JThank you for all this information Suzanne. I will email you
privately. :)
Wyndie
--- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@...>
wrote:
>
> Hi Wyndie!
> I am sooo sorry I haven't answered sooner. I was scheduled for
surgery and then got very sick, and haven't really been on the
computer much. Just so everyone knows, my Yahoo account is linked to
an email account that has problems. It makes accessing Yahoo
difficult, and when I'm in bed I work mainly off my work BlackBerry,
which doesn't interface well with Yahoo and not at all with that
email address. One of these days, when I'm not cooking or hiring
help for my kid or fighting the school district (my new "hobby" you
could say), I will get it all sorted out. Meanwhile, I'm just not
going to be able to keep up my moderator duties very well, and I
sincerely apologize.
>
> Now, your mom. Wow! How in the world did she figure out she was
anaphylactic to corn? That's a pretty tough one. We have managed to
avoid corn by just cooking all foods from scratch, except for a few
things like Knudsen's Just Juice without citric or ascorbic acid, or
pure rice crackers. Fortunately my manic diligence to avoid corn
100% has paid off -we just got back fresh allergy tests showing Tom
no longer is allergic (IgE) or intolerant (IgG) to corn. Yippee! But
we won't declare success til I challenge it for a week to make sure
he won't re-sensitize.
>
> Besides eating whole, fresh-cooked foods, your mom will have to
seek out a whole new set of vitamins and supplements, most likely. I
have never found a multivitamin that doesn't contain corn, we had to
build up Tom's vitamin regimen one item at a time. He takes a ton of
pills, just to avoid combined supplements that would have something
derived from corn. Vitamin C is the worst offender, it's almost
always from corn. Twinlabs makes a corn-free C, and so does
Nutricology. If your mom is allergic to environmental sources, like
Tom is, shell also have to watch out for corn in plastic packaging
and paper products. Corn can be found in everything from carpet to
toilet paper. Not everyone reacts to those inert forms of corn, but
she should at least consider those when trying to track down
unexplained reactions. Cleaning products, especially airborne things
like sprays and powders, should also be considered, as well as
topical creams and cosmetics. Corn truly is everywhere and it's
pretty tough to avoid.
>
> We have our corn-avoidance regimen down pretty well at this point,
and so that means I've really lost touch over the years to the
places I first learned about corn avoidance. There used to be some
excellent corn allergy websites, but I'm afraid I haven't kept up
with them, so a Google search would probably yield some new sites
for help.
>
> Since this is an IgE allergy, your mom should get a good
allergist. Shell need to be prepared for any medical treatments,
like medications and treatments in the future. She should of course
have an Epi Pen, and probably a medic Alert bracelet warning of the
problem so emergency eraponders don't, for instance, deliver a
dextrose IV. She'll also need to start using a compounding pharmacy
so she can have her meds made up in corn-free formulations. We've
had benadryl compunded for years in creams and capsules.
>
> I sure wish I had an easy answer for this one. My heart goes out
to your mom. Corn is about the toughest allergen there is to avoid,
and anaphylaxis makes it essential to not make mistakes. Please let
me know if there are any particular vitamin items she needs, I can
probably suggest brands and formulations.
>
> All the best to her as she works to figure this out.
>
> Suzanne
>
> -- In foodallergyautism@yahoogroups.com, "Wyndie" <mileski5@>
wrote:
> >
> > I know you're busy but I need your help if you have a minute.
We
> > recently discovered my mother has an anaphylactic allergy to
corn.
> > She's doing well avoiding it in food but is finding it in all
her
> > supplements - even benadryl! We can't find a good vitamin that
> > doesn't contain it and I know you've been thru this horrible
road
> > before. Do you have a good vitamin recommendation? She's on
multiple
> > supplements as she's trying to detox and is finding it hard to
> > function without some of her things. We're also really
struggling to
> > find something to use for severe reactions as the stuff we use
in our
> > house just doesn't work for her. Any suggestion are appreciated.
> >
> > Wyndie
> >
>