-----Original Message-----
From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of szmidford@...
Sent: Sunday, May 21, 2006 3:34 PM
To: foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism] Re: Introduction to our family

Forgive me if I asked this already - has your DAN had you get an OAT or a CDSA to determine what yeast strains the boys have? Nystatin and diflucan are both effective against the same strains of yeast, but are both also ineffective against the same strains of yeast. The fact that neither has worked suggests that they have a strain that does not respond to these meds. There are other meds that are effective against different strains - ketoconazole, sporanox, for example. I hate to think of you spending time and money on the wrong meds. We have seen two DANs - one tends to test and target accurately, the other just prescribes Diflucan and Nystatin for everything, and we were making no progress with that approach.

 

Have you considered feeding therapy for the boys feeding problems? We have been in a great behavioral feeding program for my son since age 14 months, and he can now eat anything at all! This is good, since he only tolerates a few meats and vegetables and oils (no grains, legumes, etc.), so his meals consist of things like beets, spinach and brussels sprouts. He eats them just fine! Our feeding program is world-renowned and they do terrific work with the feeding selectivity that autistic kids have.

 

Have you looked into the SCD diet for your boys? Multiple allergies and yeast problems are usually symptoms of severe leaky gut, and feeding grains, starches and sugars will worsen this. My son was GFCF (plus avoiding his allergens) for 3 years, and we fed him lots of thickened sweet drinks (for the feeding problems) and starchy grains (like rice, millet and quinoa), and he ended up with a much more severe yeast problem and much worse allergies. Now at three and a half, he can only tolerate 8 vegetables and 4 meats, and we're trying really hard to fix his leaky gut with diet and very strong antifungals. The reason I'm mentioning it to you is that I wish we'd known sooner about the problems with starches and sugars, so we could have resolved the problem rather than made it worse.

 

Just a thought. I know how scary it is to think of limiting a child's diet further when he already must omit so many foods due to allergies, but too often this ends up with the child eating too many of the starchy foods that make their gut problems worse.

Suzanne

-------------- Original message from "momtotwinsnmore" <gillespies62599@...>: --------------

Yes, our kids have lots of GI issues. We are still fighting yeast
which does not seem to be going away. They have been on Nystatin and
nothing. They have been on Diflucan and nothing. Now we are going to
try the S. Boulardis. Hopefully we will see something as far as
cleaning up the gut. Sam, twin B, is making good progress as far as
mimicking, signing, and words. Though he is a bit inconsistent.
Stevie, twin A, is making progress as far as great eye contact and
mouthing once again. They have so many food allergies due to gut
issues which has become more than frustrating. Hope to see more
action here as well. This seems like a great group. Michelle
www.babyhomepages.net/thegillespiefamily/










--- In fo! odaller gyautism@yahoogroups.com, "E Sweet" <eswee@...> wrote:
>
> Michelle,
> do your kids have gastrointestinal issues too?  Diarrhea or
> constipation?
> I am happy to see your post.  I don't think this board is very
active.
> I hope some other parents answer your questions.  I would like to
hear
> answers to the same testing questions.  thank you Rob's mom
>
> -----Original Message-----
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
momtotwinsnmore
> Sent: Thursday, May 18, 2006 9:08 PM
> To: foodallergyautism@yahoogroups.com
> Subject: [foodallergyautism] Introduction to our family
>
>
> Hi, my name is Michelle. Our family is located in Baltimore county,
> Maryland. My hubby, Steve, is a police officer. We have his/hers
and
> ours. My oldest, Amanda, is in the army. S! tatione d in Hawaii and
being
> deployed to Iraq. Let's not go there as I am unhappy with her
decision.
> Ashley, 15, has a dx of PDD and is on the road to recovery. Ashley
is
> GFCF. Jesse James, 11, dx of ADHD and ODD. He is a huge help but
great
> arguer. And our twins, Stevie and Sammy, 2, dx of autism, multiple
food
> allergies and SID.
>
> Stevie and Sammy are on a rotation diet due to known allergies to
> wheat, milk, soy, corn, rice, quinoa and white potato. We are going
to
> be doing the SAGE Elisa delayed food allergy testing soon. Has
anyone
> had an experienced with delayed food allergy testing and the Elisa
in
> particular? What company did you use? What was the outcome? Good,
bad
> or indifferent?
>
> By the way, our guys did not fair well on the Nutramigen either and
we
> think it was due to the corn syrup solids. We did some! prelim inary
> bloodwork regarding food allergies after discontinuing Nutramigen.
When
> corn came up high, we contributed it to the Nutramingen as nothing
else
> we used had corn. Our guys have food texture adversions and eat
ONLY
> thick puried foods (Food Processor) all organic of course. They
also
> only drink 6.5 oz bottled water to 1.5 oz pear juice. Is there
anything
> else that is safe for drinking? Orange juice seems to contain too
much
> sugar and apple is out as we are also treating heavy yeast. We are
> still working on gut issues. YUK!
>
> Our guys are on multiple vitamins/supplements. Both are making slow
but
> steady progress. I was hoping to connect with other parents living
with
> children with multiple food allergies so that I may learn from
them. I
> am glad to be among parents that understand.
>
> Michelle
> www.babyho! mepages .net/thegillespiefamily/
>
>
>
>
>
>
>
> SPONSORED LINKS
> Article
> <http://groups.yahoo.com/gads?
t=ms&k=Article+health+wellness&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=HFCK21385eiVKA-icsCXdg> health wellness
> Center
> <http://groups.yahoo.com/gads?
t=ms&k=Center+for+health+and+wellness&w1=A
>
rticle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and
+w
>
ellness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=H
ea
> lth+and+wellness+job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3! w> f or
health
> and wellness       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness&w1=Article+heal
>
th+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w
4=
>
Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+w
el
> lness+job&c=6&s=181&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg> and wellness
     
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+program&w1=Arti
>
cle+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+we
ll
>
ness&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Heal
th
> +and+wellness+job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g> and
wellness
>! progra m       Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+wellness+product&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=T568iKLktVX2LzTlHB8xxA> wellness
product
> Health
> <http://groups.yahoo.com/gads?
t=ms&k=Health+and+wellness+job&w1=Article+
>
health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellne
ss
>
&w4=Health+and+wellness+program&w5=Health+wellness+product&w6=Health+a
nd
> +wellness+job&c=6&s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w> and wellness
job      
>
>   ___! __  ;
>
> YAHOO! GROUPS LINKS
>
>
>      
> *      Visit your group "foodallergyautism
> <http://groups.yahoo.com/group/foodallergyautism> " on the web.
>  
>
> *      To unsubscribe from this group, send an email to:
>  foodallergyautism-unsubscribe@yahoogroups.com
> <mailto:foodallergyautism-unsubscribe@yahoogroups.com?
subject=Unsubscrib
> e>
>  
>
> *      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service <http://docs.yahoo.com/info/terms/> .
>
>
>   _____
>