Samuel (twin B) can do some signs, says a few words and is mimicking.
Steven (twin A) is mouthing objects (Sam does not), his eye contact
has improved immensley (Sam's eye contact has remained real good),
and both are less stimmy. But still stim. They are still pooping what
they eat. If they have beets then their stools are red. If they have
spinach, then their stools are green. And so on. From time to time
their stools will be rancid though not as often as they use to.
Mainly when I do antifungals. By the way, since they have not had
rice since Monday their noses started looking normal last
night/today. No green crusties and they are not congested. I am so
angered by people who have NO knowledge of food allergies. What
allergy testing did you do for your son, if any? Thanks so much for
all of your help and patience. Michelle




--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> All the symptoms you mention can be from IgE allergies. The loose
stools, raw bottoms and vomiting could also be from IgG allergies.
Goat milk is not a good idea for people with cow milk allergies; the
proteins are nearly identical to cow milk, and 95-98% of people who
are allergic to cow milk are also allergic to goat milk. Most
doctors who are knowledgeable don't recommend soy formula or soy milk
to cow milk allergic babies since 65% of babies with a milk allergy
also have a soy allergy.
>
> > How about Kefir? And Coconut milk?
> Coconut is not a bad substitute, it's high in good fats. However,
it's not particularly low-allergen to kids who tend towards lots of
allergies. What kind of kefir did you have in mind? Coconut kefir?
You should avoid milk kefir or any milk products.
>
> >This makes no sense whatsoever? Our one twin that is worse than
the
> other according to the Organic Acids is doing much better than the
> other.
>
> He's "doing better" in what way? Allergies? ASD symptoms? Could be
he's compensating well. Or his immune system is overactive and he's
not showing symptoms but he could eventually burn out his immune
system. Lots of things could be going on. If you could be specific
I'll try and puzzle it out.
>
> Suzanne
>
>
>
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> What do you look for as far as allergies? We see green crusty
noses,
> runny noses and loose stools. On milk, it was raw heinies and soy
was
> vommiting. I have heard some children can tolerate goat's milk?
Have
> you tried goat's milk? How about Kefir? And Coconut milk? What
> antifungal is good to treat arabinos?
>
> This makes no sense whatsoever? Our one twin that is worse than the
> other according to the Organic Acids is doing much better than the
> other. Though the other has malabsorption according to the Organic
> Acids.
>
> Is there anyone on this list that is familiar with the Organic
Acids
> that I could call? Jenny, I have your number somewhere I just have
to
> find it. Thanks so much. Michelle
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
> >
> > > No, the only testing we have done has been the Organic Acids ...
> >
> > Most Organic Acids tests will tell you which yeast strains are
> present in excess. It your lab doesn't spell it out, see if your
DAN
> can guide you on this. Some labs give more info than others. You
can
> also call the lab for guidance on interpreting the results and
> hopefully information on which meds and natural remedies are
> effective/resistant to that strain.
> >
> > Your OT sounds ... um, less than helpful at best, dangerous at
> worst. He can't force you to feed your child something he's
allergic
> to, with or without a doctor's note. A parent's observed food
> reactions SHOULD be proof enough to avoid the food. That is
> sufficient for our allergist to diagnose my son's food allergies.
> Under about age 5, the gold standard for diagnosing food allergies
is
> the introduction of a food and observation of the response, and a
> parent's report should suffice. A food diary (to show the
allergist
> you've been a careful observer) is helpful here. Allergy tests are
> often inaccurate - the younger the child the more inaccurate
testing
> will be. If this OT requires proof, hopefully the Elisa test will
> suffice. But I would not give rice just because the OT says so. He
is
> not an allergist or even an MD (and most MDs) are clueless about
> allergies. Even allergists are often ill-informed about food
> allergies and childrens' food allergies. If necessary, get a note
> from
> > your DAN, but I'd first just try pushing back on the OT- no
> therapist should force a child to eat something that makes him
sick.
