WOW - Holy organized!! ha ha ha And I thought I was organized. Luckily we get
a lot of our foods at one or two stores, plus we had a ton of organic meats
delivered to cover a six month period. Don't most veggies have to be blanched
to be frozen? How do you prepare them before freezing? I used to blend steamed
veggies and freeze those purees for adding to things. But now everything we eat
is mainly whole and basic, so little baking, so I don't need the purees so much.

I feel like I don't even know what our next step is. Something is causing a lot
of anxiety for our son and I can't tell if it's diet or the high levels of yeast
and bacteria we are dealing with. We had an OAT test done and his bacteria is
pretty high, yeast is high too. The natural remedies just aren't cutting it. I
know that his moods ALWAYS fluctuate with his yeast/bacteria treatments so I
tend to think it's related to the levels of his gut bugs. When I treat him, I
see changes in just about 15 min, but they don't always last. We have a DAN!
appointment in a few weeks and I am thinking we need something prescription
strength to get the levels down, then maintain them naturally. We are also
working on chelation slowly...sigh.

Now I am worrying about our little guy who is 11 months old. He always has the
red anal ring. When he was on antibiotics at the hospital, it went away, it
slowly returned with a vengence since then and I have been using OoO and OLE
with him, probably not consistently enough though. I get the impression he is
going to have the same issues as our older son. I am just beside myself with
all of this. How do I keep him from developing the food allergies and the leaky
gut and the high levels of gut bugs??? We try to rotate foods with him too, I
don't give him egg, dairy, wheat or soy, he takes CLO or vit D, alternating
days, biotin when he has the red ring, trace minerals that include selenium,
calcium magnesium citrate twice a day, probiotics at breakfast and bedtime and
since the antibiotics, I have been using double doses, plus we use OoO and OLE.
I'm not sure if this enough and if prevention is even an option, but I will do
my best to protect him from the same route.

Sorry, I ended up venting there. This has been a rough couple of weeks. I also
just found out that DH isn't going to be able to go to the DAN! appointment that
we have had scheduled for months and I really need his support, but it looks
like I will be going alone since we can't find someone to stay with our little
guy during nap time. I'm just not willing to drag him an hour away, force him
to miss a nap and have him in a doctor's office where potentially sick people
will be. I think I am officially in a woe-is-me phase.

Jessica

--- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@...> wrote:
>
> I've stopped writing our recipes down unfortunately, they change so often, but
they are very sumple. Mayo is boiled frozen cauliflower, tossed in a blender
with oil, salt, and either lime, lemon, rice or apple cider vinegar, plus you
could add some raw onion for zing.
>
> Sunflower pancakes is roast organic raw sunflower seeds in a slow oven til
golden, grind in a clean coffee grinder (not one you use for coffee), mix with
water, oil, and a touch of baking soda. At the end throw in just enough shredded
veggies that they won't fall apart, and then a bit of vinegar to make the baking
soda bubble. Roll into loose balls, adjust for texture and consistency, and fry
in a hot skillet, flatten with a spatula. They're fragile, so keep them small.
>
> We used to have to go to 4 or 5 grocery stores on the weekend to find all the
foods wed need for the week. Since we both work we could only do this weekends.
I think my kid spent his toddler years in a grocery cart, hah! Now that a big
Whole Foods opened near us, it's easier. We just make a trip to Kroger, a trip
to Whole Foods, and then about once a month to another store. We shop from a
list. My husband does Kroger, I do Walmart, and we take turns doing the other 2.
We sit down together and figure out what we need, we've got a big white board in
the kitchen with all the foods we eat regularly, and whatever we need for that
week gets a red circle beside it. When we unpack the groceries, we put a check
in the circle. After we're all unpacked we check to see what we didn't get, and
if we need something else for that week's cooking, we add a trip to another
store until we find it. Usually we know what to get at each store so there isn't
too much of that. We have 2 deep freezes and we always have an extra week's food
stored just in case it's out at the grocery, too. We shred and grind and chop a
lot of veggies in advance, and then freeze them, so we have extras on hand. I
keep a spreadsheet inventory of all the food in the freezer so I can search on
say, "shredded parsnips" and see how many bags we have. Every time we use a bag
of food we write down the number of that bag and delete it from the database.
>
> I had to get organized about it so we didn't end up with a lot of food lost in
the freezer. We've developed this system over years, it's always a work in
progress.
>
> We do give 3 foods for 3 days (used to be 2), and then stop for 4 (used to be
5). I'm pretty strict about that.
>
> Of course an ER trip can throw everything wacky, when Tom was in the ER for 3
days I stayed with him and dh cooked all our meals and brought them to us...lol,
I am a tough taskmaster, he knows how to cook everything now and we rotate
cooking nights too! I create all the recipes though.
>
> For a long time our diet was more restricted than it is now...I'm talking 3 or
4 foods including juice and oil for 2 days. No fowl, no legumes, no grains, no
eggs, just 3 meats (ostrich, lamb, buffalo), and a few veggies, and a few fruits
and a few oils. No coconut, no olive, no seeds... It took 3 years of being VERY
strict to get to this point. We earned back these foods slowly over time. It
pays off, but it might mean some time of lamb, zucchini, and squash for
breakfast, lunch, snack and dinner for months and months. This is what kids with
eosinophilic disorders do -most of them are on a liquid elemental diet with just
one or two or a few solid foods they can eat for a very long time. I know
teenagers who eat like this. It I tough but if these kids are in pain they're
usually cooperative with anything that helps stop the pain.
>
> Whatever it takes...just please do get the help of a good nutritionist if your
diet is getting very limited.
>
> Suzanne
>