hi i am looking for any information. My daughter was diagnoss with
floating harbor syndrome last August when she was 4 months old but we
don't really know what it is and we never heard about it before she
know 14 months and only weights 12lbs. She had feeding tubes put in
her stomach and nose but seems she cant handle the food she would
throw it back up. We are also lucky if sleeps 20 minutes in 24 hours.
But I would like to know how they know she has it or how they
diagnioss it if anyone could help us that would be great. Thank-you
for this web site.