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Reply | Forward Message #1457 of 1601 |
Suzanne

I know you're busy but I need your help if you have a minute. We
recently discovered my mother has an anaphylactic allergy to corn.
She's doing well avoiding it in food but is finding it in all her
supplements - even benadryl! We can't find a good vitamin that
doesn't contain it and I know you've been thru this horrible road
before. Do you have a good vitamin recommendation? She's on multiple
supplements as she's trying to detox and is finding it hard to
function without some of her things. We're also really struggling to
find something to use for severe reactions as the stuff we use in our
house just doesn't work for her. Any suggestion are appreciated.

Wyndie




Tue Jan 13, 2009 3:52 am

wyndie_mileski
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Message #1457 of 1601 |
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suzanne and listmates, For those that have trialed LDN - has it helped and in what ways? I am following the JM studies/protocols but would like to get an ...
santonapal
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Jul 10, 2006
3:21 am

Santona, We are in Dr. JM's current study. My son has been on LDN for a little over a month. Within a few days, we saw phenomenal language improvement. In...
akgazelles
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Jul 10, 2006
7:05 pm

Tom has been on LDN since last July/August. We started at a low dose, recommended by Dr. JM at the time. Within the first month he had a low fever and a cold...
Suzanne
iverus
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Jul 10, 2006
9:02 pm

Tasha and Suzanne Thanks for your inputs regarding LDN. I would like to try it - Neel's issues are simply not improving. Is this best done through JM? Have ...
santonapal
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Jul 21, 2006
3:47 pm

If you go to Dr. McCandless' LDN list, in the files she has a very good description of LDN and how it is used and thought to be effective. I would encourage...
szmidford@...
iverus
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Jul 21, 2006
9:04 pm

Suzanne, Just so I know for the future, what is bad about nitrous oxide? Thanks-- Julie...
jjcox22
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Jul 23, 2006
1:05 am

Nitrous Oxide is a gas commonly used for anesthesia ("laughing gas" like in the dentist's office). It's common for ASD kids have a genetic mutation (MTHFR)...
szmidford@...
iverus
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Jul 24, 2006
1:34 pm

Thanks Suzanne for that info. Did you do Amy Yasko's testing to determine this genetic abnormality? Thanks, Julie...
jjcox22
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Jul 26, 2006
12:25 pm

No, we haven't tested. We just told the anesthesiologist that it was likely he had the mutation as it's common in ASD kids. The CK2 Yahoo group has some docs...
szmidford@...
iverus
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Jul 26, 2006
12:40 pm

Thanks Suzanne, my daughter may be having eye surgery so I really need this information. She had an endoscopy at 6 months and it was a nightmare, I wonder if...
jjcox22
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Jul 27, 2006
12:31 pm

I bet they'll be okay with it if you can come up with some journal cites and are willing to offer some alternatives that they're familiar with, like Versed....
szmidford@...
iverus
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Jul 27, 2006
2:23 pm

Thanks Suzanne! Julie...
jjcox22
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Jul 28, 2006
12:05 am

There is a thread on the autism-mercury board of parent's who's children seem to have similar gut issues to your Tom. At least, scanning it, I see they have...
Wyndie
wyndie_mileski
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Sep 1, 2006
11:43 am

Wyndie and Suzanne, I can relate very much to both of you with feeling like I am going in circles with candida, should I chelate, etc. I just got back some...
jjcox22
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Sep 2, 2006
1:58 am

It's something I've looked into, but haven't pursued. If it's what I'm thinking of, sublingual drops are a form of provocative neutralization. This can be done...
szmidford@...
iverus
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Sep 7, 2006
2:44 pm

I wonder how to find a practitioner who does this? Is this was Dr. Layton in Towson, MD does? I like his website: www.allergyconnection.com, but I think it...
Jenny Kalis
j_kalis
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Sep 7, 2006
3:58 pm

Layton also does sublingual secretin rob's mom ... From: foodallergyautism@yahoogroups.com [mailto:foodallergyautism@yahoogroups.com] On Behalf Of ...
E Sweet
halesweetser
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Sep 8, 2006
3:16 pm

Dr. Layton does this, and there's a doctor in South Carolina who has a good reputation who does it. Last year I posted a question about this on CK2, and got a...
szmidford@...
iverus
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Sep 7, 2006
4:22 pm

I know you're busy but I need your help if you have a minute. We recently discovered my mother has an anaphylactic allergy to corn. She's doing well avoiding...
Wyndie
wyndie_mileski
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Jan 13, 2009
3:52 am

Hi Wyndie! I am sooo sorry I haven't answered sooner. I was scheduled for surgery and then got very sick, and haven't really been on the computer much. Just so...
Suzanne
iverus
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Jan 25, 2009
2:41 am

I also thought I'd toss out some brands that are good to check out. Most of these are corn-free, and they use non-corn capsules. She'll want to make sure about...
Suzanne
iverus
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Jan 25, 2009
2:39 pm

JThank you for all this information Suzanne. I will email you privately. :) Wyndie ... surgery and then got very sick, and haven't really been on the ...
Wyndie
wyndie_mileski
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Jan 26, 2009
3:53 pm

Wyndie, Hopefully Suzanne can give you some good ideas. As you know, she is the expert on this corn issue. I have some additonal ideas. Dye free Motrin...
Jenny Kalis
j_kalis
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Jan 13, 2009
5:10 am
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