Re: [foodallergyautism] Re: New Member Just Starting
Hi Wyndie,
Thanks for the info! Your ped GI sounds like a smart guy. How rare! We are scheduled for a scope and pillcam with Krigsman in April and I'm really not looking forward to it. Tom's doing pretty well at the moment and so now we have to take him off all his gut meds his for 3 weeks ... then get him stable again afterwards. I'm really thinking we might be upsetting the apple cart for no good reason. We finally NAILED his clostridia with 9 hard-chamber HBOT dives last August (yippee!!!), and figured out that a lot of what we had been thinking was yeast was actually phenol issues... and addressing those two things has brought a lot of good stuff. FAs are changing ... he's outgrown a lot of stuff and developed some new ones, we've had to add a lot of carbs (grains, potatoes) to compensate for calories lost when we eliminated phenolic fruits ... but overall, he seems to be much the better for it. Added No-Fenol which partly works but still have to avoid the big phenol offenders. He's allergic to No-Fenol so we've got a touch of eczema, but boy his poops are lovely! Tummy's much flatter too. And he gets to eat foods he likes now, instead of endless veggies, so he's eating better, which makes our lives much easier too. So except for avoiding phenols and severe allergens, we're on a much less restricted diet and happier all around because of it. Still rotating everything, but there's a lot more to work with.
I'm so glad to hear your mom's doing well and digging in to corn allergies. That's such a tough one! Good for her for getting active in managing it. I never could say no to chocolate for very long either... when Tom developed a choclolate sensitivity at the same time he developed his potato sensitivity, it was a SAD day for me! To this day I eat a square or two of Lindt 85% (soy-free) Dark chocolate almost every day!
Hey - any chance you (or any other listmates) are going to the Atlanta DAN conference?
-- "Respect and value your instincts about your child – never ignore them, no matter what anyone tells you. Holding a loved one's life in your hands means that you have to accept a position of power even when you don't want it. You must become an advocate for your child, even if it means standing alone against the world." - Karen Siff Exhorn
-------------- Original message from "Wyndie" <mileski5@...>: --------------
Olivia! I'm sorry it took me so long to get back with you.
How's your baby's stools doing now? All my kids have severe FA's but I have to tell you, my youngest is unvaxed but she has the worst FA's, I think b/c my body got less and less able to provide nutrients while PG; well that and my husband's antrax shots right before conception and my leaking amalgams, but I believe maternal health affects them greatly.
That said, my youngest is my biggest challenge. I had to exclusively BF her b/c she was allergic to all formulas. She also would not latch so I had to pump for 14 months and bottle feed her. That was a chore considering how often her FA's changed! The milk bank loved me b/c I was constantly donating milk to them that had suddenly become off limits to her! lol
Are you giving your wee one some probiotics? That has really been key to seeing some of their FA's reduce. They're not gone but they are improving. We follow the Body Ecology Diet (not exclusively, we eat things not approved for the sake of getting enough nutrition into them).
We just saw a pediatric GI this week and he stressed to me the importance of getting kids pooping 3x a day at least. He said his theory is that most allergies are not allergies but rather the body's response to undigested/ uneliminated foods. He's a rather elderly guy so he's been practicing a LONG time and he said in his practice, most children's allergies reduce or are completely eliminated by more regular bowel movements. Not the anaphylactic ones, but the diarrhea/constipation/tummyache/rashes type allergies.
Let me know how I can help. i'm just spewing here as thoughts cross my mind but I want to support you in any way possible. I know the difficulty of being on such a limited diet when BFing. I'm here for you!
Wyndie
PS Suzanne, my mom is doing well. She's adjusting to life avoiding corn. Found a wonderful support group that she reads every day and learns from. My dad is supporting her as well so that's been a huge thing for her. She's seeing a reduction in her breathing problems although her vice - chocolate - always brings her a problem. She's not willing to part with that yet no matter how it makes her feel. We all have to get to the point where we make our own choice and she's not there yet. She'll be coming here in a week to help me with the kids while I go to a few conferences and she'll be forced to go chocolate free then so well see. Thank you for asking about her. You help to her was so invaluable and I'm grateful for it! xo
> --- In foodallergyautism@yahoogroups.com, "rucos298" <rucos298@> wrote: > > > > Hello all, I'm just embarking on the TED with my two year old (still breastfeeding) daughter. Suzanne has been very helpful in getting us started, but I was wondering if any of you might be able to mentor me a bit, share your experiences? > > > > As a little bit of background - I'm a biomed Mom of three girls, our first, now 8, was diagnosed with developmental delay, and more recently, an endocrine disorder. Our second daughter has a moderate peanut allergy. Our third, unvaccinated, has had chronic loose stools for more than 6 months, and more recently, worsening eczema. We did IgG allergy testing and came up with soy and peanut. My mission at the moment is to figure our what other foods are problematic for her, hence the TED. > > > > We've started with chicken, beef, and lamb, millet and rice, cooked carrot, beet, broccoli, pears and blueberries. We had one good stool last Sunday, and then I cheated, and I also think she od'd on the fruit. So the last several stools have been bad again. I've removed blueberries and poached pear for myself and haven't given her any fruit today. > > > > I've also taken both of us off all supps, and so there is concern that we're not getting proper nutrition. I have Neocate but am afraid to use it until we see some improvement. So far I've been unable to find truly hypoallergenic supplements. > > > > Many thanks for your help! > > Olivia > > >
Olivia! I'm sorry it took me so long to get back with you. How's your baby's stools doing now? All my kids have severe FA's but I have to tell you, my...
