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Ketotifen   Message List  
Reply | Forward Message #1435 of 1601 |
Re: [foodallergyautism] Re: Ketotifen

Well, you're doing a lot of the right things already, so I think if you just limit oxalates a bit more that will help. Do you give calcium before meals or in foods? That helps a lot, the calcium grabs the oxalates and escorts them out of the gut to the kidneys. Also, be sure to limit vitamin C, that will elevate oxalates all by itself.

In all, I prefer the Vitamin K protocol to the low óxalate diet as a way to control oxalates, but I can't say I am very far into it myself, just because I don't have time these days.

Is anyone else on the list using either of these 2 diets, or parts of them? What do folks think about them?

Suzanne

Sent from my Verizon Wireless BlackBerry


From: "Wyndie" <mileski5@...>
Date: Sat, 09 Aug 2008 22:12:05 -0000
To: <foodallergyautism@yahoogroups.com>
Subject: [foodallergyautism] Re: Ketotifen

Hey Suzanne, I have looked into oxalates and she does have elevated
levels. She takes Vit K2, VSL #3 and calcium citrate to combat the
oxalates but I really don't think we do enough. Honestly all our
foods are high oxalates. We eat tons of leafy greens. I am STILL
working on a rotation diet (hangs head in shame); I just really
struggle with the specifics! I hadn't put 2 and 2 together with the
oxalates/kidney function. That makes alot of sense! I will
continue tweaking my rotation diet and see if I can see clearly to
deal with the oxalates.

Thank you so much for that info. Sometimes I forget about the
obvious. :)

Wyndie

--- In foodallergyautism@yahoogroups.com, szmidford@... wrote:
>
> Wyndie,
> Are you looking at oxalate issues? Quinoa is extremely high
oxalate, which can affect kidney function. Just a thought. Oxalates
are hypothesized to increase intestinal permeability also, which is
leaky gut... Allergies. That's just Susan Owens' theory, but we have
seen some improvements with allergies when we control oxalates. I
know you are very limited on foods, but you may want to think about
reducing total oxalate intake on a day-by-day basis, which might
help while not completely eliminating quinoa. A strict low oxalate
diet is very hard to do, so I'm not suggesting that, for most of us
it would be too calorie restrictive.
>
> Suzanne
>
> Sent from my Verizon Wireless BlackBerry
>
> -----Original Message-----
> From: "Wyndie" <mileski5@...>
>
> Date: Thu, 07 Aug 2008 04:29:17
> To: <foodallergyautism@yahoogroups.com>
> Subject: [foodallergyautism] Re: Ketotifen
>
>
> Wanted to update... the kids have been on ketotifen for 3-ish
months
> now. Things are looking good although I'm not seeing signs of
being
> able to add new foods very often. I'm impatient though...
>
> The heavy urination now comes back on occassion and I've narrowed
it
> down to 1) food allergy and 2) blood sugar problems. Faith will
wet
> heavily if she eats quinoa often. I started giving her chromium
> picolinate for the glucose regulation and that seems to have
> helped. Some nights she still wets thru her diaper several times
> but it's not a nightly thing anymore.
>
> Still wishing for a magic cure for food allergies...as you can all
> relate. LOL I hope all of you are doing well and seeing
> improvements of some sort!
>
> Wyndie
>
> --- In foodallergyautism@yahoogroups.com, "eswee" <eswee@> wrote:
> >
> > Wyndie,
> >
> > Tell me about the heavy urination. My child is also in the same
> boat. I
> > can't understand why they don't all have to urinate what they
take
> in- so
> > how is it that the amount of nite urination can be reduced by
> anything but
> > urinating. I am very tired of changing sheets so I have been
> wondering
> > about this urination issue.
> >
> > How is the Ketotifen different than gastrochrom? I think that
is
> what its
> > called- Suzanne and I both tried it.
> >
> > Thanks
> >
> > Rob's mom
> >
> >
> >
> >_____
> >
> > From: foodallergyautism@yahoogroups.com
> > [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
> szmidford@
> > Sent: Monday, April 21, 2008 10:07 PM
> > To: foodallergyautism@yahoogroups.com
> > Subject: Re: [foodallergyautism] Ketotifen
> >
> >
> >
> > Wow! I have never heard of this. Do you have any med information
> on it? Any
> > links? What kind of a med is it? Is it new? Who spoke about it
at
> the DAN?
> >
> > Suzanne
> >
> > Sent from my Verizon Wireless BlackBerry
> >
> > -----Original Message-----
> > From: "Wyndie" <HYPERLINK
> > "mailto:mileski5%40bellsouth.net"mileski5@>
> >
> > Date: Tue, 22 Apr 2008 01:32:59
> > To:HYPERLINK
> > "mailto:foodallergyautism%40yahoogroups.com"foodallergyautism@
> yahoogroups.-
> > com
> > Subject: [foodallergyautism] Ketotifen
> >
> >
> > Wanted to give you guys some info... Last week, Faith lost every
> > food. She was reacting to everything; supplements, food, water,
> > air. I know you guys know how that goes. I had already heard a
> > little about ketotifen from Dr. Woeller and again at the DAN!
> > conference, so my doc wrote an RX for it and it got here 3 days
> > later (compounding pharmacy in WA). This stuff is AWESOME!!!!
It's
> > not convenient to give (30 minutues before meals) but it works
> > well. Basically it's an anti-histamine for the stomach. It stops
> > the stomach from reacting to the food; thereby reducing the
> > inflammation and if taken long term, is supposed to heal leaky
> > guts.
> >
> > After 1 day of being on this stuff, Faith slept thru the night
> > without waking up screaming about her tummy. She's been waking
in
> > pain every night for months! She also has been an extremely
heavy
> > urinator (to the point that I have to change her dipe every few
> > hours at night) and that has stopped too!!! Now she has a normal
> > amount of urine and she feels better. And this is just the
> > beginning. They say it takes about 3 weeks to get the full
effects
> > and today is day 3; so I look forward to her progress. I expect
> her
> > to be on it for a year at least as it will likely take that long
> for
> > her gut to heal, but wanted to pass this on b/c I know there are
> > several on here that are constantly reacting. I don't like RX's
> > much, but this one seems like the rare good one. :)
> >
> > I called my doc today and had him call in scripts for the big
kids
> > too. So we'll see what it does for them. I'll let you know if
> > miracles occur.
> >
> > Wyndie
> >
>



