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Reply | Forward Message #1460 of 1601 |
Re: Suzanne

I also thought I'd toss out some brands that are good to check out. Most of
these are corn-free, and they use non-corn capsules. She'll want to make sure
about capsules, gelatin would be safe, or methylcellulose capsules. But if the
capsules are labeled "vegetable", she should check to make sure they're not
corn.

A couple of good brands are: Nutricology or Allergy Research Group (Nutricology
owns ARG, but it's the ARG brand that is most reliable). Thorne is good. Kirkman
has a lot of corn free vites, but not all. She will also need to be alert to
unlabeled corn in products. For instance, as you probably know, anything that
constitutes less than 2% volume of a processed food doesn't need to be labeled.
So, for instance, concentrated juices typically have citric acid, but less than
2% so it's unlabeled. The corn allergy websites do a good job of identifying
corn safe foods. Ice found that the only really reliable way to avoid corn is to
stay away from any processed foods, but also to find other corn-sensitive people
and learn what products are safe for them. Unfortunately, corn is so pervasive,
and the corn lobby has been so succesful at fighting its identification as a
"major allergen", that it is very hard to trust labels or manufacturing
processes. Your mom will need to get very good at calling manufacturers and
asking about the sources of their ingredients. It's not a fun job at all.

Please let me know how I can help further. You can always email me at suzanne.
Midford @ capitalone. Com (remove the spaces).

Suzanne


--- In foodallergyautism@yahoogroups.com, "Suzanne" <szmidford@...> wrote:
>
> Hi Wyndie!
> I am sooo sorry I haven't answered sooner. I was scheduled for surgery and
then got very sick, and haven't really been on the computer much. Just so
everyone knows, my Yahoo account is linked to an email account that has
problems. It makes accessing Yahoo difficult, and when I'm in bed I work mainly
off my work BlackBerry, which doesn't interface well with Yahoo and not at all
with that email address. One of these days, when I'm not cooking or hiring help
for my kid or fighting the school district (my new "hobby" you could say), I
will get it all sorted out. Meanwhile, I'm just not going to be able to keep up
my moderator duties very well, and I sincerely apologize.
>
> Now, your mom. Wow! How in the world did she figure out she was anaphylactic
to corn? That's a pretty tough one. We have managed to avoid corn by just
cooking all foods from scratch, except for a few things like Knudsen's Just
Juice without citric or ascorbic acid, or pure rice crackers. Fortunately my
manic diligence to avoid corn 100% has paid off -we just got back fresh allergy
tests showing Tom no longer is allergic (IgE) or intolerant (IgG) to corn.
Yippee! But we won't declare success til I challenge it for a week to make sure
he won't re-sensitize.
>
> Besides eating whole, fresh-cooked foods, your mom will have to seek out a
whole new set of vitamins and supplements, most likely. I have never found a
multivitamin that doesn't contain corn, we had to build up Tom's vitamin regimen
one item at a time. He takes a ton of pills, just to avoid combined supplements
that would have something derived from corn. Vitamin C is the worst offender,
it's almost always from corn. Twinlabs makes a corn-free C, and so does
Nutricology. If your mom is allergic to environmental sources, like Tom is,
shell also have to watch out for corn in plastic packaging and paper products.
Corn can be found in everything from carpet to toilet paper. Not everyone reacts
to those inert forms of corn, but she should at least consider those when trying
to track down unexplained reactions. Cleaning products, especially airborne
things like sprays and powders, should also be considered, as well as topical
creams and cosmetics. Corn truly is everywhere and it's pretty tough to avoid.
>
> We have our corn-avoidance regimen down pretty well at this point, and so that
means I've really lost touch over the years to the places I first learned about
corn avoidance. There used to be some excellent corn allergy websites, but I'm
afraid I haven't kept up with them, so a Google search would probably yield some
new sites for help.
>
> Since this is an IgE allergy, your mom should get a good allergist. Shell need
to be prepared for any medical treatments, like medications and treatments in
the future. She should of course have an Epi Pen, and probably a medic Alert
bracelet warning of the problem so emergency eraponders don't, for instance,
deliver a dextrose IV. She'll also need to start using a compounding pharmacy so
she can have her meds made up in corn-free formulations. We've had benadryl
compunded for years in creams and capsules.
>
> I sure wish I had an easy answer for this one. My heart goes out to your mom.
Corn is about the toughest allergen there is to avoid, and anaphylaxis makes it
essential to not make mistakes. Please let me know if there are any particular
vitamin items she needs, I can probably suggest brands and formulations.
>
> All the best to her as she works to figure this out.
>
> Suzanne
>
> -- In foodallergyautism@yahoogroups.com, "Wyndie" <mileski5@> wrote:
> >
> > I know you're busy but I need your help if you have a minute. We
> > recently discovered my mother has an anaphylactic allergy to corn.
> > She's doing well avoiding it in food but is finding it in all her
> > supplements - even benadryl! We can't find a good vitamin that
> > doesn't contain it and I know you've been thru this horrible road
> > before. Do you have a good vitamin recommendation? She's on multiple
> > supplements as she's trying to detox and is finding it hard to
> > function without some of her things. We're also really struggling to
> > find something to use for severe reactions as the stuff we use in our
> > house just doesn't work for her. Any suggestion are appreciated.
> >
> > Wyndie
> >
>