> Simply tell him that your doctor recommends completely avoiding the
> child's allergens (this includes rice flour, rice starch, rice
bran,
> rice oil, etc. in supplements too), period, and you will not over-
> ride the doctor's instructions.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> milk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > Were you using commercial nut milks, or home-made? This sounds
like
> potential allergies. Allergic children should avoid all nuts and
> seeds until at least age 5, and then introduce them cautiously and
> only if the gut is healthy and the other allergies are not
worsening.
> This is a problem with the SCD - many of oiur allergic kids need to
> do a nut-free, egg-free, dairy-free SCD - these foods are top-8
> allergens that are very risky for our kids. You can do a pretty
> nutritious and safe SCD without eggs, nuts, or milk.
> >
> > > Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > He tolerates lamb, buffalo, and elk, and has a low allergy to
grass-
> fed organic beef, which we give him one day a week. We've also
> started giving him salmon one meal a week, and he seems to be doing
> okay (he tested positive to almost al the other fish, so this is a
> risk and why we only give it to him occasionally). He also
tolerates
> ostrich and venison, but we avoid venison b/c of deer-wasting
disease
> and ostrich is just expensive. We hold those meats in reserve in
case
> he becomes allergic in the future to one of his staple meats. He
also
> tolerates beets, brussel sprouts, celery root and spinach. He has a
> low allergy to squash/pumpkin, zucchini, broccoli, and asparagus,
and
> he eats one of these daily. He tolerates pure cranberry juice. He
> tolerates safflower oil, sunflower oil, palm oil and has a mild
> canola oil allergy, so we rotate these as well. He also tolerates
> pure sea salt and stevia, and glycerine and peppermint flavoring in
> his compounded meds. That's pretty much the li
> > st of what he can safely eat!
> > Suzanne
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Please see below as I answered under your questions and I have
even
> > more questions...thanks so much as you have helped immensley.
> >
> > --------------------------------------------
> >
> > ** Forgive me if I asked this already - has your DAN had you get
an
> > OAT or a CDSA to determine what yeast strains the boys have?
> >
> > > No, the only testing we have done has been the Organic Acids
and
> > some IgG bloodwork to determine a wheat, soy, corn and milk
allergy
> > which all came back high. We will be doing the SAGE Elisa food
> > allergy testing within the next week. We do know however that
rice,
> > quinoa and white potato are also problematic in that that they
wind
> > up having green crusty noses and loose stools.
> >
> > *Nystatin and diflucan are both effective against the same
strains
> of
> > yeast, but are both also ineffective against the same strains of
> > yeast. The fact that neither has worked suggests that they have a
> > strain that does not respond to these meds. There are other meds
> that
> > are effective against different strains - ketoconazole, sporanox,
> for
> > example. I hate to think of you spending time and money on the
> wrong
> > meds. We have seen two DANs - one tends to test and target
> > accurately, the other just prescribes Diflucan and Nystatin for
> > everything, and we were making no progress with that approach.
> >
> > > We will be doing the S. Boulardis to see if that works.
> >
> > ** Have you considered feeding therapy for the boys feeding
> problems?
> > We have been in a great behavioral feeding program for my son
since
> > age 14 months, and he can now eat anything at all! This is good,
> > since he only tolerates a few meats and vegetables and oils (no
> > grains, legumes, etc.), so his meals consist of things like
beets,
> > spinach and brussels sprouts. He eats them just fine! Our feeding
> > program is world-renowned and they do terrific work with the
> feeding
> > selectivity that autistic kids have.
> >
> > > May I ask what feeding clinic? Our twins were evaluated by the
> Mt.
> > Washington Pediatric Hospital here in Maryland and they gave us
> some
> > reccomendations to do here at home. Kennedy Krieger had a very
> > legnthy waiting list. Our OT is extremely unfamilar with food
> > allergies and pushed for the addition of rice back into the diet
> and
> > now we are back to crusty green noses and loose stools. He still
> does
> > not beleive that it was caused by adding rice back inot their
diet.
