> No, the only testing we have done has been the Organic Acids ...

Most Organic Acids tests will tell you which yeast strains are present in excess. It your lab doesn't spell it out, see if your DAN can guide you on this. Some labs give more info than others. You can also call the lab for guidance on interpreting the results and hopefully information on which meds and natural remedies are effective/resistant to that strain.

Your OT sounds ... um, less than helpful at best, dangerous at worst.  He can't force you to feed your child something he's allergic to, with or without a doctor's note. A parent's observed food reactions SHOULD be proof enough to avoid the food. That is sufficient for our allergist to diagnose my son's food allergies. Under about age 5, the gold standard for diagnosing food allergies is the introduction of a food and observation of the response, and a parent's report should suffice.  A food diary (to show the allergist you've been a careful observer) is helpful here.  Allergy tests are often inaccurate - the younger the child the more inaccurate testing will be. If this OT requires proof, hopefully the Elisa test will suffice. But I would not give rice just because the OT says so. He is not an allergist or even an MD (and most MDs) are clueless about allergies. Even allergists are often ill-informed about food allergies and childrens' food allergies. If nece ssary, get  a note from your DAN, but I'd first just try pushing back on the OT- no therapist should force a child to eat something that makes him sick. Simply tell him that your doctor recommends completely avoiding the child's allergens (this includes rice flour, rice starch, rice bran, rice oil, etc. in supplements too), period, and you will not over-ride the doctor's instructions.

> The only problem with the SCD is the nuts. We had tried Almond milk
and Hazelnut milk at one point and they had reactions to both. Gas
and loose stools again.

Were you using commercial nut milks, or home-made? This sounds like potential allergies. Allergic children should avoid all nuts and seeds until at least age 5, and then introduce them cautiously and only if the gut is healthy and the other allergies are not worsening. This is a problem with the SCD - many of oiur allergic kids need to do a nut-free, egg-free, dairy-free SCD - these foods are top-8 allergens that are very risky for our kids. You can do a pretty nutritious and safe SCD without eggs, nuts, or milk.

> Out of curiosity, what 8 veggies and 4 meats does
your son do well on?

He tolerates lamb, buffalo, and elk, and has a low allergy to grass-fed organic beef, which we give him one day a week.  We've also started giving him salmon one meal a week, and he seems to be doing okay (he tested positive to almost al the other fish, so this is a risk and why we only give it to him occasionally).  He also tolerates ostrich and venison, but we avoid venison b/c of deer-wasting disease and ostrich is just expensive. We hold those meats in reserve in case he becomes allergic in the future to one of his staple meats. He also tolerates beets, brussel sprouts, celery root and spinach. He has a low allergy to squash/pumpkin, zucchini, broccoli, and asparagus, and he eats one of these daily. He tolerates pure cranberry juice.  He tolerates safflower oil, sunflower oil, palm oil and has a mild canola oil allergy, so we rotate these as well. He also tolerates pure sea salt and stevia, and glycerine and peppermint flavoring in his compounded meds. Th at's pretty much the list of what he can safely eat!

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Please see below as I answered under your questions and I have even
more questions...thanks so much as you have helped immensley.

--------------------------------------------

** Forgive me if I asked this already - has your DAN had you get an
OAT or a CDSA to determine what yeast strains the boys have?

> No, the only testing we have done has been the Organic Acids and
some IgG bloodwork to determine a wheat, soy, corn and milk allergy
which all came back high. We will be doing the SAGE Elisa food
allergy testing within the next week. We do know however that rice,
quinoa and white potato are also problematic in that that they wind
up having green crusty noses and loose stools.

*Nystatin and diflucan are both effective against the same strains of
yeast, but are both also ineffective against the same strains o f
yeast. The fact that neither has worked suggests that they have a
strain that does not respond to these meds. There are other meds that
are effective against different strains - ketoconazole, sporanox, for
example. I hate to think of you spending time and money on the wrong
meds. We have seen two DANs - one tends to test and target
accurately, the other just prescribes Diflucan and Nystatin for
everything, and we were making no progress with that approach.

> We will be doing the S. Boulardis to see if that works.

** Have you considered feeding therapy for the boys feeding problems?
We have been in a great behavioral feeding program for my son since
age 14 months, and he can now eat anything at all! This is good,
since he only tolerates a few meats and vegetables and oils (no
grains, legumes, etc.), so his meals consist of things like beets,
spinach and brussels sprouts. He eats them just fine! Our feeding
progra m is world-renowned and they do terrific work with the feeding
selectivity that autistic kids have.

> May I ask what feeding clinic? Our twins were evaluated by the Mt.
Washington Pediatric Hospital here in Maryland and they gave us some
reccomendations to do here at home. Kennedy Krieger had a very
legnthy waiting list. Our OT is extremely unfamilar with food
allergies and pushed for the addition of rice back into the diet and
now we are back to crusty green noses and loose stools. He still does
not beleive that it was caused by adding rice back inot their diet.
Mind you, they have only been off rice for a couple months. He also
wanted to see something on paper from a medical doctor regarding
their rice allergies.

