She takes calcium citrate with her meals (except the pm meal when
she gets her minerals... including zinc). I forgot about Vit C
causing oxalates... we give that alot. I will definately cut down -
thanks!

I like the K2 protocol also. I hate to limit foods any more than
necessary if it's possible to give something with food to make it
less harmful. I have noticed that the kids teeth have really
improved on this protocol. Nathan used to get horrible excessive
calcium buildup on the back of his teeth. Like, DAYS after a
thorough dental cleaning, it would be horrible. Since starting K2,
that has completely gone away and both the big kids teeth look
better. Chrystine's teeth used to be translucent and they aren't
anymore. I have also noticed Faith goes thru "spells" of acidic
diarrhea, I think she's dumping oxalates b/c I see no other reason
for it, except of course, the standard "probably allergic to what
she just ate" issue. ;)

I have a friend who does the LOD on herself (she's almost 50) and
she's seeing HUGE results in her physical symptoms. She had late
onset autism (age 40) and has done all the same things we do to
recover our kids. The oxalates are the last lingering problem she's
struggled with and she's really responded well to the LOD. I don't
know that we could do that with our kids though, b/c as you stated
earlier, it would significantly reduce calorie intake. But for her,
not needing to worry about that, has really helped her. I think
both protocols have good and bad; I just personally prefer not to
limit food.

Thanks for your encouragement Suzanne!!

