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Wow Wyndie
Who is your ped
gi and in what city?
Do any of your
children suffer from constipation?
What does FA
stand for?
Rob’s mom
From:
foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of Suzanne Midford
Sent: Sunday, March 29, 2009 11:11
AM
To:
foodallergyautism@yahoogroups.com
Subject: Re: [foodallergyautism]
Re: New Member Just Starting
Hi Wyndie,
Thanks for the info! Your ped GI sounds like a smart guy. How
rare! We are scheduled for a scope and pillcam with Krigsman in April and
I'm really not looking forward to it. Tom's doing pretty well at the moment and
so now we have to take him off all his gut meds his for 3 weeks ... then get
him stable again afterwards. I'm really thinking we might be upsetting the
apple cart for no good reason. We finally NAILED his clostridia with 9
hard-chamber HBOT dives last August (yippee!!!), and figured out that a lot of
what we had been thinking was yeast was actually phenol issues... and
addressing those two things has brought a lot of good stuff. FAs are
changing ... he's outgrown a lot of stuff and developed some new ones, we've
had to add a lot of carbs (grains, potatoes) to compensate for calories lost
when we eliminated phenolic fruits ... but overall, he seems to be much the
better for it. Added No-Fenol which partly works but still have to avoid the
big phenol offenders. He's allergic to No-Fenol so we've got a touch of eczema,
but boy his poops are lovely! Tummy's much flatter too. And he gets to
eat foods he likes now, instead of endless veggies, so he's eating better,
which makes our lives much easier too. So except for avoiding phenols and
severe allergens, we're on a much less restricted diet and happier all around
because of it. Still rotating everything, but there's a lot more to work with.
I'm so glad to hear your mom's doing well and digging in to corn
allergies. That's such a tough one! Good for her for getting active in
managing it. I never could say no to chocolate for very long either... when Tom
developed a choclolate sensitivity at the same time he developed his potato
sensitivity, it was a SAD day for me! To this day I eat a square or two of
Lindt 85% (soy-free) Dark chocolate almost every day!
Hey - any chance you (or any other listmates) are going to the Atlanta
DAN conference?
--
"Respect and value your instincts
about your child – never ignore
them, no matter what
anyone tells you. Holding a loved
one's life in your hands means
that you have to accept a
position of power even when you
don't want it. You must become an
advocate for your child,
even if it means standing alone
against the world." - Karen Siff
Exhorn
-------------- Original message from "Wyndie" <mileski5@...>: --------------
Olivia! I'm sorry it took me so long to get back with you.
How's your baby's stools doing now? All my kids have severe FA's but I have to tell you, my youngest is unvaxed but she has the worst FA's, I think b/c my body got less and less able to provide nutrients while PG; well that and my husband's antrax shots right before conception and my leaking amalgams, but I believe maternal health affects them greatly.
That said, my youngest is my biggest challenge. I had to exclusively BF her b/c she was allergic to all formulas. She also would not latch so I had to pump for 14 months and bottle feed her. That was a chore considering how often her FA's changed! The milk bank loved me b/c I was constantly donating milk to them that had suddenly become off limits to her! lol
Are you giving your wee one some probiotics? That has really been key to seeing some of their FA's reduce. They're not gone but they are improving. We follow the Body Ecology Diet (not exclusively, we eat things not approved for the sake of getting enough nutrition into them).
We just saw a pediatric GI this week and he stressed to me the importance of getting kids pooping 3x a day at least. He said his theory is that most allergies are not allergies but rather the body's response to undigested/ uneliminated foods. He's a rather elderly guy so he's been practicing a LONG time and he said in his practice, most children's allergies reduce or are completely eliminated by more regular bowel movements. Not the anaphylactic ones, but the diarrhea/constipation/tummyache/ rashes type allergies.
Let me know how I can help. i'm just spewing here as thoughts cross my mind but I want to support you in any way possible. I know the difficulty of being on such a limited diet when BFing. I'm here for you!
Wyndie
PS Suzanne, my mom is doing well. She's adjusting to life avoiding corn. Found a wonderful support group that she reads every day and learns from. My dad is supporting her as well so that's been a huge thing for her. She's seeing a reduction in her breathing problems although her vice - chocolate - always brings her a problem. She's not willing to part with that yet no matter how it makes her feel. We all have to get to the point where we make our own choice and she's not there yet. She'll be coming here in a week to help me with the kids while I go to a few conferences and she'll be forced to go chocolate free then so well see. Thank you for asking about her. You help to her was so invaluable and I'm grateful for it! xo
> --- In foodallergyautism@yahoogroups. , "rucos298" <rucos298@> wrote:com
> >
> > Hello all, I'm just embarking on the TED with my two year old (still breastfeeding) daughter. Suzanne has been very helpful in getting us started, but I was wondering if any of you might be able to mentor me a bit, share your experiences?
> >
> > As a little bit of background - I'm a biomed Mom of three girls, our first, now 8, was diagnosed with developmental delay, and more recently, an endocrine disorder. Our second daughter has a moderate peanut allergy. Our third, unvaccinated, has had chronic loose stools for more than 6 months, and more recently, worsening eczema. We did IgG allergy testing and came up with soy and peanut. My mission at the moment is to figure our what other foods are problematic for her, hence the TED.
> >
> > We've started with chicken, beef, and lamb, millet and rice, cooked carrot, beet, broccoli, pears and blueberries. We had one good stool last Sunday, and then I cheated, and I also think she od'd on the fruit. So the last several stools have been bad again. I've removed blueberries and poached pear for myself and haven't given her any fruit today.
> >
> > I've also taken both of us off all supps, and so there is concern that we're not getting proper nutrition. I have Neocate but am afraid to use it until we see some improvement. So far I've been unable to find truly hypoallergenic supplements.
> >
> > Many thanks for your help!
> > Olivia
> >
>
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