Suzanne
I tried sending this privately but it is bounding off your account so I
don't know how else to reach you...
----- Original Message -----
From: "Christel King" <christelking1@...>
To: "Suzanne" <szmidford@...>
Sent: Thursday, May 24, 2007 2:34 PM
Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne


>I agree that LDN isn't for everyone, infact our DAN doesn't use it for that
>reason which is why I went over his head to be in the study, as he is an
>immunologist. McCandless today just contacted him on their difference with
>it to see if they can help the few kids as yours and some others I know to
>put there heads together on WHY that happens. hopfully between the two
>they can figure it out. I know one mom in our support group that had huge
>issues and still hasn't gotten her child back as well just did Yasko
>testing and found out she can't do lipids and that is why it hurt her kid.
>much of it was explained reaction wise with her kids genetic mutations
>panel, would be intersting to see if you child has the same pattern as
>well. also found out her kids had HUGE yeast issues as well which
>exasperated the issues. did your child have issues with that? she sees a
>friend of McCandless for a DAN so they are also working on why that type of
>responce. but yes. our DAN Dr, Jeremy Baptist in KS, KS is flooring with
>his knowledge base of diet and OTHER methods being allergy shots and stuff
>to get control of our kids issues. he is an immunologist so his DAN bases
>is approachable for the most sensitive of our kids being THAT's his
>expertise. he FULLY believes in both IGG and IGE issues which is hard to
>find with an allergist these days and has wonderful service in office for
>getting you in quickly and responding quickly, working with schools ect to
>make our kids safe even enviornmentally. has written us scripts for
>bedding ect, and works with insurence since he has the immunologist
>background and is great with codeing to have things covered. he spends a
>great deal of time with each kid and really covers all bases. he also has
>his daughter a nutritionist who works in the office to help with the diet
>and alternitive ideas which is great and you can utilize her and have
>insurence cover it as well with his referal. I have a friend with tons of
>allergies HFA adult who is seeing him next month flying from maine to see
>him and his office even worked on paper work with sounthwest to get her a
>plane ticket discounted 300 dollars to go see him and then he can work with
>her the rest of the year via phone and email for DAN stuff. he will send
>you testing, work with your primary ect so the most stuff is covered
>possible under insurence and then if you DO have to pay he discounts cash
>payments in office as well as allows for a payment scheudal as you can pay
>monthly, so you can do what you need to do as you need to do it with out
>having to panick over cost or not treat. McCandless speaks very highly of
>him, even with them disagreeing on the LDN issue. I have seen him work
>wonders with many kids, even the tough nuts, and have personally sent him
>close to a hundred family's who had not had luck with other DANs and he has
>been able to pinpoint things to make progress where others haven't. infact
>I have 5 families going to see him just next month, that I have met Just
>this month. i am highly confident in him, and no I am not on staff there or
>get any kick backs or anything, just a really happy mom to have her kid
>back. he was MR and was suppose to be institutionized and how he reads at
>a 4th grade level, and does 2nd grade math while just 5 and in
>kindergarden, has friends and is continueally looseing his allergies and
>makeing great progress mainstreamed next year full day and is fitting in
>socially and may loose his dx this next month......Baptist gave us that,
>and worked me through it all and educated me in the process which I don't
>see alot of DAN's do with there patients which is sad. it leaves them
>unequipt to help themselves or others on this journey. I am so thankful
>that we found him by chance......and with lots of prayer. I pray that the
>think tank picks him up this next year as he has been doing all this almost
>25 years now before DAN existed and has a great knoweldge base to share
>with our DAN community.
>
> hope this helps
>
> christel
>
>
> ----- Original Message -----
> From: "Suzanne" <szmidford@...>
> To: "Christel King" <christelking1@...>
> Sent: Thursday, May 24, 2007 12:50 PM
> Subject: Re: Was: Kinesiology/NAET - Now Rotation diet Suzanne
>
>
> Christel, who's your DAN? I've struggled - unsuccesfully - to find a
> DAN doc (or even a DAN nutritionist) who is good at the diet piece
> of the puzzle, b/c it's so very hard and so very important with kids
> who are this limited, and I haven't ever found one. Are you
> satisfied with his approach to gut and diet?
