.
> ������ I'm really not being unrealistic here, it's about what my son requires
medically.� If the school can't accomadate him, than they are required to find
some way to provide a free education�some other way.� Many of the schools in my
town are completely peanut free.� There goes the staple of peanutbutter and
jelly we all grew up on, but it has been ruled medically necessary for a number
of students so that's what they did and the others just have to be ok with
eating peanutbutter at home.� Dairy is certainly different and most parents
don't realize that dairy is in a ton of things.� I was planning on typing up
a�list of diary free snack foods and�if need be I'll even provide a box of
fruit�leathers or pretzels so if�a student brought in a�snack with dairy, they
won't�go without.� Many classes I substituted for used to have the same snack
for the class, so that can be a solution to.� But, in my expereince substituting
and student
>  teaching, snacks usually lingrued.� Some kids took forever and then would put
a half eaten snack back in their desk and continue with it later.� For 2nd grade
(the grade my son�is going into) teachers usually used snack as a way to managed
a students' free time.� Meaning rather than saying "at 10 we�will have our
snack." and then cleaning up and going on to the next task.� They usually say,
"as soon as your done�with your math you can take out your snack.� After your
snack you can get a book or magazine from the�class library. At 10:25 we will
leave for art."� So you have some�kids doing their math, some on snack, some
walking around, some reading.� That would only work with Elijah if�everyone had
a dairy free snack.� I'll have to find out how his teacher usually does it, but
how I've seen it, the younger grades are on a very clear time schedule and�2nd
and up are more�independent.�
> ��� How do you work out the kids eating�in the classroom with your son?��Does
their lunch need to be�allergen free in any way?��Does he have any contact
allergies? Does the teacher stay there�or a para?� And about the art
supplies...I know there can be gluten, corn, and soy in art supplies.��My son's
allergic to all of them too but only if ingested.� But have you come across any
with dairy in them?� I have�not but I do�know that�they do projects with milk
cartons, which of course would be out of the question.
> Thanks.
> �
> --- On Mon, 6/8/09, christel <christelking1@...> wrote:
>
>
> From: christel <christelking1@...>
> Subject: [foodallergyautism] Re: School
> To: foodallergyautism@yahoogroups.com
> Date: Monday, June 8, 2009, 9:13 AM
>
>
>
>
>
>
>
>
> few things. by air born do you mean if someone has a slice of cheese in the
classroom your child would react or do you mean if someone is mixing dried milk
it will be a problem? my son has airborn gluten issues to where he will seizer.
they can not mix ANYTHING in the class involving flour. they could have reguar
bread in the class but could not MAKE bread in the class. all kids are required
to wash hands after snack and all tables wiped clean with approved wipes so that
THEIR snacks and residue are not transfered all over the class making the room
unsafe. he also has milk (not just casein but also milk fat) and soy (not just
protien but lethathin, and oil in soy) reactions. so this minimizes all that
being transfered as well as egg anaphatic. art supplies are looked at ect. and
he has his own box of art supplies that is seperate as well so no other kids
have touched it. for lunch he can not eat in the cafe, kids eat in the class
with him. going INTO the
>  cafe could cause seizers for my son.
>
> I think honestly it's unrealitic to think that the school could force OTHER
parents NOT to allow kids to bring anything with dairy into the room. other
parents aren't going to be set up for what dairy free means or how to prepare
safe things. the only way it could happen would be to send an approved list of
safe snacks home with kids at the beggining of the year and you are still going
to have a ton of really mad parents and kids over something like that. so I
guess it comes down to HOW sensitive IS your child. could again cheese be IN the
room, or bread made with milk ect?
>
> --- In foodallergyautism@ yahoogroups. com, Jessica Carr <carrfamily4wh@ ...>
wrote:
> >
> >
> > Thanks for responding Jenny. I'm meeting with nurse and principal on Friday.
It's just a little conerning because the nurse doesn't seem to know how to
handle his requirements. I've been talking with her for months on the phone. But
the school's required to figure out something. They do a peanut table so I'm
sure they can do a dairy one. The issue is there can't be any dairy in the
classroom and kids still bring snacks and b-day cupcakes.
> > Thanks
> >
> > On Jun 5, 2009, at 12:24 AM, Jenny Kalis <j_kalis@ > wrote:
> >
> >
> >
> > We're homeschooling now, too, but when my son went to school they had a
special table for kids with severe allergies. They actually had about five small
tables and the nurse assigned kids to each table according to what they were
allergic to. Unfortunatley with dairy sometimes one kid sat alone because it is
hard to find other kids who don't have dairy in their lunch. Basically, anyone
sitting with him would not be able to have spillable dairy like milk or yogurt
or you could request no dairy in any form at his table. At my son's table, kids
couldn't have peanuts or seeds. Usually most schools have plans in place. I
would call the school nurse and ask about what their policies are and how they
would handle it. Another idea is to have him at his own special table and to
have a lunch buddy to eat with each day. Perhaps you can coordinate a lunch
buddy schedule with the teacher and send home a note to parents stating that
their child will need to
> > bring a dairy free lunch to school on their designated day. Some kids will
forget and he may have some days eating alone but it is better than eating
alone, especially since lunch is such great social time. Another idea is perhaps
you could have your child eat in a separate room with a therapist and knock out
some therapy time integrated with lunch. Not perfect but productive.
> >
> > From: Jessica Carr <carrfamily4wh@ ...>
> > To: foodallergyautism@ yahoogroups. com
> > Sent: Thursday, June 4, 2009 9:12:51 AM
> > Subject: [foodallergyautism] School
> >
> > Hi, I've been homeschooling my son for the past 2 years because he reacts to
dairy on contact and even air borne. I we've been considering getting him into
public school for next year. I was wondering what kind of ways other kids are
accomidated for. We are asking for a dairy free classroom and dairy free area
for him to eat. This has been done with peanuts, but that is easier than dairy.
> > Thanks!
> > Jessica
> >
> >
> >
> > font-family: Verdana; font-size: 10px; font-weight: normal; } #ygrp-msg p a
{ font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; }
div.attach-table div div a { text-decoration: none; } div.attach-table { width:
400px; } -->
> >
>

few things.  by air born do you mean if someone has a slice of cheese in the
classroom your child would react or do you mean if someone is mixing dried milk
it will be a problem?  my son has airborn gluten issues to where he will seizer.
they can not mix ANYTHING in the class involving flour.  they could have reguar
bread in the class but could not MAKE bread in the class.  all kids are required
to wash hands after snack and all tables wiped clean with approved wipes so that
THEIR snacks and residue are not transfered all over the class making the room
unsafe. he also has milk (not just casein but also milk fat) and soy (not just
protien but lethathin, and oil in soy) reactions.  so this minimizes all that
being transfered as well as egg anaphatic.  art supplies are looked at ect. and
he has his own box of art supplies that is seperate as well so no other kids
have touched it. for lunch he can not eat in the cafe, kids eat in the class
with him.  going INTO the cafe could cause seizers for my son.

I think honestly it's unrealitic to think that the school could force OTHER
parents NOT to allow kids to bring anything with dairy into the room.  other
parents aren't going to be set up for what dairy free means or how to prepare
safe things.  the only way it could happen would be to send an approved list of
safe snacks home with kids at the beggining of the year and you are still going
to have a ton of really mad parents and kids over something like that.  so I
guess it comes down to HOW sensitive IS your child.  could again cheese be IN
the room, or bread made with milk ect?



