Oh Suzanne!! I am so happy to hear of the progress on the food front! How
wonderful to be able to give Tom food he likes now. :) Yay for you guys!!!

I would be afraid to upset the apple cart too. Do you have to do it now or can
you reschedule so you have time to see if it's really necessary? I know the
wait list is long so that's probably a tough one to waffle around on; I
understand your hesitancy though.

I will be at DAN working the Body Ecology booth. You coming?

Wyndie

--- In foodallergyautism@yahoogroups.com, "Suzanne Midford" <szmidford@...>
wrote:
>
> Hi Wyndie,
> Thanks for the info! Your ped GI sounds like a smart guy. How rare! We are
scheduled for a scope and pillcam with Krigsman in April and I'm really not
looking forward to it. Tom's doing pretty well at the moment and so now we have
to take him off all his gut meds his for 3 weeks ... then get him stable again
afterwards. I'm really thinking we might be upsetting the apple cart for no good
reason. We finally NAILED his clostridia with 9 hard-chamber HBOT dives last
August (yippee!!!), and figured out that a lot of what we had been thinking was
yeast was actually phenol issues... and addressing those two things has brought
a lot of good stuff. FAs are changing ... he's outgrown a lot of stuff and
developed some new ones, we've had to add a lot of carbs (grains, potatoes) to
compensate for calories lost when we eliminated phenolic fruits ... but overall,
he seems to be much the better for it. Added No-Fenol which partly works but
still have to avoid the big phenol offenders. He's allergic to No-Fenol so we've
got a touch of eczema, but boy his poops are lovely! Tummy's much flatter too.
And he gets to eat foods he likes now, instead of endless veggies, so he's
eating better, which makes our lives much easier too. So except for avoiding
phenols and severe allergens, we're on a much less restricted diet and happier
all around because of it. Still rotating everything, but there's a lot more to
work with.
>
> I'm so glad to hear your mom's doing well and digging in to corn allergies.
That's such a tough one! Good for her for getting active in managing it. I
never could say no to chocolate for very long either... when Tom developed a
choclolate sensitivity at the same time he developed his potato sensitivity, it
was a SAD day for me! To this day I eat a square or two of Lindt 85% (soy-free)
Dark chocolate almost every day!
>
> Hey - any chance you (or any other listmates) are going to the Atlanta DAN
conference?
>
>
>
> --
> "Respect and value your instincts
> about your child â€" never ignore
> them, no matter what
> anyone tells you. Holding a loved
> one's life in your hands means
> that you have to accept a
> position of power even when you
> don't want it. You must become an
> advocate for your child,
> even if it means standing alone
> against the world." - Karen Siff
> Exhorn
>
>
> -------------- Original message from "Wyndie" <mileski5@...>: --------------
>
> Olivia! I'm sorry it took me so long to get back with you.
>
> How's your baby's stools doing now? All my kids have severe FA's but I have to
tell you, my youngest is unvaxed but she has the worst FA's, I think b/c my body
got less and less able to provide nutrients while PG; well that and my husband's
antrax shots right before conception and my leaking amalgams, but I believe
maternal health affects them greatly.
>
> That said, my youngest is my biggest challenge. I had to exclusively BF her
b/c she was allergic to all formulas. She also would not latch so I had to pump
for 14 months and bottle feed her. That was a chore considering how often her
FA's changed! The milk bank loved me b/c I was constantly donating milk to them
that had suddenly become off limits to her! lol
>
> Are you giving your wee one some probiotics? That has really been key to
seeing some of their FA's reduce. They're not gone but they are improving. We
follow the Body Ecology Diet (not exclusively, we eat things not approved for
the sake of getting enough nutrition into them).
>
> We just saw a pediatric GI this week and he stressed to me the importance of
getting kids pooping 3x a day at least. He said his theory is that most
allergies are not allergies but rather the body's response to undigested/
uneliminated foods. He's a rather elderly guy so he's been practicing a LONG
time and he said in his practice, most children's allergies reduce or are
completely eliminated by more regular bowel movements. Not the anaphylactic
ones, but the diarrhea/constipation/tummyache/rashes type allergies.
>
> Let me know how I can help. i'm just spewing here as thoughts cross my mind
but I want to support you in any way possible. I know the difficulty of being on
such a limited diet when BFing. I'm here for you!
>
> Wyndie
>
> PS Suzanne, my mom is doing well. She's adjusting to life avoiding corn. Found
a wonderful support group that she reads every day and learns from. My dad is
supporting her as well so that's been a huge thing for her. She's seeing a
reduction in her breathing problems although her vice - chocolate - always
brings her a problem. She's not willing to part with that yet no matter how it
makes her feel. We all have to get to the point where we make our own choice and
she's not there yet. She'll be coming here in a week to help me with the kids
while I go to a few conferences and she'll be forced to go chocolate free then
so well see. Thank you for asking about her. You help to her was so invaluable
and I'm grateful for it! xo
>
> > ---