>
> As for LDN. I know many kids have been helped by it, but I do feel
> strongly that it must be approached with caution for our kids in
> general and food-allergy kids in particular. I know quite a few kids
> who regressed badly on it, including my own. All of these kids had
> food allergies. Two lost all language (one regained it, the other
> has not). My son and two others I know had severely worsening
> allergies - to the point of becoming anaphylaxtic or anaphylactoid
> where they were not previously. My son regressed cognigtively as
> well as allergically and lost 16 months of development while he was
> on LDN. Once we figured it out and stopped LDN, he improved
> imediately - and I mean overnight. The next day after we stopped
> LDN, he potty trained immediately and the eczema that had become
> severe while on LDN completely disappeared.
>
> So, I do think LDN can be helpful, but it is a med to approach with
> caution in our kids.
>
> Suzanne
>
> --- In foodallergyautism@yahoogroups.com, "Christel King"
> <christelking1@...> wrote:
>>
>> our DAN has us (as also recommended by the ELISA company) 1 day on
> 3 days off for rotation. you can do this even with few foods. at
> one point we ONLY had 4 foods, we now have added in a ton of things
> and have healed the gut. LDN did wonders for this if you haven't
> read up on this as well. we got to add in 22 foods with LDN use
> after 2 months with out reaction IGG or IGE as before. we added
> those things back in and retested and he was cleared of those
> foods. I would not recommend eating anything day after day as all
> that does is sky rocket the antibodies. that is why the 1 day on 3
> day break is recommended to calm the immune systsm and allow for
> rest. it's better if you know your kid takes a while to clear
> things to do a 5 day rotation but NEVER repeat day after day or you
> creat NEW allergies
>> ----- Original Message -----
>> From: szmidford@...
>> To: foodallergyautism@yahoogroups.com
>> Sent: Wednesday, May 23, 2007 4:05 PM
>> Subject: Re: [foodallergyautism] Was: Kinesiology/NAET - Now
> Rotation diet Suzanne
>>
>>
>>
>> Well, rotating with so few foods is really tough but that's
> essentially the same thing we did though with more foods. Our
> rotation was really strict: 2 days on and 5 off every single food.
> Most doctors will tell you to rotate 3 days on and 3 days off, to
> give the body a break from each food, based on normal stool transit
> time of 3 days. However, Tom's stool transit time can be 4 days, and
> I wanted to be very conservative. You might not be able to be that
> conservative though with so few foods.
>>
>>
>>
>> One thought I have is that you could put more foods into each
> rotation and do a 3 days on and 3 days off, and have just 2 food
> sets. She'd still get a break from each food, but she wouldn't be so
> drastically limited to just a few foods on each rotation.
>>
>>
>>
>> Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every
> food for every meal)
>>
>> Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food
> for every meal)
>>
>>
>> I put the squash with the broccoli to help with calories, and
> the lamb with the green beans sicne the lamb is fatty, so it's high
> calorie. Both rotations have a puree so she can take her meds.
>>
>>
>>
>> You are in the same boat as we are with regard to veggies and
> fruits. Tom always tolerated meats better than vegs & fruits, he has
> always had at least 5 meats to work with, so getting enough protein
> wasn't a problem. I share your concern with limiting to meats, it
> stresses the liver. We also decided to give Tom some foods that were
> lower-allergen because the allergy symptoms were tolerable (we were
> able to manage his eczema with topical creams) and it seemed the
> best balance with trying to get him reasonable nutrition. We could
> not have done that however if he was anaphylactic or had strong
> behavioral or GI symptoms like diarrhea.
