Hi all,our daughter mercedes who is 7 had just been diagnosed with FHS we havent been told alot about this,we have been trying for 6 years to find what is...
vickyphillips@...
Jul 22, 2008 2:52 pm
396
Hello-- I'm back--- after TOO long of an absence. It's Deana SWAnson, still in North Carolina, but moved again. About puberty, again this is related to the...
littleflockfarm
littleflockfarm@...
Jun 19, 2007 11:36 pm
395
Hello families. I am writing from the National Birth Defects Center in Waltham MA, the office of Dr. Murray Feingold. As mentioned in the message posted by...
Hi, My name is Donna Newman and I have a 17 year old daughter with FHS. I have been blessed to get to know many of the other mothers,and fathers, through the...
Dear Sir/Madam, As you read this, I don't want you to feel sorry for me, because, I believe everyone will die someday. My name is Millah Khalid a merchant in...
kahlidmillah
milah_khalid@...
Dec 17, 2004 12:17 am
391
Hi there, I too am a mom of a Floating Harbor Syndrom child. My daughter is 16 years old. I would be delighted to share any info I have and/or experiences I...
I have a 4 year old child with floating harbor syndrome. And was hoping to share information with other parents or just get involved into a chat group. Thank...
mbernier72
mbernier72@...
Sep 7, 2004 12:49 pm
389
All the research ( which isn't very much) indicates that there is no effect on the life span of Floating Harbor children. As you are probably finding out, it...
Enright, James (N-ENS...
james.enright@...
Oct 27, 2003 8:57 pm
388
Hi .MY daughter is 20 years old and she was just diganost with FHS afew years ago dose anyone have any idea how long this childern live Ive not heard yet if...
Hi All I just wondered if everyone was aware that there is another very lively FHS group on yahoo? floating_harbor@yahoogroups.com I believe this list was our...
hi i am looking for any information. My daughter was diagnoss with floating harbor syndrome last August when she was 4 months old but we don't really know what...
off topic- but a bit humorous and interesting _______________________________________________________________ Saddam, Yasser and Osama need our LOVE, not war. ...
Don Schreiber
70402.2102@...
Mar 24, 2003 1:30 pm
384
floating_harbor_syndrome@yahoogroups.com ... Take control of your computer and online experience with this complete toolkit for Windows. In this one...
floating_harbor_syndr...
Mar 22, 2003 5:32 pm
383
It is to bad that this group is being targeted by these people. I am on another rare disorder list that is getting e-mails from the same people. Both groups...
[assawra] Armes de destructions massives d Israel http://groups.yahoo.com/group/palestinesissues/messagesearch?query=naz i Indeed, PALESTINE was, still and...
Joachim Martillo
ThorsProvoni@...
Mar 12, 2003 12:51 pm
381
http://www.batshalom.org/ ... From: Anna Cheetham [mailto:acheetham@...] Sent: 06 March 2003 17:36 To: Anna Cheetham Subject: Fw: Urgent email anti-war...
Christopher Leadbeater
CharlieChimp1@...
Mar 12, 2003 12:00 pm
380
Happy Imbeciles At War = _________________________________________________ International Action Alert Turkey has made history! Please join us in giving support...
Henry Lindner
hlindner1@...
Mar 4, 2003 4:11 am
379
to: floating_harbor_syndrome@yahoogroups.com We would like to remind you of this upcoming event. anti-usa day Date: Tuesday, March 4, 2003 Time: All Day ...
Sami Mashney
Sami@...
Mar 4, 2003 1:36 am
378
[assawra] Armes de destructions massives d Israel Former President Clinton says that he will "Die for Israel" so he has now openly shown his true colors. We...
Raja Mattar
rgmattar@...
Mar 2, 2003 10:47 am
377
http://www.batshalom.org/ What is it about the nature of Zionism, its racism, and its colonial policies that continues to escape the understanding of many...
Joseph Massad
jam25@...
Mar 1, 2003 4:48 am
376
floating_harbor_syndrome@yahoogroups.com ____________________________________________________________ "The underlying problem for the West is not Islamic ...
George
alksdjfhhfiuebfhiau@...
Feb 28, 2003 9:22 pm
375
Hi i am just replying to your emil i did send u one but havent heard back so not sure if u got it My name is Lyn and i have a son with FHS too so if you like...
l_leedham
l_leedham@...
Oct 11, 2002 7:25 am
374
I would like more information on the Floating Harbor syndrome. My 3 yr old son just got diagnosis!!! can't really find much information on it!!!!! HELP!!!! ...
Hey Lyn, I am just doing your story for the Autism Tasmania website and I thought I better include information about FHS. Well blow me down if your message...
gprobs
gprobertson@...
Sep 16, 2002 7:20 am
372
Hi Guys, I am not sure if this too late but i too have a child with FHS and i live in Tasmania, Australia. His name is Mitchell and was dx in 1998 with FHS and...
l_leedham
l_leedham@...
Aug 12, 2002 10:17 am
371
hi anne it is me rana thanku very much for writting me i am glad i fell like there is someone who knows what i am going though but no only that i feel like...
Hi Rana I am pleased that you contacted me. my daughter Rosy is 7 and she was diagnosed when she was four with fhs. she had, and still has the things that you...
hi my name is rana i to live in the south island in ch ch we r still waiting for a diagnosis for my 2 year old daughter tequela rose from what i have read up...
pebbles2162001
pebbles2162001@...
Jul 13, 2002 6:27 am
368
I have a son,Ryan aged 5, who was diagnosed with FHS, 3 years ago; we are in touch with another family here in UK, & also we are part of the American Support...
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