--- In foodallergyautism@yahoogroups.com, Jessica Carr <carrfamily4wh@...>
wrote:
>
>
> Thanks for responding Jenny. I'm meeting with nurse and principal on Friday. 
It's just a little conerning because the nurse doesn't seem to know how to
handle his requirements. I've been talking with her for months on the phone. But
the school's required to figure out something. They do a peanut table so I'm
sure they can do a dairy one. The issue is there can't be any dairy in the
classroom and kids still bring snacks and b-day cupcakes.
> Thanks
>
> On Jun 5, 2009, at 12:24 AM, Jenny Kalis <j_kalis@...> wrote:
>
>
>
> We're homeschooling now, too, but  when my son went to school they had a
special table for kids with severe allergies.  They actually had about five
small tables and the nurse assigned kids to each table according to what they
were allergic to.  Unfortunatley with dairy sometimes one kid sat alone because
it is hard to find other kids who don't have dairy in their lunch.  Basically,
anyone sitting with him would not be able to have spillable dairy like milk or
yogurt or you could request no dairy in any form at his table.  At my son's
table, kids couldn't have peanuts or seeds.  Usually most schools have plans in
place.  I would call the school nurse and ask about what their policies are and
how they would handle it.    Another idea is to have him at his own special
table and to have a lunch buddy to eat with each day.  Perhaps you can
coordinate a lunch buddy schedule with the teacher and send home a note to
parents stating that their child will need to
>  bring a dairy free lunch to school on their designated day.  Some kids will
forget and he may have some days eating alone but it is better than eating
alone, especially since lunch is such great social time.  Another idea is
perhaps you could have your child eat in a separate room with a therapist and
knock out some therapy time integrated with lunch.  Not perfect but productive.
>
> From: Jessica Carr <carrfamily4wh@...>
> To: foodallergyautism@yahoogroups.com
> Sent: Thursday, June 4, 2009 9:12:51 AM
> Subject: [foodallergyautism] School
>
> Hi,  I've been homeschooling my son for the past 2 years because he reacts to
dairy on contact and even air borne.  I we've been considering getting him into
public school for next year.  I was wondering what kind of ways other kids are
accomidated for.  We are asking for a dairy free classroom and dairy free area
for him to eat.  This has been done with peanuts, but that is easier than dairy.
> Thanks!
> Jessica
>
>
>
> font-family: Verdana; font-size: 10px; font-weight: normal; } #ygrp-msg p a {
font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; }
div.attach-table div div a { text-decoration: none; } div.attach-table { width:
400px; } -->
>

We're homeschooling now, too, but� when my son went to school they had a special table for kids with severe allergies.� They actually had about five small tables and the nurse assigned kids to each table according to what they were allergic to.� Unfortunatley with dairy sometimes one kid sat alone because it is hard to find other kids who don't have dairy in their lunch.� Basically, anyone sitting with him would not be able to have spillable dairy like milk or yogurt or you could request no dairy in any form at his table.� At my son's table, kids couldn't have peanuts or seeds.� Usually most schools have plans in place.� I would call the school nurse and ask about what their policies are and how they would handle it.��� Another idea is to have him at his own special table and to have a lunch buddy to eat with each day.� Perhaps you can coordinate a lunch buddy schedule with the teacher and send home a note to parents stating that their child will need to bring a dairy free lunch to school on their designated day.� Some kids will forget and he may have some days eating alone but it is better than eating alone, especially since lunch is such great social time.� Another idea is perhaps you could have your child eat in a separate room with a therapist and knock out some therapy time integrated with lunch.� Not perfect but productive.

---

From: Jessica Carr <carrfamily4wh@yahoo.com>
To: foodallergyautism@yahoogroups.com
Sent: Thursday, June 4, 2009 9:12:51 AM
Subject: [foodallergyautism] School

Hi,� I've been homeschooling my son for the past 2 years because he reacts to dairy on contact and even air borne.� I we've been considering getting him into public school for next year.� I was wondering what kind of ways other kids are accomidated for.� We are asking for a dairy free classroom and dairy free area for him to eat.� This has been done with peanuts, but that is easier than dairy. Thanks! Jessica

font-family: Verdana; font-size: 10px; font-weight: normal; } #ygrp-msg p a { font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; } div.attach-table div div a { text-decoration: none; } div.attach-table { width: 400px; } -->

WOW - Holy organized!!  ha ha ha  And I thought I was organized.  Luckily we get
a lot of our foods at one  or two stores, plus we had a ton of organic meats
delivered to cover a six month period.  Don't most veggies have to be blanched
to be frozen?  How do you prepare them before freezing?  I used to blend steamed
veggies and freeze those purees for adding to things.  But now everything we eat
is mainly whole and basic, so little baking, so I don't need the purees so much.

I feel like I don't even know what our next step is.  Something is causing a lot
of anxiety for our son and I can't tell if it's diet or the high levels of yeast
and bacteria we are dealing with.  We had an OAT test done and his bacteria is
pretty high, yeast is high too.  The natural remedies just aren't cutting it.  I
know that his moods ALWAYS fluctuate with his yeast/bacteria treatments so I
tend to think it's related to the levels of his gut bugs.  When I treat him, I
see changes in just about 15 min, but they don't always last.  We have a DAN!
appointment in a few weeks and I am thinking we need something prescription
strength to get the levels down, then maintain them naturally.  We are also
working on chelation slowly...sigh.

Now I am worrying about our little guy who is 11 months old.  He always has the
red anal ring.  When he was on antibiotics at the hospital, it went away, it
slowly returned with a vengence since then and I have been using OoO and OLE
with him, probably not consistently enough though.  I get the impression he is
going to have the same issues as our older son.  I am just beside myself with
all of this.  How do I keep him from developing the food allergies and the leaky
gut and the high levels of gut bugs???  We try to rotate foods with him too, I
don't give him egg, dairy, wheat or soy, he takes CLO or vit D, alternating
days, biotin when he has the red ring, trace minerals that include selenium,
calcium magnesium citrate twice a day, probiotics at breakfast and bedtime and
since the antibiotics, I have been using double doses, plus we use OoO and OLE. 
I'm not sure if this enough and if prevention is even an option, but I will do
my best to protect him from the same route.

Sorry, I ended up venting there.  This has been a rough couple of weeks.  I also
just found out that DH isn't going to be able to go to the DAN! appointment that
we have had scheduled for months and I really need his support, but it looks
like I will be going alone since we can't find someone to stay with our little
guy during nap time.  I'm just not willing to drag him an hour away, force him
to miss a nap and have him in a doctor's office where potentially sick people
will be.  I think I am officially in a woe-is-me phase.

Jessica

--- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@...> wrote:
>
> I've stopped writing our recipes down unfortunately, they change so often, but
they are very sumple. Mayo is boiled frozen cauliflower, tossed in a blender
with oil, salt, and either lime, lemon, rice or apple cider vinegar, plus you
could add some raw onion for zing.
>
> Sunflower pancakes is roast organic raw sunflower seeds in a slow oven til
golden, grind in a clean coffee grinder (not one you use for coffee), mix with
water, oil, and a touch of baking soda. At the end throw in just enough shredded
veggies that they won't fall apart, and then a bit of vinegar to make the baking
soda bubble. Roll into loose balls, adjust for texture and consistency, and fry
in a hot skillet, flatten with a spatula. They're fragile, so keep them small.
>
> We used to have to go to 4 or 5 grocery stores on the weekend to find all the
foods wed need for the week. Since we both work we could only do this weekends.
I think my kid spent his toddler years in a grocery cart, hah! Now that a big
Whole Foods opened near us, it's easier. We just make a trip to Kroger, a trip
to Whole Foods, and then about once a month to another store. We shop from a
list. My husband does Kroger, I do Walmart, and we take turns doing the other 2.
We sit down together and figure out what we need, we've got a big white board in
the kitchen with all the foods we eat regularly, and whatever we need for that
week gets a red circle beside it. When we unpack the groceries, we put a check
in the circle. After we're all unpacked we check to see what we didn't get, and
if we need something else for that week's cooking, we add a trip to another
store until we find it. Usually we know what to get at each store so there isn't
too much of that. We have 2 deep freezes and we always have an extra week's food
stored just in case it's out at the grocery, too. We shred and grind and chop a
lot of veggies in advance, and then freeze them, so we have extras on hand. I
keep a spreadsheet inventory of all the food in the freezer so I can search on
say, "shredded parsnips" and see how many bags we have. Every time we use a bag
of food we write down the number of that bag and delete it from the database.
>
> I had to get organized about it so we didn't end up with a lot of food lost in
the freezer. We've developed this system over years, it's always a work in
progress.
>
> We do give 3 foods for 3 days (used to be 2), and then stop for 4 (used to be
5). I'm pretty strict about that.
>
> Of course an ER trip can throw everything wacky, when Tom was in the ER for 3
days I stayed with him and dh cooked all our meals and brought them to us...lol,
I am a tough taskmaster, he knows how to cook everything now and we rotate
cooking nights too! I create all the recipes though.
>
> For a long time our diet was more restricted than it is now...I'm talking 3 or
4 foods including juice and oil for 2 days. No fowl, no legumes, no grains, no
eggs, just 3 meats (ostrich, lamb, buffalo), and a few veggies, and a few fruits
and a few oils. No coconut, no olive, no seeds... It took 3 years of being VERY
strict to get to this point. We earned back these foods slowly over time. It
pays off, but it might mean some time of lamb, zucchini, and squash for
breakfast, lunch, snack and dinner for months and months. This is what kids with
eosinophilic disorders do -most of them are on a liquid elemental diet with just
one or two or a few solid foods they can eat for a very long time. I know
teenagers who eat like this. It I tough but if these kids are in pain they're
usually cooperative with anything that helps stop the pain.
>
> Whatever it takes...just please do get the help of a good nutritionist if your
diet is getting very limited.
>
> Suzanne
>

I've stopped writing our recipes down unfortunately, they change so often, but
they are very sumple. Mayo is boiled frozen cauliflower, tossed in a blender
with oil, salt, and either lime, lemon, rice or apple cider vinegar, plus you
could add some raw onion for zing.

