Hi Santona,

Have you seen any improvement in Neel's autism symptoms that you can attribute to Singulair? Dr. Megson feels it would benefit my son's autism as well as his allergies, but since the only form we can get Singulair in has corn (mannitol) and my son is hyper-sensitive to corn,  as well as sugar (he has a strict sugar-free diet to control his yeast), I am concerned about the cost to his system.

Also, have you been in to see Dr. Buie yet? How did it go?

Suzanne

-------------- Original message from "santonapal" <pals@...>: --------------

Hi
We saw an improvement in eczema (when on a 100% Neocate diet) only
after we had been on singular for 2-3 weeks.  But once we introduced
foods, the singular was ineffective in controlling eczema.  When we
removed the foods from his system, Singular was able to control the
basal level eczema that we could never get rid off. Since our son was
on a 100% elemental diet our Drs. attribute the basal eczema to
environmental allergens (singular - asthma medication).

santona, mom to neel, nikhil and nishant
-----



--- In foodallergyautism@yahoogroups.com, LangLT <catlang@o...> wrote:
>
> my DAN just has us start singular with our 3.5 year old son.  Zach
has had developmental delays and quite a few food allergies.  He
actually is doing remarkably well right now.  He started early
intervention at 11 months old and is now going to "special" preschool
6 hrs/day where he gets OT, PT, speech and play therapies.  It looks
as though he will be transitioning to "regular kindergarden" and on
time in sept 2007.  we started the singular about 1 week ago and
haven't really noticed much with it.
>
>
>   ----- Original Message -----
>   From: santonapal
>   To: foodallergyautism@yahoogroups.com
>   Sent: Thursday, November 17, 2005 5:28 PM
>   Subject: [foodallergyautism] Re: New to group
>
>
>
>   Hi
>
>   recovery at 2.7 years! fabulous - congratulations!!
>
>   How long have you been following DAN protocols and behavioural
programs?
>
>   My son Neel, PDD-NOS, 2.7 years, NT fraternal twin brother.
>
>   Neel has had major GI issues since birth.  First diagnosed with
milk protein at 3 mo.  converted to Neocate but no resolution in
eczema.  Major spit ups, GERD - failure to thrive - leading to Nissen
fundoplication and G-tube surgeries.  Then diagnoed with
eosiniphillic esophagitis (EE).  Allergic to everything we have
tested so far.  Major oral aversion to foods - 100% Neocate fed
through tube.  Dev. delays obvious since birth.  stopped vaccinations
at 9 mo.  Diagnosed PDD-NOS at 2 yrs. Just started DAN protocols .  
Not growing relative to twin brother despite Neocate.  Any insights??
>
>   Started Singulair recently and is working well for us.  But not
sufficient to prevent inflamations from food introductions.  Would
love to know the details of your experience with this drug.
>
>   Seeing GI - Dr. Tim Buie, Dr. Phil Putnam(for EE) and  DAN - Dr.
Cutler
>
>   --- In foodallergyautism@yahoogroups.com, "mamatomck"
<mbramlage@p...> wrote:
>   >
>   > Hi...my son Mitchell has a diagnosis of PDD NOS and is now 2
1/2. He
>   > also has severe food allergies (IgE) to many foods. He has
immediate
>   > reactions to most of his allergic foods (hives and red
blotches). He
>   > has been to the ER for an anaphylactic reaction to sesame. He
is an
>   > extremely sensitive child...he can get hives or red ears simply
by
>   > leaning up next to someone with a polyester blend shirt or get
hives
>   > from a splat of yogurt on his skin. Most, but not all, his
allergies
>   > have been detected by blood or skin test or by simple
observation.
>   > He developeed eczema as a young infant (around 3 months) but
had no
>   > other issues until after 2 flu vaccines at 9 and 10 months.
From
>   > there he had an immune system collpase with developing multiple
ffod
>   > allergies, ear infections, and GI issues. His allergies
definately
>   > worsened after the MMR (his last vaccine).
>   > We see Dr Jeff Bradstreet for a DAN! Doctor and Dr Arthur
Krigsman for
>   > GI. His scope, done 6 months ago, showed no inflammation
(really not
>   > anything). Dr Krigsman is still treating Mitchell with Pentasa
>   > because of his classic autoimmune profile. He also started him
on
>   > Singulair which has been a miracle for him. His eczema and
chronic
>   > dark circles finally cleared up! His manin GI symptom is a
massively
>   > bloated belly which has imporved with treatment but is not
resolved.
>   > We have been modified SCD for over a year. We added in BED
coconut
>   > kefir and cultured veggies about 10 months ago and this
definately
>   > helped reestablish good GI flora. We have recently been trying
to add
>   > back in some complex carbs due to the fact Mitchell has not
grown much
>   > in the last year on SCD. Mitchell has an NT fraternal twin
brother
>   > and it is becoming obvious that he is not growing as much.
>   > Mitchell is doing very well in terms of his ASD. WE feel, as
well as
>   > his doctors and therpasits, that Mitchell is close to recovery.
He
>   > has really only remaining issues with play. He still will lapse
into
>   > reptitive behavior if he is bored or does not know what to
occupy
>   > himself with. But he will be ready for typical preschool at 3!
>   > Mitchell thankfully tolerates most supplements, we do daily
Mb12
>   > shots, IV/transdermal/nebulized glutathione, transdermal NAC
and lots
>   > of other supplements.
>   > Meghan
>   > Mitchell 2.7 years (PDD, food allergies, GI issues)
>   >
>
>
>
>
>
>
>
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