Hi Jenny!

We are not trying to do SCD. We're trying for BED mostly, but I am
not one to get stuck on a certain diet. I agree with you that in
crisis' we have to move out to find what works. I have trouble with
food combining b/c starchy food shouldn't be given with meats and
that's all she's got. Plus, I have to mix her medicines with baby
food and it's usually baby food green beans or pear sauce. All of
this makes it very hard for her to be food combining correctly.

I haven't been religious with George's Aloe vera, although I do give
it almost daily. Just not in certain amounts and on occasion I do
forget completely. I will make a note to give it regularly and more
often.

I am not doing Vit K yet. I want too but was under the impression I
need Vit A & D to go with it and she doesn't tolerate A. She nearly
had anaphylaxis to CLO and fish.

She vascilates between constipation and diarrhea. She is VERY
resistant to anything around her anus so I'm not sure I could do an
enema. I know I'm the grownup and all but holding a screaming,
fighting 2 year old down to stick something up her butt doesn't sit
well with me. I don't mean that crudely, I just don't think I can
do it emotionally. When I get desperate and use a suppository on
her, she goes nutso.

She only has one bite of quinoa 1x a week so I don't think that's an
issue so much. She doesn't tolerate any grains at this point and
doesn't tolerate potatoes either. I have tried all the root veggies
and she reacts badly to them all. Meat and veggies are truly her
main fare.

Looking at your suggestions, I believe you're right - I am giving
waaaay too much sulfur foods. I never even realized how much until
seeing you say it. I just had to cut foods out while trying to heal
her gut b/c she kept reacting; and never realized I was cutting
everything but sulfur food out! :(

She doesn't tolerate any enzymes at all. We've tried everything we
could find and none were tolerated. I have some bromelain capsules
Dr. Houston sent us to try but have not worked up the courage yet.
I know there are natural enzymes in the YCK so that's the main
reason I give it to her with each meal.

She doesn't tolerate colostrum; even the "dairy free" forms. She
gets 30 mg of ionized liquid zinc with breakfast and 15 mg in her
liquid multi at dinner (I forgot to list she gets chelate-mate
nightly which contains 15mg of zinc for her dose). She really is on
massive amounts of vitamins and minerals. Although she's an orange
child b/c she eats so much squash. I don't believe she converts her
beta-carotenes (which makes sense to her reacting to Vit A)
correctly. She has been getting anywhere between 300-450 mg of
magnesium citrate daily (powdered, in her food) and today I started
her on ionized liquid magnesium to see if that will help her poops.

Thank you SOOOO much Jenny! You've really helped me to see some
things I'm doing that could be causing problems. I will reduce the
sulfur foods and pull the sulfur supplements for now. My friend,
whom I provide YCK for, mentioned that the YCK was stronger this
batch than usual. Part of me wonders if she's cleansing, but I've
seen this coming for a while so I don't think that's the whole
picture. I'm just terrified of getting to the point where she has
nothing to eat. Thank you for helping me get a clearer grasp on
things!