> > Mind you, they have only been off rice for a couple months. He
also
> > wanted to see something on paper from a medical doctor regarding
> > their rice allergies.
> >
> > ** Have you looked into the SCD diet for your boys? Multiple
> > allergies and yeast problems are usually symptoms of severe leaky
> > gut, and feeding grains, starches and sugars will worsen this. My
> son
> > was GFCF (plus avoiding his allergens) for 3 years, and we fed
him
> > lots of thickened sweet drinks (for the feeding problems) and
> starchy
> > grains (like rice, millet and quinoa), and he ended up with a
much
> > more severe yeast problem and much worse allergies. Now at three
> and
> > a half, he can only tolerate 8 vegetables and 4 meats, and we're
> > trying really hard to fix his leaky gut with diet and very strong
> > antifungals. The reason I'm mentioning it to you is that I wish
> we'd
> > known sooner about the problems with starches and sugars, so we
> could
> > have resolved the problem rather than made it worse.
> >
> > > The only problem with the SCD is the nuts. We had tried Almond
> milk
> > and Hazelnut milk at one point and they had reactions to both.
Gas
> > and loose stools again.
> >
> > > At this point, the only veggies our guys to seem to do well on
> are
> > carrots, sweet potato, green beans, peas, red beets, butternut
> squash
> > and spinach. Meats are chicken?, pork, beef, turkey, veal and
lamb.
> > We have never introduced eggs. Considering they recieved 2 flu
vax
> 27
> > days apart at 6.5 months and just shy of 7.5 months, we are
afraid
> to
> > introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> > your son do well on?
> >
> > ** Just a thought. I know how scary it is to think of limiting a
> > child's diet further when he already must omit so many foods due
to
> > allergies, but too often this ends up with the child eating too
> many
> > of the starchy foods that make their gut problems worse.
> > > Suzanne
> > >
> > > -------------- Original message from "momtotwinsnmore"
> > <gillespies62599@>: --------------
> > >
> > > Yes, our kids have lots of GI issues. We are still fighting
yeast
> > > which does not seem to be going away. They have been on
Nystatin
> > and
> > > nothing. They have been on Diflucan and nothing. Now we are
going
> > to
> > > try the S. Boulardis. Hopefully we will see something as far as
> > > cleaning up the gut. Sam, twin B, is making good progress as
far
> as
> > > mimicking, signing, and words. Though he is a bit inconsistent.
> > > Stevie, twin A, is making progress as far as great eye contact
> and
> > > mouthing once again. They have so many food allergies due to
gut
> > > issues which has become more than frustrating. Hope to see more
> > > action here as well. This seems like a great group. Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
> wrote:
> > > >
> > > > Michelle,
> > > > do your kids have gastrointestinal issues too? Diarrhea or
> > > > constipation?
> > > > I am happy to see your post. I don't think this board is
very
> > > active.
> > > > I hope some other parents answer your questions. I would
like
> to
> > > hear
> > > > answers to the same testing questions. thank you Rob's mom
> > > >
> > > > -----Original Message-----
> > > > From: foodallergyautism@yahoogroups.com
> > > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > > momtotwinsnmore
> > > > Sent: Thursday, May 18, 2006 9:08 PM
> > > > To: foodallergyautism@yahoogroups.com
> > > > Subject: [foodallergyautism] Introduction to our family
> > > >
> > > >
> > > > Hi, my name is Michelle. Our family is located in Baltimore
> > county,
> > > > Maryland. My hubby, Steve, is a police officer. We have
> his/hers
> > > and
> > > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
> and
> > > being
> > > > deployed to Iraq. Let's not go there as I am unhappy with her
> > > decision.
> > > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> > Ashley
> > > is
> > > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
> but
> > > great
> > > > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
> > multiple
> > > food
> > > > allergies and SID.
> > > >
> > > > Stevie and Sammy are on a rotation diet due to known
allergies
> to
> > > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> > going
> > > to
> > > > be doing the SAGE Elisa delayed food allergy testing soon.
Has
> > > anyone
> > > > had an experienced with delayed food allergy testing and the
> > Elisa
> > > in
> > > > particular? What company did you use? What was the outcome?
> Good,
> > > bad
> > > > or indifferent?
> > > >
> > > > By the way, our guys did not fair well on the Nutramigen
either
> > and
> > > we
> > > > think it was due to the corn syrup solids. We did some
> > preliminary
> > > > bloodwork regarding food allergies after discontinuing
> > Nutramigen.
> > > When
> > > > corn came up high, we contributed it to the Nutramingen as
> > nothing
> > > else
> > > > we used had corn. Our guys have food texture adversions and
eat
> > > ONLY
> > > > thick puried foods (Food Processor) all organic of course.
They
> > > also
> > > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is
there
> > > anything
> > > > else that is safe for drinking? Orange juice seems to contain
> too
> > > much
> > > > sugar and apple is out as we are also treating heavy yeast.
We
> > are
> > > > still working on gut issues. YUK!
> > > >
> > > > Our guys are on multiple vitamins/supplements. Both are
making
> > slow
> > > but
> > > > steady progress. I was hoping to connect with other parents
> > living
> > > with
> > > > children with multiple food allergies so that I may learn
from
> > > them. I
> > > > am glad to be among parents that understand.
> > > >
> > > > Michelle
> > > > www.babyhomepages.net/thegillespiefamily/
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > SPONSORED LINKS
> > > > Article
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Article+health+wellness&w1=Article+
> > > >
> > >
> >
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> > wellness
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> > > t=ms&k=Center+for+health+and+wellness&w1=A
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> > > ea
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for
> > > health
> > > > and wellness Health
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> > > el
> > > > lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> > >
> > > > Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness+program&w1=Arti
> > > >
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> > > wellness
> > > > program Health
> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+wellness+product&w1=Article+
> > > >
> > >
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> > > ss
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> > > product
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> > > > <http://groups.yahoo.com/gads?
> > > t=ms&k=Health+and+wellness+job&w1=Article+
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> wellness
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> > > >
> > > > _____
> > > >
> > > > YAHOO! GROUPS LINKS
> > > >
> > > >
> > > >
> > > > * Visit your group "foodallergyautism
> > > > <http://groups.yahoo.com/group/foodallergyautism> " on the
web.
> > > >
> > > >
> > > > * To unsubscribe from this group, send an email to:
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> > > > <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
> > > subject=Unsubscrib
> > > > e>
> > > >
> > > >
> > > > * Your use of Yahoo! Groups is subject to the Yahoo!
Terms
> of
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> > > >
> > > >
> > > > _____
> > > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > SPONSORED LINKS Article health wellness Center for health and
> > wellness Health and wellness
> > > Health and wellness program Health wellness product Health and
> > wellness job
> > >
> > >
> > >
> > > YAHOO! GROUPS LINKS
> > >
> > > Visit your group "foodallergyautism" on the web.
> > >
> > > To unsubscribe from this group, send an email to:
> > > foodallergyautism-unsubscribe@yahoogroups.com
> > >
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> >
> >
> > SPONSORED LINKS Article health wellness Center for health and
> wellness Health and wellness
> > Health and wellness program Health wellness product Health and
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> >
> >
> >
> > YAHOO! GROUPS LINKS
> >
> > Visit your group "foodallergyautism" on the web.
> >
> > To unsubscribe from this group, send an email to:
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> >
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>
>
>
>
> SPONSORED LINKS Article health wellness Center for health and
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wellness job
>
>
>
> YAHOO! GROUPS LINKS
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>
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