>>
>>
>>
>> You might want to try pureeing green beans and butternut squash -
> it's pretty easy to do though it takes a little time. Pureeing
> your own vegs might also give you access to some foods you may not
> have tried, like turnips and rutabagas and celery root, which have
> all become calorie staples for us (it's possible to puree almost
> ANYTHING!) Rutabagas and celeriac are SCD legal but fibrous (even
> when pureed) so if her digestion is sensitive she could have
> problems with these but Tom never did. Turnips used to be SCD legal
> and I view them as legitimate if the child tolerates them. The
> problem is that they're fibrous, not that they're starchy. With all
> root vegs, if you're trying to avoid monosaccharides and
> polysaccharides because of a yeast problem (which is what SCD solves
> for), it's best to avoid the roots that are large, soft and old
> where the sugars have turned to starch. Young, small, firm roots are
> best. Now, all this said, turnips and rutabagas are "goitrogen s"
> which can afffect the thyroid if eaten in large amounts, so go easy
> on them. Some other foods that worked for us were beets and
> asparagus. Tom always seemed to handle cabbages and brussels
> sprouts okay too, and if Faith tolerates broccoli, she may do okay
> with them also. Just keep these on the same rotation as the broccoli
> so she gets a break from that entire food family when she's on the
> other rotation.
>>
>>
>>
>> Does Faith tolerate any juices, like Knudsen's "Just Juice"
> cranberry juice? I'd like to see her be able to
>>
>> add some fruits. Tom did well with these juices - they are not
> from concentrate and have no additives (listed or unlisted). We
> sweetened with stevia. Knuden's also has pomegranate, cherry,
> grape, blueberry in that line. Great source of antioxidants. He
> tolerates mango & papaya, which help with carbs & calories. We found
> two other juices he tolerates - Dynamic Health's papaya and mango
> puree, which we add water to (about 50:50).
>>
>>
>>
>> The advantage of rotating is that you will lower the risk of
> losing more foods. The disadvantage of course is more reliance on
> getting calories from just a small set of foods at one time. We
> always had at least one meat, 2 veggies and 1 oil on each rotation,
> and we gave each of these at every meal to try and stay balanced. We
> long ago gave up any idea of having different foods at different
> meals and all his meals look pretty much identical: breakfast,
> morning snack, lunch, afternoon snack, and dinner are all the same:
> a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil
> (for calories) drizzled on the veggies. Plus iodized salt, of course
> (Real Salt or the WalMart dextrose-free house brand if you can find
> it). We give fruit when he wakes up and after school on an empty
> stomach (BED food-combining rules). Forget any notion
> of "breakfast" looking like what you and might have once thought
> that "breakfast" should look like. Those notions flew out th e
> window long ago and now we're just happy to have foods he can eat!
>>
>>
>>
>> I don't have any personal experience with NAET, but if you have
> any influence on the order of what foods your practitioner clears,
> I'd suggest focusing on nutritionally dense foods that would benefit
> Faith - and here I'd suggest foods that are low-allergen, high-
> calorie, high-nutrient, non-protein foods (since she already has 4
> meats, she's doing okay with protein sources). Avocado and coconut
> might be good choices for calories, and some anti-oxidant-rich
> fruits.
>>
>>
>>
>> Good luck - let us know how she does as you add foods.
>>
>> Suzanne
>>
>>
>>
>> -------------- Original message from "Wyndie" <mileski5@...>: -
> -------------
>>
>>
>> I'm so glad to hear Tom is able to have more foods now! Oh
> man, I
>> remember back in the BBC days you going through the fear of
> knowing
>> he was losing everything. I'm so happy he's making
> improvements.
>>
>> So as far as rotating, would it work if I feed her along these
> lines:
>> Day 1: venison, broccoli, green beans (every meal)
>> Day 2: same
>> Day 3: lamb, squash (every meal)
>> Day 4: same
>> Day 5: beef, broccoli, green beans (every meal)
>> Day 6: same
>> Day 7: chicken, squash (every meal)
>>
>> Is that what you did basically (different foods but same idea)
> or
>> was it a daily change? I have to always give green beans or
> squash
>> with every meal b/c those are the two foods I can get in baby
> food
>> form (organic) and mix her meds with. Poor little thing is
> quite
>> orange b/c of all the squash she eats.