Sun Jan 25, 2009 2:39 pm

iverus
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Message #1460 of 1601 |
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suzanne and listmates, For those that have trialed LDN - has it helped and in what ways? I am following the JM studies/protocols but would like to get an ...
santonapal
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Jul 10, 2006
3:21 am

Santona, We are in Dr. JM's current study. My son has been on LDN for a little over a month. Within a few days, we saw phenomenal language improvement. In...
akgazelles
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Jul 10, 2006
7:05 pm

Tom has been on LDN since last July/August. We started at a low dose, recommended by Dr. JM at the time. Within the first month he had a low fever and a cold...
Suzanne
iverus
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Jul 10, 2006
9:02 pm

Tasha and Suzanne Thanks for your inputs regarding LDN. I would like to try it - Neel's issues are simply not improving. Is this best done through JM? Have ...
santonapal
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Jul 21, 2006
3:47 pm

If you go to Dr. McCandless' LDN list, in the files she has a very good description of LDN and how it is used and thought to be effective. I would encourage...
szmidford@...
iverus
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Jul 21, 2006
9:04 pm

Suzanne, Just so I know for the future, what is bad about nitrous oxide? Thanks-- Julie...
jjcox22
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Jul 23, 2006
1:05 am

Nitrous Oxide is a gas commonly used for anesthesia ("laughing gas" like in the dentist's office). It's common for ASD kids have a genetic mutation (MTHFR)...
szmidford@...
iverus
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Jul 24, 2006
1:34 pm

Thanks Suzanne for that info. Did you do Amy Yasko's testing to determine this genetic abnormality? Thanks, Julie...
jjcox22
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Jul 26, 2006
12:25 pm

No, we haven't tested. We just told the anesthesiologist that it was likely he had the mutation as it's common in ASD kids. The CK2 Yahoo group has some docs...
szmidford@...
iverus
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Jul 26, 2006
12:40 pm

Thanks Suzanne, my daughter may be having eye surgery so I really need this information. She had an endoscopy at 6 months and it was a nightmare, I wonder if...
jjcox22
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Jul 27, 2006
12:31 pm

I bet they'll be okay with it if you can come up with some journal cites and are willing to offer some alternatives that they're familiar with, like Versed....
szmidford@...
iverus
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Jul 27, 2006
2:23 pm

Thanks Suzanne! Julie...
jjcox22
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Jul 28, 2006
12:05 am

There is a thread on the autism-mercury board of parent's who's children seem to have similar gut issues to your Tom. At least, scanning it, I see they have...
Wyndie
wyndie_mileski
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Sep 1, 2006
11:43 am

Wyndie and Suzanne, I can relate very much to both of you with feeling like I am going in circles with candida, should I chelate, etc. I just got back some...
jjcox22
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Sep 2, 2006
1:58 am

It's something I've looked into, but haven't pursued. If it's what I'm thinking of, sublingual drops are a form of provocative neutralization. This can be done...
szmidford@...
iverus
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Sep 7, 2006
2:44 pm

I wonder how to find a practitioner who does this? Is this was Dr. Layton in Towson, MD does? I like his website: www.allergyconnection.com, but I think it...
Jenny Kalis
j_kalis
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Sep 7, 2006
3:58 pm

Layton also does sublingual secretin rob's mom ... From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of ...
E Sweet
halesweetser
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Sep 8, 2006
3:16 pm

Dr. Layton does this, and there's a doctor in South Carolina who has a good reputation who does it. Last year I posted a question about this on CK2, and got a...
szmidford@...
iverus
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Sep 7, 2006
4:22 pm

I know you're busy but I need your help if you have a minute. We recently discovered my mother has an anaphylactic allergy to corn. She's doing well avoiding...
Wyndie
wyndie_mileski
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Jan 13, 2009
3:52 am

Hi Wyndie! I am sooo sorry I haven't answered sooner. I was scheduled for surgery and then got very sick, and haven't really been on the computer much. Just so...
Suzanne
iverus
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Jan 25, 2009
2:41 am

I also thought I'd toss out some brands that are good to check out. Most of these are corn-free, and they use non-corn capsules. She'll want to make sure about...
Suzanne
iverus
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Jan 25, 2009
2:39 pm

JThank you for all this information Suzanne. I will email you privately. :) Wyndie ... surgery and then got very sick, and haven't really been on the ...
Wyndie
wyndie_mileski
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Jan 26, 2009
3:53 pm

Wyndie, Hopefully Suzanne can give you some good ideas. As you know, she is the expert on this corn issue. I have some additonal ideas. Dye free Motrin...
Jenny Kalis
j_kalis
Online Now Send Email
Jan 13, 2009
5:10 am
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