Sunflower pancakes is roast organic raw sunflower seeds in a slow oven til
golden, grind in a clean coffee grinder (not one you use for coffee), mix with
water, oil, and a touch of baking soda. At the end throw in just enough shredded
veggies that they won't fall apart, and then a bit of vinegar to make the baking
soda bubble. Roll into loose balls, adjust for texture and consistency, and fry
in a hot skillet, flatten with a spatula. They're fragile, so keep them small.

We used to have to go to 4 or 5 grocery stores on the weekend to find all the
foods wed need for the week. Since we both work we could only do this weekends.
I think my kid spent his toddler years in a grocery cart, hah! Now that a big
Whole Foods opened near us, it's easier. We just make a trip to Kroger, a trip
to Whole Foods, and then about once a month to another store. We shop from a
list. My husband does Kroger, I do Walmart, and we take turns doing the other 2.
We sit down together and figure out what we need, we've got a big white board in
the kitchen with all the foods we eat regularly, and whatever we need for that
week gets a red circle beside it. When we unpack the groceries, we put a check
in the circle. After we're all unpacked we check to see what we didn't get, and
if we need something else for that week's cooking, we add a trip to another
store until we find it. Usually we know what to get at each store so there isn't
too much of that. We have 2 deep freezes and we always have an extra week's food
stored just in case it's out at the grocery, too. We shred and grind and chop a
lot of veggies in advance, and then freeze them, so we have extras on hand. I
keep a spreadsheet inventory of all the food in the freezer so I can search on
say, "shredded parsnips" and see how many bags we have. Every time we use a bag
of food we write down the number of that bag and delete it from the database.

I had to get organized about it so we didn't end up with a lot of food lost in
the freezer. We've developed this system over years, it's always a work in
progress.

We do give 3 foods for 3 days (used to be 2), and then stop for 4 (used to be
5). I'm pretty strict about that.

Of course an ER trip can throw everything wacky, when Tom was in the ER for 3
days I stayed with him and dh cooked all our meals and brought them to us...lol,
I am a tough taskmaster, he knows how to cook everything now and we rotate
cooking nights too! I create all the recipes though.

For a long time our diet was more restricted than it is now...I'm talking 3 or 4
foods including juice and oil for 2 days. No fowl, no legumes, no grains, no
eggs, just 3 meats (ostrich, lamb, buffalo), and a few veggies, and a few fruits
and a few oils. No coconut, no olive, no seeds... It took 3 years of being VERY
strict to get to this point. We earned back these foods slowly over time. It
pays off, but it might mean some time of lamb, zucchini, and squash for
breakfast, lunch, snack and dinner for months and months. This is what kids with
eosinophilic disorders do -most of them are on a liquid elemental diet with just
one or two or a few solid foods they can eat for a very long time. I know
teenagers who eat like this. It I tough but if these kids are in pain they're
usually cooperative with anything that helps stop the pain.

Whatever it takes...just please do get the help of a good nutritionist if your
diet is getting very limited.

Suzanne

  --- In foodallergyautism@yahoogroups.com, "jessicagalligani" <luckylot@...>
wrote:
>
> My husband would LOVE to have it as simple as Monday is a certain food, etc,
but I just can't shop that strictly, it all depends on what is going on for us
in that week so I have to be more flexible.  I don't always have all the foods
for a given week.
>
> So were you providing the same foods for three days in a row, then taking a
break?  Can we do two days of the same foods/oils/fruits, etc and then four off,
you think?  I might have to revamp my spread sheet...lol.
>
> We also make pancakes in batches (like teff and zucchini) that we freeze and I
often do the same with things like meatballs, bison burgers, chicken strips, so
they are easy to just toss in the microwave for a few seconds for lunch.  I
don't do it with everything though, I make a lot just before the actual meal.  I
have had a lot going on lately, so I am behind on batch cooking....two weekends
of visitors (another family member coming this weekend), a birthday party, then
an ER visit followed by two days at the hospital with a very sick child...it's
been nuts.  Needless to say, EVERYTHING is suffering.  I am just barely staying
afloat to keep our clothing clean, lol.
>
> So back to the topic at hand, I would LOVE your sunflower (do you grind it
yourself?) and veggie pancake recipe if you are willing to share?!?!
>
> The thing that is hard for us is that our 23 food allergies involves a lot of
the foods everyone is using.  He can't have pumpkin, sesame, egg, all citrus,
kidney and pinto beans, olive, rice, potatoes (although the parsnip hashbrown
idea sounds great, how do you make those?? I bet it would work with turnips and
squash too?), coconut (my biggest bummer, we used VCO regularly before this), he
reacts severely to mango, so that is out and we are corn-free and try to avoid
soy as well.  So many of the things you have listed are out for us, like
anything with mayo (any sauces are REALLY hard), anything with lime, things like
hummus or anything with tahini and of course, nothing with beans, sigh!!!  He
doesn't like to touch things with his hands, sensory issues, so I could do the
rolled meat with a toothpick I bet.  I did turkey with avocado, bacon and honey
mustard once, he loved that.  I should do that again soon!  I need to keep a
list of these ideas, so I don't forget about them, sheesh!
>
> Jessica
>
> --- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@> wrote:
> >
> > Well, we used a strict rotation chart where literally Monday is beef and
broccoli day :) that worked for us as we do all our cooking at night and big
batches at a time, and need to be able to plan things ahead. All his meals are
planned. Another benefit of this was to group foods together that I can build
recipes around -so, for instance, if he eats mango and coconut, I know if I put
mango and coconut on the same day I can give him mango and coconut pudding for 3
days. Or I can make guacamole 3 days by putting lime and avocado together. I
have pancake recipes that use sunflower seed flour and shredded veggies
together. I make a big batch and freeze them, and then just thaw however many I
need. On every freezer bag I list all the ingredients, including oils, spices,
etc. I do the same thing with quinoa pancakes. We have pancakes for breakfast a
lot, and hash browns from either shredded potatoes or shredded parsnips. Usually
it's a carbohydrate (hash browns, pancakes, cereal like puffed corn or rice or
millet), or a grain like quinoa or amaranth or buckwheat, plus a fruit (mango or
peeled ripe pear if I'm brave) or a vegetable like broccoli or carrots (I just
microwave frozen veggies, sometimes with a sauce like homemade hummus or
mayonnaise or bean dip), plus a meat of some sort.
> >
> > Snacks are things like coconut yogurt, mango-coconut pudding, guacamole with
carrots to dip, or rice crackers and sunbutter. We also do rollups with sliced
roast beef (Applegate Farms organic, I think), rolled around chopped lettuce and
coleslaw I make with cabbage and home made Mayo plus some cultured veggies (wish
I could do more of these). We allow a lot of starches now because we seem to be
doing okay with them, with enzymes and antifungals, but I'd have to think back
to what we used when we were more strict with starches and allowed more phenols.
Generally, we do lots of veggies with dips and sauces for snacks, and puddings
and yogurts. We also did squash chips which can be used as sandwich covers for
sunbutter, pumpkin-seed butter, and hemp seed butter. And there's always fruit,
for those who can eat it. Apple slices with any of those butters, and bananas
with butters spread on them or dipped, and celery sticks with any of those
butters.
> > Do those ideas help?
> >
> > Suzanne
> >
> > -- In foodallergyautism@yahoogroups.com, "jessicagalligani" <luckylot@>
wrote:
> > >
> > > Suzanne,
> > > You had mentioned to me, at another time, that you rotate 2 days on, 4 or
5 off, right?  I am in the process of organizing my son's rotation diet, to help
heal his leaky gut.  He has so few foods, it can be hard to develop snacks and
meals with any more than 3-4 days between for some food categories.  He is
always hungry, wants to eat just about hourly and I am SO running out of healthy
ideas that fit our needs.  So my question is, what is the proper way to rotate
foods?  Should we eat the same foods for the whole day, like if I am giving
chicken, use it for lunch and dinner, etc?  And snacks, ugh, snacks....I don't
even know what to ask about them!!  He likes apples and dry cereals, all of
which cause problems for us.  I try raw veggies, but the battle is just not
worth it sometimes.
> > >
> > > I printed a sheet with lists of the foods he can have, by category and
next to each food I mark the days he ate them so I can work on a less rigid
schedule, I don't like the Monday=beef and broccoli routine.  This way I can
just make sure we eat a food that hasn't been eaten in a few days, but still
have the flexibility to eat based on our mood.  Another major meal for us is
breakfast.  It's his favorite meal of the day and we are so limited.  We are
trying to avoid high oxalate foods, high sugars and carbs and we have 23 food
allergies to avoid in addition to GFCF and corn free.  We have been able to
successfully rotate rice back in thankfully, but I am still leery of it's
ability to stir up yeast, so I keep that almost to weekly rather than every 4
days.  We also do fruit and sunflower seeds, he dips the fruit into ground
sunflower seeds, I make teff pancakes without sweetener and GF oatmeal with
carob reishi syrup.  That is about IT for breakfast.
> > >
> > > Ok, sorry to get off topic a bit there, thoughts are racing through my
head while I try to organize this.
> > >
> > > Jessica
> > >
> >
>