Wyndie

--- In foodallergyautism@yahoogroups.com, Jenny Kalis <j_kalis@...>
wrote:
>
> Wyndie,
> OK, if it were me here is what I would do. Are you
> trying to do SCD? Can she tolerate things like
> potatoes? tapioca? I would give Aloe Vera (Georges
> Very Active Aloe Drink) twice per day. I know it's
> SCD illegal but I believe it is extremely healing to
> the gut for our allergy kids. I understand
> Gottschall's hang up with it but I disagree.
> What about Vit. K? ARe you giving that?
> I would dump the MSM (too sulfery), the Seabuddies
> (too questionable) and the MCT oil (too unnecessary at
> this point). You want to give magnesium citrate
> regularly and as much as she can tolerate w/o getting
> diahrea. Also, dump the garlic- too sulfery. Give
> liberal amounts of pear sauce on an empty stomach.
> Pear doesn't feed yeast nearly as badly as other
> fruits and it will keep the bowels going. Is she
> contipated or opposite? If she leans toward
> constipation then get her cleaned out big time- one
> fleets enema per day for three days followed by
> regular dosing of milk of magnesia or oxypowder or
> whatever it takes to produce 1-3 stools per day.
> Quinoa is a grain and could be causing some issues. I
> would lean more towards red potatoes if you can WITH
> vegetables if possible.
> Green beans are high oxylate. What about kale?
> Collards? Cumin for spice? red bell peppers?
> brocolli is sulfery. I am really thinking you could
> be way over doing sulfer in a kid who may potentially
> be unable to process it. I would look at lowering her
> B vitamin intake for now- methyl donors she possibly
> can't handle at this point.
> Give VSL#3 regularly and what about a probiotic with
> bifidus strains in it? Kirkman has one called Super
> Pro Bio 75B that may be hypoallergenic. We use
> Klaire's Therbiotic Detox.
> What about enzymes???
> Have you tried them all? Kirkmans has a new one that
> is fruit free.
> My kids are 5 and 8. My 5 year old is on Neocate but
> her diet is dramatically expanding. I swear a year
> ago I was wondering the same thing you are- what can I
> feed these kids? I took a leap of faith last year
> starting the Yasko protocol in October and really
> buckled down with it in January and my kids who used
> to have little to no food in their diets now eat
> almost everything and cognition continues to improve
> and most importantly not backslide, etc. What I
> learned (which was hard after dealing with all the
> severe food allergies and intolerances) was to look at
> the big picture, beyond the food. There is a reason
> they are reacting and removing foods isn't the answer,
> it is a band aid. I suggest putting her on all foods
> she can tolerate using the food combining priciples
> laid out in BED (sounds like you are already
> attempting this) and working diligently to get those
> vitamin and minerals up, dosing 2-4 times per day if
> you can (divide the doses). I would also consitently
> give mega doses of probiotics, colostrum if she can
> tolerate and Georges always active aloe drink. What
> form of selenium are you using? How much zinc are you
> giving? when are you giving it? What brand, form?
> Sorry to ramble! Hang in there!
>
> Jenny
>
> --- Wyndie <mileski5@...> wrote:
>
> > Faith is my child (2yr old) with limited foods b/c
> > of severe food
> > allergies.
> >
> > Well yesterday I noticed what I thought was
> > beginning eczema on her
> > arm. Today her arms and legs are COVERED in eczema.
> > GRRRRRR I
> > don't know what to do from here. I really don't. I
> > suspected a food
> > allergy was happening last week and the eczema just
> > confirms it for
> > me.
> >
> > Her foods are:
> > broccoli
> > squash (all kinds)
> > green beans
> > all meats (we don't eat pork though)
> > onions
> > garlic
> > currant juice
> > pear juice
> > occassional granny smith apple
> > occasional bite of quinoa (soaked)
> > occasional bite of cauliflower
> > dulse
> > YCK (young coconut kefir)
> >
> > She is on the following supplements:
> > corn-free Vit C (contains calcium & magnesium)
> > Yeast-free Multi B Vits
> > MSM
> > Mangesium
> > Basic nutrients plus (mineral)
> > Seabuddies multi-vitamin
> > chromium
> > milk thistle
> > selenium
> > zinc
> > MCT oil
> > VSL#3
> >
> > I don't count the apple, quino or cauliflower as
> > meal worthy foods
> > yet b/c she can only have an occassional bite. Dulse
> > is a snack,
> > not meal. Garlic and onions are for flavoring and
> > not whole meals
> > of course. That leaves meat, starchy veggies & green
> > beans. I
> > realized last night I have not been food combining
> > with her b/c she
> > has to have starchy veggies with her meat b/c that's
> > the only option
> > she has.
> >
> > What do I do? How can I stop this food loss??? I am
> > running out of
> > food to feed her. She isn't itchy today but she has
> > started
> > tantruming like crazy and is obviously in distress.
> > I caught her toe
> > walking today and a few times wouldn't make eye
> > contact. All that
> > was temporary but still, freaked me out big time!! I
> > know her gut is
> > a mess as she's back to being bloated. Her poop is
> > still off and
> > staaaaanky!!
> >
> > We did NAET during the spring and it cleared her of
> > poultry (thank
> > GOD! lol) but I don't have great confidence in this
> > practitioner and
> > she's all I can go to right now. Her practitioner
> > even called me up
> > this week to tell me she's back in town and ready to
> > see us so I
> > will go, but still, what do I do in the meantime???
> >
> > Anyone have any advice? I seriously am at my wits
> > end here!
> >
> > Thank you
> > Wyndie
> >
> >
>
>
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