From: Wyndie <mileski5@...>
To: foodallergyautism@yahoogroups.com
Sent: Monday, March 30, 2009 10:37:47 PM
Subject: [foodallergyautism] Re: wyndie
His name is Dr. Jerry Kling and he's in Charleston, SC
Faith's main problem is constipation. Nathan also suffered from severe constipation as well. Can I help you with something in that area?
FA stands for Food Allergy. :)
Wyndie
--- In foodallergyautism@ yahoogroups. com, "eswee" <eswee@...> wrote:
>
> Wow Wyndie
>
> Who is your ped gi and in what city?
>
> Do any of your children suffer from constipation?
>
> What does FA stand for?
>
> Rob's mom
>
>
>
> _____
>
> From: foodallergyautism@ yahoogroups. com
> [mailto:foodallergyautism@ yahoogroups. com] On Behalf Of Suzanne Midford
> Sent: Sunday, March 29, 2009 11:11 AM
> To: foodallergyautism@ yahoogroups. com
> Subject: Re: [foodallergyautism] Re: New Member Just Starting
>
>
>
> Hi Wyndie,
>
> Thanks for the info! Your ped GI sounds like a smart guy. How rare! We are
> scheduled for a scope and pillcam with Krigsman in April and I'm really not
> looking forward to it. Tom's doing pretty well at the moment and so now we
> have to take him off all his gut meds his for 3 weeks ... then get him
> stable again afterwards. I'm really thinking we might be upsetting the apple
> cart for no good reason. We finally NAILED his clostridia with 9
> hard-chamber HBOT dives last August (yippee!!!), and figured out that a lot
> of what we had been thinking was yeast was actually phenol issues... and
> addressing those two things has brought a lot of good stuff. FAs are
> changing ... he's outgrown a lot of stuff and developed some new ones, we've
> had to add a lot of carbs (grains, potatoes) to compensate for calories lost
> when we eliminated phenolic fruits ... but overall, he seems to be much the
> better for it. Added No-Fenol which partly works but still have to avoid the
> big phenol offenders. He's allergic to No-Fenol so we've got a touch of
> eczema, but boy his poops are lovely! Tummy's much flatter too. And he gets
> to eat foods he likes now, instead of endless veggies, so he's eating
> better, which makes our lives much easier too. So except for avoiding
> phenols and severe allergens, we're on a much less restricted diet and
> happier all around because of it. Still rotating everything, but there's a
> lot more to work with.
>
>
>
> I'm so glad to hear your mom's doing well and digging in to corn allergies.
> That's such a tough one! Good for her for getting active in managing it. I
> never could say no to chocolate for very long either... when Tom developed a
> choclolate sensitivity at the same time he developed his potato sensitivity,
> it was a SAD day for me! To this day I eat a square or two of Lindt 85%
> (soy-free) Dark chocolate almost every day!
>
>
>
> Hey - any chance you (or any other listmates) are going to the Atlanta DAN
> conference?
>
>
>
>
>
>
>
> --
> "Respect and value your instincts
> about your child - never ignore
> them, no matter what
> anyone tells you. Holding a loved
> one's life in your hands means
> that you have to accept a
> position of power even when you
> don't want it. You must become an
> advocate for your child,
> even if it means standing alone
> against the world." - Karen Siff
> Exhorn
>
>
>
> ------------ -- Original message from "Wyndie" <mileski5@.. .>:
> ------------ --
>
> Olivia! I'm sorry it took me so long to get back with you.
>
> How's your baby's stools doing now? All my kids have severe FA's but I have
> to tell you, my youngest is unvaxed but she has the worst FA's, I think b/c
> my body got less and less able to provide nutrients while PG; well that and
> my husband's antrax shots right before conception and my leaking amalgams,
> but I believe maternal health affects them greatly.
>
> That said, my youngest is my biggest challenge. I had to exclusively BF her
> b/c she was allergic to all formulas. She also would not latch so I had to
> pump for 14 months and bottle feed her. That was a chore considering how
> often her FA's changed! The milk bank loved me b/c I was constantly donating
> milk to them that had suddenly become off limits to her! lol
>
> Are you giving your wee one some probiotics? That has really been key to
> seeing some of their FA's reduce. They're not gone but they are improving.
> We follow the Body Ecology Diet (not exclusively, we eat things not approved
> for the sake of getting enough nutrition into them).
>
> We just saw a pediatric GI this week and he stressed to me the importance of
> getting kids pooping 3x a day at least. He said his theory is that most
> allergies are not allergies but rather the body's response to undigested/
> uneliminated foods. He's a rather elderly guy so he's been practicing a LONG
> time and he said in his practice, most children's allergies reduce or are
> completely eliminated by more regular bowel movements. Not the anaphylactic
> ones, but the diarrhea/constipati on/tummyache/ rashes type allergies.
>
> Let me know how I can help. i'm just spewing here as thoughts cross my mind
> but I want to support you in any way possible. I know the difficulty of
> being on such a limited diet when BFing. I'm here for you!
>
> Wyndie
>
> PS Suzanne, my mom is doing well. She's adjusting to life avoiding corn.
> Found a wonderful support group that she reads every day and learns from. My
> dad is supporting her as well so that's been a huge thing for her. She's
> seeing a reduction in her breathing problems although her vice - chocolate -
> always brings her a problem. She's not willing to part with that yet no
> matter how it makes her feel. We all have to get to the point where we make
> our own choice and she's not there yet. She'll be coming here in a week to
> help me with the kids while I go to a few conferences and she'll be forced
> to go chocolate free then so well see. Thank you for asking about her. You
> help to her was so invaluable and I'm grateful for it! xo
>
> > --- In foodallergyautism@ <mailto:foodallergy autism%40yahoogr oups.com>
> yahoogroups. com, "rucos298" <rucos298@> wrote:
> > >
> > > Hello all, I'm just embarking on the TED with my two year old (still
> breastfeeding) daughter. Suzanne has been very helpful in getting us
> started, but I was wondering if any of you might be able to mentor me a bit,
> share your experiences?
> > >
> > > As a little bit of background - I'm a biomed Mom of three girls, our
> first, now 8, was diagnosed with developmental delay, and more recently, an
> endocrine disorder. Our second daughter has a moderate peanut allergy. Our
> third, unvaccinated, has had chronic loose stools for more than 6 months,
> and more recently, worsening eczema. We did IgG allergy testing and came up
> with soy and peanut. My mission at the moment is to figure our what other
> foods are problematic for her, hence the TED.
> > >
> > > We've started with chicken, beef, and lamb, millet and rice, cooked
> carrot, beet, broccoli, pears and blueberries. We had one good stool last
> Sunday, and then I cheated, and I also think she od'd on the fruit. So the
> last several stools have been bad again. I've removed blueberries and
> poached pear for myself and haven't given her any fruit today.
> > >
> > > I've also taken both of us off all supps, and so there is concern that
> we're not getting proper nutrition. I have Neocate but am afraid to use it
> until we see some improvement. So far I've been unable to find truly
> hypoallergenic supplements.
> > >
> > > Many thanks for your help!
> > > Olivia
> > >
> >
>