It is to bad that this group is being targeted by these people. I am on another rare disorder list that is getting e-mails from the same people. Both groups are loosing members which weren't many to start with. It is important that members understand that the messages are from someone who joins just to put the message on then unsubscribe. What can we do to stop this. With very few members and few messages everyone hear is important because were all hear for one reason to communicate with others who know a bit about Floating Harbor syndrome. I'm hear because I have a undiagnosed child and some one suggested FHS, so it is important for me to hear about other children with this. But with all that garbage no one is going to want to post or even stay in the group.

amy