Search the web
Sign In
New User? Sign Up
foodallergyautism · Food allergy autism
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Re: IgG/IgE test results - need help/Suzanne   Message List  
Reply | Forward Message #1569 of 1602 |
I didn't realize all Tom's allergies were IgE.  Wow, that is very cool that you have been able to get several back into his diet in recent years!  I was too concerned with calories before, but after losing so many foods and trying to have longer rotations, I think it might be more difficult to get the calories where they need to be (not that adequate calories have been helpful in his growth/weight gain!). 

Do you know how Eosinophilic enteritis is DX?  Do you know if they have to scope to confirm that?  Sounds like something do need to explore, but given his metabolic disorder, don't think scoping is an option. 

--- On Tue, 6/2/09, Suzanne Midford <szmidford@...> wrote:

From: Suzanne Midford <szmidford@...>
Subject: Re: [foodallergyautism] Re: IgG/IgE test results - need help
To: foodallergyautism@yahoogroups.com
Date: Tuesday, June 2, 2009, 12:24 PM

We don't know for sure, because we'd never done an  IgG test before, so we weren't able to distinguish between IgG and IgE. However, that is the nature of IgG intolerances, that the antibodies are more transient. After infancy and early childhood, it is unusual to lose IgE allergies.
 
I don't know how long it took us to regain our foods. We avoided for a long time - years.  Some foods we haven't regained yet, but most we did with strict rotation.  Most doctors recommend challenging IgGs (or re-testing) between 6 months and a year. However, if you're unable to practice strict avoidance or at least rotate, it is less likely you will outgrow the intolerances to the foods that continue to be consumed, because the body will continue to produce antibodies. However, in some cases you need to continue giving those foods while avoiding others in order to have enough calories. If elemental formula can be given to supplement calories, this might give you some breathing room with calories and allow you to avoid some foods. I think learning about eosinophilic enteritis might help you, I beleive it's what's going on in most ASD kids with lots of allergies. This is what Krigsman says too.
 
I think that the typical guidance is to limit the higher allergen foods and continue to give lower allergen foods where needed. Different tests have different scoring systems (colors or numbers or ++). We focus these decisions on choosing to give foods that have high caloric value.
 
Suzanne
 
-------------- Original message from Sarah Rogers <curlytatertot@...>: --------------

So the foods you gained back were IgG foods, not IgE foods?  How long did that take?  I am pretty sure if I only stuck with the foods that were in the green, I wouldn't have enough to give him enough calories and would quickly become sensitive to those.  I have always done "free" days and loosely rotated, but I think I need to get more serious out it. 

As far as I can tell, they doesn't have any phenol problems, if they do, I don't know that there are any foods left for them to eat. I did a phenol-free trial a couple years back to see if it would help with hyperactivity, but didn't seem to benefit at all.  Isaac has chronic low vit A, despite years of supplementing, but he doesn't turn yellow.  However, if he has butternut or winter squash more than two days in a row, his stools get yellow/orange and loose. 

So people are usually told to completely avoid all the foods in the yellow, orange & red range and limit to the green?  :( If he is this reactive, make we wonder what other things (seasonings, etc.) that he is reacting to that weren't even tested for...

--- On Mon, 6/1/09, Suzanne <szmidford@att. net> wrote:

From: Suzanne <szmidford@att. net>
Subject: [foodallergyautism] Re: IgG/IgE test results - need help
To: foodallergyautism@ yahoogroups. com
Date: Monday, June 1, 2009, 3:34 PM

It's likelier that a person will outgrow an IgG reaction than an IgE reaction,but it's no guarantee. My son has had some forever, including several we're certain he never ate himself (but could have gotten cross-contaminated or touched, or through my breastmilk or in utero. The tests aren't perfect, either.We've had the best success with strict rotation of foods: 2 days on then 5 days off of every food he eats (and avoidance of the allergens), later we relaxed to 3 days on and 4 days off. We've earned a lot of foods back that way, but not all.

With just a few foods to eat, you will probably need to include the lower allergen ones to get a sufficient diet, unless he's getting that through his EO28.

There are a couple of reasons that I know of to avoid yellow/red/orange foods- phenol intolerance (red ears and hyperactivity right after consuming), or failure to convert beta carotene (yellowish tinge to the palms).

Suzanne

--- In foodallergyautism@ yahoogroups. com, Sarah Rogers <curlytatertot@ ...> wrote:
>
> Hi everyone,
>
> I just received Food IgG results.  My DD's look okay (she is the one that is in better health).  My son was reactive to a
> ton of things, including highly reactive to many things that he hasn't
> had in more than five years!  He is on a strict SCD/LOD diet so
> everything I make for him is whole foods from scratch --I know there
> haven't been any infractions.  He has had 4+ tonsils for many years and
> has also been failing to thrive for the same amount of time.  How am I
> to know which foods he is truly sensitive to if he is reacting to
> things he doesn't even eat?  Are these tests reliable at all?  They also both showed IgE to eggs.  Can IgE reactions ever be eliminated?  I am a little overwhelmed about how to feed these guys when their diet is already so limited.  I haven't talked w/ Dr. Usman yet, but did cosult w/ Pam @GPL.  She said since DS is so reactive that I just have to try to stick to the lower ones.  Do they normally tell you to avoid things in yellow or orange?  Any thoughts?  Encouragement?  
> Thanks.
> Sarah
>





Wed Jun 3, 2009 12:26 am

curlytatertot
Offline Offline
Send Email Send Email

Forward
Message #1569 of 1602 |
Expand Messages Author Sort by Date

I didn't realize all Tom's allergies were IgE.  Wow, that is very cool that you have been able to get several back into his diet in recent years!  I was too...
Sarah Rogers
curlytatertot
Offline Send Email
Jun 3, 2009
12:26 am

They're mostly IgG, actually. Sorry if I wasn't clear. We just treated all IgG and IgE the same and didn't blood test, so we didn't distinguish. His reactions...
Suzanne
iverus
Offline Send Email
Jun 3, 2009
7:19 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help