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Well, you're doing a lot of the right things already, so I think
if you just limit oxalates a bit more that will help. Do you give
calcium before meals or in foods? That helps a lot, the calcium
grabs the oxalates and escorts them out of the gut to the kidneys.
Also, be sure to limit vitamin C, that will elevate oxalates all by
itself.
>
> In all, I prefer the Vitamin K protocol to the low óxalate diet as
a way to control oxalates, but I can't say I am very far into it
myself, just because I don't have time these days.
>
> Is anyone else on the list using either of these 2 diets, or parts
of them? What do folks think about them?
>
> Suzanne
>
> Sent from my Verizon Wireless BlackBerry
>
> -----Original Message-----
> From: "Wyndie" <mileski5@...>
>
> Date: Sat, 09 Aug 2008 22:12:05
> To: <foodallergyautism@yahoogroups.com>
> Subject: [foodallergyautism] Re: Ketotifen
>
>
> Hey Suzanne, I have looked into oxalates and she does have
elevated
> levels. She takes Vit K2, VSL #3 and calcium citrate to combat
the
> oxalates but I really don't think we do enough. Honestly all our
> foods are high oxalates. We eat tons of leafy greens. I am STILL
> working on a rotation diet (hangs head in shame); I just really
> struggle with the specifics! I hadn't put 2 and 2 together with
the
> oxalates/kidney function. That makes alot of sense! I will
> continue tweaking my rotation diet and see if I can see clearly to
> deal with the oxalates.
>
> Thank you so much for that info. Sometimes I forget about the
> obvious. :)
>
> Wyndie
>
> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
> >
> > Wyndie,
> > Are you looking at oxalate issues? Quinoa is extremely high
> oxalate, which can affect kidney function. Just a thought.
Oxalates
> are hypothesized to increase intestinal permeability also, which
is
> leaky gut... Allergies. That's just Susan Owens' theory, but we
have
> seen some improvements with allergies when we control oxalates. I
> know you are very limited on foods, but you may want to think
about
> reducing total oxalate intake on a day-by-day basis, which might
> help while not completely eliminating quinoa. A strict low oxalate
> diet is very hard to do, so I'm not suggesting that, for most of
us
> it would be too calorie restrictive.
> >
> > Suzanne
> >
> > Sent from my Verizon Wireless BlackBerry
> >
> > -----Original Message-----
> > From: "Wyndie" <mileski5@>
> >
> > Date: Thu, 07 Aug 2008 04:29:17
> > To: <foodallergyautism@yahoogroups.com>
> > Subject: [foodallergyautism] Re: Ketotifen
> >
> >
> > Wanted to update... the kids have been on ketotifen for 3-ish
> months
> > now. Things are looking good although I'm not seeing signs of
> being
> > able to add new foods very often. I'm impatient though...
> >
> > The heavy urination now comes back on occassion and I've
narrowed
> it
> > down to 1) food allergy and 2) blood sugar problems. Faith will
> wet
> > heavily if she eats quinoa often. I started giving her chromium
> > picolinate for the glucose regulation and that seems to have
> > helped. Some nights she still wets thru her diaper several
times
> > but it's not a nightly thing anymore.
> >
> > Still wishing for a magic cure for food allergies...as you can
all
> > relate. LOL I hope all of you are doing well and seeing
> > improvements of some sort!
> >
> > Wyndie
> >
> > --- In foodallergyautism@yahoogroups.com, "eswee" <eswee@> wrote:
> > >
> > > Wyndie,
> > >
> > > Tell me about the heavy urination. My child is also in the
same
> > boat. I
> > > can't understand why they don't all have to urinate what they
> take
> > in- so
> > > how is it that the amount of nite urination can be reduced by
> > anything but
> > > urinating. I am very tired of changing sheets so I have been
> > wondering
> > > about this urination issue.
> > >
> > > How is the Ketotifen different than gastrochrom? I think that
> is
> > what its
> > > called- Suzanne and I both tried it.
> > >
> > > Thanks
> > >
> > > Rob's mom
> > >
> > >
> > >
> > >_____
> > >
> > > From: foodallergyautism@yahoogroups.com
> > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > szmidford@
> > > Sent: Monday, April 21, 2008 10:07 PM
> > > To: foodallergyautism@yahoogroups.com
> > > Subject: Re: [foodallergyautism] Ketotifen
> > >
> > >
> > >
> > > Wow! I have never heard of this. Do you have any med
information
> > on it? Any
> > > links? What kind of a med is it? Is it new? Who spoke about it
> at
> > the DAN?
> > >
> > > Suzanne
> > >
> > > Sent from my Verizon Wireless BlackBerry
> > >
> > > -----Original Message-----
> > > From: "Wyndie" <HYPERLINK
> > > "mailto:mileski5%40bellsouth.net"mileski5@>
> > >
> > > Date: Tue, 22 Apr 2008 01:32:59
> > > To:HYPERLINK
> > > "mailto:foodallergyautism%40yahoogroups.com"foodallergyautism@
> > yahoogroups.-
> > > com
> > > Subject: [foodallergyautism] Ketotifen
> > >
> > >
> > > Wanted to give you guys some info... Last week, Faith lost
every
> > > food. She was reacting to everything; supplements, food,
water,
> > > air. I know you guys know how that goes. I had already heard a
> > > little about ketotifen from Dr. Woeller and again at the DAN!
> > > conference, so my doc wrote an RX for it and it got here 3
days
> > > later (compounding pharmacy in WA). This stuff is AWESOME!!!!
> It's
> > > not convenient to give (30 minutues before meals) but it works
> > > well. Basically it's an anti-histamine for the stomach. It
stops
> > > the stomach from reacting to the food; thereby reducing the
> > > inflammation and if taken long term, is supposed to heal leaky
> > > guts.
> > >
> > > After 1 day of being on this stuff, Faith slept thru the night
> > > without waking up screaming about her tummy. She's been waking
> in
> > > pain every night for months! She also has been an extremely
> heavy
> > > urinator (to the point that I have to change her dipe every
few
> > > hours at night) and that has stopped too!!! Now she has a
normal
> > > amount of urine and she feels better. And this is just the
> > > beginning. They say it takes about 3 weeks to get the full
> effects
> > > and today is day 3; so I look forward to her progress. I
expect
> > her
> > > to be on it for a year at least as it will likely take that
long
> > for
> > > her gut to heal, but wanted to pass this on b/c I know there
are
> > > several on here that are constantly reacting. I don't like
RX's
> > > much, but this one seems like the rare good one. :)
> > >
> > > I called my doc today and had him call in scripts for the big
> kids
> > > too. So we'll see what it does for them. I'll let you know if
> > > miracles occur.
> > >
> > > Wyndie
> > >
> >
>