----- Original Message -----

From: szmidford@...

To: foodallergyautism@yahoogroups.com

Sent: Wednesday, May 23, 2007 4:05 PM

Subject: Re: [foodallergyautism] Was: Kinesiology/NAET - Now Rotation diet Suzanne

Well, rotating with so few foods is really tough but that's essentially the same thing we did though with more foods. Our rotation was really strict: 2 days on and 5 off  every single food.  Most doctors will tell you to rotate 3 days on and 3 days off, to give the body a break from each food, based on normal stool transit time of 3 days. However, Tom's stool transit time can be 4 days, and I wanted to be very conservative.  You might not be able to be that conservative though with so few foods.

 

One thought I have is that you could put more foods into each rotation and do a 3 days on and 3 days off, and have just 2 food sets. She'd still get a break from each food, but she wouldn't be so drastically limited to just a few foods on each rotation.

 

Rotation 1 (days 1,2,3): venison/beef, broccoli, squash (every food for every meal)

Rotation 2 (days 4,5,6) :lamb/chicken, green beans (every food for every meal)

I put the squash with the broccoli to help with calories, and the lamb with the green beans sicne the lamb is fatty, so it's high calorie. Both rotations have a puree so she can take her meds.

 

You are in the same boat as we are with regard to veggies and fruits. Tom always tolerated meats better than vegs & fruits, he has always had at least 5 meats to work with, so getting enough protein wasn't a problem. I share your concern with limiting to meats, it stresses the liver. We also decided to give Tom some foods that were lower-allergen because the allergy symptoms were tolerable (we were able to manage his eczema with topical creams) and it seemed the best balance with trying to get him reasonable nutrition. We could not have done that however if he was anaphylactic or had strong behavioral or GI symptoms like diarrhea.

 

You might want to try pureeing green beans and butternut squash - it's pretty easy to do though it takes a little time.  Pureeing your own vegs might also give you access to some foods you may not have tried, like turnips and rutabagas and celery root, which have all become calorie staples for us (it's possible to puree almost ANYTHING!)  Rutabagas and celeriac are SCD legal but fibrous (even when pureed) so if her digestion is sensitive she could have problems with these but Tom never did.  Turnips used to be SCD legal and I view them as legitimate if the child tolerates them. The problem is that they're fibrous, not that they're starchy. With all root vegs, if you're trying to avoid monosaccharides and polysaccharides because of a yeast problem (which is what SCD solves for), it's best to avoid the roots that are large, soft and old where the sugars have turned to starch. Young, small, firm roots are best. Now, all this said, turnips and rutabagas are "goitrogen s" which can afffect the thyroid if eaten in large amounts, so go easy on them.  Some other foods that worked for us were beets and asparagus.  Tom always seemed to handle cabbages and brussels sprouts okay too, and if Faith tolerates broccoli, she may do okay with them also. Just keep these on the same rotation as the broccoli so she gets a break from that entire food family when she's on the other rotation.

 

Does Faith tolerate any juices, like Knudsen's "Just Juice" cranberry juice? I'd like to see her be able to

add some fruits. Tom did well with these juices - they are not from concentrate and have no additives (listed or unlisted).  We sweetened with stevia.  Knuden's also has pomegranate, cherry, grape, blueberry in that line. Great source of antioxidants. He tolerates mango & papaya, which help with carbs & calories. We found two other juices he tolerates - Dynamic Health's papaya and mango puree, which we add water to (about 50:50). 

 

The advantage of rotating is that you will lower the risk of losing more foods. The disadvantage of course is more reliance on getting calories from just a small set of foods at one time.  We always had at least one meat, 2 veggies and 1 oil on each rotation, and we gave each of these at every meal to try and stay balanced. We long ago gave up any idea of having different foods at different meals and all his meals look pretty much identical: breakfast, morning snack, lunch, afternoon snack, and dinner are all the same: a 3 part food dish with 3 foods - 2 veggies and 1 meat, with oil (for calories) drizzled on the veggies. Plus iodized salt, of course (Real Salt or the WalMart dextrose-free house brand if you can find it). We give fruit when he wakes up and after school on an empty stomach (BED food-combining rules).   Forget any notion of "breakfast" looking like what you and might have once thought that "breakfast" should look like. Those notions flew out th e window long ago and now we're just happy to have foods he can eat!

