All the symptoms you mention can be from IgE allergies. The loose stools, raw bottoms and vomiting could also be from IgG allergies. Goat milk is not a good idea for people with cow milk allergies; the proteins are nearly identical to cow milk, and 95-98% of people who are allergic to cow milk are also allergic to goat milk.  Most doctors who are knowledgeable don't recommend soy formula or soy milk to cow milk allergic babies since 65% of babies with a milk allergy also have a soy allergy.

> How about Kefir? And Coconut milk?

Coconut is not a bad substitute, it's high in good fats. However, it's not particularly low-allergen to kids who tend towards lots of allergies. What kind of kefir did you have in mind? Coconut kefir? You should avoid milk kefir or any milk products.

>This makes no sense whatsoever? Our one twin that is worse than the
other according to the Organic Acids is doing much better than the
other.

He's "doing better" in what way? Allergies? ASD symptoms?  Could be he's compensating well. Or his immune system is overactive and he's not showing symptoms but he could eventually burn out his immune system. Lots of things could be going on.  If you could be specific I'll try and puzzle it out.

Suzanne

 

 

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

What do you look for as far as allergies? We see green crusty noses,
runny noses and loose stools. On milk, it was raw heinies and soy was
vommiting. I have heard some children can tolerate goat's milk? Have
you tried goat's milk? How about Kefir? And Coconut milk? What
antifungal is good to treat arabinos?

This makes no sense whatsoever? Our one twin that is worse than the
other according to the Organic Acids is doing much better than the
other. Though the other has malabsorption according to the Organic
Acids.

Is there anyone on this list that is familiar with the Organic Acids
that I could call? Jenny, I have your number somewhere I just have to
find it. Thanks so much. Michelle