My husband would LOVE to have it as simple as Monday is a certain food, etc, but
I just can't shop that strictly, it all depends on what is going on for us in
that week so I have to be more flexible.  I don't always have all the foods for
a given week.

So were you providing the same foods for three days in a row, then taking a
break?  Can we do two days of the same foods/oils/fruits, etc and then four off,
you think?  I might have to revamp my spread sheet...lol.

We also make pancakes in batches (like teff and zucchini) that we freeze and I
often do the same with things like meatballs, bison burgers, chicken strips, so
they are easy to just toss in the microwave for a few seconds for lunch.  I
don't do it with everything though, I make a lot just before the actual meal.  I
have had a lot going on lately, so I am behind on batch cooking....two weekends
of visitors (another family member coming this weekend), a birthday party, then
an ER visit followed by two days at the hospital with a very sick child...it's
been nuts.  Needless to say, EVERYTHING is suffering.  I am just barely staying
afloat to keep our clothing clean, lol.

So back to the topic at hand, I would LOVE your sunflower (do you grind it
yourself?) and veggie pancake recipe if you are willing to share?!?!

The thing that is hard for us is that our 23 food allergies involves a lot of
the foods everyone is using.  He can't have pumpkin, sesame, egg, all citrus,
kidney and pinto beans, olive, rice, potatoes (although the parsnip hashbrown
idea sounds great, how do you make those?? I bet it would work with turnips and
squash too?), coconut (my biggest bummer, we used VCO regularly before this), he
reacts severely to mango, so that is out and we are corn-free and try to avoid
soy as well.  So many of the things you have listed are out for us, like
anything with mayo (any sauces are REALLY hard), anything with lime, things like
hummus or anything with tahini and of course, nothing with beans, sigh!!!  He
doesn't like to touch things with his hands, sensory issues, so I could do the
rolled meat with a toothpick I bet.  I did turkey with avocado, bacon and honey
mustard once, he loved that.  I should do that again soon!  I need to keep a
list of these ideas, so I don't forget about them, sheesh!

Jessica

--- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@...> wrote:
>
> Well, we used a strict rotation chart where literally Monday is beef and
broccoli day :) that worked for us as we do all our cooking at night and big
batches at a time, and need to be able to plan things ahead. All his meals are
planned. Another benefit of this was to group foods together that I can build
recipes around -so, for instance, if he eats mango and coconut, I know if I put
mango and coconut on the same day I can give him mango and coconut pudding for 3
days. Or I can make guacamole 3 days by putting lime and avocado together. I
have pancake recipes that use sunflower seed flour and shredded veggies
together. I make a big batch and freeze them, and then just thaw however many I
need. On every freezer bag I list all the ingredients, including oils, spices,
etc. I do the same thing with quinoa pancakes. We have pancakes for breakfast a
lot, and hash browns from either shredded potatoes or shredded parsnips. Usually
it's a carbohydrate (hash browns, pancakes, cereal like puffed corn or rice or
millet), or a grain like quinoa or amaranth or buckwheat, plus a fruit (mango or
peeled ripe pear if I'm brave) or a vegetable like broccoli or carrots (I just
microwave frozen veggies, sometimes with a sauce like homemade hummus or
mayonnaise or bean dip), plus a meat of some sort.
>
> Snacks are things like coconut yogurt, mango-coconut pudding, guacamole with
carrots to dip, or rice crackers and sunbutter. We also do rollups with sliced
roast beef (Applegate Farms organic, I think), rolled around chopped lettuce and
coleslaw I make with cabbage and home made Mayo plus some cultured veggies (wish
I could do more of these). We allow a lot of starches now because we seem to be
doing okay with them, with enzymes and antifungals, but I'd have to think back
to what we used when we were more strict with starches and allowed more phenols.
Generally, we do lots of veggies with dips and sauces for snacks, and puddings
and yogurts. We also did squash chips which can be used as sandwich covers for
sunbutter, pumpkin-seed butter, and hemp seed butter. And there's always fruit,
for those who can eat it. Apple slices with any of those butters, and bananas
with butters spread on them or dipped, and celery sticks with any of those
butters.
> Do those ideas help?
>
> Suzanne
>
> -- In foodallergyautism@yahoogroups.com, "jessicagalligani" <luckylot@> wrote:
> >
> > Suzanne,
> > You had mentioned to me, at another time, that you rotate 2 days on, 4 or 5
off, right?  I am in the process of organizing my son's rotation diet, to help
heal his leaky gut.  He has so few foods, it can be hard to develop snacks and
meals with any more than 3-4 days between for some food categories.  He is
always hungry, wants to eat just about hourly and I am SO running out of healthy
ideas that fit our needs.  So my question is, what is the proper way to rotate
foods?  Should we eat the same foods for the whole day, like if I am giving
chicken, use it for lunch and dinner, etc?  And snacks, ugh, snacks....I don't
even know what to ask about them!!  He likes apples and dry cereals, all of
which cause problems for us.  I try raw veggies, but the battle is just not
worth it sometimes.
> >
> > I printed a sheet with lists of the foods he can have, by category and next
to each food I mark the days he ate them so I can work on a less rigid schedule,
I don't like the Monday=beef and broccoli routine.  This way I can just make
sure we eat a food that hasn't been eaten in a few days, but still have the
flexibility to eat based on our mood.  Another major meal for us is breakfast. 
It's his favorite meal of the day and we are so limited.  We are trying to avoid
high oxalate foods, high sugars and carbs and we have 23 food allergies to avoid
in addition to GFCF and corn free.  We have been able to successfully rotate
rice back in thankfully, but I am still leery of it's ability to stir up yeast,
so I keep that almost to weekly rather than every 4 days.  We also do fruit and
sunflower seeds, he dips the fruit into ground sunflower seeds, I make teff
pancakes without sweetener and GF oatmeal with carob reishi syrup.  That is
about IT for breakfast.
> >
> > Ok, sorry to get off topic a bit there, thoughts are racing through my head
while I try to organize this.
> >
> > Jessica
> >
>

They're mostly IgG, actually. Sorry if I wasn't clear. We just treated all IgG
and IgE the same and didn't blood test, so we didn't distinguish. His reactions
appear to be the same to both (eczema, then hives), and we determined them by
challlenge and elimination, which treats all allergies/intolerances the same.
That method always worked for us, we never did an IgG blood test paired with an
IgE blood test til he was 5.
The ones he's outgrown I presume are mostly IgG, but there's no way to be
certain.

