S
we're at ICDRC. our metametrix came back positive for parasites but no specific
kind. Or Dan is going to put us on what I think you had Tom on- Alinia. Did
you take for thirty days 1/2 tab BID. pharmacy says max ped dose is 3 days
bid. our Dan says he wants to do a week. our homeopathic colon expert says you
have to kill the parasites through the full larvae, life, birth cycle or any any
anti-parasite med won't get rid of the parasites. I have consult with our Dan
early Monday morning before we fly out. would love for you to email me back or
call me to tell me what you had Tom on.
thanks
Ellouise
---- szmidford@... wrote:
> Well, you're doing a lot of the right things already, so I think if you just
limit oxalates a bit more that will help. Do you give calcium before meals or in
foods? That helps a lot, the calcium grabs the oxalates and escorts them out of
the gut to the kidneys. Also, be sure to limit vitamin C, that will elevate
oxalates all by itself.
>
> In all, I prefer the Vitamin K protocol to the low �xalate diet as a way to
control oxalates, but I can't say I am very far into it myself, just because I
don't have time these days.
>
> Is anyone else on the list using either of these 2 diets, or parts of them?
What do folks think about them?
>
> Suzanne
>
> Sent from my Verizon Wireless BlackBerry
>
> -----Original Message-----
> From: "Wyndie" <mileski5@...>
>
> Date: Sat, 09 Aug 2008 22:12:05
> To: <foodallergyautism@yahoogroups.com>
> Subject: [foodallergyautism] Re: Ketotifen
>
>
> Hey Suzanne, I have looked into oxalates and she does have elevated
> levels. She takes Vit K2, VSL #3 and calcium citrate to combat the
> oxalates but I really don't think we do enough. Honestly all our
> foods are high oxalates. We eat tons of leafy greens. I am STILL
> working on a rotation diet (hangs head in shame); I just really
> struggle with the specifics! I hadn't put 2 and 2 together with the
> oxalates/kidney function. That makes alot of sense! I will
> continue tweaking my rotation diet and see if I can see clearly to
> deal with the oxalates.
>
> Thank you so much for that info. Sometimes I forget about the
> obvious. :)
>
> Wyndie
>
> --- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
> >
> > Wyndie,
> > Are you looking at oxalate issues? Quinoa is extremely high
> oxalate, which can affect kidney function. Just a thought. Oxalates
> are hypothesized to increase intestinal permeability also, which is
> leaky gut... Allergies. That's just Susan Owens' theory, but we have
> seen some improvements with allergies when we control oxalates. I
> know you are very limited on foods, but you may want to think about
> reducing total oxalate intake on a day-by-day basis, which might
> help while not completely eliminating quinoa. A strict low oxalate
> diet is very hard to do, so I'm not suggesting that, for most of us
> it would be too calorie restrictive.
> >
> > Suzanne
> >
> > Sent from my Verizon Wireless BlackBerry
> >
> > -----Original Message-----
> > From: "Wyndie" <mileski5@...>
> >
> > Date: Thu, 07 Aug 2008 04:29:17
> > To: <foodallergyautism@yahoogroups.com>
> > Subject: [foodallergyautism] Re: Ketotifen
> >
> >
> > Wanted to update... the kids have been on ketotifen for 3-ish
> months
> > now. Things are looking good although I'm not seeing signs of
> being
> > able to add new foods very often. I'm impatient though...
> >
> > The heavy urination now comes back on occassion and I've narrowed
> it
> > down to 1) food allergy and 2) blood sugar problems. Faith will
> wet
> > heavily if she eats quinoa often. I started giving her chromium
> > picolinate for the glucose regulation and that seems to have
> > helped. Some nights she still wets thru her diaper several times
> > but it's not a nightly thing anymore.
> >
> > Still wishing for a magic cure for food allergies...as you can all
> > relate. LOL I hope all of you are doing well and seeing
> > improvements of some sort!
> >
> > Wyndie
> >
> > --- In foodallergyautism@yahoogroups.com, "eswee" <eswee@> wrote:
> > >
> > > Wyndie,
> > >
> > > Tell me about the heavy urination. My child is also in the same
> > boat. I
> > > can't understand why they don't all have to urinate what they
> take
> > in- so
> > > how is it that the amount of nite urination can be reduced by
> > anything but
> > > urinating. I am very tired of changing sheets so I have been
> > wondering
> > > about this urination issue.
> > >
> > > How is the Ketotifen different than gastrochrom? I think that
> is
> > what its
> > > called- Suzanne and I both tried it.
> > >
> > > Thanks
> > >
> > > Rob's mom
> > >
> > >
> > >
> > >_____
> > >
> > > From: foodallergyautism@yahoogroups.com
> > > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> > szmidford@
> > > Sent: Monday, April 21, 2008 10:07 PM
> > > To: foodallergyautism@yahoogroups.com
> > > Subject: Re: [foodallergyautism] Ketotifen
> > >
> > >
> > >
> > > Wow! I have never heard of this. Do you have any med information
> > on it? Any
> > > links? What kind of a med is it? Is it new? Who spoke about it
> at
> > the DAN?
> > >
> > > Suzanne
> > >
> > > Sent from my Verizon Wireless BlackBerry
> > >
> > > -----Original Message-----
> > > From: "Wyndie" <HYPERLINK
> > > "mailto:mileski5%40bellsouth.net"mileski5@>
> > >
> > > Date: Tue, 22 Apr 2008 01:32:59
> > > To:HYPERLINK
> > > "mailto:foodallergyautism%40yahoogroups.com"foodallergyautism@
> > yahoogroups.-
> > > com
> > > Subject: [foodallergyautism] Ketotifen
> > >
> > >
> > > Wanted to give you guys some info... Last week, Faith lost every
> > > food. She was reacting to everything; supplements, food, water,
> > > air. I know you guys know how that goes. I had already heard a
> > > little about ketotifen from Dr. Woeller and again at the DAN!
> > > conference, so my doc wrote an RX for it and it got here 3 days
> > > later (compounding pharmacy in WA). This stuff is AWESOME!!!!
> It's
> > > not convenient to give (30 minutues before meals) but it works
> > > well. Basically it's an anti-histamine for the stomach. It stops
> > > the stomach from reacting to the food; thereby reducing the
> > > inflammation and if taken long term, is supposed to heal leaky
> > > guts.
> > >
> > > After 1 day of being on this stuff, Faith slept thru the night
> > > without waking up screaming about her tummy. She's been waking
> in
> > > pain every night for months! She also has been an extremely
> heavy
> > > urinator (to the point that I have to change her dipe every few
> > > hours at night) and that has stopped too!!! Now she has a normal
> > > amount of urine and she feels better. And this is just the
> > > beginning. They say it takes about 3 weeks to get the full
> effects
> > > and today is day 3; so I look forward to her progress. I expect
> > her
> > > to be on it for a year at least as it will likely take that long
> > for
> > > her gut to heal, but wanted to pass this on b/c I know there are
> > > several on here that are constantly reacting. I don't like RX's
> > > much, but this one seems like the rare good one. :)
> > >
> > > I called my doc today and had him call in scripts for the big
> kids
> > > too. So we'll see what it does for them. I'll let you know if
> > > miracles occur.
> > >
> > > Wyndie
> > >
> >
>
>
>