--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> > No, the only testing we have done has been the Organic Acids ...
>
> Most Organic Acids tests will tell you which yeast strains are
present in excess. It your lab doesn't spell it out, see if your DAN
can guide you on this. Some labs give more info than others. You can
also call the lab for guidance on interpreting the results and
hopefully information on which meds and natural remedies are
effective/resistant to that strain.
>
> Your OT sounds ... um, less than helpful at best, dangerous at
worst.  He can't force you to feed your child something he's allergic
to, with or without a doctor's note. A parent's observed food
reactions SHOULD be proof enough to avoid the food. That is
sufficient for our allergist to diagnose my son's food allergies.
Under about age 5, the gold standard for diagnosing food allergies is
the introduction of a food and observation of the response, and a
parent's report should suffice.  A food diary (to sho w the allergist
you've been a careful observer) is helpful here.  Allergy tests are
often inaccurate - the younger the child the more inaccurate testing
will be. If this OT requires proof, hopefully the Elisa test will
suffice. But I would not give rice just because the OT says so. He is
not an allergist or even an MD (and most MDs) are clueless about
allergies. Even allergists are often ill-informed about food
allergies and childrens' food allergies. If necessary, get  a note
from
>  your DAN, but I'd first just try pushing back on the OT- no
therapist should force a child to eat something that makes him sick.
Simply tell him that your doctor recommends completely avoiding the
child's allergens (this includes rice flour, rice starch, rice bran,
rice oil, etc. in supplements too), period, and you will not over-
ride the doctor's instructions.
>
> > The only problem with the SCD is the nuts. We h ad tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> Were you using commercial nut milks, or home-made? This sounds like
potential allergies. Allergic children should avoid all nuts and
seeds until at least age 5, and then introduce them cautiously and
only if the gut is healthy and the other allergies are not worsening.
This is a problem with the SCD - many of oiur allergic kids need to
do a nut-free, egg-free, dairy-free SCD - these foods are top-8
allergens that are very risky for our kids. You can do a pretty
nutritious and safe SCD without eggs, nuts, or milk.
>
> > Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> He tolerates lamb, buffalo, and elk, and has a low allergy to grass-
fed organic beef, which we give him one day a week.  We've also
started giving him salmon one me al a week, and he seems to be doing
okay (he tested positive to almost al the other fish, so this is a
risk and why we only give it to him occasionally).  He also tolerates
ostrich and venison, but we avoid venison b/c of deer-wasting disease
and ostrich is just expensive. We hold those meats in reserve in case
he becomes allergic in the future to one of his staple meats. He also
tolerates beets, brussel sprouts, celery root and spinach. He has a
low allergy to squash/pumpkin, zucchini, broccoli, and asparagus, and
he eats one of these daily. He tolerates pure cranberry juice.  He
tolerates safflower oil, sunflower oil, palm oil and has a mild
canola oil allergy, so we rotate these as well. He also tolerates
pure sea salt and stevia, and glycerine and peppermint flavoring in
his compounded meds. That's pretty much the li
> st of what he can safely eat!
> Suzanne
> -------------- Original message from "momto twinsnmore"
<gillespies62599@...>: --------------
>
> Please see below as I answered under your questions and I have even
> more questions...thanks so much as you have helped immensley.
>
> --------------------------------------------
>
> ** Forgive me if I asked this already - has your DAN had you get an
> OAT or a CDSA to determine what yeast strains the boys have?
>
> > No, the only testing we have done has been the Organic Acids and
> some IgG bloodwork to determine a wheat, soy, corn and milk allergy
> which all came back high. We will be doing the SAGE Elisa food
> allergy testing within the next week. We do know however that rice,
> quinoa and white potato are also problematic in that that they wind
> up having green crusty noses and loose stools.
>
> *Nystatin and diflucan are both effective against the same strains
of
> yeast, but are both also ineffective against the same strains of
> yeast. The fact that neither has worked suggests that they have a
> strain that does not respond to these meds. There are other meds
that
> are effective against different strains - ketoconazole, sporanox,
for
> example. I hate to think of you spending time and money on the
wrong
> meds. We have seen two DANs - one tends to test and target
> accurately, the other just prescribes Diflucan and Nystatin for
> everything, and we were making no progress with that approach.
>
> > We will be doing the S. Boulardis to see if that works.
>
> ** Have you considered feeding therapy for the boys feeding
problems?
> We have been in a great behavioral feeding program for my son since
> age 14 months, and he can now eat anything at all! This is good,
> since he only tolerates a few meats and vegetables and oils (no
> grains, legumes, etc.), so his meals consist of things like beets,
> spinach and brussels sprouts. He eats them just fine! Our feeding
> program is world-renowned and they do terrific work with the
feeding
> selectivity that autistic kids have.
>
> > May I ask what feeding clinic? Our twins were evaluated by the
Mt.
> Washington Pediatric Hospital here in Maryland and they gave us
some
> reccomendations to do here at home. Kennedy Krieger had a very
> legnthy waiting list. Our OT is extremely unfamilar with food
> allergies and pushed for the addition of rice back into the diet
and
> now we are back to crusty green noses and loose stools. He still
does
> not beleive that it was caused by adding rice back inot their diet.
> Mind you, they have only been off rice for a couple months. He also
> wanted to see something on paper from a medical doctor regarding
> their rice all ergies.
>
> ** Have you looked into the SCD diet for your boys? Multiple
> allergies and yeast problems are usually symptoms of severe leaky
> gut, and feeding grains, starches and sugars will worsen this. My
son
> was GFCF (plus avoiding his allergens) for 3 years, and we fed him
> lots of thickened sweet drinks (for the feeding problems) and
starchy
> grains (like rice, millet and quinoa), and he ended up with a much
> more severe yeast problem and much worse allergies. Now at three
and
> a half, he can only tolerate 8 vegetables and 4 meats, and we're
> trying really hard to fix his leaky gut with diet and very strong
> antifungals. The reason I'm mentioning it to you is that I wish
we'd
> known sooner about the problems with starches and sugars, so we
could
> have resolved the problem rather than made it worse.
>