Eosinophilic enteritis is determined by biopsies during a scope, although it can
be tricky. Jenny's son had a formal diagnosis at Cincinnati Children's hospital,
which is where the most is known about this disease, and she says the doctor has
to know where to take the biopsies, as eosinophilic cells tend to cluster and
hide. Krigsman biopsies for eos, but I don't know how experienced he is. He says
he usually finds some or a lot in ASD kids, probably depending on the severity
of the disease, which we might guess corellayes with the severity of the
intolerances. In Tom's case I always assumed he had a pretty bad case, which is
why I was so strict with foods all these years. I limited him to foods that gave
him no symptoms and after age 3, when he lost a lot of foods, I rotated
strictly. 3 years of that helped, as did enzymes, and now we're able to relax
the foods and the length of rotation. We'll see how it works. We may just end up
with more intolerances, but I'm optimistic.

Suzanne


--- In foodallergyautism@yahoogroups.com, Sarah Rogers <curlytatertot@...>
wrote:
>
> I didn't realize all Tom's allergies were IgE.� Wow, that is very cool that
you have been able to get several back into his diet in recent years!� I was too
concerned with calories before, but after losing so many foods and trying to
have longer rotations, I think it might be more difficult to get the calories
where they need to be (not that adequate calories have been helpful in his
growth/weight gain!).�
>
> Do you know how Eosinophilic enteritis is DX?� Do you know if they have to
scope to confirm that?� Sounds like something do need to explore, but given his
metabolic disorder, don't think scoping is an option.�
>
> --- On Tue, 6/2/09, Suzanne Midford <szmidford@...> wrote:
>
> From: Suzanne Midford <szmidford@...>
> Subject: Re: [foodallergyautism] Re: IgG/IgE test results - need help
> To: foodallergyautism@yahoogroups.com
> Date: Tuesday, June 2, 2009, 12:24 PM
>
>
>
>
> We don't know for sure, because we'd never done an� IgG test before, so we
weren't able to distinguish between IgG and IgE. However, that is the nature of
IgG intolerances, that the antibodies are more transient. After infancy and
early childhood, it is unusual to lose IgE allergies.
> �
> I don't know how long it took us to regain our foods. We avoided for a long
time - years.� Some foods we haven't regained yet, but most we did with strict
rotation.� Most doctors recommend challenging IgGs (or re-testing) between 6
months and a year. However, if you're unable to practice strict avoidance or at
least rotate, it is less likely you will outgrow the intolerances to the foods
that continue to be consumed, because the body will continue to produce
antibodies. However, in some cases you need to continue giving those foods while
avoiding others in order to have enough calories. If elemental formula can be
given to supplement calories, this might give you some breathing room with
calories and allow you to avoid some foods. I think learning about eosinophilic
enteritis might help you, I beleive it's what's going on in most ASD kids with
lots of allergies. This is what Krigsman says too.
> �
> I think that the typical guidance is to limit the higher allergen foods and
continue to give lower allergen foods where needed. Different tests have
different scoring systems (colors or numbers or ++). We focus these decisions on
choosing to give foods that have high caloric value.
> �
> Suzanne
> �
> -------------- Original message from Sarah Rogers <curlytatertot@...>:
--------------
>
>
>
>
>
>
>
> So the foods you gained back were IgG foods, not IgE foods?� How long did that
take?� I am pretty sure if I only stuck with the foods that were in the green, I
wouldn't have enough to give him enough calories and would quickly become
sensitive to those.� I have always done "free" days and loosely rotated, but I
think I need to get more serious out it.�
>
> As far as I can tell, they doesn't have any phenol problems, if they do, I
don't know that there are any foods left for them to eat. I did a phenol-free
trial a couple years back to see if it would help with hyperactivity, but didn't
seem to benefit at all.� Isaac has chronic low vit A, despite years of
supplementing, but he doesn't turn yellow.� However, if he has butternut or
winter squash more than two days in a row, his stools get yellow/orange and
loose.�
>
> So people are usually told to completely avoid all the foods in the yellow,
orange & red range and limit to the green?� :( If he is this reactive, make we
wonder what other things (seasonings, etc.) that he is reacting to that weren't
even tested for...
>
> --- On Mon, 6/1/09, Suzanne <szmidford@att. net> wrote:
>
>
> From: Suzanne <szmidford@att. net>
> Subject: [foodallergyautism] Re: IgG/IgE test results - need help
> To: foodallergyautism@ yahoogroups. com
> Date: Monday, June 1, 2009, 3:34 PM
>
>
>
>
> It's likelier that a person will outgrow an IgG reaction than an IgE
reaction,but it's no guarantee. My son has had some forever, including several
we're certain he never ate himself (but could have gotten cross-contaminated or
touched, or through my breastmilk or in utero. The tests aren't perfect,
either.We've had the best success with strict rotation of foods: 2 days on then
5 days off of every food he eats (and avoidance of the allergens), later we
relaxed to 3 days on and 4 days off. We've earned a lot of foods back that way,
but not all.
>
> With just a few foods to eat, you will probably need to include the lower
allergen ones to get a sufficient diet, unless he's getting that through his
EO28.
>
> There are a couple of reasons that I know of to avoid yellow/red/orange foods-
phenol intolerance (red ears and hyperactivity right after consuming), or
failure to convert beta carotene (yellowish tinge to the palms).
>
> Suzanne
>
> --- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...>
wrote:
> >
> > Hi everyone,
> >
> > I just received Food IgG results.� My DD's look okay (she is the one that is
in better health).� My son was reactive to a
> > ton of things, including highly reactive to many things that he hasn't
> > had in more than five years!� He is on a strict SCD/LOD diet so
> > everything I make for him is whole foods from scratch --I know there
> > haven't been any infractions.� He has had 4+ tonsils for many years and
> > has also been failing to thrive for the same amount of time.� How am I
> > to know which foods he is truly sensitive to if he is reacting to
> > things he doesn't even eat?� Are these tests reliable at all?� They also
both showed IgE to eggs.� Can IgE reactions ever be eliminated?� I am a little
overwhelmed about how to feed these guys when their diet is already so limited.�
I haven't talked w/ Dr. Usman yet, but did cosult w/ Pam @GPL.� She said since
DS is so reactive that I just have to try to stick to the lower ones.� Do they
normally tell you to avoid things in yellow or orange?� Any thoughts?�
Encouragement? �
> > Thanks.
> > Sarah
> >
>

Well, we used a strict rotation chart where literally Monday is beef and
broccoli day :) that worked for us as we do all our cooking at night and big
batches at a time, and need to be able to plan things ahead. All his meals are
planned. Another benefit of this was to group foods together that I can build
recipes around -so, for instance, if he eats mango and coconut, I know if I put
mango and coconut on the same day I can give him mango and coconut pudding for 3
days. Or I can make guacamole 3 days by putting lime and avocado together. I
have pancake recipes that use sunflower seed flour and shredded veggies
together. I make a big batch and freeze them, and then just thaw however many I
need. On every freezer bag I list all the ingredients, including oils, spices,
etc. I do the same thing with quinoa pancakes. We have pancakes for breakfast a
lot, and hash browns from either shredded potatoes or shredded parsnips. Usually
it's a carbohydrate (hash browns, pancakes, cereal like puffed corn or rice or
millet), or a grain like quinoa or amaranth or buckwheat, plus a fruit (mango or
peeled ripe pear if I'm brave) or a vegetable like broccoli or carrots (I just
microwave frozen veggies, sometimes with a sauce like homemade hummus or
mayonnaise or bean dip), plus a meat of some sort.

Snacks are things like coconut yogurt, mango-coconut pudding, guacamole with
carrots to dip, or rice crackers and sunbutter. We also do rollups with sliced
roast beef (Applegate Farms organic, I think), rolled around chopped lettuce and
coleslaw I make with cabbage and home made Mayo plus some cultured veggies (wish
I could do more of these). We allow a lot of starches now because we seem to be
doing okay with them, with enzymes and antifungals, but I'd have to think back
to what we used when we were more strict with starches and allowed more phenols.
Generally, we do lots of veggies with dips and sauces for snacks, and puddings
and yogurts. We also did squash chips which can be used as sandwich covers for
sunbutter, pumpkin-seed butter, and hemp seed butter. And there's always fruit,
for those who can eat it. Apple slices with any of those butters, and bananas
with butters spread on them or dipped, and celery sticks with any of those
butters.
Do those ideas help?