>>
>> Thanks for helping me with this. I rotated foods with the
> older
>> kids but didn't know how to do it with such a limited diet for
> her.
>>
>> Wyndie
>>
>> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
>> >
>> > Hi Wyndie,
>> > I'm so sorry to hear Faith is reacting to her last foods. I
> hope
>> NAET gives her some relief - long enough to heal her gut a bit
> and
>> maybe bring in some new foods. I think it's terrific your
>> practitioner will barter!! The cost (and time commitment) of
> NAET
>> has always seemed prohibitive on top of the cost of HBOT, ABA,
> and
>> all our compounded meds and supplements, but I have always
> wanted to
>> try it.
>> > I wonder if you have ever tried rotating Faith's foods? It
> really
>> worked well for Tom, although it's quite hard with such a
> limited
>> food list. We didn't rotate with Tom til he was 3, and at that
>> point he didn't have very many foods left. Once we went SCD
> (which
>> took away his remaining grains - quinoa and buckwheat and
> milet), he
>> was down to just a few meats and ve ggies and oils - no fruits
> (and
>> we were too cautious to try nuts or seeds, or even foods in
> the
>> families he was already reacting to, like eggplant or green
> peppers,
>> because he developed new allergies so easily). We were very
> afraid
>> he'd lose all foods eventually. So we had 16 months of a very
>> restricted diet where he rotated food sets every 2 days (2
> days on
>> and 4 days off each food set), and each food set had only 2
> veggies
>> and 1 meat and 1 oil. We had to give him very large quantities
> of
>> those foods in order to get enough calories in him - he
> basically
>> ate 7 meals a day, all huge quantities of food. After about 8
> mon
>> > ths we introduced pure juices (Knudsen's Just Juice) of
> fruits he
>> had never developed allergies to - blueberry, cranberry,
>> pomegranate, and after 12 months we introduced some fruits
> he'd
>> never had before: papaya and mango, along with their juices.
> Still,
>> he'd never outgrown an allergy, and we were really ner vous
> about
>> introducing new foods because we viewed the list of foods he'd
> never
>> become allergic to as our "reserve" of foods that would have
> to last
>> a lifetime - assuming that once he became allergic to a food,
> it was
>> gone for good.
>> > The rotation idea worked though. He stopped developing new
>> allergies. He didn't lose any more foods once we began to
> rotate.
>> And finally, 2 months ago, at age 4.5, we challenged a few old
>> allergens - carrots and cauliflower - he passed!!! And, we
> began
>> even trialing some foods that we used to be very cautious
> about -
>> some seeds and nuts. So, we are cautiously optimistic that he
> may
>> be able to outgrow his allergies eventually - at least some of
> them.
>> He has failed a few challenges too (avocado, strawberry, kiwi,
> egg),
>> and his gut problems are still quite severe, but I'm starting
> to
>> have hope that we will be able to continue expanding his food
> list
>> gradually. Today I had a moment of Mother's Day enthusiasm and
>> popped a cherry tomato in his mouth and am watching for
> reactions as
>> I write.
>> > He's still quite toxic and has many health problems
> (hypothyroid,
>> seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.),
> so we
>> have a long road ahead. But we feel like there's a light at
> the end
>> of the tunnel for food allergies at least.
>> > Just thought I'd pass this along - in the food-allergy world
> I
>> have come to believe that the idea of rotating foods doesn't
> get
>> enough credit, and it's been a real lifesaver for us. I sure
> hope
>> NAET is for you, and I look forward to hearing how Faith does
> with
>> it. I bet you'll learn a lot about it, and I look forward to
> hearing
>> what you learn.
>> > Best of luck to you and your little girl,
>> > Suzanne
>> >
>> >
>>
>>
>>
>>
>>
>>
>>
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