Hi Tasha,
Gosh, you're in Alaska - I hope the trip to see a DAN doc was worth
it! Who did you see, and were they helpful? There used to be airlines
that had peanut-free flights, might be worth checking out if peanut's
one of your son's worse reactions. I'm sure you'd still have to
cover/wipe everything. A contact sensitivity makes everything so
hard. Are airborne allergens a problem too?

Antifungals have been helpful for Tom. His yeast problem is severe.
We rotate yeast meds - Dr. Mumper uses a 6-monht Sid Baker protocol
of rotating antifungals. Tom's had Nystatin, Diflucan, Sporanox,
Ketoconazole. He's responding to ketoconazole best after our last CSA
test showed which yeast strains he had and which meds targeted that
strain. He's been on antifingals for the better part of the past 2
years, and whenever we stop, he regresses. His liver tests have
always been fine, and Dr. Mumper is content to keep him on
ketoconazole indefinitely. We do liver tests every 2 months.

As for charcoal, I don't know if I'd risk it with a cellulose
sensitivity. Tom handles the die-off okay, and it usually doesn't
last more than 2-3 days. At the worst it's like a mild flu. We've
been able to treat any fever over 102* with compounded ibuprofen
suppositories (our pharmacy will do them in any number of carriers,
we settled on cocoa butter since Tom tolerates palm oil - so far so
good).

I am curious - what are "tri-salts" and what do they do?

Suzanne

--- In foodallergyautism@yahoogroups.com, "akgazelles"
<akgazelles@...> wrote:
>
> Thanks Suzanne and Santona!
>
> I have been "off-line for a few weeks because we have been
traveling
> to see two new DAN doctors out of state. Really fun when your
child
> is formula fed only and reacts to the slightest residue of food
left
> anywhere (airport, airplane, hotel, etc.)!! Anyway we survived.
>
> I wanted to use the activiated charcoal for yeast toxins, but also
I
> thought it might help mitigate his GI reactions. A long shot
maybe,
> but I wanted to give it a try.
>
> One of the new docs thinks we should really focus on using a
systemic
> anti-fungal (fluconazole) to knock out the deeply buried yeast that
> is keeping his gut leaky. He woudl like us to have something like
> activiated charcoal on hand for the yeast die-off. I agree it
would
> be nice if we had something...
>
> But now I am a little nervous reading Suzanne's description
relating
> to how the charcoal is derived. And no, my son can't tolerate any
> cellulose, let alone magnesium sterate! Our new doc gave us "tri-
> salts" to try as well. Can't remember right now exactly which
three
> salts are in it, but it is supposed to be pure and similar to
> activated charcoal.
>
> I will let you know how it goes!
>
> Thanks again for the help and support,
>
> Tasha
>
> --- In foodallergyautism@yahoogroups.com, szmidford@ wrote:
> >
> > Hi Tasha,
> > I have never tried charcoal, as my son is about as sensitive as
> yours is. I have always wondered. I have chosen not to use
charcoal
> just because my son's yeast die-off reactions are short and easy to
> manage (and I'm always curious to know how bad his yeast is, and
the
> severity of the die-off is one indication), but if they were worse,
I
> think I'd give it a shot. Here are my thoughts about it:
> >
> > - Pure activated charcoal most often comes from a tree source,
> similar to how cellulose is derived. Magnesium stearate is also
often
> derived from a tree source- typically cottonwood. If your child
> tolerates cellulose or mag stearate in supplements/medications, I
> would think that charcoal is a fairly safe bet.
> >
> > - How severe are your son's reactions? Is the cost to trying
> charcoal low? Could he recover pretty quickly with little lasting
> effect?
> >
> > I have been told that "pure" charcoal (no fillers or other
> ingredients) is available at any drugstore. I have not checked this
> out though.
> >
> > If you try it, let us know how he reacts, will you? Our children
> are unfortunately our only laboratories, and often the response of
> one very sensitive child can help other parents decide whether to
try
> the supplement with their child.
> >
> > Good luck!
> > Suzanne
> >
> > -------------- Original message from "akgazelles"
> <akgazelles@>: --------------
> >
> >
> > Does anyone on this list use pure activated charcoal? My son is
> > hypersensitive to everything. He essentially only tolerates pure
> > vitamins, minerals, amino acids, etc. No fillers, additives or
> herbs.
> > I am hoping to find a version that has "just" activated charcoal.
> Any
> > ideas?
> >
> > Thanks, Tasha
> >
>