Suzanne

-- In foodallergyautism@yahoogroups.com, "jessicagalligani" <luckylot@...>
wrote:
>
> Suzanne,
> You had mentioned to me, at another time, that you rotate 2 days on, 4 or 5
off, right?  I am in the process of organizing my son's rotation diet, to help
heal his leaky gut.  He has so few foods, it can be hard to develop snacks and
meals with any more than 3-4 days between for some food categories.  He is
always hungry, wants to eat just about hourly and I am SO running out of healthy
ideas that fit our needs.  So my question is, what is the proper way to rotate
foods?  Should we eat the same foods for the whole day, like if I am giving
chicken, use it for lunch and dinner, etc?  And snacks, ugh, snacks....I don't
even know what to ask about them!!  He likes apples and dry cereals, all of
which cause problems for us.  I try raw veggies, but the battle is just not
worth it sometimes.
>
> I printed a sheet with lists of the foods he can have, by category and next to
each food I mark the days he ate them so I can work on a less rigid schedule, I
don't like the Monday=beef and broccoli routine.  This way I can just make sure
we eat a food that hasn't been eaten in a few days, but still have the
flexibility to eat based on our mood.  Another major meal for us is breakfast. 
It's his favorite meal of the day and we are so limited.  We are trying to avoid
high oxalate foods, high sugars and carbs and we have 23 food allergies to avoid
in addition to GFCF and corn free.  We have been able to successfully rotate
rice back in thankfully, but I am still leery of it's ability to stir up yeast,
so I keep that almost to weekly rather than every 4 days.  We also do fruit and
sunflower seeds, he dips the fruit into ground sunflower seeds, I make teff
pancakes without sweetener and GF oatmeal with carob reishi syrup.  That is
about IT for breakfast.
>
> Ok, sorry to get off topic a bit there, thoughts are racing through my head
while I try to organize this.
>
> Jessica
>

Suzanne,
You had mentioned to me, at another time, that you rotate 2 days on, 4 or 5 off,
right?  I am in the process of organizing my son's rotation diet, to help heal
his leaky gut.  He has so few foods, it can be hard to develop snacks and meals
with any more than 3-4 days between for some food categories.  He is always
hungry, wants to eat just about hourly and I am SO running out of healthy ideas
that fit our needs.  So my question is, what is the proper way to rotate foods? 
Should we eat the same foods for the whole day, like if I am giving chicken, use
it for lunch and dinner, etc?  And snacks, ugh, snacks....I don't even know what
to ask about them!!  He likes apples and dry cereals, all of which cause
problems for us.  I try raw veggies, but the battle is just not worth it
sometimes.

I printed a sheet with lists of the foods he can have, by category and next to
each food I mark the days he ate them so I can work on a less rigid schedule, I
don't like the Monday=beef and broccoli routine.  This way I can just make sure
we eat a food that hasn't been eaten in a few days, but still have the
flexibility to eat based on our mood.  Another major meal for us is breakfast. 
It's his favorite meal of the day and we are so limited.  We are trying to avoid
high oxalate foods, high sugars and carbs and we have 23 food allergies to avoid
in addition to GFCF and corn free.  We have been able to successfully rotate
rice back in thankfully, but I am still leery of it's ability to stir up yeast,
so I keep that almost to weekly rather than every 4 days.  We also do fruit and
sunflower seeds, he dips the fruit into ground sunflower seeds, I make teff
pancakes without sweetener and GF oatmeal with carob reishi syrup.  That is
about IT for breakfast.

Ok, sorry to get off topic a bit there, thoughts are racing through my head
while I try to organize this.

Jessica

-------------- Original message from Sarah Rogers <curlytatertot@...>: --------------

So the foods you gained back were IgG foods, not IgE foods?  How long did that take?  I am pretty sure if I only stuck with the foods that were in the green, I wouldn't have enough to give him enough calories and would quickly become sensitive to those.  I have always done "free" days and loosely rotated, but I think I need to get more serious out it.  As far as I can tell, they doesn't have any phenol problems, if they do, I don't know that there are any foods left for them to eat. I did a phenol-free trial a couple years back to see if it would help with hyperactivity, but didn't seem to benefit at all.  Isaac has chronic low vit A, despite years of supplementing, but he doesn't turn yellow.  However, if he has butternut or winter squash more than two days in a row, his stools get yellow/orange and loose.  So people are usually told to completely avoid all the foods in the yellow, orange & red range and limit to the green?  :( If he is this reactive, make we wonder what other things (seasonings, etc.) that he is reacting to that weren't even tested for... --- On Mon, 6/1/09, Suzanne <szmidford@att.net> wrote: From: Suzanne <szmidford@att.net> Subject: [foodallergyautism] Re: IgG/IgE test results - need help To: foodallergyautism@yahoogroups.com Date: Monday, June 1, 2009, 3:34 PM It's likelier that a person will outgrow an IgG reaction than an IgE reaction,but it's no guarantee. My son has had some forever, including several we're certain he never ate himself (but could have gotten cross-contaminated or touched, or through my breastmilk or in utero. The tests aren't perfect, either.We've had the best success with strict rotation of foods: 2 days on then 5 days off of every food he eats (and avoidance of the allergens), later we relaxed to 3 days on and 4 days off. We've earned a lot of foods back that way, but not all. With just a few foods to eat, you will probably need to include the lower allergen ones to get a sufficient diet, unless he's getting that through his EO28. There are a couple of reasons that I know of to avoid yellow/red/orange foods- phenol intolerance (red ears and hyperactivity right after consuming), or failure to convert beta carotene (yellowish tinge to the palms). Suzanne --- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...> wrote: > > Hi everyone, > > I just received Food IgG results.  My DD's look okay (she is the one that is in better health).  My son was reactive to a > ton of things, including highly reactive to many things that he hasn't > had in more than five years!  He is on a strict SCD/LOD diet so > everything I make for him is whole foods from scratch --I know there > haven't been any infractions.  He has had 4+ tonsils for many years and > has also been failing to thrive for the same amount of time.  How am I > to know which foods he is truly sensitive to if he is reacting to > things he doesn't even eat?  Are these tests reliable at all?  They also both showed IgE to eggs.  Can IgE reactions ever be eliminated?  I am a little overwhelmed about how to feed these guys when their diet is already so limited.  I haven't talked w/ Dr. Usman yet, but did cosult w/ Pam @GPL.  She said since DS is so reactive that I just have to try to stick to the lower ones.  Do they normally tell you to avoid things in yellow or orange?  Any thoughts?  Encouragement?   > Thanks. > Sarah >

It's likelier that a person will outgrow an IgG reaction than an IgE
reaction,but it's no guarantee. My son has had some forever, including several
we're certain he never ate himself (but could have gotten cross-contaminated or
touched, or through my breastmilk or in utero. The tests aren't perfect,
either.We've had the best success with strict rotation of foods: 2 days on then
5 days off of every food he eats (and avoidance of the allergens), later we
relaxed to 3 days on and 4 days off. We've earned a lot of foods back that way,
but not all.

With just a few foods to eat, you will probably need to include the lower
allergen ones to get a sufficient diet, unless he's getting that through his
EO28.

There are a couple of reasons that I know of to avoid yellow/red/orange foods-
phenol intolerance (red ears and hyperactivity right after consuming), or
failure to convert beta carotene (yellowish tinge to the palms).

Suzanne

--- In foodallergyautism@yahoogroups.com, Sarah Rogers <curlytatertot@...>
wrote:
>
> Hi everyone,
>
> I just received Food IgG results.� My DD's look okay (she is the one that is
in better health).� My son was reactive to a
> ton of things, including highly reactive to many things that he hasn't
> had in more than five years!� He is on a strict SCD/LOD diet so
> everything I make for him is whole foods from scratch --I know there
> haven't been any infractions.� He has had 4+ tonsils for many years and
> has also been failing to thrive for the same amount of time.� How am I
> to know which foods he is truly sensitive to if he is reacting to
> things he doesn't even eat?� Are these tests reliable at all?� They also both
showed IgE to eggs.� Can IgE reactions ever be eliminated?� I am a little
overwhelmed about how to feed these guys when their diet is already so limited.�
I haven't talked w/ Dr. Usman yet, but did cosult w/ Pam @GPL.� She said since
DS is so reactive that I just have to try to stick to the lower ones.� Do they
normally tell you to avoid things in yellow or orange?� Any thoughts?�
Encouragement? �
> Thanks.
> Sarah
>

It's really been one thing at a time, seeing what works and what doesn't and
then moving to the next thing. Tom has small responses to many things and big
responses to a few things, and what has really made a difference for us was a
great DAN doctor who had good instincts and pushed when I needed to be pushed
and isn't afraid to try things. We were also lucky to develop a good
relationship with a neurologist who has an open mind. Do I wish we'd found and
treated the seizures earlier, yes, but boy I feel lucky we found them at all. I
know you have been working at this longer than I have and probably
harder...sometimes it can be devilish to find the right button to push, the
right doctor, the right test, and at the same time keep your own sanity and
health intact and give what little energy you have left to the rest of your
family. I'm unemployed as of 3 weeks ago and am welcoming the respite to
re-focus on my own health and our finances...what a shambles!