** Have you looked into the SCD diet for your boys? Multiple
allergies and yeast problems are usually symptoms of severe leaky
gut, and feeding grains, starches and sugars will worsen this. My son
was G FCF (plus avoiding his allergens) for 3 years, and we fed him
lots of thickened sweet drinks (for the feeding problems) and starchy
grains (like rice, millet and quinoa), and he ended up with a much
more severe yeast problem and much worse allergies. Now at three and
a half, he can only tolerate 8 vegetables and 4 meats, and we're
trying really hard to fix his leaky gut with diet and very strong
antifungals. The reason I'm mentioning it to you is that I wish we'd
known sooner about the problems with starches and sugars, so we could
have resolved the problem rather than made it worse.

> The only problem with the SCD is the nuts. We had tried Almond milk
and Hazelnut milk at one point and they had reactions to both. Gas
and loose stools again.

> At this point, the only veggies our guys to seem to do well on are
carrots, sweet potato, green beans, peas, red beets, butternut squash
and spinach. Meats are chicken?, por k, beef, turkey, veal and lamb.
We have never introduced eggs. Considering they recieved 2 flu vax 27
days apart at 6.5 months and just shy of 7.5 months, we are afraid to
introduce eggs. Out of curiosity, what 8 veggies and 4 meats does
your son do well on?

** Just a thought. I know how scary it is to think of limiting a
child's diet further when he already must omit so many foods due to
allergies, but too often this ends up with the child eating too many
of the starchy foods that make their gut problems worse.
> Suzanne
>
> -------------- Original message from "momtotwinsnmore"
<gillespies62599@...>: --------------
>
> Yes, our kids have lots of GI issues. We are still fighting yeast
> which does not seem to be going away. They have been on Nystatin
and
> nothing. They have been on Diflucan and nothing. Now we are going
to
> try the S. Boulardis. Hopefully we will see somet hing as far as
> cleaning up the gut. Sam, twin B, is making good progress as far as
> mimicking, signing, and words. Though he is a bit inconsistent.
> Stevie, twin A, is making progress as far as great eye contact and
> mouthing once again. They have so many food allergies due to gut
> issues which has become more than frustrating. Hope to see more
> action here as well. This seems like a great group. Michelle
> www.babyhomepages.net/thegillespiefamily/
>
>
>
>
>
>
>
>
>
>
> --- In foodallergyautism@yahoogroups.com, "E Sweet" <eswee@> wrote:
> >
> > Michelle,
> > do your kids have gastrointestinal issues too?  Diarrhea or
> > constipation?
> > I am happy to see your post.  I don't think this board is very
> active.
> > I hope some other parents answer your questions.  I would l ike to
> hear
> > answers to the same testing questions.  thank you Rob's mom
> >
> > -----Original Message-----
> > From: foodallergyautism@yahoogroups.com
> > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> momtotwinsnmore
> > Sent: Thursday, May 18, 2006 9:08 PM
> > To: foodallergyautism@yahoogroups.com
> > Subject: [foodallergyautism] Introduction to our family
> >
> >
> > Hi, my name is Michelle. Our family is located in Baltimore
county,
> > Maryland. My hubby, Steve, is a police officer. We have his/hers
> and
> > ours. My oldest, Amanda, is in the army. Stationed in Hawaii and
> being
> > deployed to Iraq. Let's not go there as I am unhappy with her
> decision.
> > Ashley, 15, has a dx of PDD and is on the road to recovery.
Ashley
> is
> > GFCF. Jesse James, 11 , dx of ADHD and ODD. He is a huge help but
> great
> > arguer. And our twins, Stevie and Sammy, 2, dx of autism,
multiple
> food
> > allergies and SID.
> >
> > Stevie and Sammy are on a rotation diet due to known allergies to
> > wheat, milk, soy, corn, rice, quinoa and white potato. We are
going
> to
> > be doing the SAGE Elisa delayed food allergy testing soon. Has
> anyone
> > had an experienced with delayed food allergy testing and the
Elisa
> in
> > particular? What company did you use? What was the outcome? Good,
> bad
> > or indifferent?
> >
> > By the way, our guys did not fair well on the Nutramigen either
and
> we
> > think it was due to the corn syrup solids. We did some
preliminary
> > bloodwork regarding food allergies after discontinuing
Nutramigen.
> When
> > corn came up high, we contributed it to the Nutramingen as
nothing
> else
> > we used had corn. Our guys have food texture adversions and eat
> ONLY
> > thick puried foods (Food Processor) all organic of course. They
> also
> > only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
> anything
> > else that is safe for drinking? Orange juice seems to contain too
> much
> > sugar and apple is out as we are also treating heavy yeast. We
are
> > still working on gut issues. YUK!
> >
> > Our guys are on multiple vitamins/supplements. Both are making
slow
> but
> > steady progress. I was hoping to connect with other parents
living
> with
> > children with multiple food allergies so that I may learn from
> them. I
> > am glad to be among parents that understand.
> >
> > Mic helle
> > www.babyhomepages.net/thegillespiefamily/
> >
> >
> >
> >
> >
> >
> >
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