Suzanne, That is great news about Tom! I am so happy
for you. Sounds like awsome progress. Could you give
a sampling of what his diet is like? Breakfast, lunch
dinner? Parker is in a slump. I feel like we need to
start over and get rid of all the supplements and just
do the B-6 and zinc and Intestimend like we did in the
beginning and he got a lot better doing that. We
start our Diflucan tomorrow and his diet isn't good.
Today he had a fruit smoothie and sushi rice and both
of those are horrible for him, but I feel like he is
sooooo way too restricted. I really want to give the
Diflucan the best chance at working to its highest
potential. I am really depressed that he is going to
have to buckle down and be so restricted. I am almost
wondering if I shouldn't yank him out of school and
homeschool the rest of the year. As his awareness has
increased he now realizes what the other kids are
eating- all things he wishes he could eat. This was
never a problem in preschool as he didn't have the
awareness. I want him to have crunchy snacks like the
other kids so I often end up sending him popcorn or
fritos for the afternoon snack. For lunch I send
either a salad or carrots, some olives, and some kind
of meat. All was well in the beginning of the year,
but now I am getting complete lunches uneaten coming
home! Not having a non-animal source of protein in
the diet makes things difficult. He's allergic to all
the seeds now too. It's just crazy.

I'm so torn on this formula thing. Chloe does so much
better on it. I would put him on it too, but I think
it is a yeast feeder and obviously isn't optimal as
the cost is ridiculous and it isn't real food. I
can't imagine it is good long term. I think it is
really messing up Chloe's blood sugar as well. I
guess diabetes is a risk factor with it, but now I
can't figure out how to get her off of it. She's a
mess even when she eats foods I think are safe like
veggies and meats.

In reguards to the zinc we rub a zinc cream on his
back every day in addition to what he gets in his
multivitamin, but I am wondering if we need to take a
separate zinc supplement. Is this what most people
do? What did Dr. Mumper suggest?

We are also still deciding on the DAN! conference. I
think it would be really bad to miss it, but we aren't
sure how to fit it in. We are travelling to Indiana
the end of March/beg. of April and will just be
getting back to NC and then turning around and going
up there. Not sure we can swing it with TJ's work,
but am going to try. It would be great if we could
meet up there!

Have a good week!

Jenny

--- szmidford@... wrote:

> We are going to try to go, taking turns so someone
> can stay home with Tom. My husband may have a
> commitment that weekend, so I'm not sure. I'll be
> sick if we have to miss it. Dr. Boris is going to be
> talking about hyper-allergic kids - the ones like
> ours who can only tolerate a few foods. I sure hope
> i can see that one.
>
> I saw Liz Mumper speak Friday night. Mostly on gut
> issues. One thing she stressed was the role of zinc
> in many cellular functions. According to one study,
> zinc "tightens the gut" of Crohn's patients and
> improves their leaky gut. She will also be one to
> see at the conference.
>
> I haven't posted much recently, we've been sick a
> lot, but Tom is doing awesomely on the Specific
> Carbohydrate Diet and targeted yeast treatment. We
> still aren't chelating, but focusing on the basics
> has brought tremendous improvement. He's mastering
> things in his ABA program that they've been
> struggling with for a year. He's truly becoming
> conversational and he even understands "silly"!
>
> Suzanne
>
>
> I am going to post
>
> -------------- Original message from "j_kalis"
> <j_kalis@...>: --------------
>
> I am just wondering if any of you will be going to
> the DAN!
> conference?
>
>
>
>
>
>
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