We all need to take a break sometimes too...and it can be hard to do and hard to
accept it's necessary.

Suzanne

--- In foodallergyautism@yahoogroups.com, Sarah Rogers <curlytatertot@...>
wrote:
>
> Hi Suzanne,
>
> I really appreciate you taking the time to share all that.  It sounds like
Tom has improved so much since HBOT and working with Dan.  Maybe one of these
days, I will get so see him again and be witness to it all!!  Once again, I
applaud you for all you have overcome for Tom.  You are an amazing and
inspiring mom!! 
> S
>
> --- On Sat, 5/30/09, Suzanne <szmidford@...> wrote:
>
> From: Suzanne <szmidford@...>
> Subject: [foodallergyautism] Re: HBOT
> To: foodallergyautism@yahoogroups.com
> Date: Saturday, May 30, 2009, 10:46 PM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>       It was $100 per dive, and with 10 they charged us $90. It may go down
with more dives but I'm not sure. We stay at a nice Residence Inn (with kitchen)
in Melbourne that's on the expensive side, for us, about $139/night I believe.
It would also be small for 3 for a month.
>
>
>
> Rates in that area can be high, I know some families rent cheaper places, like
timeshares, in Orlando, but that's a long drive to make for 2 dives a day.
>
>
>
> We've never stayed a month. We only did one week of hard chamber HBOT, partly
because of time and money, but also because it was a test run for us. I didn't
want to commit if it didn't seem that effective for Tom. Now I'm looking for
time and money to do more. We will probably do 2 weeks at ICDRC this year, but
I'm also thinking of looking into other places closer, like in NC or VA, and
staying longer. I just haven't done the research yet.
>
>
>
> Our little miracle gut HBOT story involves clostridia. We'd been pulsing
vancomycin every weekend for about a year and just keeping it in check. If we
stopped, it flared. So we planned the HBOT really at DAN's suggestion just to
target the clostridia. We put a great strong antifungal plan in place, because
sometimes hard chamber can flare yeast. It didn't happen for us, but I don't
know whether that was because we planned ahead or not. I wouldn't let a fear of
yeast stop me from HBOT though, we always need a yeast med on board anyhow.
>
>
>
> We didn't see any negatives. But there were a lot of distractions so I'm not
sure we would have noticed. When we were in FL that trip there was a tropical
storm with hurricane force winds and rains in Melbourne, we were flooded out of
2 hotels and were without food and electricity for some periods. It's a wonder
we were even able to get in all the dives we did, some days the office opened
just for us (you know how good their staff is!) our car was damaged by flood
water and we just limped home. When we got home 3 days late to our jobs, we were
also just a week before the start of school and were totally unprepared for what
was waiting for us -a Nazi of a school nurse waiting to renegotiate Tom's health
plan, and not in a good way. And an IEP that was still unsigned til the health
plan was done. And an aide we had hired and trained specifically for school who
turned unstable and lost her transportation and was absent half the time. It was
the start of a
>  really rocky first year in public school. And our jobs weren't very
understanding about all the missed time from all that. I think you went through
something like that after you moved. But in all that chaos I can't really tell
you how Tom did. After a month or so we noticed the work coming home from school
was pretty good, especially the fine motor and drawings. He'd always hated to
even pick up a crayon. Now he was drawing recognizable things and having fun
with it. But was it the HBOT, the 4 hours of worksheets in school, the school OT
or the peer environment? Who knows. I do think HBOT had a part in it. He had a
great first few months of school before things started to taper off. I would do
HBOT a lot more often if it was closer and easier. Soft chamber never did much
for us at all, hard is a lot different, and better, at least for us. Getting rid
of clostridia was the start of a lot of gut improvements for us, everything
seems to work a little
>  better without it. Inflammation seems down, yeast is easier to control,
enzymes are more effective, and his belly is flat most of the time. Poops are
more stable. But all that is a combo of things coming together ....phenol
control, enzymes on board that work, yeast control, etc. Killing clostridia was
just the start. We have a big yeast problem, still, so believe me, it's not all
solved, just better.
>
>
>
> Sorry for all the digressions, I hope ice answered your questions!
>
>
>
> Suzanne
>
>
>
> -- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...>
wrote:
>
> >
>
> > What is the rate at ICDRC?  How many dives do you do in a week?  Also,
do you rent a house, or what do you do about housing in FL?  Do you think
HBOT helped w/ GI and allergy issues? Does Tom have strep issues?  See any
negatives?  Sorry for all the questions.  The bonus of ICDRC is that we
would have access to Dan.  But to be in FL for a month in July... if I do
somewhere in PA or NC, Victor can come down to see us on weekends.  Just
thinking out loud now...
>
> >
>
> > --- On Sat, 5/30/09, Suzanne <szmidford@ ..> wrote:
>
> >
>
> > From: Suzanne <szmidford@ ..>
>
> > Subject: [foodallergyautism] Re: Neocate EO28 Splash
>
> > To: foodallergyautism@ yahoogroups. com
>
> > Date: Saturday, May 30, 2009, 9:33 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >       We do all our hard chamber dives at ICDRC, their prices are the best
and we have to go once a year, so we do it right before school starts and we
stay for a week. This year I think we're doing 2 weeks. I like giving Tom an
extra boost right before school starts. But I'd like to find something closer to
us for in-between yearly visits to Florida. I would check out and compare prices
(including hotels) between Dr. Mumper's, Miracle Mountain (which sometimes runs
specials), and Charlotte Hyperbarics. Be sure to ask about doctors on
staff/available, nearby medical facilities in case of emergency, and special
pricing if you buy a large number of dives.
>
> >
>
> >
>
> >
>
> > Suzanne
>
> >
>
> >
>
> >
>
> > -- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...>
wrote:
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> > >
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> > > True, just wondering what to expect.  Thanks. BTW, did you do HBOT
at Charlotte Hyperbarics in NC? 
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> > >
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> > > --- On Fri, 5/29/09, Suzanne Midford <szmidford@ ..> wrote:
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> > >
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> > > From: Suzanne Midford <szmidford@ ..>
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> >
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> > > Subject: Re: [foodallergyautism] Neocate EO28 Splash
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> >
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> > > To: foodallergyautism@ yahoogroups. com
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> >
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> > > Date: Friday, May 29, 2009, 3:06 PM
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> > > I haven't spent enough time on it to know. But I'm participating in other
non-biomed groups, like the Landau-Kleffner groups, and I find that I have to
take what I can from it and fit it into what I already know about biomed. Sort
of like talking to people about non-biomed autism stuff, like ABA, and sensory
therapy and so forth. I take what I can learn from it and don't spend a lot of
time trying to talk with them about biomed stuff. It saves time and energy,
which are priceless and scarce!
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> >
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> > >  
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> > > Suzanne
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> > >  
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> >
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> > > ------------ -- Original message from Sarah Rogers <curlytatertot@ ...>:
------------ --
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> > > Thank you!! Just curious, is the eosinophil group a biomed-friendly group
at all? 
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> > >
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> >
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> > > --- On Fri, 5/29/09, Suzanne Midford <szmidford@att. net> wrote:
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> > >
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> > >
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> > > From: Suzanne Midford <szmidford@att. net>
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> >
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> > > Subject: Re: [foodallergyautism] Neocate EO28 Splash
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> >
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> > > To: foodallergyautism@ yahoogroups. com
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> >
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> > > Date: Friday, May 29, 2009, 2:48 PM
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> > > Sarah,
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> > > Here's the link for the eosinophil gastro group:
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> > > http://health. groups.yahoo. com/group/ eosinophilgastro
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> >
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> > >  
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> > > And the Thoughtful House group:
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> >
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> > > http://health. groups.yahoo. com/group/ thoughtfulhousec enterforchildren
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> >
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> > >  
>
> >
>
> > > --
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> >
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> > > "Respect and value your instincts
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> >
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> > > about your child â€" never ignore
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> >
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> > > them, no matter what
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> >
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> > > anyone tells you. Holding a loved
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> > > one's life in your hands means
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> > > that you have to accept a
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> > > position of power even when you
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> >
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> > > don't want it. You must become an
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> >
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> > > advocate for your child,
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> >
