CRYSTAL!! :)
Hey! Glad to see you on here, although sorry you have a reason to
be here.
Is little man on anything for the ammonia? Chrystine takes L-
carnitine and alpha ketoglutaric acid for that and it helped tons.
I'm sorry if I've told you that before. LOL
Have you looked any further into the Vit K protocol? That might
help with the oxalates without further restricting his diet. I join
you in your frustration over what to feed our sensitive kids. I
know you hate having him on so much meat; have you looked into sea
vegggies yet? Is he having aversion issues or just not tolerating
the other foods? Are his reactions severe or just difficult to
watch?
Wyndie
--- In foodallergyautism@yahoogroups.com, "crystallawless"
<crystallawless@...> wrote:
>
> Hello everyone,
>
> I've been trying to find the time all week to get my new member
intro
> out. We've been having a bad week...yeast is back. I know you
all
> can relate.
>
> My name is Crystal and I have a 2yo DS who has had extreme food
> intolerances since birth. I nursed him for the first five
months.
> He had lots of gurgling the entire time. Diagnoised w/ dairy
allergy
> with blood in stool at 6 week. Removed all dairy, casein, whey,
> etc., from diet. He did better but still problems. Removed
wheat,
> better, but still problems. At almost 5 months, I got the flu,
went
> on a Z-Pak and was assured that it would not affect him. Of
course I
> believed the Dr. who was very wrong. Blood in his stool the next
> morning. Put him on Alimentum while I finished meds. He did much
> better on the Alimentum but did continue to have some problems,
> especially when tried to introduce foods. Rice cereal almost
killed
> him. Orange foods too. I think many other foods but couldn't
figure
> it all out. Around 1yo, we put him on EleCare only for almost 8
> months because it hurt him less than anything we knew of at the
> time. Aug. 1, 2007 started SCD. Unfortunatley he is almost
entirely
> meat with homemade pearsauce. Since all this, I've research BOD,
> LOD, etc. and not sure SCD is right for us. Probably need SCD
with
> LOD. Have tried to introduce many veggies with no luck. I know
> pears are feeding the yeast. Got 1st OAT back last week. High
> ammonia levels, high oxalates, high sulfur and lots of other
things
> high and low that I don't understand. We are really confused as
to
> what to feed this child since with "think" he has problems with
> amines, carotenoids, phenols/salicylates, sulfur, luteins and who
> knows what else. I worked with Kelly Barnhill of Thoughtful for
> several months trying to get vit, supp, prob, EFA, etc. introduced
> but almost everything bothers him. Dr. Krigsman diagnoised small
> bowel immotility and chronic colitis. As of today, DS:
>
> - Eats: bison, hamburger, turkey and homemade pearsauce
> - Probiotic: SCD safe GI Pro Health probiotic at only 1/2 cap a
> day. Any more seems to really bother him.
> - Calcium with vit D
> - Compounded Pentasa
>
> We have our first appt. with Dr. Rossignol on the 12th and
hopefully
> he will get us on track.
>
> Thanks for reading my story and I'm looking forward to learning
from
> all of you!
>
> Thanks to Suzanne for getting the group back together for us
newbies.
>
> Hi Wyndie! I saw your name a few times.
>
> Thank you,
> Crystal Lawless
> Myrtle Beach, SC
>