Sun Aug 10, 2008 12:11 am

iverus
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Forward
Message #1435 of 1601 |
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Wanted to give you guys some info... Last week, Faith lost every food. She was reacting to everything; supplements, food, water, air. I know you guys know...
Wyndie
wyndie_mileski
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Apr 22, 2008
1:33 am

Wow! I have never heard of this. Do you have any med information on it? Any links? What kind of a med is it? Is it new? Who spoke about it at the DAN? ...
szmidford@...
iverus
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Apr 22, 2008
3:06 am

Wyndie, Tell me about the heavy urination. My child is also in the same boat. I can’t understand why they don’t all have to urinate what they take in- so...
eswee
halesweetser
Offline Send Email
Apr 22, 2008
4:03 am

All liquid taken in is released in different ways; we sweat it out, breathe it out, poop it out... you know? So heavy and excessive urination that happens...
Wyndie
wyndie_mileski
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Apr 22, 2008
3:50 pm

Gastrocrom did nothing for us, but this may be distinct enough it's worth a try. If anyone has a chance to look it up before I do, please post what you find. ...
szmidford@...
iverus
Offline Send Email
Apr 22, 2008
5:59 pm

Wanted to update... the kids have been on ketotifen for 3-ish months now. Things are looking good although I'm not seeing signs of being able to add new foods...
Wyndie
wyndie_mileski
Offline Send Email
Aug 7, 2008
4:29 am

Wyndie, Are you looking at oxalate issues? Quinoa is extremely high oxalate, which can affect kidney function. Just a thought. Oxalates are hypothesized to...
szmidford@...
iverus
Offline Send Email
Aug 8, 2008
8:49 pm

Hey Suzanne, I have looked into oxalates and she does have elevated levels. She takes Vit K2, VSL #3 and calcium citrate to combat the oxalates but I really...
Wyndie
wyndie_mileski
Offline Send Email
Aug 9, 2008
10:12 pm

Well, you're doing a lot of the right things already, so I think if you just limit oxalates a bit more that will help. Do you give calcium before meals or in...
szmidford@...
iverus
Offline Send Email
Aug 10, 2008
12:11 am

S we're at ICDRC. our metametrix came back positive for parasites but no specific kind. Or Dan is going to put us on what I think you had Tom on- Alinia....
eswee@...
halesweetser
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Aug 10, 2008
2:52 am

Ellousie, Not Suzanne, but your homepath is correct, you have to treat thru the whole larve, life/birth, adult cycle. Wyndie ... no specific kind. Or Dan is...
Wyndie
wyndie_mileski
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Aug 10, 2008
9:06 pm

Our parasites were actually amoebas, which are quite a different type than worms or "higher" life forms, so I really can't say how your DAN's recommended...
szmidford@...
iverus
Offline Send Email
Aug 10, 2008
9:40 pm

She takes calcium citrate with her meals (except the pm meal when she gets her minerals... including zinc). I forgot about Vit C causing oxalates... we give...
Wyndie
wyndie_mileski
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Aug 10, 2008
9:05 pm

I don't have literature online. I have some paper stuff here at the house. LOL Dr. Woeller wrote a paper I picked up at DAN!; I did not hear him speak....
Wyndie
wyndie_mileski
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Apr 22, 2008
3:42 pm

All, Ketotifen is becoming quite popular with the eosinophilia kids. I first read about it in the yahoo group on eosinophillic esophagitis (my son has this...
santonapal
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Apr 25, 2008
8:50 pm

Thank you Santona! Please keep us posted with what you learn. I haven't the time to keep up with the EE groups, but I value what nuggets can be gleaned from...
Suzanne Midford
iverus
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Apr 25, 2008
9:44 pm

Santona, somehow I missed this message before. Did you end up giving it to your son? What did you see? How about you Suzanne? Did you use it to? Wyndie ... ...
Wyndie
wyndie_mileski
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Aug 9, 2008
10:04 pm
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