Search the web
Sign In
New User? Sign Up
foodallergyautism · Food allergy autism
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Re: IgG/IgE test results - need help/Suzanne   Message List  
Reply | Forward Message #1570 of 1602 |
Rr: IgG/IgE test results - need help/Suzanne

They're mostly IgG, actually. Sorry if I wasn't clear. We just treated all IgG
and IgE the same and didn't blood test, so we didn't distinguish. His reactions
appear to be the same to both (eczema, then hives), and we determined them by
challlenge and elimination, which treats all allergies/intolerances the same.
That method always worked for us, we never did an IgG blood test paired with an
IgE blood test til he was 5.
The ones he's outgrown I presume are mostly IgG, but there's no way to be
certain.

Eosinophilic enteritis is determined by biopsies during a scope, although it can
be tricky. Jenny's son had a formal diagnosis at Cincinnati Children's hospital,
which is where the most is known about this disease, and she says the doctor has
to know where to take the biopsies, as eosinophilic cells tend to cluster and
hide. Krigsman biopsies for eos, but I don't know how experienced he is. He says
he usually finds some or a lot in ASD kids, probably depending on the severity
of the disease, which we might guess corellayes with the severity of the
intolerances. In Tom's case I always assumed he had a pretty bad case, which is
why I was so strict with foods all these years. I limited him to foods that gave
him no symptoms and after age 3, when he lost a lot of foods, I rotated
strictly. 3 years of that helped, as did enzymes, and now we're able to relax
the foods and the length of rotation. We'll see how it works. We may just end up
with more intolerances, but I'm optimistic.