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> > > even if it means standing alone
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> >
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> > > against the world." - Karen Siff
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> >
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> > > Exhorn
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> > >
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> >
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> > >  
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> >
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> > > ------------ -- Original message from Sarah Rogers <curlytatertot@
yahoo.com>: ------------ --
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> > > forgot to ask, are you doing the whole K2 protocol and eating high ox
foods?  I want to hear details about how that's going.  Is the
protocol still lots of fat soluble vits, or has it evolved more?
>
> >
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> > > S
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> > >
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> >
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> > > --- On Fri, 5/29/09, Sarah Rogers <curlytatertot@ yahoo.com> wrote:
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> > >
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> >
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> > >
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> >
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> > > From: Sarah Rogers <curlytatertot@ yahoo.com>
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> >
>
> > > Subject: Re: [foodallergyautism] Neocate EO28 Splash
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> >
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> > > To: foodallergyautism@ yahoogroups. com
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> >
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> > > Date: Friday, May 29, 2009, 1:29 PM
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> > > Hi Suzanne,
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> > > You always amaze me with your wealth of great info!! I do wish we lived
closer.  I think you would be my best friend -- you'd be so sick of
me! 
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> > >
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> > > I did a calorie count for Isaac recently and think he gets 2,500-3,000+
calories a day.  I am pretty sure the difference w/ EO28 is that they
are broken down so he can actually use them.  I am going to save your
info about nutritionists for the future because it wouldn't surprise me if we
had to customize something for him.  We have a ton of appts the next
couple of months.  We are seeing a neurogeneticist at Children's in a
couple weeks and I am sure that will lead to many, many other appts.  I
received a call this morning from someone who didn't identify themselves this
morning who said she was calling to set up a surgery.  Since we are
talking about so many visits and SX, I had to get her to clarify which
surgery.  She must have thought I was an idiot until I explained that my
son has TOO many specialists and she would have to be more specific. 
Uggh -- does it ever end? 
>
> >
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> > >
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> > > We also started Quinton sea plasma products recently.  I don't
think he has gained any weight yet (trying not to obsessively weigh him) but his
bones don't look quite as sharp (may be placebo effect!).  Dr. Usman
said the Quinton sea plasma was used on Nazi victims who were put into metabolic
crisis from starvation and couldn't regulate after eating food.  They
used them to "reset" their metabolism so they could eventually gain weight and
thrive again.  Tough to sort it out, but at this point, I will take any
weight gain and sort it out later. Secretly hoping it is the quinton, since it
doesn't have the nasty ingredients. 
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> >
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> > >
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> >
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> > > BTW, has anyone gotten ins to pay for EO28/medical food?  I am not
too optimistic because he was misDX w/ MMA as an infant (which requires medical
food to survive) and they wouldn't pay for it! 
>
> >
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> > >
>
> >
>
> > > Sarah
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> >
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> > >
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> >
>
> > > --- On Fri, 5/29/09, Suzanne Midford <szmidford@att. net> wrote:
>
> >
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> > >
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> >
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> > >
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> >
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> > > From: Suzanne Midford <szmidford@att. net>
>
> >
>
> > > Subject: Re: [foodallergyautism] Neocate EO28 Splash
>
> >
>
> > > To: foodallergyautism@ yahoogroups. com
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> >
>
> > > Date: Friday, May 29, 2009, 1:11 PM
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> > > Hi Sarah!
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> >
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> > > I'm SO glad to hear EO28 is working for your son. I know he needs those
calories.
>
> >
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> > >  
>
> >
>
> > > Over the last few years I have learned to relax and make dietary
tradeoffs, and not aim for a perfect diet. We relax a bit on the lesser
allergens (IgG at least, we don't relax on IgE), and are worrying less about
oxalates, and switching to the Vitamin K protocol (a slow work in progress for
us). So far that has worked for us. Tom has gained weight, the enzymes began to
work, and he's getting more robust. Not perfect, but I started targeting just
sheer calories rather than a perfect diet... and it's working. We do try to do
whole and organic foods when we can (especially meats, fats, oils, and other
bioaccumulators, the EWG top-12, etc.) , and to be really strict about
food rotation so the allergies don't get worse and so he can outgrow the ones he
has.
>
> >
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> > >  
>
> >
>
> > > I share your concern about the flavors and ingredients in EO28. But watch
your son, and observe how he does.  If the flavors are artificial, that
lowers my concern about allergens, at least (maybe not so much about the
ingredient sources, but again, it's a trade-off).  You could also try to
find a nutritionist like we had at the Children's Hospital Feeding Clinic, who
could help you come up with a safer elemental formula. Another way would be to
use the Neocate base amino acids formula, which used to be sold just as an amino
acid mix, and add that to a base of whole foods/flavorings, etc; though the base
would not be with broken-down proteins that way. You'd need to work with a
nutritionist to develop a base.
>
> >
>
> > >  
>
> >
>
> > > The nutritionists I'd suggest checking with are Peta Cohen (she developed
an LOD formula for a mom on this board a few years ago), Kelly Barnhill
at Thoughtful House, or a nutritionist at a VERY GOOD hospital with a specialty
GI clinic that focuses on eosinophilic enteritis - like Cincinnatti Children's.
There is one in Philadelphia I've heard of (but don't know the name). You could
check the eosinophil-gastro Yahoo group and see if the parents there have any
suggestions for other hospital-based clinics. The Thoughtful House Yahoo group
may have some ideas, too. Quite a few Krigsman kids there are on EO28; he's been
using it more the last few years.
>
> >
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> > >  
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> >
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> > > Until you get something else in place, though, I would stick with EO28,
flavorings and all. Let us know how it goes.
>
> >
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> > >  
>
> >
>
> > > Suzanne
>
> >
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> > >  
>
> >
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> > >  
>
> >
>
> > >  
>
> >
>
> > > ------------ ---- Original message from "Victor & Sarah Rogers"
<curlytatertot@ yahoo.com>: ------------ --
>
> >
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> > >
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> > > Hi Everyone,
>
> >
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> > >
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> >
>
> > > This is my first time posting as I don't have any time for lists these
days. :( I recently got an RX for EO28 Splash for my son (will be 7rs in June).
He is to get three boxes a day to try to get some weight on him. He's 38lbs and
looks like a cancer patient - very scary! I have been slowly trialing the
samples and he seems to be doing okay with it. He loves it!! I personally am not
thrilled with some of the ingredients. He actually eats an excessive amount of
good, organic, whole food calories and fat, but doesn't seem to metabolize them
at all as he is constantly starving and obsessing about food.
>
> >
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> > >
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> >
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> > > Is anyone using the EO28 Splash? My son doesn't handle carbs well at all
and had bad hypoglycemia before we changed his diet. Has anyone had problems
with EO28 Splash making hypoglycemia worse? I really don't like that it has
acesulfame potassium as one of the sweeteners since it's long term use hasn't
been effectively studied and is rumored to have a carcinogenic implications. Did
anyone have yeast problems from all the sugars in it?
>
> >
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> > >
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> >
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> > > Also, we just received IgE and IgG results indicating several new
allergies. Among them are all citrus fruits, pineapple and grape. These are the
three flavors available for EO28. The lady I spoke with at Neocate says that
since it is artificially flavored, it shouldn't cause a problem or inflammation.
Hope she's right... Still she was unclear in some of her answers about the
nature of the sugars used (as far as if they were hydraulized, etc.) Any
thoughts?
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> >
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> > >
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> > > Basically, I'm not entirely comfortable with this so I'm a nervous but
desperate mommy. Would appreciate if anyone with any experience w/ EO28 would
share. Please feel free to contact me privately. Thanks!
>
> >
>
> > > Sarah
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> >
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> > >
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> >
>