> > The only problem with the SCD is the nuts. We had tried Almond
milk
> and Hazelnut milk at one point and they had reactions to both. Gas
> and loose stools again.
>
> > At this point, the only veggies our guys to seem to do well on
are
> carrots, sweet potato, green beans, peas, red beets, butternut
squash
> and spinach. Meats are chicken?, pork, beef, turkey, veal and lamb.
> We have never introduced eggs. Considering they recieved 2 flu vax
27
> days apart at 6.5 months and just shy of 7.5 months, we are afraid
to
> introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
> your son do well on?
>
> ** Just a thought. I know how scary it is to think of limiting a
> child's diet further when he already must omit so many foods due to
> allergies, but too often this ends up with the child eating too
many
> of the starchy foods that make their gut problems worse.
> > Suzann e
> >
> > -------------- Original message from "momtotwinsnmore"
> <gillespies62599@>: --------------
> >
> > Yes, our kids have lots of GI issues. We are still fighting yeast
> > which does not seem to be going away. They have been on Nystatin
> and
> > nothing. They have been on Diflucan and nothing. Now we are going
> to
> > try the S. Boulardis. Hopefully we will see something as far as
> > cleaning up the gut. Sam, twin B, is making good progress as far
as
> > mimicking, signing, and words. Though he is a bit inconsistent.
> > Stevie, twin A, is making progress as far as great eye contact
and
> > mouthing once again. They have so many food allergies due to gut
> > issues which has become more than frustrating. Hope to see more
> > action here as well. This seems like a great group. Michelle
> > www.babyhome pages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@>
wrote:
> > >
> > > Michelle,
> > > do your kids have gastrointestinal issues too?  Diarrhea or
> > > constipation?
> > > I am happy to see your post.  I don't think this board is very
> > active.
> > > I hope some other parents answer your questions.  I would like
to
> > hear
> > > answers to the same testing questions.  thank you Rob's mom
> > >
> > > -----Original Message-----
> > > From: foodallergyautism@yahoogroups.com
> > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > momtotwinsnmore
> > > Sent: Thursday, May 18, 200 6 9:08 PM
> > > To: foodallergyautism@yahoogroups.com
> > > Subject: [foodallergyautism] Introduction to our family
> > >
> > >
> > > Hi, my name is Michelle. Our family is located in Baltimore
> county,
> > > Maryland. My hubby, Steve, is a police officer. We have
his/hers
> > and
> > > ours. My oldest, Amanda, is in the army. Stationed in Hawaii
and
> > being
> > > deployed to Iraq. Let's not go there as I am unhappy with her
> > decision.
> > > Ashley, 15, has a dx of PDD and is on the road to recovery.
> Ashley
> > is
> > > GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help
but
> > great
> > > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
> multiple
> > food
> > > allergies and SID.
> > >
> > > Stevie and Sammy are on a rotation diet due to known allergies
to
> > > wheat, milk, soy, corn, rice, quinoa and white potato. We are
> going
> > to
> > > be doing the SAGE Elisa delayed food allergy testing soon. Has
> > anyone
> > > had an experienced with delayed food allergy testing and the
> Elisa
> > in
> > > particular? What company did you use? What was the outcome?
Good,
> > bad
> > > or indifferent?
> > >
> > > By the way, our guys did not fair well on the Nutramigen either
> and
> > we
> > > think it was due to the corn syrup solids. We did some
> preliminary
> > > bloodwork regarding food allergies after discontinuing
> Nutramigen.
> > When
> > > corn came up high, we contributed it to the Nutramingen as
> nothing
> > else
> > > we used had corn. Our guys have food texture adversions and eat
> > ONLY
> > > thick puried foods (Food Processor) all organic of course. They
> > also
> > > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> > anything
> > > else that is safe for drinking? Orange juice seems to contain
too
> > much
> > > sugar and apple is out as we are also treating heavy yeast. We
> are
> > > still working on gut issues. YUK!
> > >
> > > Our guys are on multiple vitamins/supplements. Both are making
> slow
> > but
> > > steady progress. I was hoping to connect with other parents
> living
> > with
> > > children with multiple food allergies so that I may learn from
> > them. I
> > > am glad to be among parents that understand.
> > ; >
> > > Michelle
> > > www.babyhomepages.net/thegillespiefamily/
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > SPONSORED LINKS
> > > Article
> > > <http://groups.yahoo.com/gads?
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> wellness
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rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
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> > health
> > > and wellness       Health
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> > el
> > > lness+job&c=6&s=1 81&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
> >      
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> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness+program&w1=Arti
> > >
> >
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cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
> > ll
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> > th
> > > +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
> > wellness
> > > program       Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+wellness+product&w1=Article+
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> >
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health+wellness&w2=Center+for +health+and+wellness&w3=Health+and+wellne
> > ss
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> >
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
> > nd
> > > +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
> > product
> > > Health
> > > <http://groups.yahoo.com/gads?
> > t=ms&k=Health+and+wellness+job&w1=Article+
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> >
>
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> > ss
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> > nd
> > > +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and
wellness
> > job      
> > >
> > > &nbs p; _____ 
> > >
> > > YAHOO! GROUPS LINKS
> > >
> > >
> > >      
> > > *      Visit your group "foodallergyautism
> > > <http://groups.yahoo.com/group/foodallergyautism> " on the web.
> > >  
> > >
> > > *      To unsubscribe from this group, send an email to:
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> > > e>
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> >
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> > SPONSORED LINKS Article health wellness Center for health and
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> > YAHOO! GROUPS LINKS
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> >  Visit your group "foodallergyautism" on the web.
> >  
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