Santona, somehow I missed this message before. Did you end up
giving it to your son? What did you see?

How about you Suzanne? Did you use it to?

Wyndie

--- In foodallergyautism@yahoogroups.com, "Suzanne Midford"
<szmidford@...> wrote:
>
> Thank you Santona! Please keep us posted with what you learn. I
haven't the time to keep up with the EE groups, but I value what
nuggets can be gleaned from them. Jenny sometimes keeps us updated
on what's going on in the EE world too. I believe most of our super-
allergy kids do have some levels of EE, and the DAN community has
not really dug into this particular set of diseases, so we need to
do our own research and share what we learn, hopefully leading the
DAN docs to some insights on EE and its treatment. I do notice
that Dr. Krigsman seems to be prescribing elemental formula more
frequently these days, rather than saving it just for the kids who
have already lost most foods.
>
> I plan to ask our DAN about ketotifen at our next consult, too.
>
> How is your son?
>
> Suzanne
>
> --
> "Respect and value your instincts about your child – never ignore
them, no matter what anyone tells you. Holding a loved one's life in
your hands means that you have to accept a position of power even
when you
> don't want it. You must become an advocate for your child, even if
it means standing alone against the world." - Karen Siff Exhorn
>
>
> -------------- Original message from "santonapal" <pals@...>: -----
---------
>
> All,
>
> Ketotifen is becoming quite popular with the eosinophilia kids. I
> first read about it in the yahoo group on eosinophillic
esophagitis
> (my son has this dx) a while back. Now there are many posts and 2
not
> so good papers in their files. I am going to enquire to see if the
> mainstream EE clinicians are prescribing it as I thought that it
was
> not avaialble in North America. None of our Drs. have reccomended
it
> thus far but given the growing positive response I think I should
ask
> about it for my son.
>