Hi Wyndie, Thanks for the info! Your ped GI sounds like a smart guy. How rare! We are scheduled for a scope and pillcam with Krigsman in April and I'm really...
His name is Dr. Jerry Kling and he's in Charleston, SC Faith's main problem is constipation. Nathan also suffered from severe constipation as well. Can I...
Anna, Dr. Kline said enough fiber has to be given to make the child go 3x a day. I started giving Faith psyllium without increasing her magnsium and she...
We're fairly lucky that milk of magnesia seems to do the trick for Tom, but sometimes it doesn't (most often when we intro a new med or supplement ......
So glad to hear of Tom's poop improvements Suzanne! No kind of enzyme (including Creon) improves Aaron's stools at all, alas. In most cases they worsen...
Thanks Wyndie! My son is allergic to most fiber, but I'll have to look into it more. We haven't tried hemp seed yet. Right now I'm using an inulin powder,...
Anna Try Detoxifiber by garden of life. It is made from pea pods, patented and is a soluble fiber. Different than all other fibers. Compared to say rice ...
We are having success with organic hemp milk and organic hemp seed butter. I think as a fiber it might be a good one to try. It's a bonus that you can get it...
Oh Suzanne!! I am so happy to hear of the progress on the food front! How wonderful to be able to give Tom food he likes now. :) Yay for you guys!!! I would...
Yippee! I get to meet you at the DAN! Finally, after all these years! (I've known you online for what, almost 6 years?) Anna will be there too. I'm so excited!...
Suzanne, I will give you our experiences w/ Krigsman. Keep in mind that this is only our experience. We loved him as a person and a doctor but this was the...
Crystal you are not alone! My son is also one of the most sensitive kids out there, and the scope with Dr. K really messed him up. Dr. K has not been able to...
Anna What kind of energy tests are you doing? Thanks Rob’smom _____ From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On...
We've done Zyto with Michael Payne, but mostly we see a local naturopath. Unfortunately I can't recall the name of the computerized system she uses! I know...
Manitoba Harvest Hemp Bliss. We get it at a local health food store. Whole Foods carries the sweetened kind, but it has a ton of ingredients and bad ones, like...
Crystal ... I hadn't realized you'd moved to Virginia! If I'd known I'd have warned you away because of Virginia's low ranking for services, education, and...
Crystal, I'm glad you found the move to VA a good one. I find energy work to be very important. We also have seen the really strange NAET practitioner (did I...
Hi Wyndie, I can't remember if you referred us or if I got her name from the NAET website. Lovely southern lady but not a fit for us. We did not do any trmts...
Hi Suzanne, We did our research and realized b/f we moved to VA that the svcs sucked. I only miss the in-home help I had in SC. It was wonderful. I could...
Crystal, Your SC program sounds great .. on paper. We're in one of the "best" school districts in VA too... good if you're gifted, that is. Not good if you're...
S We have two excellent energy workers. I told our dan about them and he has actually sent a couple people to one of them. How can I help you with your ...
Do they work remotely? -- "Respect and value your instincts about your child – never ignore them, no matter what anyone tells you. Holding a loved one's life...
Actually Mike Payne does treat. He is now into homeopathy also. Actually focusing more on this than other stuff. We have a three part treatment for strep...
I'll just chime in briefly since I'm in a busy stretch right now. We LOVE energy therapy too. Muscle testing is right on for my son's delayed allergies. Our...
Suzanne and Group, I'm trying to play catch-up on my lists and have been meaning to ask you if there is a reliable list of high phenolic foods in a book or on...
Suzanne \\ I hear from our very talented naet lady that there is a whole naet protocol training book on phenols alone. Look up holisticnetworker.com. used to...