We use a combination of elimination dieting and traditional allergy tests (skin prick tests are most accurate for us). That's what works for us. We've found that skin tests are accurate for my son - we use them mostly to confirm the sensitivities that we've already observed through elimination dieting, and to pinpoint sensitivities that we're unsure about.  My son has eczema (an IgE reaction) as his main symptom, but it's a delayed reaction, so he has to be on a set of foods for 2-3 days in order to determine his reactions.

It sounds like your son is having IgG reactions.  Have you tried elimination dieting and rotating foods to reduce his reactions?   To determine what a particular child is allergic to, you have to find an evaluation method that works for THAT child. I'm not a big fan of allergy testing (blood testing or skin testing), as it often gives false negatives and false positives. However, elimination dieting is difficult, and if the child has multiple allergies, it can be hard to get to a baseline combination of foods that he doesn't react to. Once you've done that, though, you simply introduce new foods one at a time to see if there is a reaction. If you can't find a set of non-reactive foods for a baseline, then  I'd suggest startingwith allergy testing. Again, my child is mostly IgE reactive, not IgG to most foods, and mainstream IgG testing can be expensive because insurance doesn't usually cover it.  Because my son has IgE allergies, we are able to use a tra ditional allergist, with the costs covered by insurance.  We haven't used the alternative lab allergy tests that are common in the DAN community, but maybe another listmate can suggest an affordable one.

I've spent several years facilitating an online support group for moms of allergic babies and toddlers, and I've worked with hundreds of moms and read a lot of research about allergies ... the traditional kind. I can tell you what I know about I know that some of the science that pertains to allergies doesn't seem to apply to autistic kids. I don't know any kids without autism who appear to have multiple food allergies caused by leaky gut.  The etiology and pattern of allergies (and here I'm talking about IgE allergies) that are caused by leaky gut is completely different from those of typical kids with allergies, but most of the traditional recommendations still pertain. For example, you should strictly avoid exposing the child to the allergic food in any form for a long period of time - 6 months or more - in order for the body to "forget" the reaction, to stop producing antibodies to the food, and give the child an opportunity to eventually outgrow the allergy. Conti nued exposure can lead to more severe reactions.

Your DAN is wrong about chicken - I know lots of kids with chicken allergies. It's possible to be allergic to almost anything. My son is allergic to all poultry, including chicken, duck, goose, and pheasant. It's likely in his case that the underlying sensitivity is to corn, since farm-raised poultry is usually corn-fed. My son is extremely sensitive to corn - he seems to tolerate grass-fed beef but not corn-fed beef. He doesn't tolerate pork, which is also typically corn-fed.

It's interesting to hear what you have to say about Krigsman. We have thought about seeing him, but he seems to rely heavily on prescription medications that my son can't tolerate. What you're describing bears that out. What did he find on your son's scope? What were his recommendations about your son's allergies?

-------------- Original message from "E Sweet" <eswee@...>: --------------

Suzanne

how did you finally figure out the meats and five vegetables that your son can tolerate,is ot allergic to?  Our history is much like yours but we are still having GI problems.  We're on the SCD a few months, Pentasa,prevaid and singulair.  We've been scoped by Krigsman.  Krigsman has not been much help. Krigsman often puts kids on a prescription digestive enzyme, Ultrase MT-12.  I don't know if it is scd legal.  Krigsman said the scd diet might help and we should try it out.  I cannot get my child's gi cleared up enough to tell when a food hurts him- he consistently still has symptoms although he has improved.    Wonder which meats and vegetables your child can tolerate?  Our Dan said that people are hardly ever allergic to chicken.  I am starting to wonder if my child might be- we are very allergic to eggs.  How did you figure out which ones yo ur child could tolerate?   what are they we eat lately the following lamb, pork, limited beef and chicken, avacado, kidney and navy beans, pork rinds fried, ripe bananas, limited pears, limited yellow delicious apples because are lowest oxalate, English peas.

 

please more of your thoughs.  thank you for your help

rob's mom

-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of szmidford@...
Sent: Sunday, May 21, 2006 3:34 PM
To: foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism] Re: Introduction to our family

Forgive me if I asked this already - has your DAN had you get an OAT or a CDSA to determine what yeast strains the boys have? Nystatin and diflucan are both effective against the same strains of yeast, but are both also ineffective against the same strains of yeast. The fact that neither has worked suggests that they have a strain that does not respond to these meds. There are other meds that are effective against different strains - ketoconazole, sporanox, for example. I hate to think of you spending time and money on the wrong meds. We have seen two DANs - one tends to test and target accurately, the other just prescribes Diflucan and Nystatin for everything, and we were making no progress with that approach.

 

Have you considered feeding therapy for the boys feeding problems? We have been in a great behavioral feeding program for my son since age 14 months, and he can now eat anything at all! This is good, since he only tolerates a few meats and vegetables and oils (no grains, legumes, etc.), so his meals consist of things like beets, spinach and brussels sprouts. He eats them just fine! Our feeding program is world-renowned and they do terrific work with the feeding selectivity that autistic kids have.

 

Have you looked into the SCD diet for your boys? Multiple allergies and yeast problems are usually symptoms of severe leaky gut, and feeding grains, starches and sugars will worsen this. My son was GFCF (plus avoiding his allergens) for 3 years, and we fed him lots of thickened sweet drinks (for the feeding problems) and starchy grains (like rice, millet and quinoa), and he ended up with a much more severe yeast problem and much worse allergies. Now at three and a half, he can only tolerate 8 vegetables and 4 meats, and we're trying really hard to fix his leaky gut with diet and very strong antifungals. The reason I'm mentioning it to you is that I wish we'd known sooner about the problems with starches and sugars, so we could have resolved the problem rather than made it worse.

 

Just a thought. I know how scary it is to think of limiting a child's diet further when he already must omit so many foods due to allergies, but too often this ends up with the child eating too many of the starchy foods that make their gut problems worse.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In fo! odall er gyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. S! ta tione d in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some! prelim inary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyh o! mepages .net/thegillespiefamily/
>
>
>
>
>
>
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