 

I don't have any personal experience with NAET, but if you have any influence on the order of what foods your practitioner clears, I'd suggest focusing on nutritionally dense foods that would benefit Faith - and here I'd suggest foods that are low-allergen, high-calorie, high-nutrient, non-protein foods (since she already has 4 meats, she's doing okay with protein sources). Avocado and coconut might be good choices for calories, and some anti-oxidant-rich fruits.

 

Good luck - let us know how she does as you add foods.

Suzanne

 

-------------- Original message from "Wyndie" <mileski5@bellsouth.net>: --------------

I'm so glad to hear Tom is able to have more foods now! Oh man, I
remember back in the BBC days you going through the fear of knowing
he was losing everything. I'm so happy he's making improvements.

So as far as rotating, would it work if I feed her along these lines:
Day 1: venison, broccoli, green beans (every meal)
Day 2: same
Day 3: lamb, squash (every meal)
Day 4: same
Day 5: beef, broccoli, green beans (every meal)
Day 6: same
Day 7: chicken, squash (every meal)

Is that what you did basically (different foods but same idea) or
was it a daily change? I have to always give green beans or squash
with every meal b/c those are the two foods I can get in baby food
form (organic) and mix her meds with. Poor little thing is quite
orange b/c of all the squash she eats.

Thanks for helping me with this. I rotated foods with the older
kids but didn't know how to do it with such a limited diet for her.

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Hi Wyndie,
> I'm so sorry to hear Faith is reacting to her last foods. I hope
NAET gives her some relief - long enough to heal her gut a bit and
maybe bring in some new foods. I think it's terrific your
practitioner will barter!! The cost (and time commitment) of NAET
has always seemed prohibitive on top of the cost of HBOT, ABA, and
all our compounded meds and supplements, but I have always wanted to
try it.
> I wonder if you have ever tried rotating Faith's foods? It really
worked well for Tom, although it's quite hard with such a limited
food list. We didn't rotate with Tom til he was 3, and at that
point he didn't have very many foods left. Once we went SCD (which
took away his remaining grains - quinoa and buckwheat and milet), he
was down to just a few meats and ve ggies and oils - no fruits (and
we were too cautious to try nuts or seeds, or even foods in the
families he was already reacting to, like eggplant or green peppers,
because he developed new allergies so easily). We were very afraid
he'd lose all foods eventually. So we had 16 months of a very
restricted diet where he rotated food sets every 2 days (2 days on
and 4 days off each food set), and each food set had only 2 veggies
and 1 meat and 1 oil. We had to give him very large quantities of
those foods in order to get enough calories in him - he basically
ate 7 meals a day, all huge quantities of food. After about 8 mon
> ths we introduced pure juices (Knudsen's Just Juice) of fruits he
had never developed allergies to - blueberry, cranberry,
pomegranate, and after 12 months we introduced some fruits he'd
never had before: papaya and mango, along with their juices. Still,
he'd never outgrown an allergy, and we were really ner vous about
introducing new foods because we viewed the list of foods he'd never
become allergic to as our "reserve" of foods that would have to last
a lifetime - assuming that once he became allergic to a food, it was
gone for good.
> The rotation idea worked though. He stopped developing new
allergies. He didn't lose any more foods once we began to rotate.
And finally, 2 months ago, at age 4.5, we challenged a few old
allergens - carrots and cauliflower - he passed!!! And, we began
even trialing some foods that we used to be very cautious about -
some seeds and nuts. So, we are cautiously optimistic that he may
be able to outgrow his allergies eventually - at least some of them.
He has failed a few challenges too (avocado, strawberry, kiwi, egg),
and his gut problems are still quite severe, but I'm starting to
have hope that we will be able to continue expanding his food list
gradually. Today I had a moment of Mother's Day enthusiasm and
popped a cherry tomato in his mouth and am watching for reactions as
I write.
> He's still quite toxic and has many health problems (hypothyroid,
seizures, hypooxaluria, LNH, gastritis, asthma, etc., etc.), so we
have a long road ahead. But we feel like there's a light at the end
of the tunnel for food allergies at least.
> Just thought I'd pass this along - in the food-allergy world I
have come to believe that the idea of rotating foods doesn't get
enough credit, and it's been a real lifesaver for us. I sure hope
NAET is for you, and I look forward to hearing how Faith does with
it. I bet you'll learn a lot about it, and I look forward to hearing
what you learn.
> Best of luck to you and your little girl,
> Suzanne
>
>

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