Suzanne


--- In foodallergyautism@yahoogroups.com, Sarah Rogers <curlytatertot@...>
wrote:
>
> I didn't realize all Tom's allergies were IgE.  Wow, that is very cool that
you have been able to get several back into his diet in recent years!  I was too
concerned with calories before, but after losing so many foods and trying to
have longer rotations, I think it might be more difficult to get the calories
where they need to be (not that adequate calories have been helpful in his
growth/weight gain!). 
>
> Do you know how Eosinophilic enteritis is DX?  Do you know if they have to
scope to confirm that?  Sounds like something do need to explore, but given his
metabolic disorder, don't think scoping is an option. 
>
> --- On Tue, 6/2/09, Suzanne Midford <szmidford@...> wrote:
>
> From: Suzanne Midford <szmidford@...>
> Subject: Re: [foodallergyautism] Re: IgG/IgE test results - need help
> To: foodallergyautism@yahoogroups.com
> Date: Tuesday, June 2, 2009, 12:24 PM
>
>
>
>
> We don't know for sure, because we'd never done an  IgG test before, so we
weren't able to distinguish between IgG and IgE. However, that is the nature of
IgG intolerances, that the antibodies are more transient. After infancy and
early childhood, it is unusual to lose IgE allergies.
>  
> I don't know how long it took us to regain our foods. We avoided for a long
time - years.  Some foods we haven't regained yet, but most we did with strict
rotation.  Most doctors recommend challenging IgGs (or re-testing) between 6
months and a year. However, if you're unable to practice strict avoidance or at
least rotate, it is less likely you will outgrow the intolerances to the foods
that continue to be consumed, because the body will continue to produce
antibodies. However, in some cases you need to continue giving those foods while
avoiding others in order to have enough calories. If elemental formula can be
given to supplement calories, this might give you some breathing room with
calories and allow you to avoid some foods. I think learning about eosinophilic
enteritis might help you, I beleive it's what's going on in most ASD kids with
lots of allergies. This is what Krigsman says too.
>  
> I think that the typical guidance is to limit the higher allergen foods and
continue to give lower allergen foods where needed. Different tests have
different scoring systems (colors or numbers or ++). We focus these decisions on
choosing to give foods that have high caloric value.
>  
> Suzanne
>  
> -------------- Original message from Sarah Rogers <curlytatertot@...>:
--------------
>
>
>
>
>
>
>
> So the foods you gained back were IgG foods, not IgE foods?  How long did that
take?  I am pretty sure if I only stuck with the foods that were in the green, I
wouldn't have enough to give him enough calories and would quickly become
sensitive to those.  I have always done "free" days and loosely rotated, but I
think I need to get more serious out it. 
>
> As far as I can tell, they doesn't have any phenol problems, if they do, I
don't know that there are any foods left for them to eat. I did a phenol-free
trial a couple years back to see if it would help with hyperactivity, but didn't
seem to benefit at all.  Isaac has chronic low vit A, despite years of
supplementing, but he doesn't turn yellow.  However, if he has butternut or
winter squash more than two days in a row, his stools get yellow/orange and
loose. 
>
> So people are usually told to completely avoid all the foods in the yellow,
orange & red range and limit to the green?  :( If he is this reactive, make we
wonder what other things (seasonings, etc.) that he is reacting to that weren't
even tested for...
>
> --- On Mon, 6/1/09, Suzanne <szmidford@att. net> wrote:
>
>
> From: Suzanne <szmidford@att. net>
> Subject: [foodallergyautism] Re: IgG/IgE test results - need help
> To: foodallergyautism@ yahoogroups. com
> Date: Monday, June 1, 2009, 3:34 PM
>
>
>
>
> It's likelier that a person will outgrow an IgG reaction than an IgE
reaction,but it's no guarantee. My son has had some forever, including several
we're certain he never ate himself (but could have gotten cross-contaminated or
touched, or through my breastmilk or in utero. The tests aren't perfect,
either.We've had the best success with strict rotation of foods: 2 days on then
5 days off of every food he eats (and avoidance of the allergens), later we
relaxed to 3 days on and 4 days off. We've earned a lot of foods back that way,
but not all.
>
> With just a few foods to eat, you will probably need to include the lower
allergen ones to get a sufficient diet, unless he's getting that through his
EO28.
>
> There are a couple of reasons that I know of to avoid yellow/red/orange foods-
phenol intolerance (red ears and hyperactivity right after consuming), or
failure to convert beta carotene (yellowish tinge to the palms).
>
> Suzanne
>
> --- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...>
wrote:
> >
> > Hi everyone,
> >
> > I just received Food IgG results.  My DD's look okay (she is the one that is
in better health).  My son was reactive to a
> > ton of things, including highly reactive to many things that he hasn't
> > had in more than five years!  He is on a strict SCD/LOD diet so
> > everything I make for him is whole foods from scratch --I know there
> > haven't been any infractions.  He has had 4+ tonsils for many years and
> > has also been failing to thrive for the same amount of time.  How am I
> > to know which foods he is truly sensitive to if he is reacting to
> > things he doesn't even eat?  Are these tests reliable at all?  They also
both showed IgE to eggs.  Can IgE reactions ever be eliminated?  I am a little
overwhelmed about how to feed these guys when their diet is already so limited. 
I haven't talked w/ Dr. Usman yet, but did cosult w/ Pam @GPL.  She said since
DS is so reactive that I just have to try to stick to the lower ones.  Do they
normally tell you to avoid things in yellow or orange?  Any thoughts? 
Encouragement?  
> > Thanks.
> > Sarah
> >
>





Wed Jun 3, 2009 4:38 pm

iverus
Offline Offline
Send Email Send Email

Forward
Message #1570 of 1602 |
Expand Messages Author Sort by Date

I didn't realize all Tom's allergies were IgE.  Wow, that is very cool that you have been able to get several back into his diet in recent years!  I was too...
Sarah Rogers
curlytatertot
Offline Send Email
Jun 3, 2009
12:26 am

They're mostly IgG, actually. Sorry if I wasn't clear. We just treated all IgG and IgE the same and didn't blood test, so we didn't distinguish. His reactions...
Suzanne
iverus
Offline Send Email
Jun 3, 2009
7:19 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help