Wanted to update... the kids have been on ketotifen for 3-ish months
now. Things are looking good although I'm not seeing signs of being
able to add new foods very often. I'm impatient though...

The heavy urination now comes back on occassion and I've narrowed it
down to 1) food allergy and 2) blood sugar problems. Faith will wet
heavily if she eats quinoa often. I started giving her chromium
picolinate for the glucose regulation and that seems to have
helped. Some nights she still wets thru her diaper several times
but it's not a nightly thing anymore.

Still wishing for a magic cure for food allergies...as you can all
relate. LOL I hope all of you are doing well and seeing
improvements of some sort!

Wyndie

--- In foodallergyautism@yahoogroups.com, "eswee" <eswee@...> wrote:
>
> Wyndie,
>
> Tell me about the heavy urination. My child is also in the same
boat. I
> can't understand why they don't all have to urinate what they take
in- so
> how is it that the amount of nite urination can be reduced by
anything but
> urinating. I am very tired of changing sheets so I have been
wondering
> about this urination issue.
>
> How is the Ketotifen different than gastrochrom? I think that is
what its
> called- Suzanne and I both tried it.
>
> Thanks
>
> Rob's mom
>
>
>
> _____
>
> From: foodallergyautism@yahoogroups.com
> [mailto:foodallergyautism@yahoogroups.com] On Behalf Of
szmidford@...
> Sent: Monday, April 21, 2008 10:07 PM
> To: foodallergyautism@yahoogroups.com
> Subject: Re: [foodallergyautism] Ketotifen
>
>
>
> Wow! I have never heard of this. Do you have any med information
on it? Any
> links? What kind of a med is it? Is it new? Who spoke about it at
the DAN?
>
> Suzanne
>
> Sent from my Verizon Wireless BlackBerry
>
> -----Original Message-----
> From: "Wyndie" <HYPERLINK
> "mailto:mileski5%40bellsouth.net"mileski5@...>
>
> Date: Tue, 22 Apr 2008 01:32:59
> To:HYPERLINK
> "mailto:foodallergyautism%40yahoogroups.com"foodallergyautism@-
yahoogroups.-
> com
> Subject: [foodallergyautism] Ketotifen
>
>
> Wanted to give you guys some info... Last week, Faith lost every
> food. She was reacting to everything; supplements, food, water,
> air. I know you guys know how that goes. I had already heard a
> little about ketotifen from Dr. Woeller and again at the DAN!
> conference, so my doc wrote an RX for it and it got here 3 days
> later (compounding pharmacy in WA). This stuff is AWESOME!!!! It's
> not convenient to give (30 minutues before meals) but it works
> well. Basically it's an anti-histamine for the stomach. It stops
> the stomach from reacting to the food; thereby reducing the
> inflammation and if taken long term, is supposed to heal leaky
> guts.
>
> After 1 day of being on this stuff, Faith slept thru the night
> without waking up screaming about her tummy. She's been waking in
> pain every night for months! She also has been an extremely heavy
> urinator (to the point that I have to change her dipe every few
> hours at night) and that has stopped too!!! Now she has a normal
> amount of urine and she feels better. And this is just the
> beginning. They say it takes about 3 weeks to get the full effects
> and today is day 3; so I look forward to her progress. I expect
her
> to be on it for a year at least as it will likely take that long
for
> her gut to heal, but wanted to pass this on b/c I know there are
> several on here that are constantly reacting. I don't like RX's
> much, but this one seems like the rare good one. :)
>
> I called my doc today and had him call in scripts for the big kids
> too. So we'll see what it does for them. I'll let you know if
> miracles occur.
>
> Wyndie
>
>
>
>
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